Gettin' Down with Down Syndrome

Beth Parillon is a life coach with Ocean Organics Wellness & Coaching will discuss all things as they relate to down syndrome. I will share my personal stories, insights, my successes and my epic failures of raising my daughter with down syndrome. I will help guide you through this new journey of raising your child with down syndrome . Are you ready to get down?

Episode 80 Being a Senior and a Teenage in High School 10/13/2024

Episode 80 Being a Senior and a Teenage in High School Gabby, my cohost talks all about what it's like to be a senior and a teenager in high school. She talks about her favorite things, what she wants to do after high school and her most favorite things about being a teenager! Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/33368067

Episode 79 Camp Barnes 09/01/2024

Episode 79 Camp Barnes What is Camp Barnes and how did it get started? Gabby asks the Senior Director of Special Olympics Delaware all about Camp Barnes and shares her experience with us on this episode. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/32819602

Episode 78 UDiscover Summer Camp 08/25/2024

Episode 78 UDiscover Summer Camp The University of Delaware hosts a two week summer camp for those who are interested in attending the CLSC two year college program. If you are interested in attending this program please use this link: If you are interested in attending the CLSC two year college program please use this link: Accepting now for Fall 2025 and applications fees waived before Dec. 1! /episode/index/show/gettindownwithdownsyndrome/id/32729337

Episode 77 Buddy Cruise 08/18/2024

Episode 77 Buddy Cruise Are you ready for a vacation! The buddy cruise is the perfect vacation for the whole family! Parents get to meet other families with a child who has down syndrome and listen to guest speakers. The children and young adults with down syndrome get to make new friends and have the time of their life with games, dances, and fun activities. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/32530587

Episode 76 Forget Me Not 08/11/2024

Episode 76 Forget Me Not In this interview I talk with Oliver & Hilda Bernier about their son Emillo. Oliver is a film maker and he made a documentary on his son from birth to first day in elementary school. They discuss the ups and downs of inclusion with school. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/32530322

Sleep Apnea 04/02/2023

Sleep Apnea Dr. Strang a pediatric lung doctor and sleep apnea specialist from Nemours talks about the signs and symptoms of sleep apnea. While it may be sound or seem cute to hear your child snoring is really the sound of an obstruction in the airway. Dr. Strang discusses the signs, symptoms, and treatments for sleep apnea. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/26412057

Episode 74 Brittany's baskets of hope 03/05/2023

Episode 74 Brittany's baskets of hope Brittany is a young woman with down syndrome who came up with an amazing idea in 2016 to create baskets of hope for moms with a newborn who has down syndrome. Since then she has given away over 1200 baskets in all 50 states. She receives generous donations both locally and nationally. She was awarded a very prestigious award from L'Oréal cosmetics, who also supports her non-profit business. Listen how her dream to help new mom's feel, cope, and know it's going to be ok, has become a reality for her. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/26125812

Episode 73 Ruby's Rainbow 02/26/2023

Episode 73 Ruby's Rainbow In this episode I interviewed Liz, the founder of Ruby's rainbow in honor of her daughter Ruby who has down syndrome. Ruby's rainbow is an organization that provides scholarships to those who have down syndrome and who want to go to college. This organization gives away thousands of dollars in scholarship money that is all raised through awareness, donations, and fundraising. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/26045100

Episode 72 A night to shine 02/19/2023

Episode 72 A night to shine A night to shine is a special prom event for those in the special needs community. The event is sponsored by the Tim Tebow foundation. The event is hosted by five hundred churches all over the world simultaneously. The special guests are treated like royalty with dinner, dancing, karaoke, pictures, makeup, shoe shining, and limo rides. In this episode I spoke with a local event coordinator who talks all about the event and what to expect. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/25978200

Episode 71 The amazing story of Sofia Sanchez, model and actress 02/05/2023

Episode 71 The amazing story of Sofia Sanchez, model and actress In this episode I talk with Sofia's mom Jennifer about her amazing journey from adoption to modeling, becoming an actress and having two books be written about her. Hear how this amazing young girl with down syndrome is becoming a boss babe, handling fame, and starring in the upcoming movie The Hunger Games! Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/25829175

Episode 70 Transitioning from high school to adult learning part 2 01/29/2023

Episode 70 Transitioning from high school to adult learning part 2 In this episode I spoke with a transition coordinator about the process. If your child is about to graduate from high school this is the episode for you! It's not too late or too early to start planning for your child's future. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/25756395

Episode 69 Transitioning from high school to adult learning 01/23/2023

Episode 69 Transitioning from high school to adult learning In this episode I talk with a friend and fellow mom, Christine. She talks about the transition from high school to living as an adult. She talks about how the school has prepared her and her daughter and the services that are available for our children. This may be a scary time for us as parents but have faith in the process. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/25693959

Episode 68 Coaching-Why you need it 01/15/2023

Episode 68 Coaching-Why you need it Do you know what life coaching is or how it is different from therapy? Are you afraid to ask for help? With coaching there is no judgement, only guidance to help you to get from where you are to where you want to be. In this episode I talk with a fellow life coach about coaching and the benefits of it. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/25611477

Episode 67 Infantile Spasms 01/08/2023

Episode 67 Infantile Spasms Do you know what infantile Spasms are, what they look like and why they need to be treated immediately? In this episode I speak with a mom who shares her story and how she was able to get a diagnosis after talking with five different doctors. She listened to her mom instincts and never gave up. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/25531413

Episode 66 New heart surgery technique 01/01/2023

Episode 66 New heart surgery technique In this episode I talk with a mom whose daughter had a new heart surgery technique done to repair a common congenital heart defect with child who have down syndrome. This technique is commonly done in Brazil and now there are three doctors in the USA who are doing this procedure. The procedure is less invasive, requires less blood, and less down time or recovery. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/25470678

Episode 65 The signs & symptoms of RSV plus more 12/18/2022

Episode 65 The signs & symptoms of RSV plus more It's that time of the year for RSV, whooping cough, colds, the flu, and COVID. Do you know the signs and symptoms of each? In this episode I spoke with pediatrician Dr. Fox about the signs, symptoms, and treatment for all. Are you ready to get down? /episode/index/show/gettindownwithdownsyndrome/id/25359402

Episode 64 Gratitude 12/11/2022

Episode 64 Gratitude What are you thankful for? How do you show gratitude? Did you know the more you show gratitude, the more you receive? I talk about some things we should all be grateful for. I'm grateful for you my listeners! Are you ready to get down? /episode/index/show/gettindownwithdownsyndrome/id/25287456

Episode 63 How to pick yourself back up 12/04/2022

Episode 63 How to pick yourself back up This episode is a very personal one for me. This is for anyone going though a difficult time. I talk about worry vs fear, stress vs solutions. Fear can either destroy you or motivate you, which are you going to let it do? Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/25213587

Episode 62 Staying organized and avoiding chaos 11/27/2022

Episode 62 Staying organized and avoiding chaos Are you feeling stressed out with all the many challenges of life? In this episode I give you 4 ways to get organized and avoid chaos. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/25135548

Episode 61 Different Eye Movie 11/20/2022

Episode 61 Different Eye Movie In this episode I talk with dad and movie producer John Luksetich and his daughter, the star of the movie, Maria. He talks about his latest movie Different Eye and the roller coaster ride of making this movie happen. You can watch the movie on Tubi or Amazon prime. /episode/index/show/gettindownwithdownsyndrome/id/25072785

Episode 60 Cast Kreations 11/13/2022

Episode 60 Cast Kreations Are you looking for a gift idea? Look no more! Cast Kreations designs and t-shirts has what you are looking for! In this interview I talk with the founder of Cast Kreations Courtney and she talks about her new small business and her inspiration! Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/24987711

Episode #59 Setting up a special needs trust 11/06/2022

Episode #59 Setting up a special needs trust Do you know what a special needs trust is or why it is so important to have one? In this episode I talk with Josh from Hope Trust. He gives us all the answers to why you need this, when to set this up, and how Hope Trust can help you! Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/24914334

Episode 58 Improving Speech from Home 10/30/2022

Episode 58 Improving Speech from Home Are you having a hard time finding a speech therapist? Are you tired of driving to yet another appointment? In this episode hear how Lenora Edwards from Better Speech can make speech therapy easier all from the comfort of your own home! Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/24841791

Episode 57 The history and types of down syndrome 10/23/2022

Episode 57 The history and types of down syndrome It's down syndrome awareness month, so let's talk about the history, the name , and the types of down syndrome. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/24770763

Episode 56 Tribe Inclusive 10/16/2022

Episode 56 Tribe Inclusive Are you looking for some fun LIVE on-line classes and meet new friends. Check out this episode where Mariana Shank talks all about tribe inclusive and the programs they offer. For more information check them out at tribe inclusive.com /episode/index/show/gettindownwithdownsyndrome/id/24693795

Episode 55 The NYC Buddy Walk & Times Square Video 10/09/2022

Episode 55 The NYC Buddy Walk & Times Square Video Have you heard of the NYC Buddy walk or their amazing video that is played on times square? In this episode we talk with the directors of this amazing event from the NDSS. Listen to how you can have your child featured in the video! Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/24630396

Episode 54 iCan Bike program 10/02/2022

Episode 54 iCan Bike program Can your child ride a bike? In this episode I talk with the lead bike tech, Kent from the ican bike/ican shine program. This amazing program will give your child all of the experience to get them on their way to riding a two wheel bike! For more information you can check out their website: www. icanshine.org. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/24557058

Episode 53 DSACT 09/25/2022

Episode 53 DSACT Do you have a local down syndrome chapter? If not then the Down Syndrome Association of Central Texas can help whether you live in Texas or not. This chapter can help you find the resources and information you need. Are you ready to get down! /episode/index/show/gettindownwithdownsyndrome/id/24468963

Episode 52 Driving Development 09/04/2022

Episode 52 Driving Development In this episode I talk with Jena Schultz a pediatric physical therapist and founder of driving development. She talks about fun play, adaptive tools and toys to help with physical therapy. She can be found on Instagram and she has tons of recommendations and on-line learning. /episode/index/show/gettindownwithdownsyndrome/id/24230982

Sign Language with Rachel Coleman 07/26/2022

Sign Language with Rachel Coleman It's Rachel Coleman talking with us about sign language and her amazing "Signing Time" learning tools to help your child to communicate when they can't speak. This was such an honor and an amazing interview! Listen to find out how you can help your child and where you can find the tools that Rachel has. /episode/index/show/gettindownwithdownsyndrome/id/23861112

Gettin' Down with Down Syndrome

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