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Interview: Miriam - Our Daughter Has Rett Syndrome

This Is This

Release Date: 08/19/2018

Victoria and William show art Victoria and William

This Is This

Today, April 25, 2020, is a very special day for two very special people.  Even though the big wedding has to be postponed during the pandemic, people who ought to be married can still get married - if we are careful and thoughtful about it.  Happy Elopement Day to Victoria and William! Let's do it again in August.  

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Les Jours de la Semaine by Mr. Rogers show art Les Jours de la Semaine by Mr. Rogers

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One thing I'm hearing over and over during this time of harboring in place (ie. lockdown & curfew) is that people are losing track of the days.  The struggle is real!  Is it Monday? Saturday? The 7th? The 12th?

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A Bird Lands On A Windowsill show art A Bird Lands On A Windowsill

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As we sit at the table recording today's episode, there's a flock of seagulls next door at the Food Lion.  They've been "vocal" for several days now.  What gives? Also, have the doldrums? Could the game of chess be the answer?

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I Like To Take My Time, by Mr. Rogers show art I Like To Take My Time, by Mr. Rogers

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Today's reading from Mr. Rogers is about how it's okay to take your time.  One thing we all have right now, as we are practicing social isolation in our homes, is TIME.  How do you want to spend it?

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Truth and Freedom show art Truth and Freedom

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We're in the second week of social distancing (i.e. not leaving home at all!) and today we were kind of bored.  There's a lull.  The doldrums.

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The Arts May Save Our Spirits show art The Arts May Save Our Spirits

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Have you had a chance to listen to, or watch, any of the free performances of music or theater during your social distancing? I'm trying to soak in all that I can.  I've always said it, and now I really believe it: the Arts will save our spirits.

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It's Good To Talk, by Mr. Rogers (and Dear Abby) show art It's Good To Talk, by Mr. Rogers (and Dear Abby)

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David and Kristen share with you one of our morning rituals, froggy throat and all.  Horoscopes, Dear Abby, coffee, and kisses.  Stay tuned to the very end for a little treat during your time of self isolation.

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I Need You, by Mr. Rogers show art I Need You, by Mr. Rogers

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Today's little check-in includes our determination to get some exercise. We also have a poem from Mr. Rogers called, "I Need You." 

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Back From Hiatus show art Back From Hiatus

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Hellooooooo, This is This listeners!!!!

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Where Have We Been? show art Where Have We Been?

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Kristen and David had an unexpected hiatus from THIS IS THIS.  Apologies!!!  Life got the better of us, schedules were bananas, and Kristen had the world's worst cold.  Blech. No one needed to hear that up close and personal.

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More Episodes

Rett Syndrome – genetic disorder, “has no motor planning.”
Everything is compromised.
https://reverserett.org
https://www.rettsyndrome.org/

This week’s interview is with our dear friend, Miriam Donald Burrows.
Miriam and Daniel met in an audition in NYC for Shenandoah Shakespeare. They hit it off immediately, discovered they were both hired, and began the beautiful friendship and love that would change their lives forever. Settled in Staunton, VA, Miriam and Daniel are bringing up their two beautiful children, Clark and Cordelia (Cordie), surrounded by a village of close friends and allies. Early in her young life, Cordie has been diagnosed with Rett Syndrome. As Miriam states early in the interview: “This is a story about expectations.” And “…the funeral of the expectation…”.
Life lessons: Who do you want to be, really? What are you going to do about it? What are you waiting for?
And how do you take care of yourself when life has handed you a puzzle in human form?
Miriam and Daniel are simply a marvel.