Episode 355 - PAH Today: The Pathways To Treatment
I'm Aware That I'm Rare: the phaware® podcast
Release Date: 12/09/2020
Eric Borstein - phaware® interview 573
I'm Aware That I'm Rare: the phaware® podcast
Why “The Walking Guy” Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Now, it has become a way to survive himself. Each step pulling “EB” further from an ICU bed and closer to an identity that isn’t defined by illness. Mental health has reshaped his recovery, and has become one of the lifelines he believes should be prescribed alongside life-saving therapies. I'm Eric Borstein. Five years ago, I was diagnosed with pulmonary arterial hypertension. I collapsed and nearly died. I spent 16...
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Episode 573 - Eric Borstein
I'm Aware That I'm Rare: the phaware® podcast
Why “The Walking Guy” Trusts His Therapist as Much as His Cardiologist For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Now, it has become a way to survive himself. Each step pulling “EB” further from an ICU bed and closer to an identity that isn’t defined by illness. Mental health has reshaped his recovery, and has become one of the lifelines he believes should be prescribed alongside life-saving therapies. Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow...
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Nicole Dempsey - phaware® interview 572
I'm Aware That I'm Rare: the phaware® podcast
Don’t Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pulmonary hypertension, that freedom suddenly felt fragile. Nicole shares how she continues to explore the world, raise her family, and find freedom beyond fear, proving that even with a rare disease, life doesn’t have to stop. My name is Nicole Dempsey. I'm from Cambridge, Ontario, Canada. And I have pulmonary arterial hypertension. I was diagnosed 12 years ago. Today, I want to talk to you a little bit about traveling with PH. When I was diagnosed, I...
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Episode 572 - Nicole Dempsey
I'm Aware That I'm Rare: the phaware® podcast
Don’t Let PH Ground You: A Real-World PH Travel Playbook For Nicole Dempsey, travel has always meant freedom. After being diagnosed with pulmonary hypertension, that freedom suddenly felt fragile. Nicole shares how she continues to explore the world, raise her family, and find freedom beyond fear, proving that even with a rare disease, life doesn’t have to stop. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
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Florin Dumitrescu - phaware® interview 571
I'm Aware That I'm Rare: the phaware® podcast
He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered From a devastating diagnosis to a lung transplant that changed everything, Florin Dumitrescu shares how mindset, persistence, and community carried his family through their darkest moment and how survival transformed into advocacy for pulmonary hypertension patients across Europe. #WorldPHDay2026 My name is Florin Dumitrescu, I'm 56. I'm from Romania, currently living in Austria, in Vienna. We are a family that entered the pulmonary hypertension influence four years ago when my wife got this diagnosis. Unfortunately, in Romania...
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Episode 571 - Florin Dumitrescu
I'm Aware That I'm Rare: the phaware® podcast
He Sent 100 Emails to Save His Wife… Only 3 Doctors Answered From a devastating diagnosis to a lung transplant that changed everything, Florin Dumitrescu shares how mindset, persistence, and community carried his family through their darkest moment and how survival transformed into advocacy for pulmonary hypertension patients across Europe. #WorldPHDay2026 Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
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Terri Keplinger - phaware® interview 570
I'm Aware That I'm Rare: the phaware® podcast
She’d Never Been Sick - Until a Rare Disease Hit Like a Brick Wall Terri Keplinger went from healthy and unstoppable to fighting for breath after unexplained swelling and a shocking ER visit led to a pulmonary arterial hypertension diagnosis. In this episode, she shares how denial turned into purpose, and how she transformed her fight into advocacy, support, and a mission to help others get diagnosed before it’s too late. My name is Terri Keplinger. I'm from Johnson City, Tennessee. I am a patient. I was diagnosed June 15th, 2021. It took me probably a year and a half to accept that I...
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Episode 570 - Terrie Keplinger
I'm Aware That I'm Rare: the phaware® podcast
She’d Never Been Sick - Until a Rare Disease Hit Like a Brick Wall Terri Keplinger went from healthy and unstoppable to fighting for breath after unexplained swelling and a shocking ER visit led to a pulmonary arterial hypertension diagnosis. In this episode, she shares how denial turned into purpose, and how she transformed her fight into advocacy, support, and a mission to help others get diagnosed before it’s too late. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and...
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Rey Adam Rodriguez - phaware® interview 569
I'm Aware That I'm Rare: the phaware® podcast
From Newlywed to Newly Diagnosed Six months after saying “I do,” Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey shares his whirlwind journey through misdiagnosis, a new baby, and finding hope through expert care and peer support. My name is Rey Adam Rodriguez. I was diagnosed with pulmonary hypertension in 2022, 6 months after I just got married. The time of my diagnosis was a whirlwind for my family. I've always been a healthy young kid playing every sport, baseball, basketball, football, soccer growing up. A little after high school, I started running, noticing...
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Episode 569 - Rey Adam Rodriguez
I'm Aware That I'm Rare: the phaware® podcast
From Newlywed to Newly Diagnosed Six months after saying “I do,” Rey Adam Rodriguez was told he had pulmonary arterial hypertension. Rey shares his whirlwind journey through misdiagnosis, a new baby, and finding hope through expert care and peer support. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
info_outlineSPECIAL EDITION: The Pathways To Treatment
The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast Series. This series of virtual events is intended for adult patients with pulmonary arterial hypertension (PAH) and their caregivers.
Advancements in the care and treatment of PAH are improving the lives of those impacted by this life-threatening disease. The National Broadcast Series will include insights and perspectives on today’s approaches to managing PAH from nationally recognized PAH healthcare providers. Join patients and caregivers across the nation to hear current considerations in the care of PAH.
This is the 3rd of 4 PAH Today broadcasts to learn about how medications work to treat PAH and how finding the right combination of medications could help improve your symptoms.
Presented by Dr. Lana Melendres-Groves the Director of the Pulmonary Hypertension Program at the University of New Mexico and Dr. Sean M. Studer Chief of Medicine at NYU-Woodhull Medical Center in Brooklyn, New York. Learn more at: www.pahinitiative.com
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials