Patients Rising Podcast
Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussions about issues impacting those with chronic illness. CEO Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.
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QALY Ban Bill Takes Leap Forward
02/12/2024
QALY Ban Bill Takes Leap Forward
This week’s podcast is all about the QALY and the bill going to the Senate that would ban its use. The QALY is a metric used to determine how cost-effective a treatment is based on its ability to return a sick person to perfect health. Even if a treatment helps a chronically ill person to live longer, it will not be categorized as valuable as treatments are aimed at diseases that affect younger and healthier populations. To help us understand how the QALY negatively impacts those with chronic illness, we’re joined by Michael Riotto, a member of Patients Rising, and Bill Smith, a Senior Fellow at the Pioneer Institute. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Nation's First Obesity Bill of Rights
02/05/2024
Nation's First Obesity Bill of Rights
Treating obesity would cause chronic disease rates to go down, healthcare costs would be reduced, and the lifespan of Americans would increase. But until now, the stigmas relating to obesity have prevented any significant legislation that addresses the issue. To help break it down, we’re joined by Nancy Glick, the Director of Food and Nutrition Policy at the National Consumers League. Nancy helps us understand what an Obesity Bill of Rights actually is, who it covers, and why it's a necessary step. We also discuss a bill that Patients Rising has been trying to move forward for a long time. We got news this week that it finally has some life! Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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March-In Madness
01/29/2024
March-In Madness
In an effort to curb drug prices, President Joe Biden announced late last year a proposed framework to guide government agencies on how to use march-in authorities if a drug’s price is considered too high. But what exactly constitutes “too high?” Your guess is as good as ours, and that’s just the beginning of the issues we expect to come from this framework if it moves forward. We spoke with Joe Allen, Executive Director of The Bayh-Dole Coalition. The Bayh-Dole Act is where march-in rights stem from and we figured he would be the perfect person to explain march-in rights, what this really means, and how this framework could derail the entire drug development industry if this comes to pass. You won’t want to miss what he has to say. We also discuss the increasing prevalence of Prescription Drug Affordability Boards and what that might mean as we progress into the second month of 2024. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Presidential Candidates' Views on Healthcare
01/22/2024
Presidential Candidates' Views on Healthcare
As the 2024 election season starts to ramp up, we think that it’s important that you know exactly where the presidential candidates stand on healthcare. This week, we unpack what the major players in the presidential race have to say about their healthcare plans. We get into the nitty-gritty for the front runners of each party, covering Trump, Desantis, Haley, Stein, West, and Biden. If we didn’t talk about a candidate you’re interested in, you can find their . Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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4 Things Patients Can Do for 2024
01/16/2024
4 Things Patients Can Do for 2024
This week, a Resource Coordinator and Patient Navigator with our Patient Helpline goes over the top four steps that patients and caregivers can take to make 2024 their smoothest and most organized healthcare year yet. From what to do in the months leading up to a visit to how to take control of your health on your own time, Levi Peterson shares everything patients and caregivers need to be prepared. Also, applications for Patients Rising’s Fly-In Scholarships for this year’s event open this Wednesday, January 17th. Lastly, we discuss two major news stories from this past week including a report from HealthcareDive that and a report from CNBC that of certain drugs. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Dual Eligible = Double Trouble?
01/08/2024
Dual Eligible = Double Trouble?
This week, we discuss the idea of with Steve Peskin, the CEO of SRP Advisors. Steve explains the difficulty for dual eligible patients in knowing what part of their healthcare is covered by Medicaid and what part is covered by Medicare. He mentions the need for coordination between state and federal government and shares a few ideas for how the current system can be improved. Also, we talk about an that the Administration for Strategic Preparedness and Response will incorporate fair-pricing provisions into contracts. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Staying At Home As You Age
01/02/2024
Staying At Home As You Age
One survey shows 77% of adults over 50 would prefer to grow older where they already live instead of moving to a home or an assisted living facility–but there are obstacles in place for those who want to stay in their homes. This week, we talk about the current challenges of aging in place with Dan Weinrieb, the Head of Strategic Partnerships at Jukebox Health, a company dedicated to making aging at home a common-sense and cost-effective option for older adults. Dan says the issues relating to aging in place are known, but taking action to fix the problems is where our system falls short. He breaks down what these barriers are, and what will need to change if we want people to actually be able to grow older where they choose. Also, we talk about a decision from the Colorado Prescription Drug Affordability Board to not place a price cap on a best-selling cystic fibrosis medication. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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March-In Mayhem 🥾
12/18/2023
March-In Mayhem 🥾
Last week, the White House announced it has plans to use the government’s “March-in” rights on drugs developed with public funding. This week, we’re joined by our very own Executive Director here at Patients Rising, MacKay Jimeson. He explains why he and other experts believe this will not lower what patients pay at the counter for prescriptions, and actually could do much more damage by discouraging new treatment development, particularly for the rare disease patient community. We also talk about the FDA approval of a powerful new tool that will treat sickle cell disease. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Telehealth Extension
12/11/2023
Telehealth Extension
Is telehealth here to stay? That’s the big question! Both providers and patients have benefited from the increase in telehealth practices born out of the COVID-19 pandemic. It has allowed high-risk patients to have access to their healthcare provider without having to risk going into a doctor's office, and providers say that telehealth has given them the opportunity to see the patient’s environment and family, which allows them to take those factors into consideration when formulating a treatment plan. This week, were joined by Kyle Zebley, the Senior Vice President of Public Policy for the American Telemedicine Association. Kyle shares a policy update and what to expect for the future of telehealth. Also, we discuss a potential merger between two major insurance players. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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A Patient Takes His Insurance Co to Court
12/04/2023
A Patient Takes His Insurance Co to Court
After being diagnosed with throat cancer, a top trial lawyer was told by his insurance that it wouldn’t cover the treatment his doctor ordered because it wasn't “medically necessary.” Fortunately, he did what he does best, and fought back. This week, attorney and patient advocate Robert Salim, . He explains exactly how he took on his insurance provider, how he won, and what it means for other patients dealing with the same issue. Plus, an update on open enrollment with new uptake numbers released by the . Resources and previous episodes on open enrollment: Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Avoiding the Hospital Stay from Hell
11/27/2023
Avoiding the Hospital Stay from Hell
It can be difficult to navigate the procedures and interactions that come with a hospital visit. However, knowing what to expect going in can help improve your experience. This week, we talk with hospitalist and author, Dr. Monique S. Nugent about how to physically and mentally prepare for hospital visits. Her new book, serves as a guide for patients who need help navigating the hospital. Also, we touch on a bill introduced in Congress that would help terminally ill patients get immediate access to benefits of the SSDI program. Hear from Congresswoman Diana Harshbarger from Tennessee who helped introduce the bill in an episode of the . Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Caregiver-Patient Relationships: Yes, You Can Have Fun!
11/20/2023
Caregiver-Patient Relationships: Yes, You Can Have Fun!
Taking care of and connecting with a loved one who is living with dementia is difficult, but it's also something that many people have to do. This week, we talk with Mary Anne Roberto and Debbie Axel, co-founders of Always Home Connected, a company that helps provide caregivers and families with more resources that encourage bonding. They walk us through why they started their company, the types of products they sell, and share the impact that they have made in the lives of caregivers and aging patients. You can learn more about Always Home Connected . Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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AI - Good or Bad for Your Health?
11/13/2023
AI - Good or Bad for Your Health?
