Dr Keri-Lyn Kozul | Research in Rare Disease
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
Release Date: 06/04/2025
4 AM True Crime
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
Once upon a time, Katrina was the star of her very own True Crime Episode. You get to hear some of the details today! Links and resources: Follow Suz: Follow Katrina: Join the conversation: Follow us on Facebook: Follow us on Instagram: Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours. And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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Jen | First Place
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
A mother’s job is never done. Well, that’s what people say…And it is so true. 24 hours a day, 7 days a week, 356 days a year, we are on call, if not actually hands on. Maybe in some of that time we are asleep. Maybe we are showering. Through it all, though, our priority is our child. We will never not respond. But when do we get to be first place? When are we the priority? Today, we are joined again by our friend Jen Lansink from “." Together, the girls talk about the struggle of always finding yourself in second, third, fifteenth place. They also offer a bit of advice for...
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4 AM Dead Fish
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
What does it mean when dead fish rain down on your driveway? Well, fish singular…one fish. Links and resources: Follow Suz: Follow Katrina: Join the conversation: Follow us on Facebook: Follow us on Instagram: Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours. And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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Amanda Griffith Atkins | Caring for Yourself
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
Today, Amanda joins us on the comfy couches of the pink beach house. Amanda Griffith-Atkins is a licensed marriage and family therapist, speaker, author, and guest lecturer. She is famous in the medical motherhood community for giving a voice to the lived experience that is caregiving. Guys, Suz fangirl’d hard on this one. Amanda came to the Apricity Hope House to share her book, How to Handle More Than You Can Handle, with us. Just because you weren’t there, doesn't mean you can’t still read the book. In the mean time, tune in to this episode for some excellent truths and advice....
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4 AM Jovie Love Fest
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
Jovie meets a new friend at the Hideaway… Links and resources: Follow Suz: Follow Katrina: Join the conversation: Follow us on Facebook: Follow us on Instagram: Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours. And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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Live Like Lorelei | The book you have all been waiting for
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
The time has come, friends. Susan has written a book. Here on the podcast, we aren’t much for self promotion. But today is a day for just that. Susan has worked her fingers off, and used all of the words in her head to share her story, her lessons, her truths. Today, Suz and Katrina sit down to discuss the book. They discuss the evolution of the story, the inspiration, and all of the emotions you can expect. We hope you join us October 7th at 7 PM in ordering the book. This is truly one you will not want to miss. “I find myself having to stop and like take a breath as...
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127 Respite | Fresh Air For Caregivers
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
The Oxford dictionary defines respite as “a short period of rest or relief from something difficult or unpleasant”. Respite care provides relief to caregivers of medically complex children. This sounds simple and easy, but let’s think through all of that. What does it mean to have a stranger in your home several days a week, caring for your vulnerable child? Initially, it looks like always making sure the laundry is put away and you have your bra on, keeping a vigilant eye on the care they are providing. Over time, if you are lucky, it might look like a new best friend, laughter,...
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4 AM Welcome Back
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
Summer was great, but autumn is here and the girls are back together…from a distance. Links and resources: Follow Suz: Follow Katrina: Join the conversation: Follow us on Facebook: Follow us on Instagram: Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours. And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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4 AM Couch Friends
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
New updates here at When Autumn Comes. We are so excited!! Links and resources: Follow Suz: Follow Katrina: Join the conversation: Follow us on Facebook: Follow us on Instagram: Make sure you hit SUBSCRIBE so you don’t miss out on our upcoming stories of medical and special needs parenting from families like yours. And, if you enjoyed this episode, please leave us a rating and a review? Thanks!
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Friendship | Community in Medical Motherhood
When Autumn Comes: Seasons of Hope for Medical + Disability Moms
Growing up, a friend was someone you could share your snack with, tell your secrets to, and play with at recess. Of course, that changes with adulthood. But how does this change when you are a parent of a medically complex child? What does friendship look like when your days and nights are spend caregiving? Susan and Katrina chat about just that. You will hear how they have found and maintained friendships, when they really don’t have time or energy to spare. With those friendships, they have built an amazing community of moms, willing to help each other out, even when it comes to...
info_outlineAny parent of a child with a rare disease hopes for a cure, a treatment, anything to improve their child’s quality of life. We often hear about new developments in medicine for more common illnesses, but are our young zebras forgotten? Is someone doing something to help? Today, Susan gets to speak with Dr Keri-Lyn Kozul, one of the researchers studying the Benji and Lorelei’s specific disease. Parents, we hope this episode gives you hope, that there are people working on this, good people who truly care.
Dr Keri-Lyn Kozul works in the Niemi Lab at Wash U in St Louis, Missouri. During her PhD, Dr Kozul was one of the first scientists to define the mechanisms of FBXL 4 disease in 2023. We are sure that you can tell from this episode, Dr Kozul’s focus and passion is to help children like Lorelei and Benji, and help find answers for families with FBXL 4 disease.
“Three years ago, we wouldn’t even be able to think about these things.” -Dr Kozul
Here’s what you don’t want to miss:
- Life in the lab
- Baking
- Support for families
- Treatment
- Call to action
Vote for Dr Kozul!:UMDF Accelerators
Contact Dr Kozul at kozul@wustl.edu if you have questions about this research.
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