loader from loading.io

Episode 34: Patient Advocacy: Living with Stage IV Metastatic Breast Cancer

DiepCJourney Podcast

Release Date: 06/14/2023

Episode 67: The Role of Social Media in the Breast Cancer Community show art Episode 67: The Role of Social Media in the Breast Cancer Community

DiepCJourney Podcast

What is it about social media that draws the breast cancer community together? We are going to explore this question with my guest, , consultant breast cancer surgeon and medical educator on social media under the name, @DrTashaG. We will look at the benefits, downfalls, information, and disinformation provided by various social media platforms on this episode of the . How can you find the right community that supports both your emotional and educational needs when each person is unique and there are distinct types of breast cancer? Why is it important for physicians to interact and be active...

info_outline
Episode 66: Wildfire Community: The Power of Story Telling in Breast Cancer show art Episode 66: Wildfire Community: The Power of Story Telling in Breast Cancer

DiepCJourney Podcast

In this episode of the I interview . She is the founder and Editor-in-Chief of . April has an extensive background in writing and landed her first memoir-based magazine cover story at 16. She worked for her college newspaper and then the local newspaper in Santa Cruz, The Sentinel, following graduation. During the tech boom of the early 2000s April worked “over the hill” from Santa Cruz in Silicon Valley. However, in 2012, in the midst of this career, April was diagnosed with Stage 3 breast cancer at age 35. Four years later, while struggling to “go back to normal” and find others in...

info_outline
Episode 65: Breast Reconstruction at Tucson Plastic Surgery show art Episode 65: Breast Reconstruction at Tucson Plastic Surgery

DiepCJourney Podcast

Are you aware of the value of the two-surgeon model in reconstructive microsurgery? Have you heard about the benefits to patients of ERAS (Enhanced Recovery after Surgery) protocol? I spoke with two board-certified plastic reconstructive surgeons who practice at to answer these questions and others on this episode of the . My guests are and . They met at the , a well-known yearly gathering of microsurgical specialists from around the world who present the latest techniques in flap surgeries. Their combined training in breast reconstruction microsurgery and aesthetic plastic surgery offers...

info_outline
Episode 64: Microsurgery and Fat Grafting in Breast Reconstruction show art Episode 64: Microsurgery and Fat Grafting in Breast Reconstruction

DiepCJourney Podcast

When you think about breast reconstruction do you only think about breast implants? If so, it is because many people are still choosing this option for reconstructing their breast after mastectomy. However, there are options. Using your own tissue is an option and the tissue, along with a blood source, can come from various parts of the body. Fat grafting to shape and form the breast is also an option many ask about but not all know about. This is our topic on this episode of the . My guest, , is a board-certified plastic and reconstructive surgeon practicing in Hopewell, New Jersey at the ....

info_outline
Episode 63: Sensation and Sensibility in Breast Reconstruction show art Episode 63: Sensation and Sensibility in Breast Reconstruction

DiepCJourney Podcast

Breast sensation, “sensibility,” is a topic I personally cannot talk enough about. Breast cancer patients want to be protected from burns. They want to feel the hugs from their children, grandchildren, partners, friends, and family. Sensibility refers to awareness, emotional response, and feeling so it makes perfect sense to use this word in our conversation on this episode of the . To be honest, the feeling of numbness that many feel after a mastectomy just feels odd. I speak from experience, and I listen to other survivors who tell me this. It felt odd for me, but I was fortunate to have...

info_outline
Episode 62: Flap Neurotization in Autologous Breast Reconstruction - A Systematic Review show art Episode 62: Flap Neurotization in Autologous Breast Reconstruction - A Systematic Review

DiepCJourney Podcast

This edition of the highlights a recently published paper in , an International Journal of Surgical Reconstruction. The title of the paper is: To our listeners, who may be patients, surgeons, or medical professionals we are going to explore the elements and details of this research paper and how it can be of benefit to you. I am pleased to have two returning guests who have collaborated across continents from Australia to the U.S. sharing their combined microsurgical skills to improve patient outcomes in sensate breasts. is an author of the paper and an internationally trained microsurgeon...

info_outline
Episode 61: Microsurgery, Lymphedema, Neurotized Breasts, and Robotics show art Episode 61: Microsurgery, Lymphedema, Neurotized Breasts, and Robotics

DiepCJourney Podcast

In this episode of the I am joined by another podcaster. What I am most excited about is that he is one of our international guests this year. We have known each other for some time. Not trying to age either one of us but I have enjoyed knowing him, having robust conversations, and learning so much about the world of plastic surgery and microsurgery from him. We will talk about these topics in the podcast in a cross-continental discussion with my guest . Notice I said, “Mister.” That is because he is a well-respected microsurgeon in the UK and rather than Dr. as we refer to physicians in...

info_outline
Episode 60: Credibility in the Noise - Social Media, Breast Reconstruction, and Your Experience show art Episode 60: Credibility in the Noise - Social Media, Breast Reconstruction, and Your Experience

DiepCJourney Podcast

Consider a young person who has been newly diagnosed with breast cancer. Add to the mix they are facing a mastectomy and exploring options for breast reconstruction. Let’s say they are someone who has grown up in the world of social media. The question arises, where do they connect and get their credible information? Breast reconstruction is a complex decisional process. Do they use a platform like TikTok based in thirty second increments or a more community-based platform like Meta/Facebook where patients can engage in more of a discussion about what they are facing after a horrible...

info_outline
Episode 59: A Breast Cancer Patient Intent on Finding Access to a DIEP Flap Surgeon show art Episode 59: A Breast Cancer Patient Intent on Finding Access to a DIEP Flap Surgeon

DiepCJourney Podcast

Access to medical care for those affected by breast cancer is crucial, and often life transformative. This personal story will give emphasis to the voice of an advocate, a woman of strength, and determined to find the best care available for her during her personal journey from diagnosis to recovery from reconstructive surgery. My guest on this episode of the is Dana Brown, a 54-year-old wife, mother, and educator. She has been married to her best friend and soulmate for 35 years. She was intent on finding a well-qualified microsurgeon to perform her DIEP flap breast reconstruction after...

info_outline
Special Episode 58: Fathers, Mentors, and Microsurgery show art Special Episode 58: Fathers, Mentors, and Microsurgery

DiepCJourney Podcast

This is a special episode of the DiepCJourney podcast. It is one of the most touching interviews I have done to date. Originally recorded during the pandemic as a , I searched through my audio archives hoping I might find it to repurpose the interview. Thankfully, you can now listen to the interview as a podcast. I added a special tribute at the beginning of the podcast to honor my own Father and share the intrinsic value and meaning of the necklace I wear. Next, I honor the mentor, , who changed the trajectory of my work in 2016 encouraging me to open . The interview is a tribute to his own...

info_outline
 
More Episodes

My guest today on the DiepCJourney podcast has a blog and website titled, No Half Measures, Living Out loud. 

2017 was a pivotal year in the life of my guest, Abigail Johnston. Early that year, while dual nursing her twin boys she felt a lump in her left breast. The next few months involved multiple appointments with radiologists, oncologists, and surgeons. Abigail was diagnosed with metastatic breast cancer. 

Abigail Johnston is a wife, mother, writer, educator, earned her JD after completing law school and is a patient advocate. She begins the interview by sharing her experience at the National AACR conference held in early 2023. She sat on a panel with the FDA speaking about the importance of overall survival as an important end point in clinical trials. With all the complexities on that topic, she felt the FDA worked hard to make sure her voice was heard.

Attending conferences allows her to meet other patient advocates and for Abigail and me, this is always one of the highlights of traveling to these meetings. We met in person in December of 2022 at the San Antonio Breast Cancer Symposium. As she says, “Those in person hugs, nothing is better, honestly.”

She talks about the idea of “finding a purpose after a serious trauma.” Abigail states that trauma changes you fundamentally as a human being. The question becomes, how do you carry that trauma? Advocacy is the way Abigail has found some purpose in “the derailment of her life.” It has become an overarching theme in her life.

This was a podcast interview that felt comfortable, informative, and one I will go back and listen to myself often. You can reach out to Abigail and find more of her work in the following links:

Blog: No Half Measures: Living Out Loud

Bio: Abigail’s Story

Contact Information: Email Abigail

Place to find Abigail’s writing and work: Social Media and Elsewhere