Everyone seems to be talking about Artificial Intelligence, and there have been questions about how it could benefit the healthcare industry--but what you might not know is that it’s already being used in a number of ways. Luckily, this week we’re joined by Naomi Lopez, the Founder of Nexus Policy Consulting, who has been working to help legislators understand AI. Naomi walks us through the ways that healthcare could continue to use AI to help patients and the industry as a whole. Also, we touch on a potential bill that would help protect patients by reducing prescription drug costs and extending certain expiring provisions under Medicare and Medicaid. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Patients Need Treatments Fast
11/06/2023
Patients Need Treatments Fast
There’s a new bill that could help many rare disease patients gaining traction, but it still has a long way to go. This week, we’re joined by Peter Pitts, a Former FDA Associate Commissioner, who gives us the lowdown on the Promising Pathways Act. He tells us what types of diseases are likely to be affected by this bill, and why it will make a significant difference in the lives of patients. We also speak with Senator Mike Braun of Indiana, who introduced the bill alongside other legislators of both parties. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Legal Win For Patients
10/30/2023
Legal Win For Patients
This week we talk about a major victory for patients regarding Copay Assistance Programs. We’re joined by one of the major players in the lawsuit that made it happen, George Huntley, the CEO of the Diabetes Leadership Council and the Diabetes Patient Advocacy Coalition. He helps us break down why this was such a significant win for patients. We also discuss the new Patients Rising working paper all about current formulary practices and how they’re hurting patients.. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Economic Impact of Obesity Meds
10/23/2023
Economic Impact of Obesity Meds
As the popularity of weight-loss drugs continues to rise, the Congressional Budget Office is looking for new research on anti-obesity medications to see what the impacts could be. Ike Brannon, a Senior Fellow at the Jack Kemp Foundation, joins us to chat about the potential drugs, what they mean for Americans, and how it would impact the congressional budget. We also talk about a major Cigna settlement due to violations of the False Claims Act. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Get Covered
10/16/2023
Get Covered
Open enrollment is officially here, so this week we do a deeper dive on everything that you need to know to help you choose the right plan. Samantha Sauer, the Director of the The Patient Helpline here at Patients Rising, helps us navigate the different types of Medicare, the options that come with employer or private insurance, and why patients with chronic illness should ask a few more questions. Also, we have an update on the Medicare price negotiation as part of the IRA. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Maternal Mental Health
10/10/2023
Maternal Mental Health
Maternal mental health issues impact at least one in five of those pregnant or postpartum. This week, Adrienne Griffin, Executive Director of the Maternal Mental Health Leadership Alliance, discusses misconceptions about maternal mental health and resources available to pregnant and postpartum people. She also tells us what the Alliance is doing to transform the maternal mental health landscape. Plus, Dr. Bob breaks down a significant win for patients with copay accumulator policies. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Open Enrollment Explained
10/02/2023
Open Enrollment Explained
With the Open Enrollment Period fast approaching, Levi Peterson, a Resource Coordinator for our Patient Helpline walks us through what everyone needs to know about Medicaid and Medicare eligibility, PPOs and HMOs, and how to pick a health plan that best fits your needs. We also discuss a so-called ICER update that doesn’t do much updating and still doesn’t help patients. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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The Bad Math That Hurts Patient Access
09/25/2023
The Bad Math That Hurts Patient Access
It’s clear that we need to fix the way we measure the value of new medicines. Current methods fail to account for the benefits to caregivers, the long-term savings from keeping a job or avoiding the hospital, and the countless scientific discoveries that a new drug can lead to. But there is a solution according to this week’s guest, biotech investor . He talks about his new study that looks at innovative ways to assess the real value of medicine. Peter explains how insurers use cost-effective math to determine what drugs they will and won’t cover, and alternative methods that take into account patient and caregiver needs. Plus, Terry and Bob discuss some must-pass healthcare bills for the chronic disease community. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Fall Vaccine Update
09/18/2023
Fall Vaccine Update
With flu season fast approaching, Dr. joins us to discuss all of his vaccine recommendations, including COVID-19, RSV, and flu vaccines, population immunity, and targeting high-risk groups. Plus, Terry and Bob talk about why insurers are marking up the prices of generic drugs – which should be a cheaper option for patients. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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What Hope Means for Patients
09/11/2023
What Hope Means for Patients
