Friends For Life Podcast
The Friends for Life Podcast dives deep into the topic of Developmental Disabilities, and also discusses topics such as hard work, motivation and entrepreneurship for those who are disabled.
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Empowering Lives: Insights from DSP Kelley Shepherd on Advocacy and Personal Growth
11/25/2024
Empowering Lives: Insights from DSP Kelley Shepherd on Advocacy and Personal Growth
In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé welcomes Kelley Shepherd, a dedicated Direct Support Professional (DSP) with over 15 years of experience. Kelley shares her perspective on what it means to truly support individuals with intellectual and developmental disabilities (IDD) in living their best lives. From advocating for dignity of risk to respecting personal choices and supporting meaningful growth, Kelley emphasizes the importance of seeing every individual’s unique potential. She shares inspiring stories of empowerment, such as helping individuals explore new experiences and advocating for person-centered care during healthcare visits. Kelley also highlights the often-invisible yet critical role of DSPs in ensuring individuals with IDD thrive, describing her work as "stepping into the shadows so those she supports can shine in the light." Her three key tips—embracing new experiences, recognizing everyone's gifts, and standing up for oneself—are valuable lessons for anyone involved in this field. Join us for this heartfelt conversation that sheds light on the profound impact of DSPs and celebrates the small but significant victories that make a difference in the lives of individuals with IDD.
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Ep 232: Empowering Inclusion: Nabil Shaheen on Advocacy and Community Impact
11/23/2024
Ep 232: Empowering Inclusion: Nabil Shaheen on Advocacy and Community Impact
In this episode of the Friends for Life Podcast, we sit down with Nabil Shaheen, Community Outreach and Communications Manager for the Lucas County Board of Developmental Disabilities. Nabil shares his journey from journalism and marketing into a role that blends his professional passions with meaningful advocacy work. He discusses the rewarding challenges of shaping the board’s messaging, celebrating the achievements of individuals served, and breaking down stereotypes about government agencies and people with disabilities. Nabil also highlights upcoming events, including the quarterly Family Forum and Story Social, while emphasizing the board's legacy of innovation and inclusion. With a commitment to person-centered planning and a focus on evolving communication strategies, Nabil’s work ensures that individuals with developmental disabilities have every opportunity to live life to the fullest. Tune in to hear how storytelling, advocacy, and collaboration drive meaningful change in the community.
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Deb Davis on Person-Centered Care and Advocacy for Individuals with IDD
11/18/2024
Deb Davis on Person-Centered Care and Advocacy for Individuals with IDD
In this heartfelt episode of IDD Health Matters, Dr. Craig Escude sits down with Deb Davis, a dedicated nurse and advocate for individuals with intellectual and developmental disabilities (IDD). Deb shares her inspiring journey into the field of IDD support, reflecting on how she found her calling and became a champion for person-centered care. Deb discusses the challenges of working in this field, including her early experiences, the importance of person-centered thinking, and how she overcame feelings of being unprepared to become an expert through relentless learning and certification with the Developmental Disabilities Nurses Association (DDNA). She also highlights the transformative power of listening and observing to truly understand and support individuals, particularly those who communicate in unique ways. Listeners will gain valuable insights into balancing what is important to a person versus what is important for a person, the significance of people-first language, and how small shifts in perspective can foster inclusion and dignity. Deb’s passion, humor, and wisdom make this episode a must-listen for anyone involved in supporting individuals with IDD. Tune in to hear why Deb believes this field attracts “the best people in the world” and how her commitment to this work continues to make a lasting impact—even in retirement.
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Ep 231: Supporting Caregivers of Individuals with IDD: Insights from Tony Stuart
11/16/2024
Ep 231: Supporting Caregivers of Individuals with IDD: Insights from Tony Stuart
In this heartfelt episode of the Friends for Life Podcast, Tony Sttuart speaks directly to parents and guardians of individuals with intellectual or developmental disabilities (IDD). Tony highlights the unique challenges caregivers face—balancing long work hours, providing Direct Care at home, and dealing with unreliable resources—all while striving to ensure the best for their loved ones. Tony shares how Friends for Life goes beyond serving individuals with IDD by also supporting their families, addressing caregiver burnout, and fostering meaningful connections within the community. From creating reliable teams of DSPs to promoting understanding and inclusion in society, Friends for Life is committed to improving the lives of individuals with IDD and their caregivers alike. This episode is a must-listen for anyone navigating the joys and struggles of caregiving. Tune in to hear Tony’s compassionate insights and learn how Friends for Life is making a difference for families and caregivers every day.
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Ep 230: Addressing the DSP Workforce Crisis: Rising Wages, High Turnover & Barriers in Disability Services
11/13/2024
Ep 230: Addressing the DSP Workforce Crisis: Rising Wages, High Turnover & Barriers in Disability Services
In this episode of the Friends for Life Podcast, we explore the challenges facing the direct support professional (DSP) workforce, despite recent increases in hourly wages. Although DSPs saw an average hourly wage of $15.79 nationwide in 2022—a historic first—the high turnover rate of over 40% continues to strain disability service providers, who are struggling to maintain adequate staff. Many providers report having to refuse new referrals or reduce services, highlighting the urgent need for sustainable workforce solutions. Temporary support from the 2021 American Rescue Plan provided essential funding to boost wages, but this relief is set to expire in 2025, raising concerns about long-term stability in the field. Barbara Merrill, CEO of ANCOR, and Armando Contreras, president of United Cerebral Palsy, emphasize the critical need for more consistent support to ensure DSPs receive competitive compensation and people with developmental disabilities can access essential services without prolonged delays. With over half a million individuals still on waiting lists for services, the conversation underscores how years of underinvestment in Medicaid have limited providers’ ability to address the workforce crisis fully, jeopardizing the right of people with disabilities to live independently in their communities.
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Julie Foster Hagan on Advancing Health Equity for Disabilities
11/11/2024
Julie Foster Hagan on Advancing Health Equity for Disabilities
In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé is joined by Julie Foster Hagan, Louisiana’s State Director of Developmental Disability Services. Recorded live from the NASDDDS conference, Dr. Escudé and Julie discuss the vital work being done to enhance health equity and employment opportunities for individuals with intellectual and developmental disabilities. Julie shares insights into Louisiana’s health equity initiatives, including a strategic focus on data collection and the role of Health Equity Action Teams within the state’s Department of Health. She highlights the impact of the American Rescue Plan Act, enabling projects focused on improving service accessibility and vocational programs. Julie also delves into the importance of integrating people with disabilities into the broader community, emphasizing dignity, respect, and person-centered support. She discusses Louisiana’s innovative programs, such as Operation House Call, which trains medical residents to better understand the unique experiences of individuals with disabilities. The episode wraps up with Julie’s three key insights on advancing support and advocacy in the field, including promoting community awareness, expanding employment opportunities, and honoring individual choice in all aspects of life. Tune in for an inspiring look at transformative initiatives that aim to foster a more inclusive and supportive community for all.
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Ep 229: Finding Purpose Through Direct Support: A DSP’s Journey of Care, Growth, and Music
11/09/2024
Ep 229: Finding Purpose Through Direct Support: A DSP’s Journey of Care, Growth, and Music
In this episode of the Friends for Life Podcast, our guest shares a heartfelt journey into the world of Direct Support, highlighting the deep connections he’s built with those he cares for and the personal growth he’s experienced. Since starting his career nearly two years ago, he’s not only found joy in supporting others but has also received support himself, especially in pursuing his dream of becoming a radiology technician. He explains how the job has equipped him with resources for schooling and even scholarships, emphasizing the power of community and opportunity in his workplace. Music plays a huge role in his life, both personally and professionally. As a hip-hop and rap artist who explores various genres, he discusses how music serves as a universal language that uplifts spirits and creates meaningful connections—especially for the people he supports. His love for music extends beyond entertainment; he believes music’s unique frequencies bring comfort and healing, especially in caregiving. Through his experience working with individuals with different needs, he’s learned invaluable skills, from patience and resilience to sign language and handling pressure. His advice to anyone entering this field? Approach each day with kindness, patience, and a smile, as even small gestures can profoundly impact those in need. Tune in to hear more about his journey, his music, and his inspiring perspective on making a difference. Follow his music on all streaming platforms under the name LurXSion to experience his creative energy firsthand.
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Ep 228: Rising Autism Diagnoses: Understanding the 175% Increase and Its Impact on Healthcare
11/07/2024
Ep 228: Rising Autism Diagnoses: Understanding the 175% Increase and Its Impact on Healthcare
In this episode of the Friends for Life Podcast, we dive into recent research that reveals a striking rise in autism diagnoses across the United States, up by 175% over the last decade. This increase spans all age groups, but some groups are experiencing even higher rates, especially young adults and minority children. The study, published in JAMA Network Open, shows autism prevalence has more than doubled since 2011, underscoring the need for better awareness and support systems. Lead researcher Luke Grosvenor suggests that while universal developmental screenings may account for part of this rise, the diversity in diagnosis rates across age, gender, and ethnicity points to a more complex picture. As the adult autism population continues to grow, the healthcare system faces the challenge of adapting to meet the unique needs of autistic adults, from employment support to mental health resources. In today’s conversation, we explore the implications of these findings and discuss the urgent need for inclusive healthcare solutions that offer lifelong support for autistic individuals. Join us as we take a closer look at the changing landscape of autism diagnoses and what it means for the future of care.
