Ep. 256 "The Psoriasis Partnership: How Proactive Care & Biologics Changed My Life"
Psound Bytes™
Join us to hear Jennifer's incredible unexpected journey from mysterious, itchy skin blotches leading to a full psoriasis diagnosis and how she found the right treatment for her with dermatologist Dr. Christina Feser and Mind.Px. Listen as Jennifer tells her diagnostic odyssey from itchy, skin blotches to psoriasis with host Max Blitstein as together they explore her journey from topical treatments to biologics, and the emotional toll this disease can take. Learn how this psoriasis patient found relief with Dr. Christina Feser through the use of new precision medicine technology to find the...
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Ep. 255 "GPP is Far More Than Just Psoriasis"
Psound Bytes™
Having Generalized Pustular Psoriasis (GPP) can steam roll your life. Hear how dermatologist Dr. Oanh Lauring and patient advocate Jordan Hicks overcame the challenge of recognition to treating this rare form of psoriasis. GPP is far more than just psoriasis. Recognition of this form of psoriasis with a unique cytokine presents challenges when symptoms are not so apparent and confusing. Join host Alan Simmons as he dives into the diagnosis journey, and treatment from acute to chronic flares with dermatologist Dr. Oanh Lauring, and what it means to live and stand up for yourself with GPP with...
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Ep. 254 "If You Have Psoriatic Disease Keep an Eye Out for Uveitis"
Psound Bytes™
Have a red, painful eye that’s sensitive to light? Could be uveitis. Hear ophthalmologist Dr. Timothy Janetos discuss uveitis and how it relates to psoriasis and psoriatic arthritis. Join host Takieyah Mathis for an eye opening discussion about uveitis, cataracts, and eye health with ophthalmologist Dr. Timonthy Janetos from Northwestern Medicine, Department of Ophthalmology. Listen as they discuss what is uveitis and cataracts from key symptoms, the significance of the HLA-B27 marker, diagnosis, to treatment options that help reduce inflammation and preserve long term vision. This episode...
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Ep. 253 "Inflammation is Bad for Bone: Osteoporosis and Psoriatic Disease"
Psound Bytes™
Osteoporosis is a silent disease. There is no pain or other symptoms but inflammation in the gut and joints is a risk factor. Learn about your risks and what you can do for osteoporosis from rheumatologist Dr. Diana Sandler. Join host Corinne Rutkowski, a third year medical student, as she explores the relationship between osteoporosis and psoriasis with leading bone health expert and rheumatologist Dr. Diana Sandler. Listen as they discuss the difference between osteoporosis and osteoarthritis, bone density testing, how prolonged inflammation is a key risk factor especially for psoriatic...
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Ep 252 "Defining Minimal Disease Activity in Psoriatic Arthritis with rheumatologist Dr. Arthur Mandelin"
Psound Bytes™
Not sure what Minimal Disease Activity or MDA is and how it relates to psoriatic arthritis and your joints? Listen as rheumatologist Dr. Arthur Mandelin explains what MDA means. Join hosts Jeff Brown and LB Herbert as they discuss minimal disease activity in psoriatic arthritis with nationally recognized rheumatologist Dr. Arthur Mandelin who identifies what it is, factors that influence achieving MDA, how long it takes to reach, and the impact on selection of treatments. Dr. Mandelin also addresses fatigue associated with inflammation, and what the future holds for minimal disease activity in...
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Ep. 251 "Managing Psoriasis in High Impact Sites is a Whole Different Ball Game"
Psound Bytes™
Psoriasis in high impact sites like the scalp, nails, genitals, palms, and soles is challenging. Hear views on living with such difficult to treat areas, and how appropriate treatments offer patient centered care from internationally recognized dermatologist Dr. Andrew Blauvelt, chair of the NPF Medical Board, patient advocates Brittany Murray and Crystal Gatlin, with moderator Corinne Rutkowski. This episode is provided with support from AbbVie.
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Ep. 250 "The Future of Psoriasis Care: Dr. Mona Shahriari Breaks Down New AAD Research & Personalized Treatments"
Psound Bytes™
Explore groundbreaking updates in psoriasis and psoriatic arthritis research from the 2025 AAD Annual Meeting with dermatologist Dr. Mona Shahriari. Join host Archie Franklin and renowned dermatologist Dr. Mona Shahriari as they unpack the latest research and clinical insights into managing psoriatic disease. This episode dives into head-to-head therapeutic trials, fast-acting treatments for high-impact areas like scalp and nails, and a preview of emerging oral biologics and GLP-1 weight management therapies. Dr. Shahriari discusses real-world challenges in treating psoriasis and psoriatic...
