Co-morbidity of Eosinophilic Esophagitis (EoE) and Food Allergy with Ruchi Gupta, MD, MPH
Real Talk: Eosinophilic Diseases
Release Date: 03/22/2022
The Spoon Theory and Eosinophilic Disorders
Real Talk: Eosinophilic Diseases
Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED’s Health Sciences Advisory Council, have a conversation about the Spoon Theory. In this episode, Ryan and Holly discuss the origin of the Spoon Theory, their experiences, and what the Spoon Theory means in their lives. Listen to this episode to learn how the Spoon Theory could work for you. Disclaimer: The information provided in this podcast is designed to...
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Gastro Girl and GI Diseases: Conversation With Jacqueline Gaulin
Real Talk: Eosinophilic Diseases
Description: Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED’s Health Sciences Advisory Council, speak with Jacqueline Gaulin, the Founder of Gastro Girl, a source of information for people living with various gastrointestinal disorders. In this episode, Ryan and Holly interview Jacqueline Gaulin about her career, how she started Gastro Girl, its podcast, and the partnership between Gastro Girl, the American College...
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The Family Risk of Eosinophilic Gastrointestinal Diseases
Real Talk: Eosinophilic Diseases
Description: Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Mary Jo Strobel, APFED’s Executive Director, speak with Dr. Kathryn Peterson, MD, MSCI, a Professor of Gastroenterology at the University of Utah Health. In this episode, Ryan and Mary Jo interview Dr. Peterson about the family risk of eosinophilic gastrointestinal diseases, discussing the studies she has done, future work she is planning, and other studies of related topics. She shares that she is a parent to a patient living with an...
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Remodeling and Eosinophilic Esophagitis (EoE)
Real Talk: Eosinophilic Diseases
Description: Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED’s Health Sciences Advisory Council, speak with Dr. Amanda Muir, an Assistant Professor of Pediatrics at the Children’s Hospital of Philadelphia. In this episode, Ryan and Holly interview Dr. Muir about tissue remodeling and eosinophilic esophagitis (EoE). Dr. Muir describes remodeling and stiffening, its effects, and how it relates to treatment and...
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Journey to an Eosinophilic Esophagitis (EoE) Diagnosis
Real Talk: Eosinophilic Diseases
Description: Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED’s Health Sciences Advisory Council, speak with Moises Velasquez-Manoff, a health and science writer living with EoE. He is a contributing writer for the New York Times Magazine. He writes about the human microbiome and its impact on health, as well as climate, COVID-19, and other health and science topics. In this episode, Ryan and Hollyinterview Moises...
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Community Perspective: Eosinophilic Gastritis (EoG)
Real Talk: Eosinophilic Diseases
Description: Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Mary Jo Strobel, APFED’s Executive Director, speak with Dr. Jenny Huang, an allergy and immunology fellow at Scripps Clinic, who has a unique perspective of also living with eosinophilic gastritis (EoG). In this episode, Ryan and Mary Jo interview Dr. Jenny Huang about various EGIDs, her allergy and immunology fellowship, her EoG diagnosis, and the elimination diet she follows to treat her EoG. Dr. Huang speaks about patients she sees,...
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Community Perspective: Eosinophilic Esophagitis
Real Talk: Eosinophilic Diseases
Description: Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist and feeding specialist living with EoE, who serves on APFED’s Health Sciences Advisory Council, talk with Declan, a teenager living with eosinophilic esophagitis. In this episode, Ryan and Holly interview Declan about his EoE diagnosis, his dietary restrictions, how he receives support from his parents and friends, and upcoming milestones such as transitioning clinical care to an adult provider and...
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Esophageal String Test: Monitoring Tool Use and Development
Real Talk: Eosinophilic Diseases
Description: Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist and feeding specialist living with EoE who serves on APFED’s Health Sciences Advisory Council, talk with Drs. Robin Shandas and Steven Ackerman, are scientists who work together at EnteroTrack. In this episode, Ryan and Holly interview Drs. Shandas and Ackerman about the development of the esophageal string test (EST), or simply the string test. They discuss the initial concept and the work that led...
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Live from APFED’s EOS Connection 2023
Real Talk: Eosinophilic Diseases
Description: Ryan Piansky, a college student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech pathologist living with EoE who specializes in feeding therapy and serves on APFED’s Health Sciences Advisory Council recorded this episode live at APFED’s annual patient education conference in Denver, CO. They shared their experiences with this year’s conference, discussed takeaways from the conference presentations, and offered ways to continue the conversation. Recordings of the conference presentations are available to...
