Episode 24 - Isidro Montero
HemoStories Podcast
Hosted By: Holly Olsen Guest: Isidro Montero of Costa Rica In this short episode of HemoStories, Holly interviews Isidro Montero in San Jose, Costa Rica. Isidro is the secretary of the Hemophilia Association of Costa Rica. The mission of the association is “to ensure better health and quality of life for Costa Rican people with hemophilia”. Listen as Isidro shares his involvement and experiences with the bleeding disorder community in Costa Rica. If you like what you hear, please consider rating us on iTunes, donating to the cause, subscribing to the podcast, following...
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Episode 23: Marisol de Monteroso and Dr Faviola Valbert of Guatemala
HemoStories Podcast
Hosted By: Holly Olsen Guests: Marisol de Monteroso and Dr Faviola Valbert Join Holly as she interviews Marisol de Monterosa, President of the Hemophilia Association in Guatemala, and Dr Faviola Valbert, a hematologist in Guatemala. Marisol tells us of her unexpected introduction to hemophilia when her son was diagnosed at the age of three; her feelings of isolation; her founding of the Hemophilia Association in Guatemala; and work she does for hemophiliacs in her country. Dr Faviola Valbert shares the sad realities of having hemophilia in Guatemala where medical issues are only the...
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Episode 22: Haydée Benoit de Garcia
HemoStories Podcast
Haydée Benoit de García, of the Dominican Republic, used her son’s diagnosis with Severe Hemophilia A as motivation to empower her entire country with knowledge and information about bleeding disorders. From what had once been an isolating experience for the hundreds in the Dominican Republic with Hemophilia (diagnosed or not), came a community filled with hope and optimism. Listen to her story to learn about the partnership of hemophiliacs, parents, and medical providers within the Dominican Republic with those outside the country, including the World Hemophilia Foundation. United, they...
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Episode 21: Miguel Izquierdo in Mexico City
HemoStories Podcast
In this episode of HemoStories, Holly Olsen speaks with Miguel Izquierdo in Mexico City. Himself a hemophiliac, Miguel Izquierdo understands the challenges of diagnosis and treatment. As the president of the Directive Board of the Mexican Federation of Hemophilia, he advocates for proper health care for thousands of hemophiliacs in Mexico. The group deals with insurance complications, cultural stigma, and maintaining quality of life.
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Episode 20: HemoHelper WFH Research Recap
HemoStories Podcast
Hosted by: Josie Olsen Guest: Rick Kelly Join Josie Olsen and her husband, Rick Kelly, in this HemoStories episode as they recap new HemoHelper research which debuted at the 2016 World Federation of Hemophilia World Congress in Orlando, Florida last month. At this event Rick presented a poster about his research on the relationship between healthcare infrastructure within a country and the measured prevalence of Hemophilia A. Rick gives a description of his research and future research opportunities. Listeners will also learn the differences between various hemophilia-related conferences...
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Episode 19: Linda Wright
HemoStories Podcast
In this episode of the HemoStories Podcast, Josie interviews Linda Wright, a Factor 1 deficient member of the bleeding disorders community. Linda has afibrinogenemia, which means her liver manufactures no fibrinogen. Josie first became acquainted with Linda when searching online for others with afibrinogenemia like her son, Forrest. This is the first in a series of interviews covering the whole spectrum of bleeding disorders. Linda’s long history and extensive involvement in the bleeding disorders community will be as interesting to listen to as her 67 year personal experience...
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Episode 18: Rich Pezzillo
HemoStories Podcast
Hosted by: Rick Kelly Guest: Rich Pezzillo ...
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Episode 17: Danny's Dose
HemoStories Podcast
Hosted By: Joslyn Olsen ...
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Episode 16: "Blood Vibrations"
HemoStories Podcast
In this HemoStories episode, Joslyn interviews Matthew Tache and Billy Conde Goldman, the founders of Blood Vibrations, an “ongoing grassroots project of music created by people in the bleeding disorders community.” Both Billy and Matthew have dealt with hemophilia throughout their lives. ...
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Episode 15: Maria DaSilva from Brazil
HemoStories Podcast
Hosted by: Joslyn Olsen Guest: Maria DaSilva ...
info_outlineIn this HemoStories episode, Joslyn interviews Ohio native, Timothy Wilcox in a stairwell while attending NHF’s 67th Annual Meeting in Dallas, Texas. Together they discuss Timothy’s personal experiences of being both a diabetic and a moderate hemophiliac.
Despite being raised with many close family members affected by hemophilia (brothers, cousins, uncles), treatment was especially difficult for Timothy because he comes from a family of Jehovah's Witnesses, who typically do not believe in blood transfusions of any kind. This episode also helps the listener gain insight on what it was like to have hemophilia before prophylaxis and what it was like to live during HIV/Hepatitis outbreak of the 1980s.