Episode 355 - PAH Today: The Pathways To Treatment
I'm Aware That I'm Rare: the phaware® podcast
Release Date: 12/09/2020
Sandeep Sahay, MD and Jordin Rice, RN - phaware® interview 364
I'm Aware That I'm Rare: the phaware® podcast
Pulmonologist Sandeep Sahay, MD and Jordin Rice, RN from Houston Methodist Lung Center discuss a nurse's role in informing and educating pulmonary arterial hypertension patients about clinical trials. Sandeep Sahay, MD: I am Sandeep Sahay and I'm a pulmonologist at Houston Methodist Lung Center, Houston Methodist Hospital, Houston, Texas, and I specialize in pulmonary hypertension and I'm actively involved with clinical care of pulmonary hypertension patients and also in clinical research. Jordin Rice, RN: I am Jordin Rice. I am a research nurse at Houston Methodist. I work directly...
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Episode 364 - Sandeep Sahay, MD and Jordin Rice, RN
I'm Aware That I'm Rare: the phaware® podcast
In this episode, pulmonologist Sandeep Sahay, MD and Jordin Rice, RN from Houston Methodist Lung Center discuss a nurse's role in informing and educating pulmonary arterial hypertension patients about clinical trials.
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Kayla Dunlop - phaware® interview 363
I'm Aware That I'm Rare: the phaware® podcast
Kayla Dunlop is a pulmonary hypertension patient from Southern California. In this episode, Kayla discusses being born with a rare condition called giant omphalocele (GO), the challenge of adjusting to life on oxygen 24/7, and how she is using her creative spirt to make jewelry to raise funds and awareness for pulmonary hypertension. Hi, my name is Kayla Dunlop, and I'm 28 years old. I'm from Southern California, and I'm a PH patient myself. My childhood was different because I was born with actually a rare condition besides PH, that was later on, and it was called giant omphalocele (GO). So...
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Episode 363 - Kayla Dunlop
I'm Aware That I'm Rare: the phaware® podcast
Kayla Dunlop is a pulmonary hypertension patient from Southern California.
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Doug Evans - phaware® interview 362
I'm Aware That I'm Rare: the phaware® podcast
Doug Evans is a Pulmonary Hypertension patient from Florida. In this episode, Doug discusses his time in the military as a bomb loader, why he had to move from Colorado to lower altitude due to his PH, and how his treadmill and passion for Team PHenomenal Hope helped him lose over 80 pounds by simply walking. My name is Doug Evans. I'm a 20-year veteran of the United States Air Force and retired from Comcast as an engineer. In late 2014, I was diagnosed with pulmonary hypertension. Now I’m living in Florida where I no longer have to wear oxygen, which if your doctor says to move to a lower...
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Episode 362 - Doug Evans
I'm Aware That I'm Rare: the phaware® podcast
Doug Evans is a Pulmonary Hypertension patient from Florida.
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Derek Henderson - phaware® interview 361
I'm Aware That I'm Rare: the phaware® podcast
Derek Henderson is a #CTEPH patient from Toronto, Canada. In this episode Derek discusses is road to diagnosis with a rare form of pulmonary hypertension, the mental challenge of PTE surgery and the misconceptions of Canada's socialized medicine program. My name is Derek Henderson. I live in Toronto, Ontario, Canada. I'm a CTEPH patient (Chronic Thromboembolic Pulmonary Hypertension). I've had CTEPH since 2013. I'm an avid biker. I bike a lot when the weather's better. What ended up happening was that I just was losing my breath. My bike routes times were going down. Eventually, I was...
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Episode 361 - Derek Henderson
I'm Aware That I'm Rare: the phaware® podcast
Derek Henderson is a #CTEPH patient from Toronto, Canada.
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Kelly Lynch - phaware® interview 360
I'm Aware That I'm Rare: the phaware® podcast
My name is Kelly Lynch. I live in San Francisco. My rareness doesn't really start with PH. PH is probably lesser of the rare things for me, because I was supposed to be a conjoined twin and the other baby just didn't develop so I ended up with, some might call it a parasitic twin situation, where it was just kind of parts and bits and pieces. Essentially, the main thing that I ended up with is an extra spine, so it's like double-helixed. It kind of created this hump which is now hunching me over, which over time has contributed to the PH. So, I've actually probably had PH my whole life, but...
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Episode 360 - Kelly Lynch
I'm Aware That I'm Rare: the phaware® podcast
Kelly Lynch is a pulmonary hypertension patient from San Francisco.
info_outlineSPECIAL EDITION: The Pathways To Treatment
The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast Series. This series of virtual events is intended for adult patients with pulmonary arterial hypertension (PAH) and their caregivers.
Advancements in the care and treatment of PAH are improving the lives of those impacted by this life-threatening disease. The National Broadcast Series will include insights and perspectives on today’s approaches to managing PAH from nationally recognized PAH healthcare providers. Join patients and caregivers across the nation to hear current considerations in the care of PAH.
This is the 3rd of 4 PAH Today broadcasts to learn about how medications work to treat PAH and how finding the right combination of medications could help improve your symptoms.
Presented by Dr. Lana Melendres-Groves the Director of the Pulmonary Hypertension Program at the University of New Mexico and Dr. Sean M. Studer Chief of Medicine at NYU-Woodhull Medical Center in Brooklyn, New York. Learn more at: www.pahinitiative.com
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials