#224 - Leucovorin - What is it and is there a role in Down syndrome?
Down Syndrome Center Podcast
It is so difficult these days to tell the difference between evidence based science v. conjecture. Frequently, there are many claims that people can make that are not necessarily backed in scientific fact. The use of leucovorin to address symptoms in autism as well as in Down syndrome has been advocated by some groups. Dr. Lauren Gist and Dr. Robyn Filipink joined the podcast today to address this important topic. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome...
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#223 - Updated Vaccination Guidelines - What Do They Mean for People with Ds?
Down Syndrome Center Podcast
There have been many recent changes to the recommended vaccination schedule in the U.S. Friend of the podcast, Dr. Andrew Nowalk, returns to the podcast to talk about emerging infectious diseases as well as how these recent guideline changes may impact directly people with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund...
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#222 - Exercise in Down syndrome (With Dr. Thessa Hilgenkamp)
Down Syndrome Center Podcast
Dr. Thessa Hilgenkamp Associate Professor in Physical Therapy at the University of Nevada, Las Vegas, joined the podcast today to talk about the unique nature of exercise in people with Down syndrome. RESOURCES ACSM Guidelines for Exercise Testing and Prescription, Chapter 11 Intellectual Disability and Down syndrome Development of a Physical Therapy-Based Exercise Program for Adults with Down Syndrome: Exercise program: or The International Summit on Health Benefits of Physical Fitness for People With Down Syndrome: Current Science, Gaps, Priorities, and Research...
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#221 - Central Auditory Processing Disorder (CAPD) and Cortical Visual Impairment (CVI) in Ds
Down Syndrome Center Podcast
Today's podcast features 3 amazing guests with professional and/or personal experience in working with children with Down syndrome and Central Auditory Processing Disorder (CAPD) and/or Cortical Visual Impairment (CVI). Maurice Belote has decades of expertise in the field of Deafblindness. Belote is a Deafblind specialist, Co-chair of the National Coalition on Deafblindness, adjunct faculty for two teacher training programs, and retired Project Coordinator for California Deafblind Services. lse Willems is the Senior Director of the CVI Center at Perkins School for the Blind. She...
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#220 - CARE Down Syndrome (CARE DS)
Down Syndrome Center Podcast
Kandi Pickard (CEO of the National Down Syndrome Society) and Dr. Brian Chicoine (Advocate Medical Group - Adult Down Syndrome Center) joined the podcast to discuss CARE Down Syndrome, a clinical education hub for healthcare professionals. It can be difficult for a busy primary care clinician to be fully up to date in the care of people with Down syndrome. This free resource exists to help educate practitioners on the common issues encountered in Down syndrome. For more information on CARE Down Syndrome, go to . If you would like to suggest a topic for us to cover on...
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#219 - Drooling, Tongue Protrusion, and other Oral Motor Topics
Down Syndrome Center Podcast
Kaye Baumgardner, M.S., CCC-SLP, CLC is a speech therapist with expertise in Orofacial Myofunctional Disorders (OMD). She has had extensive training and years of experience evaluating and working with infants and children who have muscle-based and sensory-based feeding disorders. She joined the podcast today to answer a listener question about an infant with parental concern for drooling and tongue protrusion. For more information on her practice, go to If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would...
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#218 - Vision Concerns (with Dr. Michael Puente)
Down Syndrome Center Podcast
Dr. Michael Puente is a pediatric ophthalmologist at Children's Hospital Colorado. He works with young children, teens, and adults with Down syndrome in his practice. He joined the podcast to discuss common vision issues in people with Down syndrome. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast...
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#217 - Neuropsychological and IQ testing (with Dr. Rosemarie Manfredi)
Down Syndrome Center Podcast
Dr. Rosemarie Manfredi is a licensed psychologist at Neurodevelopmental Assessment and Consulting, LLC. You can find more information about Dr. Manfredi's practice here: AAIDD definition of intellectual disability, which emphasizes comprehensive evaluations to determine treatment and educational planning: Wrightslaw website to help parents understand their rights in the special education process: Wrightslaw also has a specific page on Assessment and Testing, which includes information on some commonly-used tests and other testing information of...
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#216 - Speech Clarity
Down Syndrome Center Podcast
Jennifer Gray is a speech language pathologist (SLP) who works at Gray Speak Therapy (). She joined the podcast to talk about the importance of speech clarity and techniques to improve it for people with Down syndrome.
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#215 - Hip Issues in Down syndrome (with Dr. Ricki Koehler)
Down Syndrome Center Podcast
Dr. Ricki Koehler was the lead author on a recent article looking at Down syndrome and hip dysplasia and dislocations. Dr. Koehler joined the podcast to answer a listener question on the topic. To read the article: If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to . If you would like to partner with the Down Syndrome Center, including this podcast, please visit . We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting...
info_outlineNDSC Board Member and Self-Advocate Craig Blackburn joined the podcast to share about the amazing work that he is doing. He and his mother Pat Ehrle shared about their experiences and what World Down Syndrome Day means to them.