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Apricity Place Update

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

Release Date: 05/09/2023

Suz and Katrina | Picture Day show art Suz and Katrina | Picture Day

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

Raise your hand if you have memories of elementary school picture day…Did they pass out those little plastic combs? Anybody have some really terrible pictures to share? Today, Katrina and Suz talk about what happens when picture day is really more than just picture day.  When your child is facing rare disease, with a shortened life expectancy, you never know when this picture day is the last picture day they will have. The girls talk about making the memories, soaking in the moments, and normalizing grief. “You never know what’s going to be the last picture because you can’t trust...

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4 AM Dr's appointment show art 4 AM Dr's appointment

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

Welcome to the real world of medical motherhood. Just as Suz and Katrina sit down to record, the Suz gets a phone call…   Links and resources: Follow Suz: Follow Katrina: Join the conversation:   Follow us on Facebook: Follow us on Instagram: Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours. And, if you enjoyed this episode, please leave us a rating and a review? Thanks! 

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Suz and Katrina | Lessons in Grief show art Suz and Katrina | Lessons in Grief

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

For several seasons now, we have heard Susan interviewing guests. Amazingly brave people have stepped up to the microphone to share their stories with our listeners. Today, we flip that scenario. Now, it’s Suz’s turn to share. Today, Katrina interview’s Susan.  The ladies discuss Susan’s story. Suz shares the trauma surrounding Lorelei’s birth and her entry into medical motherhood. She shares about how medical motherhood inspired her to start the Apricity Hope Project, and how she has been changed by Lorelei’s life and death. Speaking of Lorelei, here’s the  to the...

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4 AM Unitooth show art 4 AM Unitooth

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

4AM is back! Buckle up for Susan’s wild ride of dentistry. You won’t want to miss it! Links and resources: Follow Suz: Follow Katrina: Join the conversation:   Follow us on Facebook: Follow us on Instagram: Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours. And, if you enjoyed this episode, please leave us a rating and a review? Thanks! 

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Suz and Katrina | Therapy show art Suz and Katrina | Therapy

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

We all know the analogy about riding in an airplane. When the oxygen masks fall down, you put your mask on first before helping those around you. In medical parenthood, how do you put your own needs ahead of the significant needs of your child? We aren’t talking about making sure the laundry is clean here…Self care for medical moms often looks like taking care of basic daily needs for themselves, showering or brushing your teeth.  Today, Suz and Katrina talk about Therapy. They discuss the ups and downs of finding the best fit in a therapist, the ups and downs of therapy itself, and...

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4AM Summer Vacation to Christmas show art 4AM Summer Vacation to Christmas

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

4AM: Summer Vacation to Christmas 4AM is back! The girls discuss summer vacation, straight through to Halloween and Christmas. Buckle up, this one is a wild ride!   Links and resources: Follow Suz: Follow Katrina: Join the conversation:   Follow us on Facebook: Follow us on Instagram: Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours. And, if you enjoyed this episode, please leave us a rating and a review? Thanks! 

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Vacations show art Vacations

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

Mornings are getting cooler and the autumn leaves are on their way in the next few months. Today, the girls recap summer vacation just as the “carefree” days of summer fade away and we transition into fall. Summer vacation looks different under the lense of medical motherhood. Gone are the days of backpacking in Europe. Today’s vacations involve packing and unpacking a van-load of supplies and venturing into a location that is probably not kid-proofed.  Vacation plans have back up plans. The back up plans have their own back up plans. Is this really restful? Are we just creating...

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Jessica: Summer book club pt 5 show art Jessica: Summer book club pt 5

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

Welcome back for the final episode of our summer book club with Jessica Fein. Today, we discuss writing. Jessica shares helpful advice for anyone looking to begin writing. The girls talk about the importance of sharing their stories in whichever medium is most relevant to them. They also talk about the importance of finding community in writing.  “When you say, ‘I’m writing a book,’ it changes everything.” -Jessica Here’s what you don’t want to miss: Advice for writing Mindset Writing to ourselves Met judging yourself Connect with Jessica: Summer is a new season with...

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Jessica: Summer Book Club pt 4 show art Jessica: Summer Book Club pt 4

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

In today’s episode of Summer Reading with When Autumn Comes, Suz, Katrina, and Jessica discuss joy. We always discuss what gives us hope, but where is the joy in this life of medical complexity? Maybe moms of medically complex kids mope around in black and grey all day long. Maybe some do, but not these girls! The girls discuss how they create moment’s of joy, finding it in the every day, and intentionally seeking it out. They discuss the importance of finding joy, not only for their children, but also for themselves. Stay tuned for helpful tips they have discovered over the years. “We...

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Jessica | Summer Book Club pt 3 show art Jessica | Summer Book Club pt 3

When Autumn Comes: Seasons of Hope for Medical + Disability Moms

Welcome back to another episode of our summer book club. We hope you are reading along with us and joining in the conversation in the When Autumn Comes Society. This week we are discussing isolation in medical motherhood. We talk about the reasons why we feel isolated and how that impacts our families. We discuss ways in which we have found community both in person and online.  “Nobody can relate to you anymore” -Jessica Here’s what you don’t want to miss: Relating to others Finding people online Isolation for the other children The village Connect with Jessica: Summer is a...

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With a heavy, yet resilient, heart Suz shares a letter on behalf of the Apricity Hope Project. She is explaining a recent “pivot” they are being forced to make. You can read the entire letter on our website: https://apricityhope.org/apricity-place-update/

 

Catch up with Suz:

Instagram

 

When Autumn Comes:

WAC Instagram

WAC Facebook Page

WAC Society Facebook Page

WAC is a program of the Apricity Hope Project

 

Thank you so much for joining me on this journey. Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories from other members of our medical and disabled community. 

If you enjoyed this episode, please leave us a 5-star rating and a review so we can reach more 4 am moms with medically complicated, rare, beautiful children.