Jean Elwing, MD phaware® interview 554
I'm Aware That I'm Rare: the phaware® podcast
Telehealth Is Ending: What That Means for PH Patients Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discusses the rapid expansion of telemedicine in pulmonary hypertension, the upcoming expiration of COVID-era telehealth funding in 2026, and why licensure and reimbursement policies could dramatically affect patient care. This episode highlights what's at stake for rare disease patients and why advocacy and awareness are essential to sustaining virtual care options. My name is Dr. Jean Elwing, and I’m a Professor of Medicine and the Director of the Pulmonary...
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Episode 554 - Jean Elwing, MD
I'm Aware That I'm Rare: the phaware® podcast
Telehealth Is Ending: What That Means for PH Patients Telehealth use surged during COVID, but what happens next? Dr. Jean Elwing discusses the rapid expansion of telemedicine in pulmonary hypertension, the upcoming expiration of COVID-era telehealth funding in 2026, and why licensure and reimbursement policies could dramatically affect patient care. This episode highlights what's at stake for rare disease patients and why advocacy and awareness are essential to sustaining virtual care options. Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: ...
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Jasmine Wells - phaware® interview 553
I'm Aware That I'm Rare: the phaware® podcast
You Can Grieve and Still Fight: Love, Loss, and Living with PAH She cried for the life she lost. Then, she fought for the one she has. PAH patient, Jasmine Wells discusses what it really means to grieve the old you while finding purpose in the new. From navigating relationships, infections, and fear of transplant, to leading support groups and fighting misinformation. My name is Jasmine Wells. I grew up in Jackson, Michigan. I moved to Texas when I was married. Then, I moved back with my ex to Michigan. We were living in Grand Rapids. I was first diagnosed, it was a misdiagnosis of...
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Episode 553 - Jasmine Wells
I'm Aware That I'm Rare: the phaware® podcast
You Can Grieve and Still Fight: Love, Loss, and Living with PAH She cried for the life she lost. Then, she fought for the one she has. PAH patient, Jasmine Wells discusses what it really means to grieve the old you while finding purpose in the new. From navigating relationships, infections, and fear of transplant, to leading support groups and fighting misinformation. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
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Kevin Allen - phaware® interview 552
I'm Aware That I'm Rare: the phaware® podcast
The Pulse of a Fighter: Survival, Stigma, and Shaking Up HealthcareThey told him he had months to live. He used them to rewrite the rules. Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don’t understand. Today, he’s pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. My name is Kevin Allen. I am a psychological science pre-med major at Texas Tech University in Lubbock, Texas. I was diagnosed with pulmonary hypertension on June 15th, 2020 when I was flatlining in ICU at 3:00 AM. I woke up to...
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Episode 552 - Kevin Allen
I'm Aware That I'm Rare: the phaware® podcast
The Pulse of a Fighter: Survival, Stigma, and Shaking Up HealthcareThey told him he had months to live. He used them to rewrite the rules. Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don’t understand. Today, he’s pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
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Russel Hirsch, MD - phaware® interview 551
I'm Aware That I'm Rare: the phaware® podcast
Why Families Belong at the Table: PHriends of the PPHNet Dr. Russel Hirsch breaks down the core pillars of the , from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the family-led committee. My name is Russel Hirsch. I'm a physician, pediatrician, pediatric cardiologist, and I work out of Cincinnati Children's Hospital. I've been in the United States now going on about 33 years, actually. I grew up in South Africa and trained at the University of Cape Town. Then,...
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Episode 551 - Russel Hirsch, MD
I'm Aware That I'm Rare: the phaware® podcast
Why Families Belong at the Table: PHriends of the PPHNet Dr. Russel Hirsch breaks down the core pillars of the , from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the family-led committee. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: #phawareMD #PPHNet
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Jennifer Keeley, DPN and Mary Whittenhall, MSN - phaware® interview 550
I'm Aware That I'm Rare: the phaware® podcast
Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patients receiving inhaled therapies for pulmonary hypertension and interstitial lung disease. #GossamerBioPartner #sponsored This Special Edition episode is sponsored by . Jennifer Keeley, DPN: My name's Jennifer Keeley. I'm a nurse practitioner and I practice in a large academic institution in Pittsburgh, Pennsylvania, Allegheny Health Network, specifically Allegheny General Hospital. I am a nurse practitioner there and have been in the...
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Episode 550 - Jennifer Keeley, DPN and Mary Whittenhall, MSN
I'm Aware That I'm Rare: the phaware® podcast
Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patients receiving inhaled therapies for pulmonary hypertension and interstitial lung disease. #GossamerBioPartner #sponsored This Special Edition episode is sponsored by . Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: . #phawareMD #PHILD
info_outlineKayla Dunlop is a pulmonary hypertension patient from Southern California.
In this episode, Kayla discusses being born with a rare condition called giant omphalocele (GO), the challenge of adjusting to life on oxygen 24/7, and how she is using her creative spirt to make jewelry to raise funds and awareness for pulmonary hypertension.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials