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SED 562: The Big Four

Stronger Every Day: For Parents of Children with Rare Diseases

Release Date: 10/21/2025

SED 577: Many Moons show art SED 577: Many Moons

Stronger Every Day: For Parents of Children with Rare Diseases

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 5 of 5.

info_outline SED 576: A New Record show art SED 576: A New Record

Stronger Every Day: For Parents of Children with Rare Diseases

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 4 of 5.

info_outline SED 575: Shark Fins show art SED 575: Shark Fins

Stronger Every Day: For Parents of Children with Rare Diseases

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility. Part 3 of 5. 

info_outline SED 574: The Woods show art SED 574: The Woods

Stronger Every Day: For Parents of Children with Rare Diseases

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility.

info_outline SED 573: Into the Woods show art SED 573: Into the Woods

Stronger Every Day: For Parents of Children with Rare Diseases

This week, Tess has a life-threatening event, at a time when we're very far from the closest medical facility.

info_outline SED 572: Holiday Break show art SED 572: Holiday Break

Stronger Every Day: For Parents of Children with Rare Diseases

This week, we're away on a ski vacation as a family. Let's check in with Tess.  

info_outline SED 571: Waiting show art SED 571: Waiting

Stronger Every Day: For Parents of Children with Rare Diseases

This week, we're on pins and needles, waiting for a very special milestone. 

info_outline SED 570: Still Ill show art SED 570: Still Ill

Stronger Every Day: For Parents of Children with Rare Diseases

This week, the illness continues, believe it or not. We'll check in on our girl. 

info_outline SED 569: The Cup Is Already Broken show art SED 569: The Cup Is Already Broken

Stronger Every Day: For Parents of Children with Rare Diseases

This week, someone in our house is considerably under the weather.

info_outline SED 568: Never Get a Car from GM and Other True Stories show art SED 568: Never Get a Car from GM and Other True Stories

Stronger Every Day: For Parents of Children with Rare Diseases

This week, got a few fun stories for ya. Vignettes, if you will.

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There are four little things you can do as a Hao-Fountain patient to move things forward in a huge way. I'm gonna tell you how these 4 went for Tess and why it matters.