Diabetes Connections with Stacey Simms Type 1 Diabetes
The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.
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Omnipod Update from Insulet CEO Shacey Petrovic
08/20/2019
Omnipod Update from Insulet CEO Shacey Petrovic
Insulet CEO Shacey Petrovic joins us for the first time and talks with Stacey about what's new and what's coming next. Petrovic shares the latest information on Dash, Horizon, Loop and more. Join the Diabetes Connections Facebook Group! Shacey also has a personal connection to type 1 diabetes: her father lives with it. She and Stacey talk about the dynamic of caring for a parent with T1D and how technology is changing that. Vote for us in the Myabetic Diabetes Awards! DiabetesMine Dash Review Omnipod Horizon studies In our Community Connection a little bit of a change from the AADE Conference, they want to change the name Certified Diabetes Educator (CDE) to Diabetes Care and Education Specialists. And in tell me something good.. an honor for a school – thanks to a big gesture from a little kid. Sign up for our newsletter here --- 00:00 Show open: what's on this week? 1:30 Stacey Welcome - back to school! Listen to our interviews about the ADA Safe at School program here 4:00 Interview with Insulet CEO Shacey Petrovic 39:30 Community Connection: AADE Conference update 43:00 TMSG: We made the finals of the Independent Podcast Awards! ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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T1D Milestones & Responsibility: Ask The D-Moms
08/13/2019
T1D Milestones & Responsibility: Ask The D-Moms
Ask The D-Moms is back. This time around we’re answering your questions about the “right” ages for diabetes development, wearing extra gear for DIY systems and a discussing about extra praise for diabetes routine stuff. Join the Diabetes Connections Facebook Group! Join Moira McCarthy and Stacey as they answer listener questions and share their own experience raising children with type 1 diabetes. Sign up for our newsletter here In our Community Connection segment, find out about the I Hear You campaign. In Tell Me Something Good, Stacey share listener milestones and gives and update on Project 50 in 50 -- 00:00 What's on this show this week? 1:35 Stacey Welcome: more about Benny at "regular" camp, Stacey talks about the Myabetic Diabetes Awards (vote here) and more. 7:45 Ask the D-Moms 43:00 Community Connection: The "I Hear You" campaign 47:30 Tell Me Something Good! Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Wait Wait, Don't Poke Me! The Diabetes Game Show
08/06/2019
Wait Wait, Don't Poke Me! The Diabetes Game Show
It's our annual game show edition! Taped on location at the Children with Diabetes, Friends for Life Conference, we have a lot of fun with in-studio contestants and prominent panelists. Join the Diabetes Connections Facebook Group! Our panelists this year are: Dr. Stephen Ponder, founder of Sugar Surfing & a renown pediatric endocrinologist who's lived with type 1 for more than 50 years. Howard Look, founder of Tidepool and the father of a college-aged child with diabetes and Cherise Shockley, founder of DSMA (Diabetes Social Media Advocacy), Blue Fridays, WOCDiabetes and who lives with LADA. Sign up for our newsletter here In our Community Connection this week.. another Caravan to Canada but this one gets the attention of a top tier US presidential candidate And in Tell Me Something Good: A birthday, an international trip and much more! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Researching T1D Prevention - Full Interview with TrialNet's Dr. Michael Haller (Bonus Episode)
08/01/2019
Researching T1D Prevention - Full Interview with TrialNet's Dr. Michael Haller (Bonus Episode)
For the first time, researchers have managed to delay the onset of type 1 diabetes. In a breakthrough study, TrialNet was able to delay the onset by two years. Join the Diabetes Connections Facebook Group! Stacey talks to Dr. Michael Haller in-depth about this and other studies. An excerpt of this interview ran in our previous episode. In this episode you'll learn more about how TrialNet works, other promising studies and why it's so difficult to prevent an auto-immune disease. Plus, an update on the funding for TrialNet and why they've changed how they re-screen families and individuals. Sign up for our newsletter here Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Researching T1D Prevention: Dr. Michael Haller and TrialNet
07/30/2019
Researching T1D Prevention: Dr. Michael Haller and TrialNet
For the first time, researchers have managed to delay the onset of type 1 diabetes. In a breakthrough study, TrialNet was able to delay the onset by two years. Stacey talks to Dr. Michael Haller about that and other studies, about what TrialNet does and what we can do to help further this research. Join the Diabetes Connections Facebook Group! In our Community Connection, this week Project 50 in 50 hits a big roadblock – this was actually a big scare. We’ll tell you about it and what’s next for these two outdoor adventurers. Sign up for our newsletter here And in Tell Me Something Good, a little bit about meeting some of you in person and the power of saying YES. ----- 1:35 Welcome! What's on the show this week? Stacey explains this interview is an excerpt and the full interview will run in a bonus episode. Check out the new website! www.diabetes-connections.com Learn more about Stacey's book and ask her to come speak at your event! 4:55 Interview with Dr. Michael Haller 34:10 Update from Patrick Mertes of 50 in 50 42:00 TMSG: Stacey shares stories from the Friends for Life conference as well as some terrific listener stories 48:00 Stacey talks about where she's going next: JDRF Central VA in mid-August for their Type One Nation Summit Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Richard Vaughn: 74 Years With Type 1 Diabetes
07/23/2019
Richard Vaughn: 74 Years With Type 1 Diabetes
Richard Vaughn was diagnosed in September of 1945, just after he turned six years old. Join the Diabetes Connections Facebook Group! Stacey calls Richard a "treasure to the diabetes community." He is the author of Beating the Odds and keeps a lively presence on social media. Find Richard on Facebook here. This interview first aired in September of 2015. Richard Vaughn Healthline article Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Diagnosed at Disney World: The Magic of Community
07/16/2019
Diagnosed at Disney World: The Magic of Community
It was supposed to be a vacation at the happiest place on earth, instead their daughter was diagnosed with type 1 diabetes at Disney world. But that’s when some unexpected good things started happening. Join the Diabetes Connections Facebook Group! Jim tells us the story – it was July last year – and explains how Disney and a very cool Disney community - went above and beyond to help this family from Canada when they needed a little magic. Find out about Touring Plans here Find out about the Lines app here Our episode with Len Testa all about using Disney math for type 2 diabetes (and Len's great Disney advice) Sign up for our newsletter here In our Community Connection, Stacey talks about dropping her son off at a month-long sleep away camp. She shares how she needed a lift and got it from her local D-mom friends. And Tell Me Something Good! Scholarships for college students with type 1, a big thank you and a mountain milestone. ----- Show open: What's on this week? 1:30 Welcome - Stacey talks about the Friends for Life Conferences and announces a limited presale of her book! Find out more here (and use promo code "earlybird" until July 23) 7:10 Interview with Jim about his family's experience when their daughter was diagnosed at Disney World 29:10 Community Connection: Stacey shares her experience dropping Benny off at "regular" sleep-away camp. 35:45 TMSG: Beyond Type 1 / Diabetes Scholars awards over 50 scholarships! Learn more here A dad thanks the security guard that tracked down a diabetes bag left behind after a school trip. Follow Project 50 in 50 on their quest to summit the highest spot in all 50 states. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick
07/09/2019
JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick
JDRF’s Children’s Congress kicks off this week and we’re talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children’s Congress is all about and how to apply next time around. Join the Diabetes Connections Facebook Group! Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We’ve got advice from parents of little swimmers and adults who take hot yoga. Scroll to the bottom to see a list of items/products mentioned during this episode. In Tell Me Something Good, we’ll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group. Sign up for our newsletter here This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- Show Open/Tease Stacey Welcome - Find out more about Project 50 in 50 JDRF Children's Congress Greater Western Carolinas Chapter Delegates Community Connection Getting Gear to Stick: TMSG: ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android This list is full of brand name and generics. I’ve linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone’s skin is different, so is our health insurance. It’s