Managing Our Expectations and Pacing Ourselves
Painiac: The Podcast On Living Well Even When Life Hurts
Release Date: 08/27/2016
Painiac: The Podcast On Living Well Even When Life Hurts
Chronic pain and illness come with their own inherent stressors, and with 2020 shaping up to be one of the most challenging year in most of our lifetimes, we could all use more moments of calm and ease. This is why Shelly recorded a short, guided body scan meditation to help you soothe and relax during these trying times.
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Camisha L. Jones is the author of the poetry chapbook Flare (Finishing Line Press, 2017). She breaks silence around issues of disability as someone living with hearing loss and chronic pain. Her poems can be found at The New York Times, Poets.org, The Deaf Poets Society, Unfolding the Soul of Black Deaf Expressions, and elsewhere. Find her on Facebook as Poet Camisha Jones & on Twitter & Instagram as 1Camisha.
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Shelly's back with more Painiac musings. Tune in and hear a short update and plans for the future of Painiac, (plus, some news!)—thanks for tuning in!
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In this episode, we explore what it means to get better. I’ve been thinking a lot about healing and recovery, and what it means to get better. Last month marked my 12 years anniversary of living with debilitating chronic pain, and this past May marked the 3 year anniversary of my most recent and most invasive surgery. When I look back at how I had imagined myself to feel at this stage, I hadn’t been able to see clearly; it was all a blur of grey. I could barely see beyond the initial hospital stay.
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Do you know your rights to request accommodations in the workplace? Did you know that you even have rights to request accommodations to make your job more comfortable? I’ll be honest, I had no idea that I had these kinds of rights back when I wasn’t self-employed, and chances are you don’t aren’t in the know either. That’s why I can’t wait for you to listen to this episode where I talk all about this topic with Dr. Beth Loy, a Principal Consultant with the Job Accommodation Network (JAN).
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Virtual reality therapy is revolutionizing pain management by offering painiacs non-invasive and no-addictive ways to effectively manage pain. Today, I’m talking with Josh Sackman, President and CO-Founder of Applied VR, about the new ap Ease VR. Josh has been featured in Wired, Forbes and MIT Technology Review and has spoken at international conferences such as South by Southwest and Health 2.0, as well as The White House about the use of virtual reality technology in healthcare.
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In preparation for this episode, I asked some of our Painaic community members to share their personal tips for sleeping well with chronic pain. I hope that this episode offers you some new and creative ways to rest better and sleep well. So grab a cup of tea or a cozy blanket and curl up while we explore the world of sleep.
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What does fear do to us? Fear shows us what we do not know. When we’re scared, if we peel back those layers of fear, we usually find that we are afraid of the unknown, of outcomes that we can’t predict and unforeseen obstacles that we can’t anticipate. Pain reminds us that we aren’t unbreakable. In this episode, follow along with me as I explore fear, doubt, and being breakable.
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"When you go through pain, we all will, some way and someday, hit rock bottom, and we will find that strength to keep going and to keep moving on." In 2014, Danielle experienced an accident that left her with debilitating neck pain that became chronic. I loved this conversation with Danielle, and I know you’ll love it too. I find her so bright and full of life and strength. We talk about working and being self-employed (and being a wife and mom) while living with challenges like chronic pain, and the unexpected obstacles that arise when living with difficulties. She shares tips and tools to...
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Welcome back to Painiac! In this short episode, Shelly kicks off Season Two of Painiac the Podcast. Learn more about what you can expect from this upcoming season!
info_outlineIn this week’s episode Shelly talks about an important piece of mindful pain management: pacing and how to manage our expectations about our goals and productivity. Pacing is all about managing our activity level and energy output in order to maintain a healthy baseline of pain.
Just like with all aspects of mindful pain management, effectively pacing and managing expectations requires you to increase your self-awareness and personal connection to both mind and body. There are studies that show that serious issues can arise in the mind and body from overactivity and even underactivity. When we take time to rest we feel like we aren't getting enough done, but when we push through the pain and work even harder, our bodies pay for it in flare-ups.
So why can it be such a challenge to pace ourselves to avoid burnout and flare-ups? Pacing is all about doing what you can when you can and doing less when you can’t do a lot. It’s paying attention to your activity levels, how you feel during activities, and your energy levels at certain times of the day. It’s all about managing those expectations with flexibility, patience and a little forgiveness.
With some simple guidelines to follow, you can start pacing yourself in a safe, effective, and efficient way.