#72 - Coronavirus in Ds #3 - Navigating Towards an Eventual Safe Return (with Dr. Andrew Nowalk)
Release Date: 05/15/2020
#219 - Drooling, Tongue Protrusion, and other Oral Motor Topics
Down Syndrome Center Podcast
Kaye Baumgardner, M.S., CCC-SLP, CLC is a speech therapist with expertise in Orofacial Myofunctional Disorders (OMD). She has had extensive training and years of experience evaluating and working with infants and children who have muscle-based and sensory-based feeding disorders. She joined the podcast today to answer a listener question about an infant with parental concern for drooling and tongue protrusion. For more information on her practice, go to If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would...
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#218 - Vision Concerns (with Dr. Michael Puente)
Down Syndrome Center Podcast
Dr. Michael Puente is a pediatric ophthalmologist at Children's Hospital Colorado. He works with young children, teens, and adults with Down syndrome in his practice. He joined the podcast to discuss common vision issues in people with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast...
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#217 - Neuropsychological and IQ testing (with Dr. Rosemarie Manfredi)
Down Syndrome Center Podcast
Dr. Rosemarie Manfredi is a licensed psychologist at Neurodevelopmental Assessment and Consulting, LLC. You can find more information about Dr. Manfredi's practice here: AAIDD definition of intellectual disability, which emphasizes comprehensive evaluations to determine treatment and educational planning: Wrightslaw website to help parents understand their rights in the special education process: Wrightslaw also has a specific page on Assessment and Testing, which includes information on some commonly-used tests and other testing information of...
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#216 - Speech Clarity
Down Syndrome Center Podcast
Jennifer Gray is a speech language pathologist (SLP) who works at Gray Speak Therapy (). She joined the podcast to talk about the importance of speech clarity and techniques to improve it for people with Down syndrome.
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#215 - Hip Issues in Down syndrome (with Dr. Ricki Koehler)
Down Syndrome Center Podcast
Dr. Ricki Koehler was the lead author on a recent article looking at Down syndrome and hip dysplasia and dislocations. Dr. Koehler joined the podcast to answer a listener question on the topic. To read the article: If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting...
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#214 - REACH - Serving Children with Hirschsprung Disease
Down Syndrome Center Podcast
Isabelles Schnadig and Ashley Matthews from REACH (Research, Education, Advocacy for Children with Hirschsprung disease) joined the podcast to talk about the supports they can offer for children with Down syndrome and Hirschsprung Disease. For more information about REACH, visit For more supports for Down syndrome and Hirschsprung disease, visit My Little Brother Is A Trooper: The Story of a Child With a Dual Diagnosis: Down Syndrome and Hirschsprung Disease by Isabelle Schnadig can be found at Ashley's rash tips can be found at If you would like to suggest a topic for us to...
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#213 - Cholesterol in Down syndrome - Should we worry about it?
Down Syndrome Center Podcast
Dr. Brian Chicoine from the Adult Down Syndrome Center in Chicago joined the podcast again today, this time to discuss a listener question on cholesterol. There's data that people with Down syndrome do not seem to get cholesterol related plaques on the arteries around the heart. Knowing this, should we be checking cholesterol levels? Is there an association between cholesterol and Alzheimer disease? Listen to find out more! NDSS Care Down Syndrome Adult Down Syndrome Healthcare Guidelines If you would like to suggest a topic for us to cover on the podcast,...
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#212 - What To Know If Your Child Is Admitted To A Hospital
Down Syndrome Center Podcast
Dr. Kristie Marble is a pediatric hospital medicine physician at Children's Mercy Hospital in Kansas City, MO. She joined the podcast to discuss reasons why a child with Down syndrome might be admitted to a hospital and ways to advocate for them to bring them back to health before discharge. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund...
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#211 - Hey "Device," Do You Understand Me?
Down Syndrome Center Podcast
Laura Mattie and Alex Barkhimer from the school of Speech and Hearing Science at the University of Illinois joined the podcast to talk about the exciting Speech Accessibility Project to help Big Tech companies create devices that can understand people with speech differences. To find more about the project, go to . If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for...
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#210 - Parent Education & Advocacy Leadership (PEAL) Center
Down Syndrome Center Podcast
Meredith Peterson joined the podcast to talk about the Parent Education & Advocacy Leadership (PEAL) Center. Since 2005, the PEAL Center has been committed to serving families and professionals across Pennsylvania. Today PEAL works with families, youth and young adults with disabilities and special health care needs to help them understand their rights and advocate for themselves. Through our unwavering commitment to inclusion and our guiding values, we empower families and individuals to be included in their home schools and access high quality, coordinated physical and behavioral...
info_outlineDr. Nowalk rejoined the podcast today to talk about timely topics such as safely bringing children to medical visits and daycare settings. We also brought a special focus on potential summer vacations and visits with extended family. Dr. Nowalk also provided his perspective on Pediatric Multi-system Inflammatory Syndrome that has been highly discussed recently given its apparent association with COVID in children.