You First: The Disability Rights Florida Podcast
You First is a bi-weekly interview-based podcast hosted by Keith Casebonne and Maddie Crowley. In each episode, we delve into issues of national and global importance to people with disabilities, such as accessibility, identity, discrimination, rights protections, voting, and much more.
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History of the Mad Movement - with Vesper Moore
04/04/2024
History of the Mad Movement - with Vesper Moore
In this episode of You First, co-hosts Keith and Maddie speak with Indigenous activist and disability rights leader Vesper Moore about the Mad Movement, psychiatric survivorship, and envisioning a future of collective care. Vesper, deeply involved in mental health and disability rights activism, discusses their work in altering perceptions and legislation surrounding mental health both nationally and with international bodies. The conversation delves into the history of psychiatric survivor movements, the problematic nature of involuntary commitment, and the importance of community care over institutional care. Moore emphasizes the power of peer support and shares insights into the Kiva Centers, a peer respite group that offers an alternative to traditional psychiatric institutions. Furthermore, Vesper touches on their advocacy work against re-institutionalization and for more humane, community-focused approaches to mental health care, advocating for dialogue and solidarity within the disability rights movements. The episode concludes with a call for comprehensive community support systems and the significant role of peer-led initiatives in transforming mental health care. Content Warning: This conversation includes instances of ableism, saneism, racism, involuntary incarceration, and mentions violence against BIPOC, disabled people, and houseless folks. Discretion is advised. Relevant Links: Vesper Moore’s website: Bethlem/Bedlem Hospital: Lunatics' Friend Society: Rusk State Hospital Revolt: Drapetomania (YouTube video): Hiawatha Insane Asylum: Taíno people: Kiva Centers: CAHOOTS (Crisis Assistance Helping Out on the Streets): Bandelier National Monument Kivas:
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Global Disability Progress - with Rosangela Berman Bieler and Patricia Almeida
03/21/2024
Global Disability Progress - with Rosangela Berman Bieler and Patricia Almeida
In today's episode, we are joined by two international disability advocates, Rosangela Berman Bieler and Patricia Almeida. During our conversation, we discuss the importance and impact of global disability policy and rights work, including their work with the UN and UNICEF. They also discuss how other countries compare to the US regarding disability progress and inclusion, global accessibility initiatives, and the need for continued fighting for disability rights. Relevant Links
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Inclusive Disaster & Emergency Strategies - with Shaylin Sluzalis & Germán Parodi
03/07/2024
Inclusive Disaster & Emergency Strategies - with Shaylin Sluzalis & Germán Parodi
In this week's episode, co-hosts Keith and Maddie talk with The Partnership for Inclusive Disaster Strategies' Co-Directors Shaylin Sluzalis & Germán Parodi. The Partnership for Inclusive Disaster Strategies (The Partnership) is the only U.S. disability-led, 501(c)(3) organization that prioritizes equity, access, disability rights, disability justice, and full inclusion of people with disabilities, older adults, and people with access and functional needs before, during and after disasters and emergencies. We chat about how their work started, how Floridians with disabilities can stay safe during hurricanes, how other emergencies disproportionately impact disabled people, and resources to take precautions during the ongoing COVID-19 pandemic and flu season. Relevant resources: The Partnership’s website: Disaster hotline: 800-626-4959 Weekly stakeholder call and events: The Partnership’s resources, including your rights during a disaster: Local weather alerts: Having a plan & emergency kit list: Find your local emergency management office and resources: Special Needs Registry Shelter: Disability Information and Access Line: or by phone 888-677-1199 Find your local Center for Independent Living: DRF vaccine clinics: DRF vaccine assistance: Masking bloc – local support groups, free masks, guidance, etc.:
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Disability Activism Through Art - with Jen White-Johnson
02/22/2024
Disability Activism Through Art - with Jen White-Johnson
In this episode of You First, we talk with Jen White-Johnson (she/they), a renowned artist, educator, and disability activist who uses the arts as a medium to champion the life, joy, and experiences of the disabled and neurodivergent community. Jen discusses their journey as someone diagnosed with ADHD later in life, the barriers for disabled Black, Indigenous, and people of color (BIPOC) to getting a diagnosis, and the impact of their son being diagnosed with autism. They talk about the need for more disabled BIPOC representation in visual media, their efforts to bring disabled artists to the forefront, and how they work to deconstruct ableism in the classroom. Jen discusses their artwork that celebrates Disability Justice and celebrates Disability Joy through visual arts, digital design, zine-making, installations, and more. Episode 62 Relevant links mentioned:
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The ABCs of IEPs - with April Katine and Daysi Ortiz
02/08/2024
The ABCs of IEPs - with April Katine and Daysi Ortiz
Two Disability Rights Florida education advocates, April Katine and Daysi Ortiz, join Keith in education planning for students with disabilities. The three discuss the importance of individual education plans (IEPs) and transition planning and offer tips on how parents can more effectively find success throughout the process. Tune in to learn about the various services available under IEP, how to prepare for IEP meetings, the significance of periodic re-evaluations, the importance of maintaining written records, and how to best collaborate with your child's IEP team. Relevant links:
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Disability Inclusive Campaigning - with Neal Carter, Jess Moore Matthews, Sarah Blahovec, and Dom Kelly
01/25/2024
Disability Inclusive Campaigning - with Neal Carter, Jess Moore Matthews, Sarah Blahovec, and Dom Kelly
In this episode of You First, hosts Keith and Maddie talk with guests Neal Carter, Jess Moore Matthews, Sarah Blahovec, and Dom Kelly about disability-inclusive campaigning, strategies to reach disabled voters, and the significance of accessible elections. Today's episode is not about any specific candidates or voting laws. Instead, we focus on the broader culture of political campaigns, exploring why the disability community often feels excluded and what disabled organizers are doing to challenge this status quo. The discussion touches on the unique perspectives of our guests and their efforts to engage historically marginalized voters. Relevant Links:
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Say the Word: Disability - with Lawrence Carter-Long, Damian Gregory, and Laura-Lee Minutello
01/11/2024
Say the Word: Disability - with Lawrence Carter-Long, Damian Gregory, and Laura-Lee Minutello
In this episode of You First, hosts Keith and Maddie discuss the impact of language on disability rights and inclusion with advocates Lawrence Carter-Long, Damian Gregory, and Laura-Lee Minutello. The conversation highlights the #SayTheWord disability campaign, personal experiences with disability-related language, government services, marketing, and legislation affecting the disability community. They discuss person-first versus identity-first language and how language influences societal perspectives and policy-making. They emphasize that people with disabilities are integral to society, and their considerations must be included in policy-making. Relevant links:
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Disability and LGBTQ+ History, Law, and Solidarity - Webinar Audio
12/19/2023
Disability and LGBTQ+ History, Law, and Solidarity - Webinar Audio
In this bonus episode, You First Podcast host Maddie talks with 5 guests about various legal and medical precedents that have led to the division between the disability and LGBTQ+ communities. The history between the LGBTQ+ community and the disability community is often at odds with each other. Historically, LGBTQ+ identities were viewed as mental illnesses, and many within the LGBTQ+ community rightfully rejected this. However, debility and harm from LGBTQ+ oppression and discrimination leading to worse health outcomes can cause disability. In fact, despite trans and non-binary people being explicitly listed within the ADA as unable to qualify for ADA protections, developing legal precedent finds that gender dysphoria can be considered a disability under the Americans with Disabilities Act. There is much to unpack within these histories, and our guests will thoroughly explain how these communities have been pinned against each other. The guests will also speak to how these histories have led to the anti-LGBTQ+ and ableist legislation we are seeing today passed in Florida and across the country. We want to uplift the experiences of disabled & LGBTQ+ identifying people and discuss the often-unspoken history between these two communities as a way to regain power and comfort in these identities.
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Against Technoableism - with Ashley Shew and Mallory Kay Nelson
11/30/2023
Against Technoableism - with Ashley Shew and Mallory Kay Nelson
In this episode, guests Ashley Shew and Mallory Kay Nelson discuss the concept of technoableism, the history of disability and technology, and the importance of involving disabled people when developing new technologies. They highlight the challenges surrounding the definition of disability, the impact of assistive technology on people with disabilities, and the potential problems that may arise during its implementation, such as the pressure for disabled individuals to conform to an ableist standard. The episode also addresses accessibility, acceptance, and representation of disability in society, the media, and within disability communities. Relevant links from the episode: Ashley's book: Follow Ashley on social media: and Follow Mallory on social media: and
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Willowbrook and the Future of Disability Rights - with Dr. William Bronston and Marlene Sallo
11/16/2023
Willowbrook and the Future of Disability Rights - with Dr. William Bronston and Marlene Sallo
In this episode, co-hosts Maddie and Keith talk with Dr. William Bronston and Marlene Sallo about Willowbrook State School, its exposé, and its impact on the disability rights movement. The episode starts with our conversation with Dr. Bronston, a doctor who worked at Willowbrook and ultimately was vital in the lawsuit against New York State, ultimately officially closing the institution in 1987. He tells the insidious and harrowing story of abuse, violence, murder, and monetization of disabled folks warehoused at Willowbrook State School and what efforts he's currently involved in to advocate for healthcare for all and deinstitutionalization. Then, we hear from the National Disability Rights Network's Executive Director, Marlene Sallo, about the impact Willowbrook and the deinstitutionalization movement have had on the disability community and the ongoing fight for disability rights. Content Warning: strong language, explicit mentions of violence against and death of disabled people, institutionalization, medical trauma, and eugenics. The episode starts with Dr. Bill Bronston's interview, then we hear from Marlene Sallo starting at 1:28:10. Relevant links: Dr. Bronston's Book:
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Neurodiversity in the Legal Field - with AJ Link, Jalyn Radziminski, and Haley Moss
11/02/2023
Neurodiversity in the Legal Field - with AJ Link, Jalyn Radziminski, and Haley Moss
You First podcast co-hosts Keith and Maddie are joined by disability activists and legal scholars AJ Link, Jalyn Radziminski, and Haley Moss, who identify as neurodiverse and disabled. They shared their personal stories and insights about their experiences with law school, advocacy, careers, and more. The guests discussed how their unique perspectives benefit and challenge them in their work and highlighted areas of accessibility and inclusion that professionals and educators in the field may not be considering. They also offered advice to young, disabled, and neurodivergent individuals who may be interested in pursuing similar professions. and the
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Building Disabled & LGBTQ+ Community - with Beck DeTrempe
10/19/2023
Building Disabled & LGBTQ+ Community - with Beck DeTrempe
In this episode of You First, we chat with our friend Beck DeTrempe who is doing some awesome peer led community building in Florida. They founded Basically Wonderful, which is a grassroots organization run by Queer + Disabled folks in Orlando, Florida, USA. Their mission reads: Our hope is to create peer-led spaces for marginalized communities where folks are free to express themselves and build friendships with peers who have similar lived experiences. We are creating intentional spaces for both Disabled & LGBTQIA+ folks to commune and thrive in identity-driven spaces. We have a great conversation about the programming they offer, such as community spaces, book clubs, arts events, media clubs, and much more. We also discuss how they center Disability Justice, accessibility, accountability, and inclusion to provide community spaces that are inviting for all.
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Disability Is Not Scary!
10/05/2023
Disability Is Not Scary!
With one of their favorite holidays just around the corner, co-hosts Maddie and Keith delve into a serious discussion on using disability as a tool for instilling fear in others, all in the name of Halloween fun. From dressing up in offensive costumes to visiting eerie museums and reopened haunted institutions, the hosts explore how disability history and the disabled community have been intentionally disregarded in favor of a cheap thrill. Content warning: Mentions of violence against people with disabilities and BIPOC people, including colonialism, institutionalization, eugenics, incarceration, and slavery. References in episode:
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Podcasting with a Disability - with Emily Ladau and Kyle Khachadurian
09/21/2023
Podcasting with a Disability - with Emily Ladau and Kyle Khachadurian
On today's episode, we chat with the co-hosts of The Accessible Stall podcast, Emily Ladau and Kyle Khachadurian! These two disabled podcasting stars were some of the first podcasters with disabilities when they got their start in 2016. They are both strong advocates for disability, accessibility, and the power of story-telling. They join Keith and Maddie to discuss why they began podcasting, what accessibility considerations they make when producing a podcast, and much more. About the guests and their podcast: is a disability podcast hosted by and that keeps it real about issues within the disability community. Because we each have different disabilities and mobility levels, we approach everything we talk about with two unique viewpoints, offering our listeners a fresh insight into how differences in disability can color your experiences and perspectives. And we never shy away from offering our honest opinions. Even if they go against the grain of the disability community at large, we always speak our minds.
