Episode 580 - Evan Holm, LMSW, SWCM
I'm Aware That I'm Rare: the phaware® podcast
Release Date: 07/07/2026
Lynn Bouseman - phaware® interview 590
I'm Aware That I'm Rare: the phaware® podcast
“Get Your Affairs in Order”: She Told Her Doctor She’d Be Back in 20 Years In 1994, before there were any FDA approved treatments for pulmonary hypertension, Lynn Bouseman was told to prepare for the end. Her pressures were sky-high. Her heart was failing. A specialist calmly suggested she might only have months. Lynn looked him in the eye and said, “No,” she had two small daughters waiting at home. Survival would require one thing above all else: a refusal to surrender. My name is Lynn Bouseman. I am from Southern Illinois. I was diagnosed with pulmonary hypertension in 1994. My...
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Episode 590 - Lynn Bouseman
I'm Aware That I'm Rare: the phaware® podcast
“Get Your Affairs in Order”: She Told Her Doctor She’d Be Back in 20 Years In 1994, before there were any FDA approved treatments for pulmonary hypertension, Lynn Bouseman was told to prepare for the end. Her pressures were sky-high. Her heart was failing. A specialist calmly suggested she might only have months. Lynn looked him in the eye and said, “No,” she had two small daughters waiting at home. Survival would require one thing above all else: a refusal to surrender. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a...
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Abby and Ari Borstein - phaware® interview 589
I'm Aware That I'm Rare: the phaware® podcast
PH Didn't Just Change One Life, It Changed an Entire Family When pulmonary hypertension changed their father, Eric Borstein’s life, sisters Abby and Ari refused to let the disease write the ending. Instead, their family turned heartbreak into hope by creating a community " 5K dedicated to raising awareness, honoring their dad, and supporting others facing the same rare disease. What began as one family's response to unimaginable adversity has grown into something much bigger, a movement proving that every step taken can bring hope to someone still searching for answers. Learn more about...
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Episode 589 - Abby and Ari Borstein
I'm Aware That I'm Rare: the phaware® podcast
PH Didn't Just Change One Life, It Changed an Entire Family When pulmonary hypertension changed their father, Eric Borstein’s life, sisters Abby and Ari refused to let the disease write the ending. Instead, their family turned heartbreak into hope by creating a community " 5K dedicated to raising awareness, honoring their dad, and supporting others facing the same rare disease. What began as one family's response to unimaginable adversity has grown into something much bigger, a movement proving that every step taken can bring hope to someone still searching for answers. Learn more about...
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Donna Wallace Harmon - phaware® interview 588
I'm Aware That I'm Rare: the phaware® podcast
She Didn’t Just Survive Being Rare. She Made Meaning Out of It. PH patient, Donna Wallace Harmon can’t fly. She lives with limits. She knows tomorrow isn’t guaranteed. But Donna refuses to live waiting for “someday.” Her motto is simple and defiant: Do the best I can when I can, because nobody knows what tomorrow holds. My name is Donna Wallace Harmon. I was born in Jamaica, but I came to Canada in my early 20s. When I was born, I was a preemie with a VSD, a hole in my heart, but it wasn't repaired until 1990, because they didn't think it necessary at the time. As I grow older and...
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Episode 588 - Donna Wallace Harmon
I'm Aware That I'm Rare: the phaware® podcast
She Didn’t Just Survive Being Rare. She Made Meaning Out of It. PH patient, Donna Wallace Harmon can’t fly. She lives with limits. She knows tomorrow isn’t guaranteed. But Donna refuses to live waiting for “someday.” Her motto is simple and defiant: Do the best I can when I can, because nobody knows what tomorrow holds. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
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Carolyn Mathur - phaware® interview 587
I'm Aware That I'm Rare: the phaware® podcast
Out of Breath, Not Out of Dreams: One Woman’s PH Journey Across 79 Countries Carolyn Mathur was told she had only hours to live. Then days. Then months. Instead of waiting to die, she chose to live—loudly, joyfully, and without apology. Nearly three decades later, she’s still here, traveling the world, and proving that hope can outlive even the bleakest diagnosis. My name is Carolyn Mathur. I'm 63. I live in Port Perry, Ontario right now. Originally, born in Nova Scotia and then, Montreal and then Toronto, and now just live in Port Perry by the lake. And it’s just a lovely view...
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Episode 587 - Carolyn Mathur
I'm Aware That I'm Rare: the phaware® podcast
Out of Breath, Not Out of Dreams: One Woman’s PH Journey Across 79 Countries Carolyn Mathur was told she had only hours to live. Then days. Then months. Instead of waiting to die, she chose to live—loudly, joyfully, and without apology. Nearly three decades later, she’s still here, traveling the world, and proving that hope can outlive even the bleakest diagnosis. Learn more about pulmonary hypertension trials at . Engage for a cure: #phaware Share your story: Like, Subscribe and Follow us: .
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Sherri Odusanya - phaware® interview 586
I'm Aware That I'm Rare: the phaware® podcast
Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger. Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way her diagnosis hadn’t. Sleeping beside a roaring machine. Dragging tanks through daily life. Crying in the car after picking up her daughter from school. Then came the real gut punch… doctors warning she might never fly again. For a woman who loved travel and had family across the ocean, it felt like her world was closing in. My name is Sherri Odusanya. I'm originally from Boston, Massachusetts, but have now been living in San Diego, California since...
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Episode 586 - Sherri Odusanya
I'm Aware That I'm Rare: the phaware® podcast
Pulmonary Hypertension Tried to Shrink Her World. She Made It Bigger. Being prescribed oxygen broke PAH patient, Sherri Odusanya, in a way her diagnosis hadn’t. Sleeping beside a roaring machine. Dragging tanks through daily life. Crying in the car after picking up her daughter from school. Then came the real gut punch… doctors warning she might never fly again. For a woman who loved travel and had family across the ocean, it felt like her world was closing in. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure: #phaware Share...
info_outlineWhy a Social Worker Might Be the Most Important Person on a PH Care Team
When pulmonary hypertension finally gets a name, fear rushes in fast. Social Worker, Evan Holm, is often the first person patients lean on after their right heart catheterization at University of New Mexico Hospital. As a support group leader for PAH, he is passionate about providing emotional and educational support to patients and their families while assisting them in navigating the healthcare system. His work proves that access, advocacy, and compassion can be just as lifesaving as medication.
Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
Share your story: info@phaware.global Like, Subscribe and Follow us: www.phawarepodcast.com. @UNMHSC