Wes Michael Founder & President of Rare Patient Voice

All Home Care Matters and our host, Lance A. Slatton were honored to welcome Wes Michael as guest to the show.

 

About Wes Michael:

 

Wes Michael founded Rare Patient Voice in 2013 to give patients and family caregivers the opportunity to voice their opinions by participating in research studies. Rare Patient Voice has now recruited for thousands of studies and rewarded patients and family caregivers with over $15 million for their participation. 

 

Many have been recruited in person by Wes and his team at patient events and through a robust referral program with patient advocacy and support groups. Rare Patient Voice now covers over 1,500 rare and non-rare diseases and conditions, expanding from the United States to Canada, the United Kingdom, France, Germany, Italy, Spain, Australia, and New Zealand. Before launching Rare Patient Voice, Wes worked for healthcare market research firm Kantar Health. He previously was a brand manager and market research manager at McCormick (the spice company) and General Mills (working on Wheaties, Total and Kix cereals).

 

He has a BA from the University of Pennsylvania (with a year at Edinburgh University) and an MBA from the University of Chicago. Wes lives outside Baltimore, Maryland, with his wife, Cathy, children Julia and Cliff, grandson Taylor, and dog Stanley.

 

On February 3, 2006, Rare Patient Voice was acquired by Konovo.Rare Patient Voice’s 200,000+ registered patients and caregivers expand Konovo’s ability to deliver connected insights across a broad range of therapeutic and geographic areas, particularly in rare and complex conditions. 

 

About Rare Patient Voice:

 

Rare Patient Voice empowers patients and family caregivers to have their voices heard through participation in research including market research, health economics outcomes and real-world evidence, user experience/human factors studies, and clinical trials. The RPV community includes over 200,000 patients and caregivers across more than 1,500 diseases, both rare and non-rare, in nine countries.

 

By fostering trusted relationships and delivering high-quality insights, RPV enables research that reflects real-world patient experiences. 

 

About Konovo:

 

Konovo is a global healthcare company on a mission to transform research through technology and connected insights. Konovo simplifies the research process, connects fragmented insights, and enhances access to healthcare audiences—including physicians, patients, caregivers, and allied healthcare professionals—through its intelligent platform and expert-guided solutions. Operating across the Americas, Europe, and Asia, Konovo supports market research agencies, consultancies, and life science and healthcare brands with deeper, actionable insights.