possible that what works for you may actually be covered. Stranger things have happened. I expect to edit & add to this list in the weeks and months to come. Hope it helps! Sticky Wipes These make the skin a bit tacky in order to give the material you put on top a better hold. Skin Tac wipe or liquid IV Prep wipe Mastisol liquid Stoma Care wipe w/aloe Hollister skin gel ReliaMed wipe Tapes/Patches Stay Put Medical Patches Tegaderm film dressing Opsite Flexifix transparent film Hypafix dressing tape RockaDex Dexcom patches GrifGrips adhesive patch Waterproof Bandaid Wraps/Bands Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape) Vet Wrap SleekSleeves Bands4Life Athletic Sleeves Rash Guard/Swim shirt (cut to fit) Misc. EK Tools Tag Punch Classic (Dexcom-sized hole punch) Dexcom & Libre Rash (Public Facebook Group)
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From Total Denial to Totally Thriving: Meet Rachel Price
07/02/2019
From Total Denial to Totally Thriving: Meet Rachel Price
Diagnosed with T1D in her 20s, Rachel Price admits she was in denial at first, insisting to her doctors there was nothing wrong. Now, she’s an advocate who stays positive but realistic. Rachel has three children and started a business called DiaBeTees selling t-shirts and other products with fun diabetes sayings and catchy slogans. Join the Diabetes Connections Facebook Group! In our Community Connection this week, Dan Haddin is off for Teach for America, but not before creating some fantastic diabetes song parodies. Stacey plays his latest - a funny appeal to Nick Jonas. Click to watch "Diabetic Like You (Sucker Parody)" Sign up for our newsletter here And in Tell Me Something Good, a day camp milestone and a hiker sets out to make his mark. --- 00:00 Tease/Open: What's this week's show about? 1:50 Welcome: Stacey talks about JDRF Children's Congress coming up and talks about CWD Friends for Life later in July as well as her family's plans for the rest of the summer. 5:45 Stacey's interview with Rachel Price 32:40 Community Connection: Hear Dan Haddin's T1D Sucker Parody 36:45 TMSG: Inspired by Isabella: Isa goes to gymnastics day camp, Mike Joyce will hike the Appalachian Trail and Cami is excited (and worried) about her son heading off to college. Learn about Inspired by Isabella Follow Mike's journey on the AT 41:30 Stacey talks about the presentations she's doing at Friends for Life later this month and hints at something new coming up outside the podcast... stay tuned! ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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All About New Dietary Guidelines: Full Interview with Hope Warshaw, RD, CDE (Bonus Episode)
06/27/2019
All About New Dietary Guidelines: Full Interview with Hope Warshaw, RD, CDE (Bonus Episode)
Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there’s a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels. Join the Diabetes Connections Facebook Group! Learn more about the ADA Dietary Guidelines for 2019 This is the full interview with Hope. An excerpt ran in the previous episode. All of our "Extra" interviews like this will be available as transcriptions! To READ the podcast, make sure you're signed up for the newsletter. Each month you'll received an easy to read version of the show! Sign up for the weekly newsletter & get your free transcriptions Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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All About New Diabetes Diet Guidelines with RD, CDE Hope Warshaw
06/25/2019
All About New Diabetes Diet Guidelines with RD, CDE Hope Warshaw
Low carb, high fat, counting protein for dosing insulin.. when it comes to food and diabetes, there’s a lot to keep in mind. It's not as simple as reading a label and measuring a dose. Registered Dietitian and Certified Diabetes Educator Hope Warshaw takes us through the most recent research about eating well with diabetes and talks about food labels. Join the Diabetes Connections Facebook Group! Learn more about the ADA Dietary Guidelines for 2019 In our Community Connection this week how a book about automated insulin delivery is already a big addition to the We Are Not Waiting Community, in more ways than you might think. Find Out About Automated Insulin Delivery, the book by Dana Lewis And Tell Me Something Good: a small act at a Starbucks makes a big difference. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- 00:00 Open/Tease - What's on the show this week? 1:40 Stacey welcome: She shares how Stay Put patches helped keep Benny's Dexcom sensor on through diabetes camp and a beach trip (not a commercial). And get your show transcriptions! Just sign up for the newsletter and each month a new transcript will come right to you. Sign up for our newsletter here 6:00 Interview with Hope Warshaw, RD, CDE 35:30 Community Connection: Automated Insulin Delivery, a new book and project from Dana Lewis 40:30 TMSG: A Starbucks barista realizes his mistake and fixes a drink (no sugar, please!). A listener has the same, low A1C four tests in a row and a diabetes dad shares his son's 24 hour in range triumph (along with a fun dinosaur adventure along the way). 45:30 Stacey shares what happens when she and Benny forget the long-acting dose during their beach vacation. It all worked out fine, but not without some extra work and worry. ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Dexcom CEO Kevin Sayer: News From ADA 2019 & More
06/18/2019
Dexcom CEO Kevin Sayer: News From ADA 2019 & More
This week – Dexcom’s CEO is back to answer your questions. Kevin Sayer shares lots of news from the recent ADA Scientific Sessions as well as more information about the new G6 transmitter expected later this year. Join the Diabetes Connections Facebook Group! Sayer also shares news about Dexcom’s role with current hybrid closed loops, answers your questions about Medicare and updates to Follow and touches on when we might see the G7 and when we’ll stop seeing the G4. Learn more about the top research from ADA 2019 In our Community Connection, a new resource to help you find the best pump, CGM and other diabetes tech for you. It's called DiabetesWise, an initiative from the Stanford School of Medicine funded by the Helmsley Charitable Trust. And Tell Me Something Good is all about research that could help the entire diabetes community. Learn about a new prevention study from Trial Net that delayed the onset of T1D for two years. ----- 00:00 Open: What's on the Show This Week? 1:35 Stacey Welcome - Benny's was at camp when Stacey taped this episode (he's back now and had a blast - more on that next week). More about the transcriptions that started going out last week. Sign up for the newsletter to start receiving these monthly "extras." And Texas Roadhouse restaurant is helping JDRF - donating proceeds from their online gift cards. But this ends June 30th so click here to find out more. 5:45 Interview with Dexcom CEO Kevin Sayer 42:45 Community Connection all about DiabetesWise 45:35 TMSG: TrialNet's Teplizumab prevention study Previous interviews with Dexcom: CTO Jake Leach - Feb 2019 focuses on Apple "Hey Siri" update and more on trouble shooting G6 sensors CEO Kevin Sayer - Jan 2019 focuses on G6 rollout, NYE Share/Follow outage and listener questions CEO Kevin Sayer - May 2018 focuses on G6 launch and Dexcom wearable integration CEO Kevin Sayer - March 2018 Dexcom G6 Approved Former CTO Jorge Valdes- June 2017 Apple watch integration discussion, G5 for Android, Dexcom company discussion Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Picky Eaters & Summer Swimmers: Ask The D-Moms
06/11/2019
Picky Eaters & Summer Swimmers: Ask The D-Moms
Moira McCarthy and Stacey answer your questions about picky eaters, fear of shots and a summer time trips to the pool or beach. They share helpful stories from their own experiences - check the links below for more help and info. Join the Diabetes Connections Facebook Group! Learn about Buzzy and Shot Blocker (pain reduction in shots) MedT's iPort Advance (what Stacey calls an inset for shots) Previous episode on Getting Diabetes Gear to Stick in the Summer In our Community Connection this week… some push back from the DIY community as the FDA targets an off label use issue. Stacey asks, isn't all T1D a bit DIY? FDA Warning RE: DIY devices Read Katie DiSimone's post about the FDA and DIY And in our Tell Me Something Good Segment - sports achievements from young and old as well as a major T1D accomplishment: The 4th person with type 1 diabetes summits Mt Everest! Taylor Adams Summits Mt. Everest with T1D History of T1Ds on Mt Everest -- :00 Show Open -What's on this week? 1:30 Stacey Welcome - Benny's away at Diabetes Camp this week! And more on the ADA Sessions in the FB Group - along with any breaking news that comes from that annual event. Make sure you sign up for the newsletter!! New stuff is coming! Sign Up For the Newsletter Here 5:10 Ask the D-Moms 38:00 Community Connection: DIY & the FDA 42:30 TMSG: Mooresville, NC baseball champs, Senior Games competitor and Taylor Adams becomes the 4th person with T1D to summit Everest ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Dads and Diabetes: What T1D Fathers Want You To Know
06/04/2019
Dads and Diabetes: What T1D Fathers Want You To Know