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Our Toolkit to Tackle Life’s Milestones - with Ann Siegel
08/03/2023
Our Toolkit to Tackle Life’s Milestones - with Ann Siegel
As we head back to school in a few weeks, we wanted to highlight our new Transition Toolkit. Transition is a term to describe when youth are moving into a new phase of life. Think about big transitioning moments in your life growing up: going to middle school, trying to get a job, or being able to vote. The Transition Toolkit has timely, helpful information regarding education plans, like IEPs or 504s, and things like self-advocacy, assistive technology, driver's licenses, and much more. It is accessible, easy to read, and offers youth and their supporters the information needed to plan for a successful future. Resources: Online Toolkit:
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Paving a Way Disabled in STEM - with Dr. Anita Marshall
07/20/2023
Paving a Way Disabled in STEM - with Dr. Anita Marshall
Guest Dr. Anita Marshall joins hosts Keith and Maddie to talk about her work to make STEM more accessible for students with disabilities. As someone who acquired a disability later in life, she realized how ableist and inaccessible higher education really was. Anita created the first-ever disability-accessible planetary geoscience field course and mentoring program, GeoSPACE, and is the Executive Director of The International Association for Geoscience Diversity. We discuss collective disability knowledge, debunk myths about academia, and gush about our love for universal accessibility. We hope you enjoy the episode! Show Notes and Resources:
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Who's Missing in Florida's New Youth Survey - with Dr. Norín Dollard, Nadine Smith, and Caitlyn Clibbon
07/06/2023
Who's Missing in Florida's New Youth Survey - with Dr. Norín Dollard, Nadine Smith, and Caitlyn Clibbon
A little over one year ago, Florida decided to stop participating in the Centers for Disease Control and Prevention’s (CDC’s) voluntary Youth Risk Behavior Survey (YRBS). Since 1991, Florida participated in the YRBS. It is widely given to youth across the United States to assess their well-being regarding to mental health, teen dating violence, bullying, drugs, eating and exercise habits, and sexual activity. This survey has been critical lately to monitor the rise in anxiety, depression, and suicide among teens since 2020. In addition to risk taking behaviors, the survey assesses how youth of marginalized identities are doing while living in florida. With Florida no longer participating, people are concerned about what metrics will exist to track youth and teen safety trends. After discontinuing involvement, Florida created its own survey: the Florida Specific Youth Survey (FSYS). This survey focuses on 'student resiliency standards' and has little to no questions about sexual, mental, and relationship health. Host Keith Casebonne talks with DRF staff and leadership from Equality Florida & Florida Policy Institute about the impact of Florida leaving the Youth Risk Behavior Survey. These three guests discuss their deep concerns about the survey and real repercussions on marginalized youth, including people with disabilities, people of color, LGBTQ youth, and more. Show Notes & Resources:
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Frida: Disability, Sexuality, and Art
06/22/2023
Frida: Disability, Sexuality, and Art
In honor of Pride Month, upcoming Disability Pride Month, and the opportunity to always highlight cool disabled people, let’s talk about Frida Kahlo. Many are aware of the legendary artist, Frida Kahlo: her famous artwork, impact on culture, and iconic appearance. But many people do not know that she was a bisexual disabled woman with physical disabilities due to polio and an automobile accident. Her disabilities made a lasting impact on her art, heavily influencing what, who, and how she painted. Show Notes & Resources:
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Disability and Indigenous Identity - with Jen Deerinwater
06/08/2023
Disability and Indigenous Identity - with Jen Deerinwater
Guest Jen Deerinwater joins host Maddie Crowley to talk about the intersection of disability and Indigenous identities. Jen is a disabled Two Spirit Indigenous individual who is an award-winning journalist, organizer, and leader within the disability, Indigenous and environmental justice movements. During the conversation, they discuss paving the way to create a native media organization, combatting ableism and invisibility, and highlighting upcoming opportunities and new resources developing for disabled Native folks. Additional Resources: Jen Deerinwater’s website: Jen’s writing and journalism: The Native American Protection and Advocacy organization: Crushing Colonialism's website: Intertribal Disability Advocacy Council (IDAC): IDAC Listening Sessions: To be announced! Indian Health Service: Native American LifeLines, Inc.: Our Native American Resource page: Native disabled folks mentioned in podcast to follow: Johnnie Jae Sarah A. Young Bear-Brown Jules Edwards Sharon DaVanPort Hector Ramirez Hoskie Benally Kera Sherwood-O’Reagan John Gilroy
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Hurricane Season and Disaster Preparedness - with Bryan Russell