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Mary Brogan on Advancing Developmental Disability Services and Medicaid Waiver Programs in Hawaii
11/04/2024
Mary Brogan on Advancing Developmental Disability Services and Medicaid Waiver Programs in Hawaii
In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii. Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can vastly improve outcomes for individuals with IDD. They discuss the concept of “diagnostic overshadowing,” where medical professionals might attribute symptoms solely to a disability rather than exploring underlying health issues. By encouraging more training and awareness among health practitioners, Mary and Dr. Escudé advocate for a future where IDD patients receive the comprehensive care they deserve. The episode also highlights Mary’s work with the National Association of State Directors of Developmental Disabilities Services (NASDDDS). She explains how the organization provides invaluable federal-level advocacy, technical support, and guidance to help state agencies better serve their communities. Reflecting on the collaboration during the COVID-19 pandemic, Mary shares her belief in the power of partnerships and the importance of balancing dedication to work with personal well-being.
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Ep 227: How Political Ads Impact the IDD Community
11/02/2024
Ep 227: How Political Ads Impact the IDD Community
In this episode of the Friends for Life Podcast, Tony Stuart dives into the effects of political ads on the individuals within the IDD community. Drawing on his extensive experience as a Direct Support Professional (DSP), Tony reflects on how divisive messages in the media can impact those with intellectual and developmental disabilities, often causing confusion and frustration. He encourages a focus on humanity over politics, stressing the importance of helping individuals exercise their right to vote while maintaining a respectful, open-minded approach to differing beliefs. Tony shares insights from his time in local government, highlighting the slow pace of change and the dedication required to create meaningful impact in the community. He advocates for finding common ground, listening more, and supporting the people around us without letting political labels define our actions. Join Tony in this candid discussion about unity, empathy, and the real challenges of navigating the political landscape as both a DSP and an advocate for the IDD community. Listen in to explore how we can all be better humans, focusing on understanding and respect above all else.
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Ep 226: November SSI Payment Schedule Update: What Beneficiaries Need to Know About Double Payments and Cost-of-Living Increases
10/30/2024
Ep 226: November SSI Payment Schedule Update: What Beneficiaries Need to Know About Double Payments and Cost-of-Living Increases
In this episode of the Friends for Life Podcast, we dive into a timely update for Supplemental Security Income (SSI) recipients who will notice a unique payment schedule in the coming months. With a few quirks in the calendar, SSI beneficiaries will receive two payments in November as December's payment will arrive early due to the first of the month falling on a weekend. This adjustment means no payment will be issued at the start of December, though recipients can still plan on a New Year’s Eve payment for January and other similar shifts in the early part of 2025. Alongside these adjustments, a 2.5% cost-of-living increase will take effect, offering some additional support as inflation rises. We’ll break down what this means for SSI recipients and discuss how the Social Security Administration’s payment schedule ensures that recipients receive their benefits on time. For those unfamiliar with the differences between SSI and Social Security benefits, we’ll also shed light on the basics. SSI serves as a need-based benefit for older adults, people with disabilities, and those who are blind, regardless of work history, while Social Security benefits are earnings-based. Join us as we simplify these financial shifts and help recipients understand what to expect over the next few months.
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Elevating Direct Support: John Raffaele on Professional Development for DSPs
10/28/2024
Elevating Direct Support: John Raffaele on Professional Development for DSPs
In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé is joined by John Raffaele, Director of Educational Services at the National Alliance for Direct Support Professionals (NADSP), for a candid conversation about the evolving role of direct support professionals (DSPs) and their impact on the lives of people with intellectual and developmental disabilities (IDD). Recorded live from the NADSP Annual Conference in Pittsburgh, this episode dives deep into the unique challenges and responsibilities DSPs face and how the industry is working toward elevating their role from entry-level caretakers to respected professionals. John sheds light on NADSP’s mission to redefine DSP training as meaningful development, focusing on professional growth rather than just compliance-based instruction. John also discusses the critical need for a standardized credentialing and certification system for DSPs—something he likens to a medical residency, providing DSPs with hands-on, guided experience rather than simply checking off boxes for required trainings. He emphasizes that DSPs are often left underprepared by traditional entry-level training models, which typically focus on emergency response rather than the nuanced daily support most individuals with IDD require. With over 1.5 million DSPs in the United States, the push for a more formalized development structure and recognition as a legitimate profession is a priority for NADSP, which actively works on advocacy and policy initiatives to achieve this goal.
