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Episode 344 - Lindsey and Paige Doolan - Race Against PH

I'm Aware That I'm Rare: the phaware® podcast

Release Date: 10/12/2020

Cam Wells - phaware® interview 457 show art Cam Wells - phaware® interview 457

I'm Aware That I'm Rare: the phaware® podcast

Stroke survivor and journalist, Cam Wells, discusses his mission to change the way disability stories are portrayed in the media. Cam also discusses his work in the disability community, including his involvement with the Italian Canadian HandiCapable Association, which provides sports and recreation opportunities for people with disabilities. Cam believes that disabilities and rare conditions affect everyone in some way and advocates for inclusivity and respect. #RareDiseaseDay My name is Cam Wells. I am a stroke survivor and I hold four diplomas from St. Clair College. After getting the...

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Episode 457 - Cam Wells show art Episode 457 - Cam Wells

I'm Aware That I'm Rare: the phaware® podcast

In this episode, stroke survivor and journalist, Cam Wells, discusses his mission to change the way disability stories are portrayed in the media. Cam also discusses his work in the disability community, including his involvement with the Italian Canadian HandiCapable Association, which provides sports and recreation opportunities for people with disabilities. Cam believes that disabilities and rare conditions affect everyone in some way and advocates for inclusivity and respect. #RareDiseaseDay Learn more about pulmonary hypertension trials at . Follow us on social @phaware...

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Harm Bogaard, MD - phaware® interview 456 show art Harm Bogaard, MD - phaware® interview 456

I'm Aware That I'm Rare: the phaware® podcast

Harm Bogaard, MD, Ph.D., FAHA is a pulmonologist at the Amsterdam UMC. In this episode, he discusses the use of magnetic resonance imaging (MRI) in monitoring pulmonary hypertension patients. Dr. Bogaard explains that MRI is a valuable tool for assessing the function and structure of the right heart, which is crucial in determining the prognosis and long-term outcomes of patients with pulmonary hypertension. My name is Harm Bogaard. I'm a pulmonologist here in Amsterdam in the Netherlands. I work at the National Expert Center for pulmonary hypertension patients. We have a clinic, obviously,...

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Episode 456 - Harm Bogaard, MD show art Episode 456 - Harm Bogaard, MD

I'm Aware That I'm Rare: the phaware® podcast

Harm Bogaard, MD, Ph.D., FAHA is a pulmonologist at the Amsterdam UMC. In this episode, he discusses the use of magnetic resonance imaging (MRI) in monitoring pulmonary hypertension patients. Dr. Bogaard explains that MRI is a valuable tool for assessing the function and structure of the right heart, which is crucial in determining the prognosis and long-term outcomes of patients with pulmonary hypertension. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story:  #phawareMD 

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Dawn Clarke - phaware® interview 455 show art Dawn Clarke - phaware® interview 455

I'm Aware That I'm Rare: the phaware® podcast

Pulmonary hypertension patient, Dawn Clarke, a resident of the Mississaugas of the Credit First Nation in Southern Ontario. Despite her rare disease diagnosis, Dawn decided to focus on her mental health and explore her creative passions. She emphasizes the importance of looking after all aspects of one's well-being, including physical, mental, emotional, and spiritual health. She encourages others to find their purpose and make positive changes in their lives, even in the face of challenges.  My name is Dawn Clarke. I am currently residing on the Mississaugas of the Credit First Nation,...

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Episode 455 - Dawn Clarke show art Episode 455 - Dawn Clarke

I'm Aware That I'm Rare: the phaware® podcast

Pulmonary hypertension patient, Dawn Clarke, a resident of the Mississaugas of the Credit First Nation in Southern Ontario. Despite her rare disease diagnosis, Dawn decided to focus on her mental health and explore her creative passions. She emphasizes the importance of looking after all aspects of one's well-being, including physical, mental, emotional, and spiritual health. She encourages others to find their purpose and make positive changes in their lives, even in the face of challenges.  Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage...

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Linda Wimmer - phaware® interview 454 show art Linda Wimmer - phaware® interview 454

I'm Aware That I'm Rare: the phaware® podcast

New Jersey patient, Linda Wimmer, shares her experience with idiopathic pulmonary arterial hypertension. Linda discusses the various medications and lifestyle changes she has had to make to manage her condition. She also mentions dealing with depression and anxiety, as well as the challenges of accepting help from others.  My name is Linda Wimmer, and I'm from Morris County, New Jersey. I was diagnosed with idiopathic pulmonary arterial hypertension in 2014. I knew something was wrong years before. It took me about two and a half years, if not longer, to get diagnosed. I found out a...

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Episode 454 - Linda Wimmer show art Episode 454 - Linda Wimmer

I'm Aware That I'm Rare: the phaware® podcast

New Jersey patient, Linda Wimmer, shares her experience with idiopathic pulmonary arterial hypertension. Linda discusses the various medications and lifestyle changes she has had to make to manage her condition. She also mentions dealing with depression and anxiety, as well as the challenges of accepting help from others.  Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story: 

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PHenomenal Hope 2023 - phaware® interview 453 show art PHenomenal Hope 2023 - phaware® interview 453

I'm Aware That I'm Rare: the phaware® podcast

Drs. Patricia George and Harrison "Hap" Farber from discuss takeaways and learning from This symposium offered a combination of oral presentations, expert panel discussions, and poster sessions in an environment that encourages collaboration and a deeper exploration of patient-centered research.  They also discuss , looking for topics that will help expand access to care and improve clinical status by looking specifically for projects in the topic areas outlined at the PHenomenal Hope 2023 research meeting.  Steve Van Wormer: Hey everyone, Steve Wormer from phaware global...

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Episode 453 - PHenomenal Hope 2023 show art Episode 453 - PHenomenal Hope 2023

I'm Aware That I'm Rare: the phaware® podcast

In this episode, Drs. Patricia George and Harrison "Hap" Farber from discuss takeaways and learning from This symposium offered a combination of oral presentations, expert panel discussions, and poster sessions in an environment that encourages collaboration and a deeper exploration of patient-centered research.  They also discuss , looking for topics that will help expand access to care and improve clinical status by looking specifically for projects in the topic areas outlined at the PHenomenal Hope 2023 research meeting.  Learn more about pulmonary hypertension trials at ....

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More Episodes

Lindsey Doolan is a caregiver to her daughter, Paige, who is a pediatric pulmonary hypertension patient. 

In this episode, they discuss Paige's PH diagnosis and the importance of the 20th Annual Virtual Race Against PH 5K/Fun Run, taking place at Stanford on November 1st, 2020 #raph20virtual

Register for the 20th Annual Race Against PH 5K: med.stanford.edu/raceagainstph

Enter this week's Time For Burpees! Contest (Oct 12-16) 

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @PHatStanford