The National Down Syndrome Society

All Home Care Matters and our host, Lance A. Slatton were honored to welcome the team from the National Down Syndrome Society as guests to the show.

 

About Margot Rhondeau:

 

Margot Rhondeau is the Senior Director of Health & Wellness for the National Down Syndrome Society (NDSS) where she leads the creation of resources and programming to improve health and wellness within the Down syndrome community. Margot joined NDSS in 2020, bringing 14 years of experience working in the health space, both internationally and nationally, to overcome barriers to care and increase health services and programs for underserved populations.

 

Margot is the proud mother of a child with Down syndrome. She enjoys hiking, taking her children on adventures and advocating for inclusion and acceptance.

 

About Charlotte Woodward:

 

All Home Care Matters and our host, Lance A. Slatton were honored to welcome the team from the National Down Syndrome Society as guests to the show. About Margot Rhondeau: Margot Rhondeau is the Senior Director of Health & Wellness for the National Down Syndrome Society (NDSS) where she leads the creation of resources and programming to improve health and wellness within the Down syndrome community. Margot joined NDSS in 2020, bringing 14 years of experience working in the health space, both internationally and nationally, to overcome barriers to care and increase health services and programs for underserved populations. Margot is the proud mother of a child with Down syndrome. She enjoys hiking, taking her children on adventures and advocating for inclusion and acceptance. About Charlotte Woodward: Charlotte Woodward is the Education Program Associate for the National Down Syndrome Society (NDSS) where she supports the development of education-related resources and educational policy initiatives.

 

Charlotte was born with Down syndrome, as well as a heart condition, and had four open-heart surgeries when she was young. She is one of the very few people born with Down syndrome to receive a life-saving heart transplant, and she regularly shares her story to educate and advocate for others. Charlotte holds an associate degree from Northern Virginia Community College and recently graduated Suma Cum Laude from George Mason University with a bachelor’s degree in sociology with a concentration in inequality and social change.

 

 

About Anna Fedewa:

 

Anna Fedewa is the Senior Manager of Government Relations for the National Down Syndrome Society (NDSS) where she leads and directs the organization’s work to influence federal, state, and local policies and regulations that impact people with Down syndrome. Anna’s passion for advocacy and disability rights grew from the friendships she made with individuals with Down syndrome and other disabilities as a young child and was further cultivated during her time teaching high school special education and working with her alma mater’s inclusive post-secondary program.

 

About the National Down Syndrome Society (NDSS):

 

Founded in 1979, the National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions. NDSS engages grassroots advocates at the federal, state, and local levels and creates resources to support individuals with Down syndrome, their families, and caregivers across the lifespan on topics including education, employment, health and wellness, and aging. NDSS founded the National Buddy Walk® Program in 1995 and hosts community engagement events throughout the country including the New York City Buddy Walk® and Times Square Video, the NDSS Adult Summit, and the Down Syndrome Advocacy Conference. Visit www.ndss.org to learn more.

 

Advocacy & Policy:

 

NDSS advocates for federal, state, and local policies and regulations that positively impact people with Down syndrome across the country and affirm their human rights. Through grassroots advocacy, NDSS empowers community advocates to work with Congress and federal agencies, as well as state and local officials, to develop and improve policies and regulations for the benefit of the Down syndrome community.

 

NDSS further empowers individuals with Down syndrome, their families, and other community members to influence policy at the NDSS Down Syndrome Advocacy Conference in Washington, D.C. The NDSS legislative agenda spans the life of individuals with Down syndrome from birth to adulthood including healthcare, education, employment, and economic self-sufficiency.

 

Resources & Support:

 

NDSS is committed to providing individuals with Down syndrome, their families, caregivers, and the public with information to support them from birth to end of life. Through events, videos, publications, and our website, NDSS provides free resources on a variety of topics including health, wellness, education, employment, adulthood and aging, financial wellness, and information for new and expectant parents. Our Adult Summit conference addresses the needs of teens and adults with practical resources and educational opportunities for individuals with Down syndrome, families, caregivers, and professionals.

 

Community Engagement:

 

NDSS community engagement events and activities celebrate our loved ones with Down syndrome, raise awareness among the public, and connect individuals and families within the community. Through our scholarships, grants, and awards program, NDSS supports individuals with Down syndrome in pursuing their dreams.

 

Connect with the National Down Syndrome Society:

Official Website:

https://ndss.org