05/11/2023
Hurricane Season and Disaster Preparedness - with Bryan Russell
June 1st is the beginning of hurricane season. As Floridians know, it can be a mixed bag as to what storms we’re going to get. But hurricanes impact other states around the country, and it’s important to be prepared and safe. On the show today we’re talking with our coworker, Bryan Russell, who is the Emergency Management Coordinator at Disability Rights Florida. And, while it might be hurricane season, people in Florida and individuals across the country experience severe weather and natural disasters all year round. Bryan will talk about the best safety practices that can and should be considered year-round so we can always be prepared. Visit our for more information and to find links referenced in the episode
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Digital Accessibility
04/27/2023
Digital Accessibility
With our lives and world becoming more connected and reliant on the internet, what does that mean for people with disabilities? The internet can be a great way for disabled folks to connect, especially as access barriers and safety considerations keep our community apart. But, what if that online space wasn't accessible to the very folks that need it most? We're here to help you change that. , but we think this information is important to share everywhere because online accessibility is still such a huge issue. We all have a responsibility to be more conscientious, considerate, and inclusive online. In this episode, we will talk about some best online accessibility practices to help you make your content more accessible for folks with disabilities. Additional Resources: Our blog
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Disabled Marriage and Parenting Part 2 - with Heather Watkins and Dom Evans
04/03/2023
Disabled Marriage and Parenting Part 2 - with Heather Watkins and Dom Evans
Welcome to Part 2 of a conversation with Heather Watkins and Dom Evans about marriage inequity, disabled relationships in the media, and disabled parenting! Please for more background information and relevant links mentioned in the episode.
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Disabled Marriage and Parenting Part 1 - with Heather Watkins and Dom Evans
03/28/2023
Disabled Marriage and Parenting Part 1 - with Heather Watkins and Dom Evans
In February, we created a blog post on disability marriage inequality. We knew people would be interested in the topic, but were taken aback by the immense engagement and shock felt by our audience. Because of that, we wanted to create a podcast episode talking with disabled folks about disability marriage inequality, parenting, and more. On the show today we have two fantastic guests, Heather Watkins and Dom Evans. Heather Watkins (she/her) is a disability advocate, author, blogger, mother, and graduate of Emerson College with a B.S. in Mass Communications. Born with Muscular Dystrophy, loves reading, daydreaming, chocolate, and serves on a handful of disability-related boards. Her blog Slow Walkers See More includes reflections and insight from her life with disability. Dom Evans (they/he) is a director/writer, activist, Twitch streamer, and consultant with a BFA in Film. He fights for inclusion in media, marriage equality, gaming, and reproductive rights. Dom founded #FilmDis, to better understand Disability in media. He works in Hollywood to make the industry more inclusive to disabled people. Needless to say, these two advocates are the guests to have for this podcast. We were thrilled to have them on and have such an engaging and insightful conversation in store for you. We hope you enjoy part one of our conversation with Heather and Dom! Relevant links:
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Honoring Judy Heumann
03/13/2023
Honoring Judy Heumann
On March 4th, 2023, the world was shaken by the passing of the legendary disability rights activist and leader Judith (Judy) Heumann. She is considered “The Mother of the Disability Rights Movement” and is frankly a badass. Judy was essential to disability rights advocacy and progress. It is because of her advocacy that our organization can do the work we do today. We are indebted to her and her work, and we will continue her fight for disability rights in her honor. To honor her, we wanted to record a special tribute about Judy, her advocacy, and the long-lasting impact that her presence will have on the disability community and the world. Relevant links and topics mentioned in the episode:
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Medicaid Unwinding - with Laura-Lee Minutello
03/13/2023
Medicaid Unwinding - with Laura-Lee Minutello
Medicaid Unwinding in Florida starts on April 1, 2023. With information coming from various Florida agencies and organizations, it can be hard to get clear information about what is happening with Medicaid eligibility. The Medicaid Unwinding process can feel overwhelming, but we hope our show today will provide you with important clarifying information you need to be ready and prepared for the process. In this bonus episode, we talk with our co-worker from the Public Policy team, Laura Minutello, who will provide information and resources about Medicaid Unwinding.
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International Disability Media and Advocacy - with Alan Herbert
02/17/2023
International Disability Media and Advocacy - with Alan Herbert
In this episode of You First, we chat with Alan Herbert, a Kenyan journalist, social inclusion advocate, and behavior change communications professional. He brings on a wealth of experience in inclusive media practices, leadership, and advocacy. Alan currently serves as a prime-time TV host at Signs TV Kenya and is a founding member and Chief Executive Officer of Black Albinism, Kenya. Alan is also an inclusive communications consultant who has worked with organizations to develop inclusive employment learning modules. He has also worked on a documentary about the Kenyan government’s plan and commitments to the disability community at the inaugural Global Disability Summit. We connected with Alan last year when he was in the states for his disability fellowship program and we’ve stayed connected ever since. We’re excited to share the interview, and we hope you enjoy it!
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2023 Disability Policies on Our Watch - with Caitlyn Clibbon
01/31/2023
2023 Disability Policies on Our Watch - with Caitlyn Clibbon
Our first episode of the new year focuses on our legislative priorities for 2023. Florida's legislative session starts in March, and Disability Rights Florida has been following the conversations around what bills and topics will be featured. Many of these issues can greatly impact the disability community in Florida. That's why we're here to give you the inside scoop on what we have on our radar this session. We spoke to our friend and coworker, DRF Public Policy Analyst Caitlyn Clibbon. She is one of our staff members who is closely watching what's happening with the Florida legislative session and considering the impact these laws will have on people with disabilities. Caitlyn offers some insight into what topics we, as an organization, are focusing on and keeping a close watch on.
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Your Voice, Your Vote: Episode 6 - Accessible In-Person Voting
10/27/2022
Your Voice, Your Vote: Episode 6 - Accessible In-Person Voting
Let's talk about Accessible In-Person Voting in the sixth and final episode of our new series, "Your Voice, Your Vote!" It’s almost Election Day - and you have the right to vote in person with accessible options. On this episode of "Your Voice, Your Vote!" we’re grateful to have Sarah Goldman, the Director of Administration and Youth Initiatives at the Florida Independent Living Council, and Alex Mosca, a Public Information Specialist at the Leon County Supervisor of Elections office. Tune in to learn about your in-person voting rights, the guests’ experiences with in-person voting, and how we can all continue to make voting more accessible and inclusive for all voters.
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Your Voice, Your Vote: Episode 5 - Running for Office with a Disability
10/20/2022
Your Voice, Your Vote: Episode 5 - Running for Office with a Disability
Let's talk about Running for Office with a Disability in the fifth episode of our new series, "Your Voice, Your Vote!" On today’s episode, we’re excited to have guests Sarah Blahovec, Olivia Babis, Karolyn Campbell, and Sabrina Cohen. These four individuals have run for office as folks with disabilities, advocated for inclusive campaigning strategies, and educated potential disabled candidates about how to run for office effectively. The conversation illuminates barriers to civic engagement and political disabled representation that you may not realize. Links:
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Your Voice, Your Vote: Episode 4 - Understanding the Disability Vote
10/13/2022
Your Voice, Your Vote: Episode 4 - Understanding the Disability Vote
Let's talk about Understanding the Disability Vote in the fourth episode of our new series, "Your Voice, Your Vote!" In this two-part episode, we talk about the disability community, their access to voting, what barriers are up against the disability community’s civic involvement, what trends we see in disabled voters, and what efforts are being made to make elections more accessible for all. First, you will hear from guests Lisa Schur and Doug Kruse from Rutgers University who do disability voting research. After that, you will get insight from Commissioner Tom Hicks from the Elections Assistance Commission. Links mentioned during the episode:
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