Psoriasis Uncovered
Description: Do you wonder if TB testing is needed when on a biologic for psoriasis and/or psoriatic arthritis and why? Hear the answer to such questions and more from dermatologist Dr. G. Scott Drew as he addresses recent recommendations. Join host Archie Franklin as he discusses the latest recommendations from NPF and the International Psoriasis Council about routine testing for tuberculosis (TB) with treatments for psoriasis and psoriatic arthritis such as TNF-inhibitors, IL-17’s, IL-23’s and others with NPF Medical Board member and...
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Description: How do GLP-1 receptor agonists or GIP agonists work and what is the impact for my psoriatic disease? Hear dermatologist Dr. Ronald Prussick and cardio-immunologist Dr. Brittany Weber answer such questions and more. Join host Archie Franklin as he takes a deep dive into the use of GLP-1 receptor agonists and GIP agonists and the convergence of systemic inflammation related to psoriatic disease with renowned dermatologist and Vice Chair of the NPF Medical Board, Dr. Ronald Prussick from Washington Dermatology Center...
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Description: “When joint pain is present, the diagnosis of psoriatic arthritis needs to be made as soon as possible, ideally within six months to limit joint inflammation” Dr. Vinod Chandran mentions as he discusses efforts to identify a diagnostic test for those at risk of developing psoriatic arthritis. Join host Jeff Brown as he speaks with leading rheumatologist and clinician scientist Dr. Vinod Chandran, Director of the Gladman Krembil Psoriatic Arthritis Program, Schroeder Arthritis Institute, University Health Network and the...
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Description: “What is metabolic disease and why do I have it on top of psoriatic disease?” Hear dermatologist Dr. Ronald Prussick and registered dietitian Danielle Cahalan explore this collision of diseases and how you can take control to help reduce the impact of inflammation. Join host Corinne Rutkowski as she discusses why metabolic disease occurs with psoriasis and psoriatic arthritis and what can be done to improve overall health with dermatologist and Vice Chair of the NPF Medical Board, Dr. Ronald Prussick from Washington...
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Description: Coping with psoriasis can be challenging when your routine changes. Hear NPF Youth Ambassadors Aditi, Alyssa, and Pierce offer what they do to overcome such challenges when out of their routine. Join host Kaleigh Welch as she discusses tips for coping with changes that occur when traveling to visit family or friends, going on vacation, camping, or a change in schedule with three amazing NPF Youth Ambassadors Aditi, Alyssa, and Pierce who live with psoriasis. Hear their story from challenges with their initial diagnosis,...
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After being diagnosed with psoriasis and psoriatic arthritis, finding a community that understood how life changed meant everything to Jody Quinn, Ben and Kathryn Rifenbark. Join host Alan Simmons as he addresses life with psoriasis and psoriatic arthritis before and after finding the National Psoriasis Foundation with 3 amazing volunteers – Jody Quinn, Ben and Kathryn Rifenbark. Hear their story from struggles with initial diagnosis, being an advocate for their own health care, to how they chose to become part of a community and help...
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Description: Learn why advocating for care is crucial when moderate to severe plaque psoriasis develops at a young age or in high-impact sites, and how advanced biologic therapies can offer effective solutions for those that may be undertreated. Join moderator Kaitlin Walden, patient advocate Carolyn, and dermatologist Dr Candrice Heath as they discuss the realities of living with moderate to severe plaque psoriasis at a young age, as well as adult patients with plaque psoriasis in high-impact sites, like the scalp, nails, and face. Carolyn shares her personal journey with moderate to severe...
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Hear leading dermatologist Dr. E. James Song and patient advocate Ana Rinck share their perspectives on the use of biosimilars to manage psoriasis and psoriatic arthritis. The use of biosimilars is growing with 24 currently on the market and more on the way for the treatment of psoriasis and psoriatic arthritis. What does this mean for you? Find out as we explore the use of biosimilars, the impact of interchangeability, what it’s like switching to a biosimilar, and what questions to ask your health care provider with leading dermatologist and NPF Medical Board member Dr. E. James Song,...