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Proton Pump Inhibitors and EoE
Real Talk: Eosinophilic Diseases
Description: Co-host Mary Jo Strobel, APFED’s Executive Director, is joined by co-host Holly Knotowicz, a speech-language pathologist and feeding specialist living with eosinophilic esophagitis (EoE) who serves on APFED’s Health Sciences Advisory Council. They talk with guest Dr. James Franciosi, Chief of the Division of Gastroenterology, Hepatology, and Nutrition at Nemours Children’s Health in Orlando, Florida. In this episode, Mary Jo Strobel and Holly Knotowicz interview Dr. James Franciosi about his research with proton pump inhibitors, personalized medicine, the different factors...
info_outlineDr. Ruchi Gupta is a Professor of Pediatrics & Medicine at the Northwestern University Feinberg School of Medicine, Clinical Attending at Ann & Robert H. Lurie Children’s Hospital of Chicago, and Director at the Center for Food Allergy & Asthma Research (CFAAR). She is world-renowned for her research on the epidemiology, economic impact, prevention, and management of allergic conditions, and strives to find answers and shape policies surrounding these conditions in order to reduce the burden and improve health equity. As a mother of a child with food allergies, Dr. Gupta also brings a personal perspective to the discussion.
In this episode, Dr. Gupta shares information about food allergies and EoE, the similarities and differences between them, and some of the available treatment options. She also highlights how treatments may differ for food allergies vs EoE, and the cases in which oral immunotherapy can cause or exacerbate EoE. Tune in to find out more about allergic diseases and their relationship to EoE, and to get advice on managing food allergies and EoE.
Disclaimer: The information provided in this podcast is designed to support, not replace the relationship that exists between listeners and their healthcare providers. Opinions, information, and recommendations shared in this podcast are not a substitute for medical advice. Decisions related to medical care should be made with your healthcare provider. Opinions and views of guests and co-hosts are their own.
Key Takeaways:
[1:22] Ryan introduces the guest for this episode, Dr. Ruchi Gupta.
[2:05] What is Dr. Gupta’s experience with allergic conditions?
[3:30] How do food allergies and EoE differ?
[4:51] EoE is more challenging to diagnose than food allergies.
[6:25] What is the difference in treatments for EoE and food allergies?
[9:47] Ryan shares some of his experiences with EoE and being on an elimination diet.
[10:37] Eliminating foods and reintroducing them again slowly is a treatment option for EoE, as is oral immunotherapy for some people with food allergies. What is the difference in how these treatments work for EoE vs. food allergies?
[14:14] There is some indication that EoE can develop among some patients who undergo peanut oral immunotherapy (OIT). How common is it?
[15:38] Is this phenomenon something that is specific to peanut OIT, or does it happen with OIT for other allergens as well?
[17:31] Is there enough of a risk of developing EoE from OIT that people are routinely counseled before starting the treatment?
[19:22] What are some of the associations Dr. Gupta discovered in her research?
[22:37] A number of different conditions came up as being associated with EoE. Which of them were surprising to Dr. Gupta?
[23:37] Ryan shares a little about his dietary restrictions and food allergies currently.
[25:38] Medical diets can be pretty effective for people with EoE but sometimes it’s hard for families to adhere to. What are some challenges Dr. Gupta’s family has had with medical diets and what is her advice for people who may be new to that kind of food avoidance?
[28:02] Dr. Gupta speaks to the importance of building a community around you.
[32:54] Dr. Gupta recently published a new book, Food Without Fear. What is the book about, and what was Dr. Gupta’s inspiration for it?
[35:49] What’s next for Dr. Gupta?
[37:24] Dr. Gupta shares some final thoughts for listeners.
Mentioned in This Episode:
American Partnership for Eosinophilic Disorders (APFED)
APFED on YouTube, Twitter, Facebook, Pinterest, Instagram
Food Without Fear, by Dr. Ruchi Gupta
EOS Connections Online Community
This episode is brought to you thanks to the support of our Education Partners Abbott, Bristol Myers Squibb, GlaxoSmithKline, and Mead Johnson Nutrition.
Tweetables:
“EoE is a little bit more challenging to diagnose [than food allergies].” — Dr. Gupta
“The type of EoE that a lot of people developed when they started oral immunotherapy tends to disappear once they stop.” — Dr. Gupta
“How do you standardize treatment options for patients because they all have different pieces that make it really challenging?” — Dr. Gupta
“Medical diets can be pretty effective for people with eosinophilic esophagitis. But sometimes it’s hard for families to adhere to.” — Ryan
“It has allowed them to become better advocates for themselves and that’s not only for their condition but for life.” — Dr. Gupta
“One of the most inspiring ones that I’ve heard more than once is ‘This is one part of me, this does not define me.’” — Mary Jo