Hope can be powerful when receiving a diagnosis… but are we able to quantify just how powerful it really is? joins us to discuss how she believes the U.S. should be using “hope” as a measurement of both social and economic well-being. Plus, how hope and optimism can change outcomes for patients. And Terry and Bob tell us about the lack of patient input as Medicare announces the first 10 drugs up for price negotiations. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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HIV Survivor Fights for Others
08/14/2023
HIV Survivor Fights for Others
Mark King’s advocacy journey began in the 1980s after he was diagnosed with HIV. Now, he’s written a book that discusses his advocacy journey, the struggles of living with the disease, and the stigma that comes with it. Hear how he has coped over the years, and what he hopes for the next generation of advocates. And Terry and Bob discuss a few stories about the lack of transparency in insurance claim denials. Plus, a look ahead at potentially rising insurance premiums in 2024. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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The Uber of Caregiving
08/07/2023
The Uber of Caregiving
For , life was going according to plan. Then suddenly, he became a caregiver overnight. Hear how his experience pushed him to create CareYaya, which he calls the “Uber of caregiving.” It’s a matchmaking system that pairs pre-med college students with families in need of a caregiver to provide companionship and day-to-day support for a loved one. And Terry and Bob talk about real movement in Congress on the PBM issue. Is there any real hope for solutions? They discuss the nearly unanimous progression of one PBM bill. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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New Ways to Fund Healthcare
07/31/2023
New Ways to Fund Healthcare
Investing in healthcare like we invest in curbing carbon emissions. It’s a novel idea, but something that Dr. Andrea Feigl, the Founder and CEO of Health Finance Institute, says could change the future of health, specifically chronic disease management. And Terry and Bob discuss a brand new survey from Patients Rising that’s all about patients and their ability to access naloxone at the pharmacy. What the survey says about stigma and access – all in today’s episode. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Fast-Track Treatment Approval Saves a Vet's Life
07/24/2023
Fast-Track Treatment Approval Saves a Vet's Life
Mel Mann was diagnosed with a cancer known as CML and given three years to live. That was in 1995. Today, in 2023, Mel Mann is still living and still advocating – all thanks to accelerated approval and a clinical trial. Hear the story of how this Army vet, and longest-living Gleevec patient, beat the odds and stands here today. And Terry and Bob discuss the brand new accelerated approval report that Patients Rising released. Unprecedented coverage decisions from CMS, the history of accelerated approval, and why it’s such an essential pathway for patients are all in today’s episode. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Why Clinical Trial Communication Matters
07/17/2023
Why Clinical Trial Communication Matters
What do patients really think about clinical trials? Do they trust them? Are they wary? Today’s episode features ., who breaks down a survey project from Patients Rising that determined some surprising results. We also speak with , a patient advocate who was diagnosed with Crohn’s disease over 14 years ago and who recently participated in a clinical trial. Hear why her relationship with her doctor was instrumental in her health. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Patient Voices in Drug Research
07/10/2023
Patient Voices in Drug Research
One mom’s journey into patient advocacy started after two of her daughters were diagnosed with galactosemia, a rare disease. There’s finally a potential new treatment for this condition, which families say has helped their children who have participated in the clinical trial. But they’re worried their voices are being ignored. Jodie Solari, Communications Lead for the Galactosemia Foundation shares how the diagnosis changed her life into a life of advocacy, and why she’s pushing for the voices of families like hers to be considered when reviewing new treatments. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Clinical Trials and Digital Twins
06/26/2023
Clinical Trials and Digital Twins
This week’s episode dives into the concept of running a clinical trial before ever running a clinical trial. How is that possible? It’s an idea called digital twins & we have an expert interview to break it down. , CEO and Co-Founder of shares how this AI-powered approach can make drug testing and discovery more efficient for diseases like Alzheimer’s, Parkinson’s, and more. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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Healthcare Disruptors
06/20/2023
Healthcare Disruptors
The first episode featuring our Health Plan Heroes was so good – we decided to do a second one. Listen now to see how these businesses have reinvented their health plans to provide top-tier coverage at a fraction of the cost. Plus, did you miss this year’s Fly-In or just want to get a jump on next year’s? Registration is already open for the 2024 event. Need help? The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at the . Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent? Drop us a line: The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising, nor do the views and opinions stated on this show reflect the opinions of a guest’s current or previous employers.
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