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Description: Nail psoriasis is tough to treat. Hear Rebecca, a patient who lives with nail psoriasis, and dermatologist Dr. Paul Yamauchi discuss the diagnosis, care, and treatment for this high-impact site. Join host Roy Pankey as he addresses the complexities of nail psoriasis from diagnosis to coping and the latest research and treatments with leading dermatologist, Dr. Paul Yamauchi from the Dermatology Institute and Skin Care Center and Clinical Science Institute, and Rebecca, a patient advocate with the National Psoriasis...
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“Help! It’s winter and my psoriasis and psoriatic arthritis is flaring.” Listen as certified physician assistant Eileen Cheever offers tips to help manage psoriasis and psoriatic arthritis flares that occur during the winter months. Join host Corinne Rutkowski as she explores tips for managing psoriasis and psoriatic arthritis when cold weather flares the disease with Certified Physician Assistant Eileen Cheever from Clearview Dermatology. Listen as they discuss why flares occur and tips for improving flares from humidity,...
info_outlineHaving Generalized Pustular Psoriasis (GPP) can steam roll your life. Hear how dermatologist Dr. Oanh Lauring and patient advocate Jordan Hicks overcame the challenge of recognition to treating this rare form of psoriasis.
GPP is far more than just psoriasis. Recognition of this form of psoriasis with a unique cytokine presents challenges when symptoms are not so apparent and confusing. Join host Alan Simmons as he dives into the diagnosis journey, and treatment from acute to chronic flares with dermatologist Dr. Oanh Lauring, and what it means to live and stand up for yourself with GPP with Jordan Hicks.
This episode offers a heartfelt look at life with generalized pustular psoriasis (GPP) and the value of standing up for your health. Join GPP Awareness Day in August.
Timestamps:
· (0:00) Intro to Psound Bytes & guest welcome dermatologist Dr. Oanh Lauring and patient advocate Jordan Hicks.
· (1:08) Jordan’s diagnosis journey with generalized pustular psoriasis (GPP).
· (2:37) What is generalized pustular psoriasis and Dr. Lauring’s first encounter with GPP.
· (8:00) How GPP is different from plaque psoriasis but they can coexist together.
· (9:53) Treatment of acute GPP flares vs ongoing flare management.
· (12:29) The impact of GPP on Jordan’s life.
· (13:22) How to support those who live with GPP in the clinic setting and their mental health.
· (15:24) Tips for working with other specialists in management of GPP.
· (17:30) Feelings associated with being diagnosed with GPP.
· (20:43) Being a self-advocate is important to your healthcare journey.
· (22:18) If you have GPP, you are not alone. Initiation of GPP Awareness Day.
4 Key Takeaways:
· Diagnosis of generalized pustular psoriasis can take time given its confusing presentation in the early stages but can shift rapidly to urgent care when in the acute phase of the disease.
· Generalized pustular psoriasis and plaque psoriasis are distinct forms but can coexist together. 50% of patients with GPP also have plaque psoriasis.
· The impact of living with GPP is significant and finding support from those who understand, including health care providers, is critical to treating and coping with the disease.
· If you have GPP be a strong advocate for your health and your self-worth. Your symptoms are valid and you deserve to be heard.
Guest Bios:
Dr. Oanh Lauring is a board-certified dermatologist in private practice at Lauring Dermatology where she provides the utmost care and expertise for patients with serious skin diseases such as psoriasis that impact the skin, scalp, hair, and nails. She offers a variety of the latest medical treatments including generalized pustular psoriasis to help her patients achieve a natural and refreshed appearance.
Jordan Hicks took her health into her own hands. She moved from a small Texas town to Las Vegas in order to obtain care for her generalized pustular psoriasis or GPP. Once there she found her community and learned to speak up for herself and others. Jordan and her dog have been active advocates for GPP and Psoriasis ever since.
Resources:
Ø Find Support through GPP Circles and others who understand what it means to live with GPP https://www.psoriasis.org/gpp-circles/
Ø Join us to create awareness for the first GPP Awareness Day August 13, 2025. Request your tool kit. https://www.psoriasis.org/gpp-toolkit/