With Father’s Day coming up we’re taking a look at Dads and Diabetes. Two T1D Dads: Alan Nolte and Mark Turner share their perspective on raising children with diabetes. Join the Diabetes Connections Facebook Group! Alan and Mark met when their daughters hit it off at diabetes camp last year. The girls became long distance friends and so did their dads. They started a podcast - Dads and Diabetes. They share their stories with Stacey, give us the "guy" perspective and explain what they'd love more D-Moms to keep in mind. In our Community Connection, a quest by two T1D outdoorsmen to summit the highest peak in each state in the US. We’ll find out about Project 50 in 50 and how you can get involved. Tell Me Something Good features a 5 year old who's finished second grade! And Stacey shares her daughter's high school graduation. ----- 00:00 Show open and "tease" - what's on the show this week? 2:00 Stacey Welcome - Find out about the 2019 DiabetesMine Patient Voices Scholarship Contest. Attend their November conference and learn about new technology. 4:50 Interview with Mark & Alan of Diabetes Dads 39:00 Stacey talks about diabetes camp (continuing the conversation from the interview) 41:00 Community Connection: Project 50 in 50 45:00 TMSG! A first haircut, a T1D Kindergartener who finished the school year by also finishing first AND second grade and Stacey shares more about her daughter's high school graduation. Listen to "Our T1D Decade" episode here; Stacey mentioned this episode as having a good sibling conversation with Lea. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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All About CGMs - Full Interview with CDE Gary Scheiner (Bonus Episode)
05/30/2019
All About CGMs - Full Interview with CDE Gary Scheiner (Bonus Episode)
Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. An excerpt of this interview ran in episode 229. We go further in depth on more issues around CGM and discuss more advice. Join the Diabetes Connections Facebook Group! Gary is the founder of Integrated Diabetes Services, the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This is the full interview with Gary. You can find an excerpt in the previous episode. Here's Gary's formula for getting your A1C and beating your endo at the bet he jokes about. Start with your CGM average glucose for 30 days. Multiply by 1.03. Then add 46.7. Then divide by 28.7 to get your A1C. To do the reverse and find out your estimated average glucose, The American Diabetes Association has a handy A1c-to-eAG calculator: https://professional.diabetes.org/diapro/glucose_calc Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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All About CGMs with CDE Gary Scheiner
05/28/2019
All About CGMs with CDE Gary Scheiner
Get the most out of your Continuous Glucose Monitor. Certified Diabetes Educator Gary Scheiner joins Stacey to talk about all the CGMs available in the United States. Join the Diabetes Connections Facebook Group! Gary heads up Integrated Diabetes Services, is the author of many books including, Think Like A Pancreas and was the 2014 AADE CDE of the Year. This interview is an excerpt - the full interview with Gary can be found in the bonus episode immediately following. In our Community Connection this week, diabetes camp for grownups – why should the kids have all the fun?! A look at some of the programs available including Camp Nejeda's Survive and Thrive, Beyond Type 1 Slip Streams and TCOYD's One Retreat. Sign up for our newsletter here And in Tell Me Something Good, some diabetes camp memories, more than a generation later. And a big award for a kid who doesn’t have type 1 but supports her friends who do. ----- 1:30 Stacey Welcome - she shares her experience filling out diabetes camp forms. A lot has changed since Benny started at camp 8 years ago! 6:55 Interview with Gary Scheiner 36:00 Community Connection: Diabetes Camps for Grownups 40:00 TSMG: Ariel Flur wins a Blumey Award! Her father was featured on the show back in 2016 for riding in the ADA Tour de Cure. And a former camper at Camp Nejeda shares his childhood experience with Stacey. Jim Kutudis even sent us pictures! Check out the FB group for more. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Six Until Me's Kerri Sparling (& Her Mom!) / Will's Way Celebrates 5 Years
05/21/2019
Six Until Me's Kerri Sparling (& Her Mom!) / Will's Way Celebrates 5 Years
For 14 years, Kerri Sparling has shared her story on the very popular blog, SixUntilMe. This month, she published her last post. We take a look back with Kerri and go beyond the blog. We also asked her mom, Debbe, to join us! Debbe shares what she thinks of Kerri's accomplishments and influence and we talk about raising a child with type 1 in a time with very different technology and tools. Join the Diabetes Connections Facebook Group! In our Community Connection – help for people with diabetes who have insurance but still can't afford all of their supplies. We catch up with Diabetes Will's Way as they celebrate 5 years! Sign up for our newsletter here And Tell Me Something Good – meeting your people for the first time. How diabetes conferences are good for the body and the mind. Listeners share their stories and Stacey talks about a recent TCOYD conference. ----- 00:00 Show Open - What's going on this week?! 1:46 Stacey Welcome - She shares a great mother's day present: Benny was Rufus at their local JDRF walk and Lea worked a food truck at the walk. Proud mama moment! Some info about the website - it's still under construction - you can listen to shows there but lots of good new stuff is coming! 5:15 Interview with Kerri Sparling and her mom, Debbe 40:00 Catching up with Lisa Oberndorfer, the founder of Diabetes Will's Way - she's Will's mom - as she marks 5 years of helping people with health insurance who still can't afford what they need. Will was diagnosed at 13 and just graduated high school this year. He was the valedictorian of his class! We also hear from Kathy who received a grant for her daughter's Dexcom CGM. 55:15 Tell me something good: Sarah is 26 just recently diagnosed and met her first T1D people at the EPIC conference in Denver. Stacey talks about the TCOYD conference and a specific session with Dr. William Polonsky of the Behavioral Diabetes Institute Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Steel Magnolias is Back in Theaters - A T1D Mom Round Table
05/16/2019
Steel Magnolias is Back in Theaters - A T1D Mom Round Table
Steel Magnolias is getting reissued in a lot of theaters across the country to celebrate 30 years since the movie’s release. The movie has become a touchstone and a bit of a hot spot for women, pregnancy and type 1 diabetes. This round table first ran last year as Stacey's local theater was putting on the show; Steele Magnolias was first a play by Robert Harling – based on the true story of his sister’s death then the blockbuster movie. Join the Diabetes Connections Facebook Group! Melissa Lee, Kerri Sparling & Kyrra Richards are all moms who live with type 1 joined Stacey for this talk about the movie, their experiences in pregnancy and now with their kids. Melissa is the director of community relations for Bigfoot Biomedical, the mother of two children and was diagnosed with type 1 in elementary school. She blogs at Sweetly Voiced. Kerri is an author, advocate and until recently, she wrote SixUntilMe, the wonderful blog that she wrapped up this month. Kerri was diagnosed at age 7 and has two children. Kyyra created and heads up Myabetic – which makes beautiful fashionable bags with diabetes in mind – she was diagnosed as a adult and when we taped this interview last year she had one baby and another on the way. She now has two young children. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Last year's episode here (includes some stories about Benny at summer camp - but the Steel Magnolias round table is the same) ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Ask The D-Moms / Caravan to Canada #Insulin4All
05/14/2019
Ask The D-Moms / Caravan to Canada #Insulin4All
Dear DMoms is back, answering your questions about when it's time for T1D kids to be more independent, worries about camp and handling judgmental friends. In this monthly segment, Stacey and Moira McCarthy share their experiences to help you through diabetes parenting. Join the Diabetes Connections Facebook Group Moira shares what her medical crisis has taught her about diabetes. Plus, a Caravan to Canada – going across the border to get cheaper insulin. Activists Lija Greenseid and Quinn Nystrom give us a report on their way back home to the US. More info on the Caravan here Newsweek article here Previous interview with Lija about traveling the world with T1D Previous interview with Quinn And in Tell Me Something Good, a graduation that is well earned and a long time coming. A diabetes social media advocate who got her cap and gown. Congratulations to DSMA founder Cherise Shockley! ---- 2:00 Stacey Welcome 5:20 "Dear D-Moms" Stacey & Moira answer your questions 51:30 Community Connection: Caravan to Canada 1:07 Tell Me Something Good: Congratulations to DSMA founder Cherise Shockley on her college graduation! ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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American Idol's Jackson Gillies Lives with T1D & HS / Benny & Stacey at the Endo
05/07/2019
American Idol's Jackson Gillies Lives with T1D & HS / Benny & Stacey at the Endo
You saw him on American Idol, now Jackson Gillies is using his spotlight to educate not only about type 1 diabetes but about another, more rare condition he’s lived with since he was 13. Join the Diabetes Connections Facebook Group! It's a painful skin condition called Hidradenitis Suppurativa or HS. It’s not as rare as first thought, but most people with it are too embarassed to seek help. Jackson is trying to change that. Of course, we’ll also have some fun talking about American Idol. Check out Jackson's TedX Talk here Here's his American Idol Audition Information on the Auto-Immune Protocol Diet Jackson mentions Plus.. you’ll hear from Benny this week – we talk about the changes we.ve made in management and the really great results we’ve seen. Stacey's son switched to an untethered regimen last fall using long acting Tresiba with their insulin pump and his A1C has come down significantly. More on untethered with Dr. Steve Edelman Previous episode on Benny switching to untethered - Stacey marked his 12 year diaversary with that information and more. And in Tell Me Something Good – family diabetes camp and some volunteer efforts outside the T1D community. ---- 1:30 Stacey welcome - she shares some of Benny's progress 4:00 Interview with Jackson Gillies 30:00 Stacey interviews Benny 44:30 Stacey talks in more detail about the untethered regimen 50:51 TMSG ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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All About Lows: Full Interview with CDE Shannon Johnson (Bonus Episode)
05/02/2019
All About Lows: Full Interview with CDE Shannon Johnson (Bonus Episode)
A Diabetes Connections Extra! We take a deep dive into low blood sugar with a frank talk about what hypoglycemia means, what the dangers are, how to treat and more Join the Diabetes Connections Facebook Group! This is the extended, full version of our conversation about lows. As with all of our "Extra" episodes, an excerpt ran in the episode just before the this one. Look for Extras the last week of each month. Stacey talks to Shannon Johnson, who was diagnosed with LADA in her early 20s. Shannon is also a CDE and a pump and CGM trainer. Low blood sugar basics (JDRF) Low blood sugar info (ADA) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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All About Low Blood Sugar with CDE Shannon Johnson / The TCOYD Conference
04/30/2019
All About Low Blood Sugar with CDE Shannon Johnson / The TCOYD Conference
This week we take a deep dive into low blood sugar. A frank talk about what hypoglycemia means.. what the dangers are, how to treat and more. Join the Diabetes Connections Facebook Group! Stacey talks to Shannon Johnson, a CDE who lives with diabetes herself. Shannon was diagnosed with LADA in hear early 20s and she's now a Certified Diabetes Educator and trains her patients on pumps and CGMs. Plus, we’ll find out about the TCOYD conference – the first one for people with diabetes and not just medical professionals. Taking Control of Your Diabetes is marking 25 years. Stacey talks with founder Dr. Steve Edleman who was diagnosed as a teen. And in Tell Me Something Good - huge news from the DIY community. You can now Loop with Omnipod. Find out about the Open Omni project Sign up for our newsletter here ---- 1:45 Stacey welcome - her daughter is graduating high school soon, she's going to two conferences in May: TCOYD in Raleigh and Take Control of Your Diabetes in Orlando. 7:30 Interview with Shannon Johnson, CDE 32:00 Community Connection with Dr. Steve Edelman, TCOYD Founder 46:00 TMSG: Omnipod Loop 52:25 Stacey continues her thoughts about the Hulk and diabetes after seeing Avengers Endgame (very mild spoilers) Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Keep Your Insulin Cool Without Refrigeration - The Story Behind Frio
04/23/2019
Keep Your Insulin Cool Without Refrigeration - The Story Behind Frio
