Friends For Life Podcast
The Friends for Life Podcast dives deep into the topic of Developmental Disabilities, and also discusses topics such as hard work, motivation and entrepreneurship for those who are disabled.
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Nursing, Advocacy & Heart: Patty Haberkorn & Deanna Cox on 35+ Years in DD Care
05/05/2025
Nursing, Advocacy & Heart: Patty Haberkorn & Deanna Cox on 35+ Years in DD Care
On this episode of IDD Health Matters, Dr. Craig Escudé sits down with two remarkable nurses—Patty Haberkorn and Deanna Cox—at the Illinois Developmental Disabilities Nurses Conference. With a combined four decades of experience supporting people with intellectual and developmental disabilities (IDD), Patty and Deanna share powerful insights into nursing, advocacy, communication, and the often-overlooked emotional rewards of this career path. Patty, who began her journey as a nurse and now serves as Executive Director at Futures Unlimited, and Deanna, a dedicated nurse who found her calling in DD care after working in long-term care, both reflect on how they "fell into the field" and stayed out of passion. They open up about the gaps in nursing education regarding IDD, the importance of understanding non-verbal communication, and the critical role of baseline behavior in diagnosing health issues. This episode covers: The value of advocacy from nurses and direct support professionals Real-world challenges in educating physicians and gaining respect for individuals with IDD Why knowing a person's baseline behavior is crucial for accurate medical care The emotional connection between care staff and the individuals they support Staffing and funding challenges in the IDD sector—and why passion still keeps them going Whether you're a nurse, DSP, administrator, or someone curious about working in disability services, this conversation offers heartfelt stories and essential wisdom about the importance—and joy—of working in this field. 🔗 Learn more about IDD Health Matters and explore career opportunities: Friends for Life Residential Care – IntellectAbility –
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Ep 255: Are You Lacking Emotional Intelligence as a DSP?
05/03/2025
Ep 255: Are You Lacking Emotional Intelligence as a DSP?
In this episode of the Friends for Life Podcast, Tony Stuart—CEO of Friends for Life and a veteran Direct Support Professional with over 20 years of experience—explores a critical but often overlooked skill in the field: emotional intelligence. Tony shares personal stories and practical insights on how DSPs can better connect with the individuals they support by being more self-aware, empathetic, and emotionally responsive. From learning to truly listen without reacting, to knowing when to be vulnerable, Tony offers a raw and honest look at what it means to support someone beyond just the task list. Whether you're a new DSP or have been in the field for years, this conversation is a must-listen for anyone looking to deepen their impact and build more meaningful relationships in disability services. Topics Covered: Signs of lacking emotional intelligence as a DSP How emotional reactions can damage trust The importance of asking “How are you?”—and meaning it Balancing vulnerability and professionalism Why timing is everything in emotional communication 🔗 Resources mentioned: 🎧 Tune in, reflect, and join the conversation on how emotional intelligence can transform the lives of those we support—and our own.
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Ludwig van Beethoven: A Symphony of Resilience
04/30/2025
Ludwig van Beethoven: A Symphony of Resilience
Ludwig van Beethoven's legacy goes far beyond his music—it's a powerful testament to the strength of the human spirit. Though he began to lose his hearing in his late 20s, Beethoven refused to let disability define him. Instead, he found new ways to compose, using vibration, intuition, and innovation to craft some of the most iconic works in classical music history. In this inspiring video, we explore how Beethoven overcame his profound hearing loss to create masterpieces like the Ninth Symphony, whose Ode to Joy remains a global symbol of hope and unity. Beethoven’s life proves that genius and creativity are not limited by physical ability. His story continues to inspire millions, showing us that true greatness lies in perseverance, passion, and the refusal to be silenced.
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Tony Thomas on Building a Career in Disability Services
04/28/2025
Tony Thomas on Building a Career in Disability Services
In this inspiring episode of IDD Health Matters with Dr. Craig Escudé, we welcome Tony Thomas, Executive Director of Welcome House in Cleveland, Ohio. With over 24 years of leadership experience, Tony shares his remarkable journey into the field of intellectual and developmental disabilities (IDD) — from a life-changing family discovery to a lifelong career dedicated to empowering individuals and advancing health equity. Tony discusses how frontline Direct Support Professionals (DSPs) are the heart of the disability services field, his innovative initiatives to improve healthcare access for people with IDD, and how Welcome House is creating clear career pathways for DSPs, including specialized medical support roles. He also talks about the urgent need to address workforce shortages and improve wages for caregivers. If you’re passionate about making a difference, building a meaningful career, or learning how true inclusion transforms lives, this episode is packed with wisdom, hope, and practical ideas for the future of IDD services. 🎙 Topics Covered: Tony's personal journey into disability services The importance of DSP career growth and training Innovative healthcare solutions for people with disabilities Advocacy for higher wages and better workforce support Why working in this field is both rewarding and life-changing 🔔 Subscribe for more conversations on health, wellness, and equity for people with intellectual and developmental disabilities! #IDDHealthMatters #DisabilityAdvocacy #DirectSupportProfessionals #DevelopmentalDisabilities #HealthEquity #DSPCareers #Inclusion #WelcomeHouse #HealthcareAccess
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Ep 254: Avoiding Burnout in Direct Support: A Hard-Learned Lesson
04/26/2025
Ep 254: Avoiding Burnout in Direct Support: A Hard-Learned Lesson
Are you feeling burnt out as a Direct Support Professional (DSP) or caregiver? You're not alone. In this episode of the Friends for Life Podcast, Tony Stuart — with over 20 years of experience in the field — opens up about the tough reality of burnout. From working endless hours, juggling personal responsibilities, and striving to serve others, Tony shares how even the most passionate advocates can hit their limits. He discusses his recent health wake-up call, the hidden factors that contribute to burnout, and why self-awareness is crucial for long-term success in the caregiving profession. If you've ever wondered why burnout seems inevitable — and how to recognize and prevent it — this candid conversation offers personal insight, hard-earned lessons, and encouragement to prioritize your well-being while continuing to support others. Tune in and take a moment for yourself — because taking care of others starts with taking care of you. 🔗 Learn more about Friends for Life at
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Frida Kahlo: Turning Pain Into Power | The Disability & Art Legacy of an Icon
04/23/2025
Frida Kahlo: Turning Pain Into Power | The Disability & Art Legacy of an Icon
Frida Kahlo, the legendary Mexican painter, is celebrated not only for her vivid and emotionally raw self-portraits but also as a timeless icon of disability pride and resilience. From childhood polio to a catastrophic bus accident at 18, Kahlo endured lifelong physical pain and countless surgeries—yet she transformed that suffering into some of the most powerful artwork of the 20th century. In this episode, we explore how Frida used her chronic pain and disability as fuel for creativity, boldly redefining what beauty, identity, and strength look like. Her unapologetic self-expression and refusal to conform to societal expectations continue to inspire people around the globe—especially those living with disabilities. Join us as we celebrate the life, art, and lasting impact of Frida Kahlo—an artist whose legacy proves that pain does not limit power, and disability does not diminish vision. 🔔 Don’t forget to like, comment, and subscribe for more stories that challenge perspectives and celebrate resilience. #FridaKahlo #DisabilityAwareness #ArtHistory #DisabilityRepresentation #WomenInArt #ChronicPainWarrior #MexicanArt #FridaKahloLegacy #InspiringStories #DisabilityPride #FeministIcon #SelfPortraitArt
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Breaking Healthcare Barriers: Dr. Alice Bacherini on Physician Bias and Disability Inclusion
04/21/2025
Breaking Healthcare Barriers: Dr. Alice Bacherini on Physician Bias and Disability Inclusion
In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Dr. Alice Bacherini, a postdoctoral research fellow at the University of Perugia in Italy, to explore how psychological research is helping dismantle biases in healthcare for people with intellectual and developmental disabilities (IDD). Dr. Bacherini discusses her groundbreaking work developing tools to measure erroneous assumptions and self-efficacy among physicians when treating individuals with IDD. Together, they dive into how clinician attitudes impact health equity, the role of social dominance orientation in perpetuating stereotypes, and why direct interaction and inclusive communication are essential to better care outcomes. Tune in to hear why IDD-specific training—especially hands-on experiences—can shift perspectives and improve quality of care. Dr. Bacherini also shares where to find her published scale, the Beliefs About Adults with ID (BAAID), and her three key pieces of advice for creating a more inclusive healthcare system. Learn more at: Career opportunities with Friends for Life: 🎧 IDD Health Matters is a joint production of Friends for Life and IntellectAbility.
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Ep 253: Are You Really Helping? Rethinking Accountability and Teamwork in DD Support
04/19/2025
Ep 253: Are You Really Helping? Rethinking Accountability and Teamwork in DD Support
In this thought-provoking episode of the Friends for Life Podcast, host Tony Stuart—CEO of Friends for Life and a DSP with over 20 years of experience—dives into the complex realities of supporting individuals with developmental disabilities (DD). Are we truly helping the people we serve, or are we sometimes just putting a band-aid on deeper issues? Tony explores the contradictions in the field, particularly when it comes to accountability, behavioral challenges, and the importance of consistent consequences. Drawing from real-world experience, including time spent navigating court systems and difficult behavioral interventions, Tony challenges the one-size-fits-all mindset and calls for a more nuanced, team-based approach. Whether you're a DSP, administrator, or family member, this episode offers valuable insight into creating sustainable, individualized support through collaboration and honest communication. Brought to you in part by IntellectAbility, Assured Health Services, Reliable Drug & Alcohol Testing, and THS Remote Supports.
