Episode 353 - PAH Today: Shape the Future
I'm Aware That I'm Rare: the phaware® podcast
Release Date: 12/02/2020
Anton Morkin - phaware® interview 558
I'm Aware That I'm Rare: the phaware® podcast
One Dad’s Mission to Cure His Son’s Genetic Disease When Anton Morkin’s son was diagnosed with “idiopathic” pulmonary hypertension, he refused to accept “no known cause” as an answer. What followed was a crash course in genetics, the discovery of a rare mutation, and the formation of a worldwide coalition, . My name is Anton Morkin. I am from Germany. In 2020, my son was diagnosed with severe pulmonary hypertension. We were just rushed into many new things for us. People were saying your child will die probably in the next week or month. They did not know how long he’d...
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Episode 558 - Anton Morkin
I'm Aware That I'm Rare: the phaware® podcast
One Dad’s Mission to Cure His Son’s Genetic Disease When Anton Morkin’s son was diagnosed with “idiopathic” pulmonary hypertension, he refused to accept “no known cause” as an answer. What followed was a crash course in genetics, the discovery of a rare mutation, and the formation of a worldwide coalition, . Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
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Gaurav Choudhary, MD - phaware® interview 557
I'm Aware That I'm Rare: the phaware® podcast
How an AI Stethoscope Could Transform Global Healthcare What if diagnosing PH didn’t require an echo or heart catheterization—but just a AI powered stethoscope? Dr. Gaurav Choudhary talks real-world use cases, validation studies, and the global potential of portable, AI-powered diagnostics in under-resourced settings. My name is Gaurav Choudhary. I'm a cardiologist. I'm in Providence, Rhode Island. I'm a Professor of Medicine at Brown University, Alpert Medical School of Brown University. As well as I'm the Director of Cardiovascular Research at Brown University Health. I got...
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Episode 557 - Gaurav Choudhary, MD
I'm Aware That I'm Rare: the phaware® podcast
How an AI Stethoscope Could Transform Global Healthcare What if diagnosing PH didn’t require an echo or heart catheterization—but just a AI powered stethoscope? Dr. Gaurav Choudhary talks real-world use cases, validation studies, and the global potential of portable, AI-powered diagnostics in under-resourced settings. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware #phawareMD Share your story:
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Lenise Whitley - phaware® interview 556
I'm Aware That I'm Rare: the phaware® podcast
The Loneliness of Pulmonary Hypertension After years of being dismissed, misdiagnosed, and told nothing was wrong, Lenise Whitley finally got an answer - pulmonary hypertension. In this powerful episode, she shares her journey through cardiac arrest, loss, faith, and isolation, and how support groups, advocacy, and self-belief helped her reclaim her voice. A raw, honest reminder of why being heard can be lifesaving. My name is Lenise Whitley. I currently live in Brooklyn, New York. I've been there since 2012. I'm originally from New Jersey and I was diagnosed in 2012. Honestly, I had never...
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Episode 556 - Lenise Whitley
I'm Aware That I'm Rare: the phaware® podcast
The Loneliness of Pulmonary Hypertension After years of being dismissed, misdiagnosed, and told nothing was wrong, Lenise Whitley finally got an answer - pulmonary hypertension. In this powerful episode, she shares her journey through cardiac arrest, loss, faith, and isolation, and how support groups, advocacy, and self-belief helped her reclaim her voice. A raw, honest reminder of why being heard can be lifesaving. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: ...
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Nicole Fitzgerald - phaware® interview 555
I'm Aware That I'm Rare: the phaware® podcast
One Teacher’s Unexpected Battle with a Silent Killer Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a big move—until breathlessness and fatigue nearly took her life. What started as stress turned into a life-threatening diagnosis. This is the story of how she faced pulmonary hypertension head-on and redefined her purpose. My name is Nicole Fitzgerald. I am 43 years old. I'm originally from Los Angeles, but I now live in Oklahoma City. I was diagnosed in February of 2018. It was kind of a bizarre road to diagnosis. At the time, we were living in Southern...
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Episode 555 - Nicole Fitzgerald
I'm Aware That I'm Rare: the phaware® podcast
One Teacher’s Unexpected Battle with a Silent Killer Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a big move—until breathlessness and fatigue nearly took her life. What started as stress turned into a life-threatening diagnosis. This is the story of how she faced pulmonary hypertension head-on and redefined her purpose. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
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Jean Elwing, MD phaware® interview 554
I'm Aware That I'm Rare: the phaware® podcast
Telehealth Is Ending: What That Means for PH Patients Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discusses the rapid expansion of telemedicine in pulmonary hypertension, the upcoming expiration of COVID-era telehealth funding in 2026, and why licensure and reimbursement policies could dramatically affect patient care. This episode highlights what's at stake for rare disease patients and why advocacy and awareness are essential to sustaining virtual care options. My name is Dr. Jean Elwing, and I’m a Professor of Medicine and the Director of the Pulmonary...
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Episode 554 - Jean Elwing, MD
I'm Aware That I'm Rare: the phaware® podcast
Telehealth Is Ending: What That Means for PH Patients Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discusses the rapid expansion of telemedicine in pulmonary hypertension, the upcoming expiration of COVID-era telehealth funding in 2026, and why licensure and reimbursement policies could dramatically affect patient care. This episode highlights what's at stake for rare disease patients and why advocacy and awareness are essential to sustaining virtual care options. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a...
info_outlineSPECIAL EDITION: How Decisions Today Can Shape the Future
The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast Series. This series of virtual events is intended for adult patients with pulmonary arterial hypertension (PAH) and their caregivers.
Advancements in the care and treatment of PAH are improving the lives of those impacted by this life-threatening disease. The National Broadcast Series will include insights and perspectives on today’s approaches to managing PAH from nationally recognized PAH healthcare providers. Join patients and caregivers across the nation to hear current considerations in the care of PAH.
This is the second of 4 PAH Today broadcasts to learn about risk status, an important part of today's approach to treating PAH. You'll hear how risk status gives your healthcare provider a new way to assess your progress, and how it could help determine whether more can be done to improve your symptoms today and down the road. Presented by Dr. Lana Melendres-Groves the Director of the Pulmonary Hypertension Program at the University of New Mexico and Nurse Practitioner Melisa Wilson. Learn more at: www.pahinitiative.com
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials