112 - Season Finale - Different Reactions to Coronavirus
Two Disabled Dudes
Why do we all react differently to a situation - especially when the stakes are high, such as the current situation with Coronavirus? Sean and Kyle have a few thoughts to share but first we must hear about Sean's recent cluster at physical therapy, and Kyle explains how it is possible to lock yourself out of your own bathroom. Season 4 starts in August but there are 111 other episodes to enjoy so check them out. We hope you have a great summer!
info_outline
111 - Copiing in Times of Uncertainty with Team Amicus
Two Disabled Dudes
We’ve had the privilege to work with on multiple occasions and each time we are moved by their commitment and consistent execution of their corporate mission. This virtual patient panel they facilitated is no exception! Three weeks into the company’s work-from-home arrangements due to COVID-19, Amicus wanted to continue connecting their team members with each other and the patient communities they work on behalf of. We were honored to moderate the conversation between Naomi (from the UK), Mike (from New Jersey) and David & Karen (from Arizona) for the global Amicus team and their...
info_outline
110 - How Rare Diseases Impact Carriers - Taylor Kane
Two Disabled Dudes
After a brave fight, Taylor Kane lost her Dad to a rare disease called Adrenoleukodystrophy (ALD) when she was 3 years old. She subsequently found out that she was a carrier of this X-linked disease. For a long time it was believed that "carriers don't get symptoms." However, that myth has been busted and Taylor Kane has a clear mission in life. She started a non-profit called Remember the Girls that builds support and community for carriers of X-linked diseases. What is X-linked? The Dudes had the same question and you'll have to listen to find out. As much as...
info_outline
109 - Hawk's Eye View on Duchenne MD - Hawken Miller
Two Disabled Dudes
Hawken Miller is an accomplished young writer with a clear purpose in life. He is an incredible representative for the Duchenne Muscular Dystrophy Community and he has a passion for the work of CureDuchenne. Writing is his chosen medium and he has a keen interest in the e-sports world. He uses video games to connect with others in the Duchenne Community and he uses writing to explain video games to the every day person. Hawken is a recent graduate of USC and his journalism experience includes The Sacramento Bee, KTLA, The Washington Post, and Bio News Services. Visit Hawken's...
info_outline
108 - #QuarantineLife
Two Disabled Dudes
As everyday life continues to be dominated by coronavirus Quarantine, The Dudes discuss the pros and cons of the situation. They prognosticate about how things might change because of this pandemic. Tune in and play along with the thought experiment.
info_outline
107 - Patient focused Drug Development - James Valentine
Two Disabled Dudes
info_outline
106 - No Arms, no Legs, no Problem - Gabe Adams
Two Disabled Dudes
Gabe Adams was born without arms or legs due to HanHart Syndrome. He joins us and shares so much about being "different" from other kids, finding his independence, dating, his upbringing in the Mormon-Christian church and so much more. Gabe is no stranger to people pointing, staring or talking negatively in extreme and cruel ways. Still, he has defined and recognizes his own value and has built a platform to inspire and encourage others. Don't miss this interview!
info_outline
105 - The Dudes Vent
Two Disabled Dudes
Sometimes frustrations get the better of us. And in quarantine, we are all on edge a little more than usual. In this episode, the dudes put their focused conversation aside for a bit to vent a few frustrations and ramble aimlessly. Enjoy :-)
info_outline
104 - His Brain Injury Created a New Mindset
Two Disabled Dudes
Jason Levy was a well-paid Silicon Valley executive when multiple accidents caused severe Traumatic Brain Injury. His whole life changed and he found himself in much different circumstances than he had envisioned for his life. Through his struggles, Jason realized that he must let go of the old Jason and embrace the new one. Once he realized this, he started to build a satisfying life on his new path. Join us to learn lessons that anyone can apply to their own situation.
info_outline
103 - Giving Back After Spinal Cord Injury
Two Disabled Dudes
Beth Kolbe was injured in a car accident and lost the use of her lower body. Subsequently she went to Harvard, swam in the paralympics, received a law degree from Stanford, practices healthcare law in Washington DC, and gives back to the disability community through pro-bono work. She's kind of a big deal - listen to hear her perspective.
info_outlineSometimes frustrations get the better of us. And in quarantine, we are all on edge a little more than usual. In this episode, the dudes put their focused conversation aside for a bit to vent a few frustrations and ramble aimlessly. Enjoy :-)