It's hard to believe, but a natural disaster was the spark to bring a popular diabetes device to the US. A Frio is a handy little way to keep your insulin cool. Dan Katzki was diagnosed with type 1 as an adult an in 1989 – during the San Francisco earth quake – he lost power. Join the Diabetes Connections Facebook Group! Not wanting to go through that anxiety again, Dan and his wife Lisa found the Frio product and brought it to the US. How it was invented is another great story. Our Community Connection is all about a virtual conference coming up in May. Find out about the Diabetes Empowerment Summit - the conference you can attend in your pajamas. And Tell Me Something Good includes a huge milestone for a diabetes advocate we’ve spoke to before. 1000 blog posts for Renza Scibilia who's also marking her 21st year with diabetes. ----- 1:50 Welcome: Stacey shares how the Avengers movie coming out this weeks means a lot to her family. In fact, Marvel has even helped with diabetes. 7:00 Interview with Dan and Lisa Katzki 39:00 Community Connection: The Diabetes Empowerment Summit 42:00 Tell Me Something Good: Renza Scibilia marks 21 years with type 1 and 1000 blog posts! Plus, Julia shares how she's (in her words) "graduated from the breast surgeon" and what that means to her. Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Closed Loop Systems With Dr. Bruce Buckingham / Comedian & T1D Advocate Chelcie Rice
04/16/2019
Closed Loop Systems With Dr. Bruce Buckingham / Comedian & T1D Advocate Chelcie Rice
This week Stacey talks to renowned researcher, long time pediatric endocrinologist and all around good guy Dr Bruce Buckingham. He decided to become an endo after experiencing diabetes camp early in his residency, more than 50 years ago. Join the Diabetes Connections Facebook Group! Dr. Buckingham tells Stacey he put his first patient on an insulin pump during a clinical trial in 1979! He was principal investigator of the Medtronic MiniMed 670G at Stanford University and he shares his reaction to a recent study that showed some people are struggling with this first commercially available hybrid closed loop. In our Community Connection this week, an important – and if I’m being honest – a bit of an awkward conversation about race. Comedian Chelcie Rice and I talk about how to get more people of color at diabetes events. He’s great.. I’m the awkward one. Good info from an event last fall: Diabetics on the Margin (includes links to more information and more people continuing the conversation about people of color living with diabetes. Our Tell Me Something Good this week.. Beyond Type 1 makes it the Webby awards and some great T1D kids speak up about how much diabetes camp means to them. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- 1:50 Stacey Welcome 7:00 Interview with Dr. Bruce Buckingham 41:30 Interview with Chelcie Rice 58:00 Tell Me Something Good Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Sign up for our newsletter here Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone Click here for Android
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Dear D-Moms: "Good" Numbers, Burnout & More
04/09/2019
Dear D-Moms: "Good" Numbers, Burnout & More
Ask the D-Moms is back! Moira McCarthy and Stacey answer your questions about explaining diabetes to others without creating fear. They weigh in on offering incentives for "good" numbers and give concrete tips about handling burnout.
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Laurian Lane: Mom, Nurse & T1D / "Sweet Genes" Author Susan Sloane
04/02/2019
Laurian Lane: Mom, Nurse & T1D / "Sweet Genes" Author Susan Sloane
This week, meet Laurian Lane, a labor and delivery nurse now raising three children of her own. Laurian was diagnosed with type one diabetes in 8th grade. When she was older, she began babysitting for Stacey's family!
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All About Ketones with CDE Beth Silvers
03/26/2019
All About Ketones with CDE Beth Silvers
A Diabetes Connections Extra, all about Ketones. This is the third in our series taking a deep dive into a diabetes management issue.
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Colt Scott: An American Ninja Warrior with T1D
03/19/2019
Colt Scott: An American Ninja Warrior with T1D
This season of American Ninja Warrior, keep an eye out for Colt Scott! Diagnosed with type 1 as a baby, Colt has been a course tester for ANW for 4 years and just recently got the call that he made it to the show.
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Dear D-Moms: Stacey & Moira Answer Your Questions
03/12/2019
Dear D-Moms: Stacey & Moira Answer Your Questions
Our monthly Dear D-Mom segment is back! Moira McCarthy & Stacey take on travel, talking about cure research with our children, and words like "sneaky" and "compliance."
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All About Diabetes Camp
03/05/2019
All About Diabetes Camp
Everything you need to know about sending your child to camp. This week, we talk about what parents need to think about, what the staff wants you to know and how to make it a great experience for everyone.
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