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Ep 225: Empowering Lives Through Compassionate Home Care: A Mother’s Journey with Friends for Life
10/26/2024
Ep 225: Empowering Lives Through Compassionate Home Care: A Mother’s Journey with Friends for Life
In this heartfelt episode of the Friends for Life Podcast, we meet a dedicated nursing supervisor who found her calling in home care after a life-changing shift during the pandemic. Transitioning from long-term care in 2020, she discovered a deep passion for home health services, where she quickly rose to a supervisory role. In this position, she provides critical oversight, ensuring patients' medications are managed, doctor’s orders are processed, and care remains seamless. Through her journey, she has found profound fulfillment in advocating for individuals who might otherwise lack a voice, striving to create a supportive, person-centered approach to healthcare. As the episode unfolds, our guest shares the personal connection she has to Friends for Life. Her son, a young man with severe autism, receives 24/7 support from the organization, which has become a lifeline for her family. She describes the immense relief of knowing that Friends for Life not only cares for her son but actively works to support his development, providing the structure and encouragement he needs. Through the organization’s resources and compassionate staff, she has witnessed her son achieve milestones she never imagined possible, bringing an immeasurable sense of hope and security to her family. Listeners will be moved by her stories of the engaging programs at Friends for Life, where individuals enjoy a variety of enriching activities—from outings to apple orchards and pumpkin patches to cooking classes and team-building exercises. These experiences provide clients with valuable life lessons and avenues for social connection. For families like hers, Friends for Life offers more than just care; it creates an environment where individuals can thrive, build friendships, and experience the joy of community. This episode is a testament to the power of compassionate care and the positive, lasting impact it can have on families and individuals alike.
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Ep 224: Unlocking the Political Power of Disability Voters: How 40 Million Could Shape the 2024 Election
10/23/2024
Ep 224: Unlocking the Political Power of Disability Voters: How 40 Million Could Shape the 2024 Election
In this episode of the Friends for Life Podcast, Tony Stuart dives into the untapped political power of the disability community, exploring how an estimated 40.2 million eligible voters with disabilities could influence the upcoming presidential election. This episode highlights eye-opening statistics from Rutgers University and examines the growing influence of this often-overlooked electorate, which accounts for a third of all eligible voters when including households with people who have disabilities. Despite their significant numbers, presidential candidates have yet to prioritize issues crucial to this community, raising concerns among disability advocates. Tony Stuart discusses the frustrations of advocates who have received little to no response from the campaigns of former President Donald Trump and Vice President Kamala Harris regarding vital issues like subminimum wage, Supplemental Security Income, and the inclusion of people with disabilities in policymaking. While Harris has proposed expanding Medicare for in-home care, advocates stress the need for both candidates to address the direct support workforce crisis and improve community-based services for people with developmental disabilities. As Election Day approaches, Tony also highlights efforts by organizations like The Arc to ensure that people with disabilities can exercise their right to vote. From hosting voter registration events to providing plain-language resources and taking legal action against voter suppression, advocates are working hard to mobilize the disability vote. Tune in to learn more about the pivotal role this community could play in shaping the future of American politics.
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Valerie Bradley on Deinstitutionalization, IDD Community Integration, and Workforce Solutions
10/21/2024
Valerie Bradley on Deinstitutionalization, IDD Community Integration, and Workforce Solutions
In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé welcomes Valerie Bradley, a pioneer in the intellectual and developmental disabilities (IDD) field. Valerie is the president and co-founder of the Human Services Research Institute (HSRI), an organization dedicated to advancing policies and practices in human services. With over four decades of experience, Valerie has been at the forefront of deinstitutionalization efforts, working to move individuals with IDD from large institutions into more community-based, supportive environments. Her expertise and passion for improving the quality of life for individuals with disabilities have earned her a significant reputation in the field. During the conversation, Valerie reflects on the successes and ongoing challenges of deinstitutionalization, particularly the transition from large institutional settings to smaller community homes. While progress has been made in creating residential and employment supports, Valerie notes the initial missteps of replicating institutional models in smaller settings and the importance of fostering truly integrated community living. She also highlights the impact of the Centers for Medicare and Medicaid Services (CMS) Settings Rule, a landmark policy change that has advanced the rights of individuals with IDD to live more independent and self-directed lives. The discussion delves into broader systemic issues, including the workforce crisis in the caregiving profession and the need for enhanced training and support for Direct Support Professionals (DSPs). Valerie emphasizes the value of self-direction for individuals with IDD, enabling them to take control of their own care and use personalized budgets to hire staff. Her insights provide a long view of the field, tracing its evolution and underscoring the need for continued progress to ensure equitable healthcare and meaningful community inclusion for people with IDD.
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Ep 223: Jasmine Wingate on Growth, Passion, and Why Friends for Life Stands Out in DSP Work
10/19/2024
Ep 223: Jasmine Wingate on Growth, Passion, and Why Friends for Life Stands Out in DSP Work
In this episode of the Friends for Life Podcast, we sit down with Jasmine Wingate, who shares her incredible journey with the organization. Starting as a Direct Support Professional (DSP), Jasmine reflects on how her path evolved through the encouragement and support of the Friends for Life team. She talks about the growth she's experienced, both personally and professionally, and the genuine connections she's formed with the individuals she serves. Jasmine also highlights the unique culture at Friends for Life, where support and opportunities are abundant, allowing staff to thrive. She discusses the importance of passion in this field, the challenges that come with balancing family and work, and her vision for expanding resources like child care for passionate caregivers. Tune in to hear Jasmine's inspiring story of dedication, advocacy, and why Friends for Life stands apart from other organizations in the industry.
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Ep 222: 2025 SSI and Social Security Increases: What Beneficiaries Need to Know
10/16/2024
Ep 222: 2025 SSI and Social Security Increases: What Beneficiaries Need to Know
In this episode of the Friends for Life Podcast, we dive into the recent announcement from the Social Security Administration about a 2.5% increase in Social Security and Supplemental Security Income (SSI) benefits for 2025. This cost-of-living adjustment (COLA) is tied to inflation and will provide a much-needed financial boost to millions of Americans, including many individuals with disabilities. We discuss how the new maximum federal SSI benefits will rise to $967 per month for individuals and $1,450 for couples, with some states contributing additional funds. Listeners will also learn about the simplified notifications beneficiaries will receive, providing clear details on their updated payments. Join us as we explore how this adjustment will impact the 7.5 million Americans relying on SSI payments, many of whom are part of the disability community. We'll take a closer look at the significant increases in COLA over the past few years and how these adjustments help people keep up with rising living costs. This episode provides an essential update for anyone receiving benefits or supporting someone who does, with critical information on what to expect in the coming months.
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Improving IDD Healthcare: Valerie Chadwick on Advocacy, Inclusive Training, and Future Goals
10/14/2024
Improving IDD Healthcare: Valerie Chadwick on Advocacy, Inclusive Training, and Future Goals
In this episode of IDD Health Matters, host Dr. Craig Escudé is joined by Valerie Chadwick, the Health Advocacy Director at The Arc of Philadelphia. Valerie shares her journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD), highlighting her initial hesitance and eventual drive to become more engaged with this underserved population. Valerie talks about her role at The Arc, where she oversees a program that helps medical and health students interact with individuals with disabilities, fostering understanding and competence in providing inclusive care. Together, they discuss the importance of training healthcare professionals to meet the needs of people with IDD and the groundbreaking partnerships Valerie is building with medical and dental schools in Philadelphia. This episode is filled with powerful insights on the necessity of presuming competence, seeing individuals with disabilities in their full humanity, and making meaningful differences within your sphere of influence. Valerie also opens up about her personal dream of pursuing medical school and continuing her advocacy for people with disabilities throughout her career. Tune in to hear Valerie’s inspiring story and learn more about how healthcare can evolve to be more inclusive for people with disabilities.
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Ep 221: Unlocking Success in DSP Leadership: Tony Stuart on Growth, Passion, and Expanding Adult Day Services
10/12/2024
Ep 221: Unlocking Success in DSP Leadership: Tony Stuart on Growth, Passion, and Expanding Adult Day Services
In this episode, Tony Stuart and the Friends for Life team are back to touch base on the latest developments. Tony shares his personal journey of growth, both as a leader and as a business owner. He dives deep into the challenges of balancing non-stop movement with results-driven success, emphasizing the importance of dedication and passion in the Direct Support field. The conversation explores the exciting progress of their Adult Day Services (ADS), their expanding team, and how music therapy with Mike Hayes is bringing joy to individuals' lives. Tony also reflects on the evolution of Friends for Life, from humble beginnings to a growing organization with a thriving new office and an unwavering commitment to helping individuals reach their goals. Whether you’re an entrepreneur or in the DSP field, Tony’s insights on building strong teams, embracing specialization, and overcoming setbacks will inspire you to keep pushing forward. Tune in to hear how Friends for Life is making an impact, and why Tony believes that hard work, passion, and staying true to your values are the keys to long-term success. Don’t miss this engaging episode filled with practical advice and powerful reflections on the journey of running a mission-driven business.
