#163 - Aging in Down Syndrome (Life Expectancy, Early Aging, Menopause)
Release Date: 09/21/2023
#187 - Why Have a Down Syndrome Center?
Down Syndrome Center Podcast
On this podcast, Dr. Vellody addresses the same question that came in from 2 listeners about the role of a Down Syndrome Center? Why have one? Are there things that happen at a Down Syndrome Center that are not easily done in a regular primary care visit? If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#186 - Supplements in Down Syndrome - What Do We Know?
Down Syndrome Center Podcast
Shannon Frizzell, MS, RD, LDN leads our Nutrition team at the Down Syndrome Center of Western PA. She joins the podcast today to answer a listener question on nutritional supplements in Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#185 - The Immune System in Down Syndrome
Down Syndrome Center Podcast
Dr. Dusan Bogunovic is the Director of the Center for Genetic Errors of Immunity at Columbia University Medical Center in New York. He joined the podcast today to share about the intriguing immune system in people with Down syndrome and their increased risk of inflammation and infection. For more information on Dr. Bogunovic research trial, go to . If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#184 - Baby Led Weaning (with Jill Rabin)
Down Syndrome Center Podcast
Jill Rabin joined the podcast today to discuss Baby Led Weaning and what that looks like for someone with Down syndrome. For more information: Rabin, Jill, and Gill Rapley. Your Baby Can Self-Feed, Too: Adapted Baby-Led Weaning for Children with Developmental Delays or Other Feeding Challenges. The Experiment, 2022. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#183 - Behavioral Support Services (with Dr. Santamaria)
Down Syndrome Center Podcast
The Down Syndrome Center of Western Pennsylvania's very own psychologist, Dr. Tarin Santamaria, joined the podcast to help us understand the "alphabet soup" of behavioral support services that are available in the community.
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#182 - Anesthesia in Down Syndrome, Part 2
Down Syndrome Center Podcast
Dr. James Hunt is a pediatric anesthesiologist at Arkansas Children's Hospital. He joined the podcast to discuss specific issues related to anesthesia in Down syndrome. This is Part 2 of the podcast.
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#181 - Anesthesia in Down syndrome, Part 1
Down Syndrome Center Podcast
Dr. James Hunt is a pediatric anesthesiologist at Arkansas Children's Hospital. He joined the podcast to discuss specific issues related to anesthesia in Down syndrome. This is Part 1 of the podcast.
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#180 - Sleep Questions!
Down Syndrome Center Podcast
Dr. Lucy Lubinski is a Sleep Psychologist at Children's Hospital of Pittsburgh. She joined the podcast today to discuss common sleep related issues in pediatrics and approaches to management. Pediatric Sleep Council If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
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#179 - Exceptional Families of the Military
Down Syndrome Center Podcast
Rebecca Emerson and Austin Carrigg joined the podcast to talk about Exceptional Families of the Military, a 501 c(3) non-profit that helps families who are enrolled in the Department of Defense Exceptional Family Member Program. They discussed what to do when a diagnosis of Down syndrome is received while in the military and available supports and resources available to those families. Exceptional Families of the Military Down Syndrome Diagnosis Netword Military Families Group Military OneSource Center for Parent Information and Resources Ketotic Hypoglycemia International Family...
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#178 - John's Crazy Socks!
Down Syndrome Center Podcast
John and Mark Cronin joined the podcast today to talk about their world famous sock store called John's Crazy Socks. Listen to the podcast to find out why their mission is about something so much greater than "just socks." For more information about John's Crazy Socks (and to buy your own!), visit: If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit .
info_outlineDr. Brian Chicoine and Dr. Hannah Graham from the Adult Down Syndrome Center with Advocate Health Care in Park Ridge, Illinois joined the podcast today to discuss a listener question on menopause in Down syndrome. While I had these experts on the podcast, we also discussed other aging related topics in Down syndrome.
For more information on the Adult Down Syndrome Center, go to: https://www.advocatehealth.com/health-services/adult-down-syndrome-center/.
To access the Down Syndrome Resource Library, go to: https://adscresources.advocatehealth.com/
If you are a provider looking to discuss a patient with experts in Down syndrome, consider using Project Echo: https://www.dsmig-usa.org/Project-Echo
To view the latest healthcare guidelines for adults with Down syndrome, go to: https://jamanetwork.com/journals/jama/fullarticle/277190
If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to [email protected].
If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.
Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.