#112 - COVID, Delta, and Ds (with Dr. Andrew Nowalk)
Release Date: 09/02/2021
Down Syndrome Center Podcast
Jen Jacob, Founder and Executive Director of the Down Syndrome Diagnosis Network (DSDN) joined the podcast to talk about their work in the area of information and resource sharing for families. You can get connected to DSDN by going to . If you have any topics that you would like us to cover on the podcast, please reach out to me via e-mail at . If you would like to partner with the work of the Down Syndrome Center, including this podcast, please visit .
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Stephanie Thompson from the National Down Syndrome Adoption Network (NDSAN) joined the podcast today to talk about their work in domestic adoptions for children with Ds in the U.S. National Down Syndrome Adoption Network Please e-mail us with any topics you would like us to address on the podcast at . To partner with our work, including this podcast, please visit: .
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Dr. Marilyn Bull, lead author of the 2022 American Academy of Pediatrics Health Supervision Guidelines for Children and Adolescents with Down Syndrome, joins the podcast today to discuss the latest guideline update released earlier this week! Dr. Bull is the Morris Green Professor of Pediatrics at Indiana University School of Medicine, Department of Pediatrics, in the Division of Developmental Pediatrics. She is the Director of the Down Syndrome Program at Riley Hospital for Children. The medical guidelines can be found here: . If there are topics that you would like...
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Dr. Andrew McCormick, Director of the Transition Program at the Down Syndrome Center, joined the podcast to discuss supplemental security income (SSI) and waivers. If there are any topics you would like us to discuss on the podcast, please e-mail us at [email protected] To partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter
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Dr. Andrew McCormick, Director of the Transition Program at the Down Syndrome Center, joined the podcast to discuss the difference between power of attorney and guardianship. If there are any topics you would like us to discuss on the podcast, please e-mail us at [email protected] To partner with the Down Syndrome Center, including this podcast, please visit https://www.givetochildrens.org/downsyndromecenter
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In honor of World Down Syndrome Day, I have chosen to re-release my favorite podcast episode with 3 very special guests! Enjoy! If there are any topics you would like us to discuss on the podcast, please e-mail us at . If you would like to partner with us, including this podcast, please visit https://www.givetochildrens.org/downsyndromecenter
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Friend of the podcast, Dr. Andy Nowalk rejoins the podcast to give us his thoughts on the COVID pandemic. Questions surrounding the current status of Omicron, need for masking, vaccine timing for younger children are all addressed on today's podcast. If there are any topics that you would like us to discuss on the podcast, please e-mail us at . If you would like to partner with us, including this podcast, please visit https://www.givetochildrens.org/downsyndromecenter.
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The National Down Syndrome Congress (NDSC) Convention is back in person this summer, June 23-26, 2022, in New Orleans, Louisiana! Dr. Vellody was joined by NDSC representatives Tamara Pursley (Programs and Partnerships Director) and Jordan Kough (Executive Director) to discuss what we can expect at this year's NDSC Convention. Registration is open now. Go to to reserve your spot today! If you have topics that you would like us to cover on the podcast, please send a message to us and . We read every message and many of our podcasts come from your...
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Singer and songwriter Jesse Norell joined Dr. Vellody on the podcast to share about his passion for music and how his new album tells about his journey with his daughter. And be sure to check out this news story on the album: Jesse Norell – Aorta Borealis Links: Website: The Lucky Few Music Video: Together Lyric Video: Pre-save Link (Spotify and iTunes): CD Preorder: Website: Instagram: Facebook: YouTube: TikTok: Patreon: Twitter: Spotify: Apple Music: Please reach out to us at with any podcast ideas. Please also consider partnering with us by going to .
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Dr. Vellody was joined by Sue Buckley on the podcast to discuss education in Down syndrome, specifically discussing speech, reading, and math skills. Sue Buckley is a leading expert in education and development for young people with Down syndrome. Sue began research examining early reading instruction for children with Down syndrome in 1980 and founded Down Syndrome Education International in 1986. Her research and contributions to the lives of young people with Down syndrome has been widely recognized through numerous awards. Down Syndrome Education International DSEI/NDSS Guidelines...
info_outlineDr. Nowalk joined to talk about the Delta variant outbreak and the potential impact for people with Down syndrome.
Pittsburgh Vaccine Trials Unit
https://covid19research.pitt.edu/pvtu
CDC COVID Data
https://www.cdc.gov/coronavirus/2019-ncov/index.html