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Ep 220: How Direct Support Professionals (DSPs) Empower Individuals with IDD: Building Independence and Inclusion
10/09/2024
Ep 220: How Direct Support Professionals (DSPs) Empower Individuals with IDD: Building Independence and Inclusion
In this episode of the Friends for Life Podcast, Tony Stuart dives deep into the crucial role Direct Support Professionals (DSPs) play in enhancing the lives of individuals with intellectual and developmental disabilities (IDD). DSPs are at the heart of empowering individuals with IDD by helping them build skills for greater independence. From learning personal care routines to managing daily tasks, DSPs work side by side with individuals, fostering self-confidence and encouraging them to take charge of their own lives. The conversation also highlights the importance of social inclusion and community engagement. Tony explores how DSPs serve as advocates, ensuring individuals with IDD are included in everyday social activities. Whether it’s participating in events or simply accessing community resources, DSPs help break down barriers that can isolate people with disabilities, fostering a sense of belonging and improving emotional well-being. Tune in to hear more about the emotional and behavioral support that DSPs provide and the positive impact they have on both individuals and families. Tony Stuart shares real-life examples of how DSPs collaborate with families, healthcare providers, and other professionals to create a well-rounded, supportive environment, ensuring individuals with IDD can live fulfilling and dignified lives.
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Dr. Kelly Nye-Lengerman on Disability Inclusion & Health Equity
10/07/2024
Dr. Kelly Nye-Lengerman on Disability Inclusion & Health Equity
Join Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with disabilities. Dr. Nye-Lengerman shares the challenges and strategies involved in enhancing health equity through her involvement with the START National Training Institute, which aims to advance practices that support individuals and families in the most inclusive and equitable ways possible. This conference, enriched by contributions from people with lived experiences and community partners, showcases the significant progress being made in the field. The conversation also touches on the common misinterpretations of behavioral symptoms as mental health issues, highlighting the necessity of recognizing underlying medical conditions which can be treated to prevent unnecessary suffering. The episode concludes with a powerful discussion on the role of direct support professionals and the critical need for proper training and recognition of this workforce to achieve real inclusion and participation for people with intellectual and developmental disabilities. Dr. Nye-Lengerman's passionate advocacy for equitable health care and her belief in the transformative power of inclusive higher education shine through, offering valuable insights and inspiring listeners to consider the deep impact of educational and support systems in enhancing the lives of people with disabilities.
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Ep 219: Overcoming Age Barriers in IDD Care: Join as a DSP!
10/05/2024
Ep 219: Overcoming Age Barriers in IDD Care: Join as a DSP!
In this engaging episode of the Friends for Life Podcast, Tony Stuart addresses a compelling question: Are you too old to be a Direct Support Professional (DSP)? Tony dismantles the common misconception that age disqualifies individuals from contributing effectively in the disability support field, especially within intellectual and developmental disability (IDD) communities. He passionately argues that older adults can bring invaluable experience and a rich array of skills to roles that don't necessarily demand physical labor, such as in Adult Day Services or programs emphasizing arts and culinary skills. Tony encourages listeners to rethink their capabilities and consider how their unique experiences and passions can make a significant impact in the lives of those with IDD. As the discussion unfolds, Tony highlights the increasing demand for support within the IDD community, noting rising autism and intellectual delay diagnoses. He emphasizes the importance of recognizing and utilizing one's skills to aid in fostering independence among individuals with IDD. Tony issues a challenge to listeners, urging those between the ages of 25 to 55 to engage more actively with their communities by volunteering a few days as a DSP. This involvement, he suggests, could range from hands-on assistance to strategic roles in hiring and training within local agencies, highlighting the diverse ways one can contribute. Wrapping up the episode, Tony extends a warm invitation to join the Friends for Life community, reinforcing that no one is ever too old to make a difference. He reminds listeners that Friends for Life Residential Care is actively hiring and always open to new members who are passionate about enhancing the quality of life for individuals with developmental disabilities. Whether you're looking to make a big or small impact, Tony encourages taking that step towards becoming part of a community that values every individual's contribution, proving that your ability is indeed stronger than any disability. Join Tony next time for more insightful discussions on the Friends for Life Podcast.
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Ep 218: Overcoming Modern Challenges in the IDD Field: Addressing Staffing Shortages, Training Gaps, and Healthcare Disparities
10/02/2024
Ep 218: Overcoming Modern Challenges in the IDD Field: Addressing Staffing Shortages, Training Gaps, and Healthcare Disparities
In this episode of the Friends for Life Podcast, Tony Stuart dives into the modern challenges faced by professionals working in the field of intellectual and developmental disabilities (IDDs). One of the biggest hurdles is the severe shortage of qualified personnel, particularly direct support professionals (DSPs), who provide essential care and support. The conversation sheds light on how high turnover rates, low wages, and burnout are affecting the quality of care and limiting access to vital services for individuals with IDDs. Tony also highlights the gaps in training that leave many DSPs underprepared to meet the complex needs of those with IDDs. From medical care to behavioral support, there is a growing need for specialized training that is often inaccessible due to funding and geographic limitations. The episode also tackles the healthcare disparities individuals with IDDs face, and how miscommunication and a lack of specialized services can lead to ineffective or even harmful care. Finally, the discussion explores the impact of societal stigma and the ongoing challenges of integrating individuals with IDDs into communities, education, and employment. Tony emphasizes the need for continued advocacy, better funding, and increased awareness to ensure that those with IDDs are given the opportunities and dignity they deserve. Tune in to learn more about the systemic issues facing the IDD field and how professionals are working to overcome these barriers.
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Improving Healthcare for People with IDD: Dr. Michele Cantanzerite on Integrated Care Solutions
09/30/2024
Improving Healthcare for People with IDD: Dr. Michele Cantanzerite on Integrated Care Solutions
In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michele Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michele’s journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care. Michele highlights the unique mission of Achievable Health, emphasizing its integrated care approach, including medical services, behavioral health, and therapy. The clinic, although small, is growing rapidly and has recently received a significant grant from the Mackenzie Scott Foundation to expand its services. Michele and Dr. Escudé discuss the importance of creating an accessible, welcoming environment for people with IDD, as well as the collaborative work with California's regional centers to ensure comprehensive care and support for patients with disabilities. Throughout their conversation, Michele and Dr. Escudé explore key issues in healthcare for people with IDD, including the systemic discrimination patients often face and the lack of proper training among healthcare providers. They also delve into the broader need for healthcare professionals to approach care with humility and a willingness to learn, ensuring that individuals with IDD receive the compassionate, competent care they deserve. This insightful episode sheds light on the ongoing efforts to improve healthcare equity for people with IDD.
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Ep 217: Top Tips for Choosing the Right Care Provider: Agency vs. Independent
09/28/2024
Ep 217: Top Tips for Choosing the Right Care Provider: Agency vs. Independent
In this episode, Tony Stuart dives deep into the process of finding the right agency or independent provider for individuals and families navigating care decisions. Drawing from his extensive experience and charismatic personality, Tony offers valuable insights on what to look for when choosing a provider. From meeting the staff to understanding their experience, pay rates, and benefits, he emphasizes the importance of asking the right questions. Tony highlights that the initial meeting should be followed by a second interview to get a fuller picture of the team that will be supporting you or your loved one. Tony also discusses the often-overlooked differences between agency providers and independent providers, helping listeners assess which option might suit their needs. He encourages listeners to ask about staffing levels, healthcare benefits, and longevity within the organization to get a clear sense of what to expect. His personal experience in the field, along with his passion for personalized care, offers a unique perspective on how to build trust and connection with those who will be working in your home during vulnerable moments. The episode wraps up with a reflection on the origins of Friends for Life, a company Tony founded with his Uncle Larry in mind. Tony shares how his personal experiences inspired him to create an organization that emphasizes friendship and family in care settings. He encourages listeners to reach out with questions or concerns, offering his advice and guidance for those navigating the complex process of choosing a provider. Whether you're searching for care or are a provider looking to connect, this episode is packed with practical tips and thoughtful advice.
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Ep 216: Improving Healthcare for Adults with Intellectual and Developmental Disabilities: Insights and Strategies
09/25/2024
Ep 216: Improving Healthcare for Adults with Intellectual and Developmental Disabilities: Insights and Strategies
Welcome to this enlightening episode of the Friends for Life Podcast, where we delve into the intricate world of healthcare for adults with intellectual and developmental disabilities (IDDs). In this episode, we explore the severe, chronic nature of IDDs, which can manifest before the age of 22 and impact individuals throughout their lives. Our discussion highlights the types of IDDs, such as cerebral palsy, epilepsy, Down syndrome, and fetal alcohol syndrome, emphasizing the importance of early diagnosis and adaptive behavior in managing these conditions effectively. The conversation shifts to the significant health disparities that adults with IDDs face, including challenges in accessing care, the quality of healthcare provided, and the financial constraints due to reliance on public funding. We address how these factors contribute to poorer health outcomes and discuss systemic changes needed to improve healthcare delivery for this vulnerable population. Our experts discuss the role of family medicine in bridging these gaps through community-focused initiatives and direct care services in group homes. Rounding off the episode, we focus on the urgent need for enhanced medical education and training in handling IDDs. The gap in healthcare providers’ readiness to treat individuals with IDDs calls for a restructured approach in medical education and residency programs. Join us as we advocate for a multifaceted strategy to healthcare that not only improves outcomes for adults with IDDs but also creates a more inclusive and effective healthcare system for all. Tune in to gain a deeper understanding and learn how we can all contribute to a better healthcare environment.
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Innovative Healthcare for Individuals with IDD: Dr. Toni Benton on Collaborative Care
09/23/2024
Innovative Healthcare for Individuals with IDD: Dr. Toni Benton on Collaborative Care
In this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years. Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic addresses complex medical, behavioral, and psychosocial challenges, working closely with families and care teams to find effective solutions. Through thoughtful case studies and examples, Dr. Benton emphasizes the importance of collaborative, interdisciplinary healthcare, highlighting how their evaluations have transformed lives. Listeners will also hear about the clinic’s capacity-building efforts, where Dr. Benton’s team teaches and supports local clinicians to ensure long-term care improvements. Dr. Benton offers practical tips for professionals working with individuals who cannot communicate verbally, stressing the importance of listening with more than just ears and recognizing subtle signs during physical exams. Tune in for a deep dive into this unique model of care and discover how collaboration and dedication can enhance health outcomes for people with IDD.
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Ep 215: Top Reasons DSPs Quit and How to Turn Challenges into Career Growth Opportunities
09/21/2024
Ep 215: Top Reasons DSPs Quit and How to Turn Challenges into Career Growth Opportunities
In this episode of the Friends for Life Podcast, Tony Stuart delves into a significant issue faced by Direct Support Professionals (DSPs): resignations. Tony addresses the common tendency for DSPs and even those in executive and administrative positions to leave a job when faced with challenges. While understanding that some positions may not be the right fit, he encourages individuals to ask themselves important questions before making the decision to resign. Are they leaving a situation that is truly unchangeable, or are they missing an opportunity to be the positive change within their environment? Tony stresses that taking the time to evaluate their role, skills, and impact can lead to professional growth and even potential promotions. Tony emphasizes the importance of giving time to adjust, especially for those newer to the field. He shares that discomfort is part of every career journey and that success often comes from pushing through difficult moments. For those working in the DSP field, especially in environments that are unpredictable or stressful, he advises sticking it out for a while longer, honing skills, and improving their surroundings. He also acknowledges that some disabilities can be hard to adjust to, but emphasizes the importance of taking time to learn and grow within the field rather than leaving prematurely. Furthermore, Tony offers practical advice for those contemplating resignation, encouraging them to communicate with their administrators and seek solutions to improve their situation before making a final decision. He highlights the importance of leaving a job respectfully, providing adequate notice, and ensuring that clients are not negatively impacted by the departure. Whether it’s due to personal or professional reasons, Tony’s message is clear: plan ahead, communicate effectively, and always aim to make a positive difference.
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Ep 214: Embracing Neurodiversity: Leading Companies and Innovative Workforce Strategies
09/18/2024
Ep 214: Embracing Neurodiversity: Leading Companies and Innovative Workforce Strategies
In this enlightening episode of the Friends for Life Podcast, we delve into the transformative concept of neurodiversity in the workplace. Discover how leading companies like Microsoft and SAP are not just accommodating but actively seeking out neurodiverse individuals to enhance their workforce. Through initiatives like Microsoft's "Neurodiversity Hiring Program" and SAP's "Autism at Work," these pioneers are setting a precedent for the entire corporate world, showcasing the untapped potential and unique abilities that neurodiverse employees bring to the table. We explore the myriad benefits that a neurodiverse workforce offers to companies. From boosting innovation and creativity to reflecting a broader range of customer needs, the inclusion of individuals with neurological differences such as autism and ADHD is proving to be a strategic advantage. Listen in as we discuss real-world case studies and firsthand accounts from companies that have witnessed significant improvements in problem-solving capabilities and operational effectiveness through their diverse teams. Join us as we discuss the future of workplace inclusion and the ongoing efforts to embrace neurodiversity. This episode not only highlights the challenges faced in integrating neurodiverse individuals into mainstream roles but also provides insights into the solutions companies are implementing, like tailored onboarding programs and flexible work policies. Tune in to understand how these pioneering initiatives are not only changing lives but are also reshaping the future of employment in our increasingly diverse society.
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Transforming IDD Care: Ann Hardiman on Deinstitutionalization, Healthcare & Leadership Challenges
09/16/2024
Transforming IDD Care: Ann Hardiman on Deinstitutionalization, Healthcare & Leadership Challenges
In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the realm of healthcare access and social inclusion. The conversation delves into the critical need for improved healthcare services for people with IDD, with Ann highlighting the disparities in medical care that individuals face in both institutional and community settings. She discusses issues like inadequate dental care, polypharmacy, and the lack of training among healthcare providers to address the unique needs of this population. Ann and Dr. Escudé explore how these challenges can be overcome through better training for clinicians and more person-centered approaches to healthcare, ensuring that people with IDD receive the care they deserve. Ann also shares exciting initiatives underway at the New York Alliance, including a new executive leadership development program aimed at building future leaders in the field of disability services. She emphasizes the importance of fostering a strong, value-driven network of professionals who are committed to inclusion, diversity, and innovation. Throughout the episode, Ann underscores the power of relationships and advocacy, encouraging listeners to share their stories and continue pushing for greater acceptance and equity for people with disabilities.
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