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Ep. 249 "Facing Psoriasis Together and Finding Hope"
Psound Bytes™
Facing challenges presented by psoriasis can be an emotional roller coaster. From diagnosis, treatment choices, and the impact of bullying when a child has psoriasis can leave a parent feeling alone and helpless. Finding someone who's been on the same journey can be a benefit. Hear how parents Jessie Houston, Nadya Helt, and Emma Rhodes with moderator Michel Tarabocchia found the help and hope they needed through the NPF One to One Program.
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Ep. 248 "How We Make an IMPACT in Psoriatic Disease"
Psound Bytes™
Making an impact as a volunteer can happen in many different ways. Hear what it means to volunteer and come together to attend the NPF IMPACT Volunteer Leadership Summit as 3 fabulous volunteers, John Romano, Alena Chapman, and NPF Board Member Chris Lindsay, share their experiences and how they fundraise to make a difference in the psoriatic disease community with Carol Osterhaus, NPF Senior Regional Development Manager for the Central Region.
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Ep. 247 "Psoriasis and Psoriatic Arthritis: More Than Skin and Joints"
Psound Bytes™
Having psoriasis may mean you're at risk for other diseases. Listen as moderators Alan Simmons and Kaleigh Welch explore cardiovascular disease, calcium build-up, NAFLD, sleep disorders, depression, anxiety, and the big question - does risk equal certainty with Dr. John Barbieri, Assistant Professor at Harvard Medical School, an investigator of the CP3 Study, and the Smart Phone Cognitive Behavioral Therapy Study.
info_outlineHaving Generalized Pustular Psoriasis (GPP) can steam roll your life. Hear how dermatologist Dr. Oanh Lauring and patient advocate Jordan Hicks overcame the challenge of recognition to treating this rare form of psoriasis.
GPP is far more than just psoriasis. Recognition of this form of psoriasis with a unique cytokine presents challenges when symptoms are not so apparent and confusing. Join host Alan Simmons as he dives into the diagnosis journey, and treatment from acute to chronic flares with dermatologist Dr. Oanh Lauring, and what it means to live and stand up for yourself with GPP with Jordan Hicks.
This episode offers a heartfelt look at life with generalized pustular psoriasis (GPP) and the value of standing up for your health. Join GPP Awareness Day in August.
Timestamps:
· (0:00) Intro to Psound Bytes & guest welcome dermatologist Dr. Oanh Lauring and patient advocate Jordan Hicks.
· (1:08) Jordan’s diagnosis journey with generalized pustular psoriasis (GPP).
· (2:37) What is generalized pustular psoriasis and Dr. Lauring’s first encounter with GPP.
· (8:00) How GPP is different from plaque psoriasis but they can coexist together.
· (9:53) Treatment of acute GPP flares vs ongoing flare management.
· (12:29) The impact of GPP on Jordan’s life.
· (13:22) How to support those who live with GPP in the clinic setting and their mental health.
· (15:24) Tips for working with other specialists in management of GPP.
· (17:30) Feelings associated with being diagnosed with GPP.
· (20:43) Being a self-advocate is important to your healthcare journey.
· (22:18) If you have GPP, you are not alone. Initiation of GPP Awareness Day.
4 Key Takeaways:
· Diagnosis of generalized pustular psoriasis can take time given its confusing presentation in the early stages but can shift rapidly to urgent care when in the acute phase of the disease.
· Generalized pustular psoriasis and plaque psoriasis are distinct forms but can coexist together. 50% of patients with GPP also have plaque psoriasis.
· The impact of living with GPP is significant and finding support from those who understand, including health care providers, is critical to treating and coping with the disease.
· If you have GPP be a strong advocate for your health and your self-worth. Your symptoms are valid and you deserve to be heard.
Guest Bios:
Dr. Oanh Lauring is a board-certified dermatologist in private practice at Lauring Dermatology where she provides the utmost care and expertise for patients with serious skin diseases such as psoriasis that impact the skin, scalp, hair, and nails. She offers a variety of the latest medical treatments including generalized pustular psoriasis to help her patients achieve a natural and refreshed appearance.
Jordan Hicks took her health into her own hands. She moved from a small Texas town to Las Vegas in order to obtain care for her generalized pustular psoriasis or GPP. Once there she found her community and learned to speak up for herself and others. Jordan and her dog have been active advocates for GPP and Psoriasis ever since.
Resources:
Ø Find Support through GPP Circles and others who understand what it means to live with GPP https://www.psoriasis.org/gpp-circles/
Ø Join us to create awareness for the first GPP Awareness Day August 13, 2025. Request your tool kit. https://www.psoriasis.org/gpp-toolkit/