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Stephen Hawking: Defying ALS, Unlocking the Universe, and Inspiring Millions
04/16/2025
Stephen Hawking: Defying ALS, Unlocking the Universe, and Inspiring Millions
In this inspiring episode, we explore the extraordinary life and legacy of Stephen Hawking—a brilliant physicist whose mind reshaped our understanding of the universe, even as his body battled the devastating effects of ALS. Diagnosed at just 21 and given only a few years to live, Hawking defied the odds for decades, contributing groundbreaking work to cosmology, black hole theory, and the nature of time. Through his best-selling book A Brief History of Time and countless lectures powered by a computerized voice system, Hawking proved that physical limitations cannot contain the power of human thought. His journey is more than a scientific triumph—it’s a symbol of resilience, determination, and the unbreakable human spirit. Whether you're interested in science, disability advocacy, or simply need a reminder of what’s possible in the face of adversity, this episode is a must-watch. 🔭 Topics Covered: Hawking’s battle with ALS His contributions to black hole and time theory The global impact of A Brief History of Time How he inspired people with disabilities worldwide 🧠 "However difficult life may seem, there is always something you can do and succeed at." – Stephen Hawking #StephenHawking #ALS #Physics #DisabilityAwareness #BriefHistoryOfTime #BlackHoles #ScienceIcons #Inspiration #Cosmology #MindOverMatter
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Breaking Barriers in Disability Rights & Health Equity with Alison Barkoff
04/14/2025
Breaking Barriers in Disability Rights & Health Equity with Alison Barkoff
In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with longtime civil rights attorney, disability advocate, and former Acting Administrator of the Administration for Community Living, Alison Barkoff. Now serving as the Hirsch Health Law and Policy Professor at George Washington University’s Milken Institute School of Public Health, Alison shares her personal journey rooted in her experiences as a sibling of a person with an intellectual disability—and how that shaped her life’s mission to advance health equity, civil rights, and inclusion for people with intellectual and developmental disabilities (IDD). Together, they explore: The historic update to Section 504 of the Rehabilitation Act—modernizing anti-discrimination protections in healthcare for the first time in nearly 50 years. The hard truths about ableism, medical bias, and discriminatory crisis standards of care exposed during the COVID-19 pandemic. The urgent need to incorporate clinical care curricula into medical and health professional training to eliminate health disparities for people with IDD. The challenges of navigating a fragmented service system—and why it's still worth the fight. Alison also shares her top three calls to action for improving the lives of people with IDD: building personal connections, embracing inclusive healthcare reform, and confronting the systemic complexity with commitment and compassion. If you're a healthcare professional, policymaker, or advocate looking to better understand the intersection of disability rights, healthcare, and public policy—this is an episode you don't want to miss. 🔗 Learn more about Alison Barkoff’s work and resources mentioned in the episode in the show notes.
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Ep 252: Why Practical Intelligence Matters in Disability Services | DSP Leadership & Workplace Growth Tips
04/12/2025
Ep 252: Why Practical Intelligence Matters in Disability Services | DSP Leadership & Workplace Growth Tips
Is practical intelligence the secret ingredient missing from your workplace? In this episode of the Friends for Life Podcast, host Tony Stuart—CEO of Friends for Life and a DSP with over 20 years of experience—dives into what it *really* means to think practically in the world of disability services. Forget the clichés about "common sense." Tony breaks down how true practical thinking is rooted in logic, personal accountability, and understanding your own strengths. You'll hear real talk about: - Why not every DSP or supervisor operates the same way—and why that’s okay - How to handle disciplinary action with maturity and strategy - The dangers of asking for roles you're not ready for (and how to get there instead) - What taking it "on the chin" really looks like in a high-stress caregiving environment - Why self-awareness and humility are crucial in human services Whether you're a DSP, agency provider, or administrator, this episode challenges you to rethink how you operate, communicate, and grow within the system—all in service of the people who rely on you most. 👇 Share your toughest day or your biggest “aha” moment in the comments! 🔔 Subscribe for more honest discussions on leadership, growth, and real-world problem solving in disability services.
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Christopher Reeve: From Superman to Real-Life Hero
04/09/2025
Christopher Reeve: From Superman to Real-Life Hero
Once known around the world as Superman, Christopher Reeve became a true symbol of strength and resilience after a tragic accident in 1995 left him paralyzed from the neck down. Rather than retreat from the public eye, Reeve transformed his adversity into a powerful mission—advocating for spinal cord injury research and championing the rights of people with disabilities. Through the Christopher & Dana Reeve Foundation, he became a leading voice for change, working to improve access to medical care, technology, and independence for millions. His unwavering determination sparked national conversations about inclusion, accessibility, and what it truly means to be a hero. In this video, we reflect on Christopher Reeve’s extraordinary journey—his advocacy, public speaking, directing, and continued impact long after his acting career. His famous words still echo: “A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.” Reeve’s story reminds us that disability isn’t the end—it’s the beginning of a new chapter filled with hope, purpose, and lasting legacy. 🌟 #ChristopherReeve #DisabilityAwareness #Inspiration #SpinalCordInjury #Advocacy #Inclusion #Superman #DisabilityRights #ChristopherAndDanaReeveFoundation #Hope #TrueHero
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Empowering Disability Advocacy: Liz Weintraub on Health Equity, Plain Language & Self-Advocacy
04/07/2025
Empowering Disability Advocacy: Liz Weintraub on Health Equity, Plain Language & Self-Advocacy
In this powerful episode of IDD Health Matters, Dr. Craig Escudé sits down with renowned disability advocate Liz Weintraub to explore what true health equity looks like for people with intellectual and developmental disabilities (IDD). Liz, a senior policy specialist at the Association of University Centers on Disabilities (AUCD), brings her lived experience and professional expertise to the conversation—sharing insights on advocacy, accessible healthcare, and the importance of plain language in medical settings. Liz discusses AUCD’s national impact through 62 university-based centers across the U.S. and territories, her work on Capitol Hill, and key legislative priorities like ending subminimum wage (14c) and expanding home and community-based services. She also opens up about her own healthcare journey after a diabetes diagnosis, emphasizing the need for clear communication and respect for patient autonomy. Listeners will also learn about Tuesdays with Liz: Disability Policy for All, Liz’s YouTube show that makes complex policy issues accessible to everyone. She shares how self-advocacy helped her transition out of institutional care and inspired her to empower others to do the same. Tune in to hear Liz’s three essential tips for improving healthcare for people with IDD and why her message of "healthcare for all" is more important than ever. 🔗 Learn more about Liz’s work and resources mentioned in this episode by checking out the show notes. 🎙 IDD Health Matters is a joint production of Friends for Life and IntellectAbility.
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Ep 251: Being a DSP and a Parent: Finding the Balance
04/05/2025
Ep 251: Being a DSP and a Parent: Finding the Balance
In this heartfelt and honest episode of the Friends for Life Podcast, Tony Stuart returns to share what it’s really like to juggle the responsibilities of being both a dedicated Direct Support Professional (DSP) and a parent. From moments of overwhelming frustration to unexpected joy, Tony gets real about the challenges many DSPs face—especially those who are single parents or working long hours to make ends meet. He opens up about the emotional toll of trying to be present at work while worrying about sick kids at home, the guilt that can creep in, and how essential it is to remember your why—both for your family and for those you support. But it’s not all struggle—Tony also shares beautiful stories of bringing his children along to events and how DSP work can actually teach valuable life lessons to the next generation. Whether you’re a parent working in the field, an agency leader, or someone considering a career in direct support, this episode is a must-watch. You’ll walk away with inspiration, insight, and a deeper appreciation for the unsung heroes who keep showing up, day after day. 👇 Let us know in the comments: How many hours a week do YOU put in as a DSP? 📢 Don’t forget to like, comment, and subscribe for more conversations about the real-life impact of DSPs across the country.
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Franklin D. Roosevelt: How a President with Polio Changed History and Inspired Millions
04/02/2025
Franklin D. Roosevelt: How a President with Polio Changed History and Inspired Millions
Franklin D. Roosevelt, the 32nd President of the United States, is remembered not only for leading the nation through the Great Depression and World War II, but also as a powerful symbol of perseverance for people with disabilities. Diagnosed with polio at the age of 39, Roosevelt was left permanently paralyzed from the waist down—yet he rose to the highest office in the land. In this inspiring video, we explore how FDR's physical limitations did not stop him from becoming one of the most influential leaders in American history. Through the use of leg braces, wheelchairs, and the support of aides, he maintained a commanding public presence. But behind the scenes, it was his resilience, determination, and deep compassion—shaped in part by his own experiences with disability—that truly defined his leadership. Roosevelt’s legacy reminds us that disability is not a disqualifier for greatness. His story is a beacon of hope for anyone facing adversity, showing that with courage and resolve, it's possible to overcome obstacles and leave a lasting impact on the world. 🔔 Don’t forget to like, comment, and subscribe for more stories that inspire and empower! #FDR #DisabilityAwareness #Inspiration #History #GreatLeaders #FranklinDRoosevelt #Polio #AmericanHistory #NewDeal #Perseverance #Motivation #DisabilityRights
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Michael J. Fox: From Hollywood Star to Parkinson’s Research Hero | Inspirational Story of Resilience
04/02/2025
Michael J. Fox: From Hollywood Star to Parkinson’s Research Hero | Inspirational Story of Resilience
🎬 Beloved Back to the Future star Michael J. Fox has proven he's more than just a Hollywood legend — he's a global symbol of hope, strength, and perseverance. Diagnosed with Parkinson’s disease at just 29 years old, Fox turned a personal challenge into a mission that would change lives around the world. In this powerful video, we explore how Michael J. Fox became one of the most influential advocates for Parkinson’s disease awareness and research. From keeping his diagnosis private to founding the Michael J. Fox Foundation — now the largest nonprofit funder of Parkinson’s research globally — his story is one of courage, compassion, and relentless optimism. 🧠 Learn how his foundation has raised over $1 billion for groundbreaking scientific work. 📚 Hear how Fox continues to inspire through his books, interviews, and personal journey. 💬 Be inspired by his quote: “Acceptance doesn’t mean resignation. It means understanding that something is what it is and that there’s got to be a way through it.” Michael J. Fox’s story is more than a celebrity narrative — it’s a life lesson in how to face adversity with grace and determination. Whether you're battling illness, supporting a loved one, or simply seeking inspiration, this video is a reminder that the human spirit can shine even in the darkest times. 🔔 Don’t forget to like, subscribe, and share to help spread awareness and honor Michael J. Fox’s incredible legacy. #MichaelJFox #ParkinsonsAwareness #Inspiration #BackToTheFuture #ParkinsonsResearch #MichaelJFoxFoundation #ChronicIllness #HealthAdvocacy #Resilience #CelebrityStories #OvercomingAdversity
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Stevie Wonder: Music Icon & Disability Rights Advocate
04/02/2025
Stevie Wonder: Music Icon & Disability Rights Advocate
Stevie Wonder is not just a musical legend—he’s also a powerful advocate for disability rights and inclusivity. Born Stevland Hardaway Judkins in 1950, Wonder lost his sight due to complications from premature birth. Despite this, he became a child prodigy, signed to Motown Records, and went on to revolutionize music with his soulful voice, innovative compositions, and socially conscious lyrics. Beyond his musical genius, Wonder has used his platform to push for legislative change, promote accessibility, and inspire millions. He played a key role in advocating for the establishment of Martin Luther King Jr. Day as a national holiday, demonstrating his commitment to civil rights and equal opportunities for marginalized communities, including people with disabilities. He was also a strong supporter of the Americans with Disabilities Act (ADA), which was signed into law in 1990, ensuring legal protections against discrimination in employment, transportation, and public accommodations. As a blind musician, Wonder has championed adaptive technology in the music industry, encouraging the development of tools that allow blind and visually impaired artists to compose and record their work. His advocacy has paved the way for greater accessibility in the arts. Perhaps most importantly, Stevie Wonder’s life and career prove that disability does not define potential. Through his activism, music, and influence, he has not only transformed the entertainment industry but also advanced disability rights and awareness worldwide. 🔥 Don't forget to like, comment, and subscribe for more inspiring stories! 🔥 #StevieWonder #DisabilityRights #MusicLegend #Inspiration #ADA #Accessibility #Motown
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From Dentistry to Medicine: A Journey of Compassion with Dr. Ben Warner
03/31/2025
From Dentistry to Medicine: A Journey of Compassion with Dr. Ben Warner
In this inspiring episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Ben Warner, a healthcare professional whose unique journey spans from dental practice to medical school—all fueled by a lifelong desire to serve those with the greatest needs. Dr. Warner shares how his early experiences volunteering in hospitals sparked a deep commitment to healthcare and how that commitment evolved from dentistry to medicine. His story is one of resilience, family support, and a calling to provide equitable, compassionate care for individuals with intellectual and developmental disabilities (IDD). Now a board member of the American Academy of Developmental Medicine & Dentistry (AADMD), Dr. Warner discusses his role in advancing the mission of healthcare equity, and how his work has consistently centered around improving access and quality of care for people with complex health needs. Tune in to hear Dr. Warner’s three key takeaways for improving healthcare: recognizing that we are all patients, prioritizing care for those with the greatest needs, and embracing the importance of service and cooperation in creating a better healthcare system for all. Learn more about AADMD at and explore tools to enhance health equity at . This podcast is a joint production between Friends for Life and IntellectAbility. Visit to explore career opportunities in the IDD field.
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Ep 250: The Ultimate Paperwork Guide for New Agency Providers!
03/29/2025
Ep 250: The Ultimate Paperwork Guide for New Agency Providers!
In this episode of the Friends for Life Podcast, Tony Stewart breaks down everything you need to know about the essential paperwork involved in starting and running an agency provider business in the DD (Developmental Disabilities) world. From policies and procedures to tax documentation, injury reports, training logs, communication methods, and even thank-you cards for your team — Tony dives deep into the practical, real-world knowledge that every provider should know. Whether you're just getting started or looking to level up your operations, this video is packed with valuable tips to help you stay organized, compliant, and ready for success. 📌 Key Topics: Where to find generic policies & procedures Why you’ll want to customize your documents Paper vs. digital records: pros & cons CPA advice and the reality of small business taxes Why injury documentation is critical In-service logs and the power of training Scheduling communication best practices Networking with SSAs, guardians, and families Promotional materials: how to get the word out The importance of thank-you cards for staff 💼 Whether you’re running your business solo or scaling up, Tony shares lessons from the field with honesty and humor. 👉 Need help or want us to dive deeper into a specific topic? Drop a comment or message us! 🔔 Don't forget to like, subscribe, and hit the bell for more real talk about building a successful agency in the DD space.
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Promoting Self-Determination and Mental Health Equity with Richard Chapman
03/24/2025
Promoting Self-Determination and Mental Health Equity with Richard Chapman
In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Richard Chapman, Assistant Director for Disability Leadership at the Partnership for People with Disabilities in Richmond, Virginia. With a background in mental health counseling and a deep commitment to advancing equity, Richard shares his journey and current work at the intersection of mental health and self-determination for people with intellectual and developmental disabilities (IDD). Richard dives into how increasing self-determination—the ability for individuals to make their own life choices—can lead to better mental health outcomes and an improved quality of life. He discusses his current research, supported by the National Research Consortium on Intellectual Disability and Mental Health, which aims to show a causal relationship between self-determination and reduced psychopathology. Throughout the conversation, Richard highlights the importance of inclusion, cautions against the overuse of polypharmacy, and advocates for restraint-free support systems. He emphasizes that people with IDD not only deserve access to psychotherapy but also thrive when they’re empowered to make their own decisions. Don’t miss this powerful discussion on redefining support systems, challenging outdated models, and building a more equitable future for people with IDD. 👉 Learn more about Richard's work and the resources mentioned by checking the show notes. 🎧 IDD Health Matters is a joint production of Friends for Life and IntellectAbility.
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Ep 249: Starting Your Own Agency in the DD Field: What You NEED to Know
03/22/2025
Ep 249: Starting Your Own Agency in the DD Field: What You NEED to Know
In this special solo episode of the Friends for Life Podcast, host Tony Stuart goes deep on a topic that’s been buzzing in the DD (Developmental Disabilities) field—starting your own agency or becoming an independent provider. Tony lays out the real-life challenges, hard truths, and important steps involved in launching a successful agency—from understanding your "why", choosing between becoming an independent provider or opening an agency, and navigating the complex startup process, including Medicaid applications, staffing ratios, office setup, and more. If you're thinking about becoming your own boss in this field just to "get away from a bad job" or chase money, Tony gives a reality check. But if your heart is in the right place and you're truly passionate about providing excellent care, this episode is packed with insight, actionable advice, and honest encouragement. 📌 Topics Covered: Knowing your true why before launching Choosing between independent vs. agency provider Understanding staff ratios & client tiers (A, B, C) Budgeting: why you may need $10K–$12K to start Navigating Medicaid licensing and inspections Real talk on leadership, sacrifice, and business mindset Preparing for the long game of being a provider This is Part 1 of a new series where Tony will walk through what it takes to build a successful, people-first agency in the DD world. ✅ Whether you're serious about making a change in your career or just exploring your options, this episode is a must-listen. 🔗 Sponsored by: 🧠 IntellectAbility - Tools for Health Equity | ReplacingRisk.com 🏡 Assured Health Services - Helping Others Succeed | assuredhealthohio.com 🧪 Reliable Drug & Alcohol Testing | relidrugtest.com 🖥️ THS Remote Supports | thsrs.com 📲 Like, comment, and subscribe to stay tuned for Part 2, where we’ll cover the business side of running an agency—sales, growth, and sustainability. #FriendsForLifePodcast #DisabilityServices #AgencyStartup #DevelopmentalDisabilities #Caregiving #IndependentProvider #OhioDD #BusinessInHealthcare #DSP #LeadershipInCaregiving
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From Rock & Roll to Rhythmic Healing: Eddie Tuduri’s Journey
03/17/2025
From Rock & Roll to Rhythmic Healing: Eddie Tuduri’s Journey
In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with Eddie Tuduri, a world-class drummer whose career included playing with legends like The Beach Boys, Loggins & Messina, Del Shannon, and Ricky Nelson. But in 1997, a life-altering accident left him paralyzed—an event that ultimately led him to create the Rhythmic Arts Project (TRAP), a groundbreaking program that uses rhythm and percussion to enhance learning, communication, and rehabilitation for individuals with intellectual and developmental disabilities (IDD). Eddie shares his inspiring story of resilience, the impact of music in therapy, and how his passion for drumming transformed into a global movement. He and Dr. Escudé discuss the importance of presuming competence, staying inquisitive, and the power of volunteering in making a meaningful impact on the lives of people with disabilities. 🔗 Learn more about TRAP at 📧 Contact Eddie at Don't miss this powerful conversation about overcoming adversity, the healing potential of music, and how one man turned a tragedy into a mission that has changed thousands of lives worldwide. 🎶💙
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Ep 248: The Sacrifices of Being a DD Provider
03/15/2025
Ep 248: The Sacrifices of Being a DD Provider
Becoming a DD provider isn’t just a career—it’s a lifestyle that demands deep commitment and sacrifice. In this episode, Tony Stuart, CEO of Friends for Life, draws from over 20 years in the IDD field to break down the realities of this work. From missing family events and losing sleep to struggling with income stability and sacrificing personal time, Tony candidly discusses the challenges that come with dedicating yourself to serving individuals with disabilities. If you’ve ever considered starting an agency or working in the DD field, this episode is a must-listen. Are you ready to make the sacrifices needed to truly make a difference? Tune in now and join the conversation! 📢 Sponsored by: ✅ IntellectAbility – Improving health equity for people with IDD. Learn more at replacingris.com. ✅ Assured Health Services – Helping others succeed through residential and adult day services. Visit assuredhealth.com. ✅ Reliable Drug & Alcohol Testing Clinic – Fast, affordable pre-employment and occupational testing. Learn more at reliabledrugtest.com. ✅ THS Remote Supports – Enhancing independent living through personalized remote services. Visit thsrss.com. 🎧 Listen now and subscribe for more insights into the world of IDD support!
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Improving Healthcare for Individuals with IDD: Communication, Training & Advocacy with Rachel Potts
03/10/2025
Improving Healthcare for Individuals with IDD: Communication, Training & Advocacy with Rachel Potts
In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Rachel Potts, a dedicated nurse and Director of Nursing for ICF homes, to discuss the challenges and rewards of providing healthcare for individuals with intellectual and developmental disabilities (IDD). Rachel shares her journey into the field, beginning as a school nurse for children with autism, and how she quickly developed a passion for understanding and communicating with non-verbal individuals. Throughout the conversation, Rachel and Dr. Escudé explore the critical need for better training and resources for healthcare professionals, the importance of observation skills in diagnosing health concerns, and the role of direct support professionals (DSPs) in advocating for individuals with IDD. Rachel also shares real-world experiences, including a powerful story about learning to recognize subtle health cues that might otherwise be overlooked. Tune in to learn about the barriers in IDD healthcare, the importance of collaboration between providers, and how simple tools—like augmentative communication apps—can make a big difference. Whether you’re a healthcare provider, caregiver, or advocate, this episode offers valuable insights into improving healthcare equity for people with IDD. 🔗 Learn more about supporting individuals with IDD and access valuable resources by checking out the show notes! #IDDHealthMatters #HealthcareEquity #DisabilityAdvocacy #IDD #MedicalTraining #CommunicationMatters
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Ep 247: Can You Lose Your IO Waiver? Understanding Waiver Usage and Risks
03/08/2025
Ep 247: Can You Lose Your IO Waiver? Understanding Waiver Usage and Risks
n this episode of the Friends for Life Podcast, CEO Tony Sttuart tackles an important and often overlooked question: Can you lose your IO waiver? While losing a waiver is uncommon, it can happen—most often due to underutilization of services. Tony breaks down the reasons behind this, the implications for individuals relying on these services, and what can be done to avoid losing access to crucial support. The discussion delves into the state's perspective on waiver funding and the push for greater independence among individuals with disabilities. With the rise of remote support services, there’s an increasing focus on reducing one-on-one direct care in favor of technology-driven solutions. But what happens when someone becomes too independent and stops using their allocated hours? Tony explains the risks, including the long and difficult process of reapplying for a waiver if it is lost. Additionally, Tony provides practical advice on selecting the right provider to meet individual needs, covering the key questions to ask during the agency selection process. Not all providers specialize in the same areas—some excel in medical care, others in community outings or behavioral support—so finding the right fit is essential. Whether you’re a waiver recipient, a caregiver, a DSP, or simply someone looking to understand the ins and outs of waiver services, this episode offers valuable insights to help navigate the system and ensure ongoing access to support. 💬 Have thoughts or questions? Drop a comment and join the conversation! 🎧 Tune in now to stay informed and empowered! #FriendsForLifePodcast #WaiverServices #DSP #DisabilitySupport #RemoteSupports #CaregiverResources #IOWaiver #IndependentLiving
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Improving Healthcare for People with IDD | Chris Helfrich & Dr. Craig Escudé
03/03/2025
Improving Healthcare for People with IDD | Chris Helfrich & Dr. Craig Escudé
In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Chris Helfrich, a dedicated nurse and an integral member of the Developmental Disabilities Nurses Association, live from the DDNA annual conference in New Orleans. Chris shares her unexpected journey into the field, her experiences navigating healthcare for individuals with developmental disabilities, and the critical need for better education and training for healthcare providers. Chris also discusses her groundbreaking work in Illinois, where she has been instrumental in opening specialized community-based homes for individuals with Prader-Willi syndrome. She highlights the challenges of healthcare disparities, the importance of structured environments for individuals with unique needs, and the inspiring impact of these initiatives on both individuals and staff. Tune in for an insightful conversation about the evolving landscape of healthcare for people with IDD, the strides being made in nursing education, and what the future holds for better, more inclusive healthcare solutions.
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Ep 246: Emotional Intelligence in Disability Support: Why It Matters
03/01/2025
Ep 246: Emotional Intelligence in Disability Support: Why It Matters
In this episode of the Friends for Life Podcast, Tony Stuart dives into the importance of emotional intelligence in the field of developmental disabilities (DD) and beyond. He explores how self-awareness, empathy, and adaptability play a crucial role in supporting individuals with disabilities, emphasizing the need to truly listen, affirm feelings, and respond with kindness. Tony shares personal experiences and insights on how emotional intelligence impacts not only professional interactions but also personal relationships, parenting, and navigating the complexities of society. He breaks down key strategies for DSPs, SSAs, and administrators to cultivate emotional intelligence, ensuring they can connect with and support those they serve more effectively. Whether you're in the DD field or just looking to improve your emotional awareness, this episode is packed with valuable takeaways. Tune in and start building better connections today! #EmotionalIntelligence #DevelopmentalDisabilities #FriendsForLife #Podcast #Empathy #ListeningSkills
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Ep 245: Stevie Wonder – Thriving Beyond Limits
02/27/2025
Ep 245: Stevie Wonder – Thriving Beyond Limits
In this episode of the Friends for Life Podcast, we explore the incredible journey of Stevie Wonder, a musical legend who defied the odds and reshaped the industry despite being blind. From his early days as a child prodigy to his groundbreaking use of technology and activism for disability rights, Stevie’s story is one of perseverance, innovation, and inspiration. Tune in as we discuss how his talent, determination, and advocacy continue to break barriers and inspire millions worldwide.
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Transforming Person-Centered Care in Developmental Disabilities: Bob Sattler on Organizational Change
02/24/2025
Transforming Person-Centered Care in Developmental Disabilities: Bob Sattler on Organizational Change
In this dynamic episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Bob Sattler—whose extensive experience and passion for person-centered care have transformed developmental disability services. Recorded live at the NASD Conference in Portland, Oregon, this conversation delves into Bob’s unique journey from a camp counselor and direct support professional to a pioneering consultant and co-founder of Support Development Associates (SDA). Bob Satler shares how his career evolved alongside the movement toward true person-centered practices, emphasizing that treating individuals as people first is far more than a buzzword—it’s a transformative approach that empowers both service recipients and their support teams. He explains how effective person-centered care involves not only ensuring safety and health but also fostering autonomy, fulfillment, and genuine quality of life. Through real-life examples and insights from his work, Bob highlights the importance of listening to the very people whose lives are at the heart of these services, and the challenges of reshaping organizational cultures to make person-centeredness the norm. Join Dr. Escude and Bob Sattler as they explore the balance between safety and autonomy, discuss innovative strategies to integrate person-centered practices into everyday operations, and envision a future where support systems are as dynamic and compassionate as the people they serve. Tune in for an enlightening conversation that promises to inspire professionals and advocates dedicated to advancing health equity for individuals with intellectual and developmental disabilities.
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Ep 244: When to Let Go: Navigating Tough Terminations in Support Services
02/22/2025
Ep 244: When to Let Go: Navigating Tough Terminations in Support Services
In this candid episode of Friends for Life with Tony Stuart, Tony dives into one of the most challenging decisions in workforce management—terminating employment for Direct Support Professionals and administrators. Drawing on over 20 years of experience, he explores the delicate balance between maintaining high standards and recognizing the human element in every workplace decision. Tony unpacks: The Emotional Side of Termination: How emotional intelligence plays a key role, even when policies seem clear-cut. When to Draw the Line: Real-world indicators, from repeated infractions to critical health and safety concerns, that signal it might be time to part ways. Beyond the Policy: Why understanding personal accountability and the nuances of workplace relationships (yes, even dating among co-workers) is essential for fair and effective discipline. Join Tony as he shares practical strategies, reflective questions, and personal insights that challenge traditional disciplinary methods. Whether you're managing a team in a sensitive environment or seeking to refine your leadership approach, this episode offers thoughtful guidance on making those tough decisions with both compassion and confidence.
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