SED 548: Helping Tess with MRELD
Stronger Every Day: For Parents of Children with Rare Diseases
Release Date: 07/15/2025
Stronger Every Day: For Parents of Children with Rare Diseases
This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 5 of 5.
info_outlineStronger Every Day: For Parents of Children with Rare Diseases
This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 4 of 5.
info_outlineStronger Every Day: For Parents of Children with Rare Diseases
This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 3 of 5.
info_outlineStronger Every Day: For Parents of Children with Rare Diseases
This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility.
info_outlineStronger Every Day: For Parents of Children with Rare Diseases
This week, Tess has a life-threatening event, at a time when we're very far from the closest medical facility.
info_outlineStronger Every Day: For Parents of Children with Rare Diseases
This week, we're away on a ski vacation as a family. Let's check in with Tess.
info_outlineStronger Every Day: For Parents of Children with Rare Diseases
This week, we're on pins and needles, waiting for a very special milestone.
info_outlineStronger Every Day: For Parents of Children with Rare Diseases
This week, the illness continues, believe it or not. We'll check in on our girl.
info_outlineStronger Every Day: For Parents of Children with Rare Diseases
This week, someone in our house is considerably under the weather.
info_outlineStronger Every Day: For Parents of Children with Rare Diseases
This week, got a few fun stories for ya. Vignettes, if you will.
info_outlineToday I'll be sharing a bit about Tess's progress when it comes to spoken language.
She has a language deficit called Mixed Receptive-Expressive Language Disorder.