Included: The Disability Equity Podcast

A podcast from the Johns Hopkins University Disability Health Research Center that challenges stereotypes of disability by sharing stories, data, and news. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included

43: Decolonizing Social Science Methods 02/16/2023

43: Decolonizing Social Science Methods This episode features Dr. Autumn Asher BlackDeer, a queer decolonial scholar from the Southern Cheyenne Nation and an assistant professor in the Graduate School of Social Work at the University of Denver. She discusses how social science methods can be reshaped to learn from communities and implement this knowledge into practice. Our conversation centers on how evidence mapping and practice-based evidence can address and challenge Western research structures. Dr. BlackDeer discusses these methods and her recent publication, "Evidence Mapping: Interventions for American Indian and Alaska Native Youth Mental Health." Her conclusions reveal that reconnecting Indigenous youth to their culture is a crucial and underutilized intervention to improve mental health. Episode Transcript: Additional episode transcripts can be found at Related Links: Asher BlackDeer, A., & Patterson Silver Wolf, D. A. (2020). Evidence mapping: Interventions for American Indian and Alaska Native youth mental health. Journal of Evidence-Based Social Work, 17(1), 49-62. Dr. BlackDeer's website: /episode/index/show/included/id/25955583

42: Reproductive Health and Disability 10/20/2022

42: Reproductive Health and Disability Dr. Willi Horner-Johnson takes a cross-disability approach to pregnancy and health in her work as Associate Professor at Oregon Health and Science University's School of Public Health, director of the Oregon Office on Disability in Health, and co-PI of the National Center for Disability and Pregnancy. Her work studies both pregnancy of people with disabilities and the birth of people with disabilities from preconception to post-partum health. She calls for a culture shift in reproductive care to respect people with disabilities, and for more accessible healthcare settings. Episode Transcript: Episode transcripts can be found at Other links: "Perinatal Health Risks And Outcomes Among US Women With Self-Reported Disability, 2011–19," Health Affairs: "'It Would Have Been Nice to Have a Choice': Barriers to Contraceptive Decision-making among Women with Disabilities," Women's Health Issues: OHSU University Center for Excellence in Developmental Disabilities - Reproductive Health Research: National Center for Disability and Pregnancy Research homepage: /episode/index/show/included/id/24743280

41: Web Accessibility 09/15/2022

41: Web Accessibility Jared Smith, associate director of WebAIM, shares his expertise from over 20 years of working in web accessibility. In this episode, Smith highlights how online access means equity to information and ecommerce for all. He describes his team’s systems to search websites for a wide variety of barriers, even with few federal guidelines in place. Tune in to hear how he views the future of technology, and how you can do your part to ensure an equitable online environment. Episode Transcript: Episode transcripts can be found at Learn more at: Other links: The WebAIM Million – 2022 Update: COVID-19 Vaccine Website Accessibility Dashboard: /episode/index/show/included/id/24391827

40: Making Their Days Happen: Personal Assistant Services 05/05/2022

40: Making Their Days Happen: Personal Assistant Services In this episode, we welcome back Dr. Lisa Iezzoni, a professor of medicine at Harvard Medical school and an internationally recognized health services researcher, to discuss her new book, Making Their Days Happen: Personal Assistant Services Supporting People with Disability Living in Their Homes and Communities. Learn about the research findings and personal anecdotes that motivated Dr. Iezzoni’s book about policy, interactions with the disability community, and more. Episode Transcript: Click Episode transcripts can be found at The book is available at any bookseller /episode/index/show/included/id/23021558

39: Disability Health Equity and Health Implementation Science 04/07/2022

39: Disability Health Equity and Health Implementation Science Dr. Megan Morris is a University of Colorado-Anschutz Associate professor, certified speech-language pathologist, and founding director of the Disability Equity Collaborative, a community aimed at advancing equitable care for patients with disabilities through practice, policy and research. Dr. Morris focuses on understanding, identifying and addressing disparities in care delivered to patients with disabilities and uses patient-informed data to address disparities via pragmatic and sustainable changes such as documenting disability in the electronic health record to inform accommodations. Episode Transcript: Click Episode transcripts can be found at Link: /episode/index/show/included/id/22719527

38: Disability and Emergency Management During COVID-19 03/17/2022

38: Disability and Emergency Management During COVID-19 Linda Mastandrea, Director of the Office of Disability Integration and Coordination at the Federal Emergency Management Agency (FEMA), shares her work as a disability law and civil rights attorney. She discusses her role in the COVID-19 response, the lack of data on how emergencies impact people with disabilities, and the barriers for people with disabilities to access emergency assistance. This episode highlights the importance of including people with disabilities in the decision-making process. Episode Transcript: Click Episode transcripts can be found at Resource Links Learn more about the FEMA Office of Disability Integration and Coordination (ODIC) and its mission, and subscribe to receive news and updates about our work: Learn more about the ODIC Director, Linda Mastandrea: Learn and share disaster preparedness resources for People with Disabilities: I /episode/index/show/included/id/22484315

37: Health and Social Equity for People with Disabilities 03/03/2022

37: Health and Social Equity for People with Disabilities Dr. Kimberly Phillips, Research Assistant Professor at the Institute on Disability at the University of New Hampshire, provides an overview of her broad range of projects on increasing equity for people with disabilities through employment and community participation. She differentiates the medical and social models of Disability and provides insight and evidence from her research aiming to improve disability awareness and inclusion via new training programs with an aim to ultimately reduce barriers and improve healthcare for people with disabilities. Episode Transcript: Click Episode transcripts can be found at Article link /episode/index/show/included/id/22328108

36: Allyship and Education to Combat Disability Bias 02/17/2022

36: Allyship and Education to Combat Disability Bias Dr. Kathleen Bogart, Director of the Disability and Social Interaction Lab at Oregon State University, discusses her research on congenital and acquired disabilities, ableism, and stigma-related stress management. She describes the disability self-concept as an individual's disability identity and how someone navigates the world in relation to that identity. Dr. Bogart additionally outlines the importance of allyship for people with disabilities, the role of education to combat ableism, and a need to create better metrics for disability research. Episode Transcript: Click Episode transcripts can be found at Useful Links: Disability Advocacy and Research Network (DARN): Psychology Today blog: . /episode/index/show/included/id/22162133

35: Disability Economics 02/03/2022

35: Disability Economics Dr. Sophia Mitra, Professor of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the association between disability and economic outcomes. She describes how the current economic system contributes to economic deprivation for people with disabilities, including unemployment, lack of health insurance, low educational attainment, and more. Dr. Mitra explains that people with disabilities have higher costs of living, and describes policies that could help reduce economic inequities for Americans with disabilities. Episode Transcript: Click Episode transcripts can be found at Useful Links: Extra Costs of Living with a Disability: Disability Data Initiative: Disability Studies Program: /episode/index/show/included/id/22014749

34: Healthcare During the COVID-19 Pandemic and Beyond 01/20/2022

34: Healthcare During the COVID-19 Pandemic and Beyond MaryBeth Musumeci, associate director of the Program on Medicaid and the Uninsured at the Kaiser Family Foundation, discusses how states are expanding access to behavioral healthcare, including the role of telehealth. She also describes the ethical issues behind COVID-19 mandates, the rights of nursing home residents during the pandemic, and new opportunities in the American Rescue Plan. In this compelling episode, Musumeci highlights the importance of making these improvements to healthcare access permanent. Episode Transcript: Click Episode transcripts can be found at Useful Links: /episode/index/show/included/id/21838562

33: Disability Data Initiative 01/06/2022

33: Disability Data Initiative Dr. Sophie Mitra, professor in the department of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the disability data initiative. Dr. Mitra shares her findings that people with disabilities are often not included in national surveys, not asked meaningful questions, and can be stigmatized. /episode/index/show/included/id/21697358

32: Disability Moral Asymmetry 12/16/2021

32: Disability Moral Asymmetry The Director of the Institute for Ethics and Public Affairs at San Diego State University, Dr. Joe Stramondo, discusses his paper "Causing Disability, Causing Non-Disability: What's the Moral Difference?". In this conversation, he describes society's standard view of disability and the reasons why there is a moral asymmetry between causing a disability and not causing a disability. This important conversation gets to the core of many debates about disability, especially in medical settings. /episode/index/show/included/id/21511646

31: Music and Hearing 12/01/2021

31: Music and Hearing Music producer, composer, and hearing technology consultant Richard Einhorn describes his diverse experiences from creating award-winning music to advocating for adults with hearing loss worldwide. Einhorn tells his story of suddenly losing hearing and experimenting with powerful hearing assistance technologies. He shares his optimism for universal design to destigmatize hearing assistance and allow music to be accessible to all. /episode/index/show/included/id/21333461

30: Disability and Employment 11/10/2021

30: Disability and Employment This episode features Taryn Williams, the Assistant Secretary of Labor for Disability Employment Policy at the United States Department of Labor. She shares the mission of the Office of Disability Employment Policy (ODEP) and this office's policies and programs aimed at increasing employment opportunities for people with disabilities. She discusses the interconnection between COVID-19 and employment for people with disabilities. /episode/index/show/included/id/21121805

29: Disability and Intersectionality 11/04/2021

29: Disability and Intersectionality Sandy Ho, a White House Champion of Change in 2015, returns to discuss her work supporting the inclusion of people from intersecting backgrounds in disability research and advocacy. She shares a brief history of the connection between intersectionality and the disability justice framework and why an intersectional approach is key to combating ableism. Sandy is the co-founder of the Disability and Intersectionality Summit, /episode/index/show/included/id/21055250

28: Disability Civic Engagement 10/28/2021

28: Disability Civic Engagement In this episode, we talk with Sandy Ho, a disability activist, policy researcher at the Lurie Institute for Disability Policy, and co-founder of Disability and Intersectionality Summit. Sandy shares details from the report, Civic Engagement and People with Disabilities, which she co-authored. She discusses how ableist attitudes and physical barriers can prevent civic engagement for the disability community. /episode/index/show/included/id/20966165

27: L. Miché Aaron 10/14/2021

27: L. Miché Aaron A Planetary Science graduate student at Johns Hopkins University, L. Miché Aaron describes both her research studying minerals on Mars and her grassroots efforts to diversify science. Miché shares the story of her ADHD (attention deficit hyperactivity disorder) diagnosis and how society conditioned her to internalize stigma related to neurodiversity. She highlights the importance of empowering minority women with disabilities, including neurodiversity, to success in STEM. /episode/index/show/included/id/20819795

26: Keyonna Mayo 09/30/2021

26: Keyonna Mayo Keyonna Mayo, a Baltimore City disability community leader, and Corey Warren, an attorney from Disability Rights Maryland, describe the obstacles faced by the disability community in Baltimore City. Keyonna discusses gaps in community accessibility within Baltimore City, including sidewalks, and describes how both people with disabilities and the community at large benefit from accessible spaces. /episode/index/show/included/id/20653238

25: Ableism in Healthcare - Part 2 09/16/2021

25: Ableism in Healthcare - Part 2 Assistant Professor at UNC School of Medicine and pediatric neurologist at the Carolina Institute of Developmental Disabilities, Dr. Diana Cejas discusses how ableism impacts patients and physicians in this two-part episode. She explains how disability is more than pathology, and shares how the culture in medicine pressures physicians to hide their disabilities. Dr. Cejas calls for the improvement of disability awareness and representation in medicine. This is the second part. /episode/index/show/included/id/20499974

24: Ableism in Healthcare - Part 1 09/16/2021

24: Ableism in Healthcare - Part 1 Assistant Professor at UNC School of Medicine and pediatric neurologist at the Carolina Institute of Developmental Disabilities, Dr. Diana Cejas discusses how ableism impacts patients and physicians in this two-part episode. She explains how disability is more than pathology, and shares how the culture in medicine pressures physicians to hide their disabilities. Dr. Cejas calls for the improvement of disability awareness and representation in medicine. /episode/index/show/included/id/20499788

23: Advocacy for Physicians with Disabilities 08/26/2021

23: Advocacy for Physicians with Disabilities UCSF Internal Medicine resident, Dr. Justin Bullock, shares his journey through medical training with bipolar disorder and explains how it drives his advocacy for disability inclusion among physicians, particularly those with a mental illness. He compares residency to a marathon, highlighting how it can push physicians past their limits, and harm their mental health. He discusses the importance of trauma-informed care and holding hope for patients with a mental illness while acknowledging their suffering.� /episode/index/show/included/id/20277035

22: Disability within the Health Profession 08/12/2021

22: Disability within the Health Profession ADr. Lisa Meeks is focused on promoting equal access in health professional education for trainees with disabilities. Dr. Meeks aims to change the paradigm from focusing only on individuals accommodations for people with disabilities to removing ableist barriers and creating inclusive environments that are accessible for all. Dr. Meeks highlights how creating inclusive environments for people with disabilities in health professions advances health equity more broadly. /episode/index/show/included/id/20114717

21: Disability Law - Part 2 07/29/2021

21: Disability Law - Part 2 In part two of this episode, Dr. Doron Dorfman describes his work identifying the "disability con", and the burden of proof for people with disabilities. He explains the importance of expanding understanding of disability law to combat these misperceptions and discusses how his work shows that disability equity must stem from the recognition that disability is contextual and fluid. /episode/index/show/included/id/19971968

20: Disability Law - