Epilepsy Innovations (First in a Series): All That Jazz!
"Talk About It!" with Greg Grunberg
Release Date: 05/18/2023
"Talk About It!" with Greg Grunberg
WE 💜ADDIE DECTER AND YOU WILL TOO! Addie is not only advocating for herself, but also for a wider community. She had LGS growing up and it has molded her into one of the most remarkable people we know. So remarkable, in fact, that there is a brilliant musical based on her experiences growing up with the condition in a talented and loving family. “It’s All Your Fault Tyler Price” is a joy to listen to and so relatable just like its inspiration: Addie Decter. Her story is remarkable. Her smile is infectious. And if you’re not careful, she’ll kick your @$$ in jiu-jitsu. We...
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This major social media influencer is talking about it in a HUGE WAY! Jamie Simpson is not afraid of showing it all when it comes to her epilepsy -- and she is encouraging all of us to be bold when sharing our story. From dating, to having seizures in public places and showing us, to her incredible service dog Echo, Jamie lays it all on the line to help others understand the world of epilepsy, from the point of view of someone who has the condition. All in this episode of TALK ABOUT IT with Greg Grunberg. The Talk About It podcast is excited to be sponsored in part by Neurelis. The Talk About...
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Ahhh, it's that time of the year! Pitchers and catchers report, spring training is underway, we buy hotdogs and beer from a guy yelling up the stairs, it's just perfection! Nobody loves the feeling of the start of baseball season more than Greg, maybe with the exception of this episode's guest. Greg sits down in studio with Joey Hanley, a former college player who has now devoted his life to coaching and training young-and-promising baseball players to achieve their dreams of playing in college and beyond. This success didn't come without struggle, however, but luckily Joey had the right...
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The Americans with Disabilities Act is unquestionably in the premiere class of landmark legislation in American History. On this episode, Greg sits down with the original author and co-sponsor of the ADA -- avid disability rights advocate, the Honourable Tony Coelho, former Representative from California. Tony first introduced the ADA alongside Senator Lowell Weicker in the 100th Congress in 1988 and battled the red tape, opposition and criticism to finally get the bill passed and signed into law by President George H.W. Bush in 1990. Greg is joined by his Talk About It partner Ken...
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Everybody needs a Jonathan Shapiro in their life. In this special season premiere of Talk About It, Greg sits down with his closest mensch and the other half of his party of two at the deli, Jonathan Shapiro. When life gets hard, Greg turns to him for sage advice and a nice bowl of matzoh ball soup. As you'll find out in this episode, Jonathan has quite a personal history, beginning his career as a federal prosecutor and eventually becoming... you guessed it... a television show writer and showrunner. (BOSTON LEGAL, THE PRACTICE, GOLIATH, THE BLACKLIST, among many others.) Not only that,...
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Happy Holidays from the Talk About It Family! Let's take a trip down memory lane... on the very first episode of Talk About It, Greg sat down with filmmaker and epilepsy advocate Miles Levin to talk about a short film that he created called Under The Lights. That's why we are so excited about this month's episode, where we check back up on that short film because it is now in the process of being a full-blown, big time FEATURE, with a full-blown, big time cast! Greg sits down with actor Pearce Joza who you would recognize as being the lead in the short film, and now is the lead of the upcoming...
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Wicked, Wicked, WICKED! Everyone is talking about Wicked! Well, do we here at Talk About It have news for you... there is a brand new musical playing in Los Angeles that is all the rage in the epilepsy community, and it will make you forget all about good witches or bad witches. That musical is "It's All Your Fault, Tyler Price" and it tells the story of a middle school boy whose younger sister has epilepsy and is being bullied, shining a light on the high and low moments of a family dealing with epilepsy, how it affects the parent, and the challenges they are forced to overcome. It's a fresh,...
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This month, a very special guest with a very special mission joins Greg on the podcast from New York City, and we are going to get REAL. Anjalee Seneviratne began having seizures when she was growing up in Sri Lanka, and they discuss how a lack of awareness or education about epilepsy leads to people not doing the first thing to bring this condition into the light… talk about it. She is now living in New York City, and attempting to get a bunch of landmark buildings including the Empire State Building to light up for Purple Day on March 26. She has had some luck with World Trade Center and...
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On this month's episode, Talk About It co-founder Ken Lowenberg brings along one of his good friends Jake Didinsky to talk all about autism. Jake is a proud business manager, community organizer, DJ, is LGBTQIA+ and non-binary, and is an all-around powerhouse who uses their life on the spectrum as an advantage and is proud and unapologetic about all of it. They are an inspiration to Greg and Ken, and should also be an inspiration to you and anyone you know living with autism! They discuss having episodes of being nonverbal and what to do when that happens, the unique challenges of autism, the...
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In this month’s episode of Talk About It, Greg and his guest Craig Chambliss, CEO of Neurelis Inc, explore the importance of rescue therapies – or immediate use medications – in overall seizure treatment. Talking to your health care team about whether immediate use medications is right for you is critical, even if your seizures are mostly under control. The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational...
info_outlineLegendary jazz saxophonist Wayne Shorter once said, "The word 'jazz' means to me 'I dare you. Let's jump into the unknown!'" On this episode, Greg sits down with chairperson and CEO of Jazz Pharmaceuticals, Bruce C. Cozadd as the first in a series of conversations with epilepsy innovators, including heads of pharmaceutical companies and charity organizations. Bruce, having a musical background as a master pianist, relates the improvisation, structure, and cooperation of jazz performance to the corporate development of new medication and therapies for patients in need.
They discuss taking risks, the transparency that is needed for a company in pharmaceuticals, and the importance of community and advocacy. Whether you have epilepsy or another condition, or you are a caregiver of somebody who does, it might feel like jumping into the unknown, but companies like Jazz will be there along the way.
The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals