Episode 533 - Robert Frantz, MD
I'm Aware That I'm Rare: the phaware® podcast
Release Date: 08/12/2025
Angela Brown - phaware® interview 565
I'm Aware That I'm Rare: the phaware® podcast
The Daily Discipline of PH: Living by the Liter and Label Most people don’t count every sip of water or every grain of salt. Angela Brown does. This episode dives into the daily discipline required to live with pulmonary hypertension—from navigating restaurant menus to surviving a exotic vacations in sweltering heat with strict fluid and sodium limits. My name is Angela Brown. I live in Toronto, Canada. In April of 2024, I was diagnosed with pulmonary hypertension. It started towards the end of 2022. I wasn't feeling well. My legs would swell up and I would have problems walking and...
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Episode 565 - Angela Brown
I'm Aware That I'm Rare: the phaware® podcast
The Daily Discipline of PH: Living by the Liter and Label Most people don’t count every sip of water or every grain of salt. Angela Brown does. This episode dives into the daily discipline required to live with pulmonary hypertension—from navigating restaurant menus to surviving a exotic vacations in sweltering heat with strict fluid and sodium limits. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
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Neal McDermott and Steve Mathai, MD - phaware® interview 564
I'm Aware That I'm Rare: the phaware® podcast
Two Rare Diagnoses, One Powerful Partnership Scleroderma and PAH: Patient, Neal McDermott and Dr. Steve Mathai unpack how the intersection of two rare diseases requires trust, early action, and deeply personalized care. This episode explores what happens when medical expertise meets patient resilience, and why collaboration and clinical trials matter more than ever in changing the outcomes of rare disease. Neal McDermott: My name is Neal McDermott. I live in the mountains in West Virginia. I was originally diagnosed with pulmonary arterial hypertension in December of 2016. Prior to that, I...
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Episode 564 - Neal McDermott and Steve Mathai, MD
I'm Aware That I'm Rare: the phaware® podcast
Two Rare Diagnoses, One Powerful Partnership Scleroderma and PAH: Patient, Neal McDermott and Dr. Steve Mathai unpack how the intersection of two rare diseases requires trust, early action, and deeply personalized care. This episode explores what happens when medical expertise meets patient resilience, and why collaboration and clinical trials matter more than ever in changing the outcomes of rare disease. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware #phawareMD Share your story: Like, Subscribe and Follow us: ...
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Khushboo Goel, MD phaware® interview 563
I'm Aware That I'm Rare: the phaware® podcast
The Hidden Daily Battles of Pulmonary Hypertension Patients Behind the clinical charts and heart catheterizations lies a world of emotional, financial, and physical challenges that PH patients face every day. Dr. Khushboo Goel opens up about what she’s learned from patients in support groups—and how it’s reshaping her approach to care. My name is Dr. Khushboo Goel. I am a pulmonary hypertension specialist here at Cedars-Sinai. I'm part of the faculty for the Division of Pulmonary and Critical Care Medicine. I came to Cedars in route, multiple states in terms of my medical training....
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Episode 563 - Khushboo Goel, MD
I'm Aware That I'm Rare: the phaware® podcast
The Hidden Daily Battles of Pulmonary Hypertension Patients Behind the clinical charts and heart catheterizations lies a world of emotional, financial, and physical challenges that PH patients face every day. Dr. Khushboo Goel opens up about what she’s learned from patients in support groups—and how it’s reshaping her approach to care. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware #phawareMD Share your story: Like, Subscribe and Follow us: .
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Ripla Arora, PhD - phaware® interview 562
I'm Aware That I'm Rare: the phaware® podcast
Why the Clues to Pulmonary Hypertension Start Before Birth When Ripla Arora first studied TBX4 as a young PhD student, no one imagined this gene held secrets to life-threatening lung diseases. Now, years later, her early work is the foundation of a global effort to unlock the fetal origins of pulmonary hypertension. My name is Ripla Arora and I’m an Associate Professor in the OB-GYN department and the biomedical engineering department at Michigan State University. I also am part of the Institute of Quantitative Health Science and Engineering. I’m a developmental biologist and a geneticist...
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Episode 562 - Ripla Arora, PhD
I'm Aware That I'm Rare: the phaware® podcast
Why the Clues to Pulmonary Hypertension Start Before Birth When Ripla Arora first studied TBX4 as a young PhD student, no one imagined this gene held secrets to life-threatening lung diseases. Now, years later, her early work is the foundation of a global effort to unlock the fetal origins of pulmonary hypertension. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware #phawareMD Share your story: Like, Subscribe and Follow us: .
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Jeffrey Whitsett, MD - phaware® interview 561
I'm Aware That I'm Rare: the phaware® podcast
Cracking the Code: How Genetics Is Rewriting Neonatal Medicine Dr. Jeffrey Whitsett reflects on five decades in neonatal care, tracing the evolution from limited support for preemies to today’s cutting-edge genetic discoveries. Discover how rare gene mutations like TBX4 are reshaping our understanding of lung development and why collaboration with families is key to the next era of life-saving treatments. I’m Jeffrey Whitsett. I’m a neonatologist at Children’s Hospital Medical Center. I am the Director of the Perinatal Institute. I’ve been there 50 years, taking care of newborns...
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Episode 561 - Jeffrey Whitsett, MD
I'm Aware That I'm Rare: the phaware® podcast
Cracking the Code: How Genetics Is Rewriting Neonatal Medicine Dr. Jeffrey Whitsett reflects on five decades in neonatal care, tracing the evolution from limited support for preemies to today’s cutting-edge genetic discoveries. Discover how rare gene mutations like TBX4 are reshaping our understanding of lung development and why collaboration with families is key to the next era of life-saving treatments. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware #phawareMD Share your story: Like, Subscribe and Follow us: ...
info_outlineDr. Robert Frantz breaks down the key metrics behind risk stratification—functional class, six-minute walk distance, and brain natriuretic peptide levels—and explains how they shape treatment plans. He also explores the role of echocardiography, right heart catheterization, and cutting-edge therapies in improving patient outcomes.
Read the proceedings of the Task Force on Risk Stratification from the Seventh World Symposium on Pulmonary Hypertension.
This Special Edition Episode Sponsored by: Johnson & Johnson
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
Share your story: info@phaware.com #phawareMD #RiskStratification @MayoClinic @MayoMedEd @TeamPHHope @JNJInnovMed