Kevin Allen - phaware® interview 552
I'm Aware That I'm Rare: the phaware® podcast
The Pulse of a Fighter: Survival, Stigma, and Shaking Up HealthcareThey told him he had months to live. He used them to rewrite the rules. Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don’t understand. Today, he’s pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. My name is Kevin Allen. I am a psychological science pre-med major at Texas Tech University in Lubbock, Texas. I was diagnosed with pulmonary hypertension on June 15th, 2020 when I was flatlining in ICU at 3:00 AM. I woke up to...
info_outline
Episode 552 - Kevin Allen
I'm Aware That I'm Rare: the phaware® podcast
The Pulse of a Fighter: Survival, Stigma, and Shaking Up HealthcareThey told him he had months to live. He used them to rewrite the rules. Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don’t understand. Today, he’s pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
info_outline
Russel Hirsch, MD - phaware® interview 551
I'm Aware That I'm Rare: the phaware® podcast
Why Families Belong at the Table: PHriends of the PPHNet Dr. Russel Hirsch breaks down the core pillars of the , from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the family-led committee. My name is Russel Hirsch. I'm a physician, pediatrician, pediatric cardiologist, and I work out of Cincinnati Children's Hospital. I've been in the United States now going on about 33 years, actually. I grew up in South Africa and trained at the University of Cape Town. Then,...
info_outline
Episode 551 - Russel Hirsch, MD
I'm Aware That I'm Rare: the phaware® podcast
Why Families Belong at the Table: PHriends of the PPHNet Dr. Russel Hirsch breaks down the core pillars of the , from shared research to consistent care standards, and explains why the next chapter in pediatric pulmonary hypertension care must be written with families, not just for them through the family-led committee. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: #phawareMD #PPHNet
info_outline
Jennifer Keeley, DPN and Mary Whittenhall, MSN - phaware® interview 550
I'm Aware That I'm Rare: the phaware® podcast
Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patients receiving inhaled therapies for pulmonary hypertension and interstitial lung disease. #GossamerBioPartner #sponsored This Special Edition episode is sponsored by . Jennifer Keeley, DPN: My name's Jennifer Keeley. I'm a nurse practitioner and I practice in a large academic institution in Pittsburgh, Pennsylvania, Allegheny Health Network, specifically Allegheny General Hospital. I am a nurse practitioner there and have been in the...
info_outline
Episode 550 - Jennifer Keeley, DPN and Mary Whittenhall, MSN
I'm Aware That I'm Rare: the phaware® podcast
Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patients receiving inhaled therapies for pulmonary hypertension and interstitial lung disease. #GossamerBioPartner #sponsored This Special Edition episode is sponsored by . Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: . #phawareMD #PHILD
info_outline
Ashlee Gambino - phaware® interview 549
I'm Aware That I'm Rare: the phaware® podcast
My name is Ashlee "The Mobwife" Gambino. I'm a retired professional fighter. I've acted. I've done a lot of different things. I am now diagnosed with idiopathic pulmonary arterial hypertension. I'm in the severe category, so it's pretty far along. I can no longer fight, unfortunately. I have a central line pumping life-sustaining medication directly into my heart right now. I performed on Fremont Street for two years when we first moved to Las Vegas. As a fighter, I would hand people a pair of boxing gloves, provided they weren't belligerently drunk, and they agreed to the rules, which where...
info_outline
Episode 549 - Ashlee Gambino
I'm Aware That I'm Rare: the phaware® podcast
FIGHTER TO SURVIVOR: ASHLEE GAMBINO’S BATTLE BEYOND THE RING In this gripping episode, Ashlee "The Mobwife" Gambino shares her journey from a fierce MMA and professional boxing career to battling idiopathic pulmonary arterial hypertension. Discover how she turned her fighter's mindset into a lifeline, navigating the unimaginable loss of her daughter, Katana, and fighting for her life with relentless determination. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
info_outline
Sophia Esteves - phaware® interview 548
I'm Aware That I'm Rare: the phaware® podcast
Scars and Survival: Rebuilding Life After a Devastating Diagnosis After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn’t just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit. My name is Sophia Esteves. I am living in San Antonio where I grew up. My connection to pulmonary arterial hypertension in the community is I'm a support group leader and I'm also a patient...
info_outline
Episode 548 - Sophia Esteves
I'm Aware That I'm Rare: the phaware® podcast
Scars and Survival: Rebuilding Life After a Devastating Diagnosis After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn’t just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story:
info_outlineKayla Dunlop is a pulmonary hypertension patient from Southern California.
In this episode, Kayla discusses being born with a rare condition called giant omphalocele (GO), the challenge of adjusting to life on oxygen 24/7, and how she is using her creative spirt to make jewelry to raise funds and awareness for pulmonary hypertension.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials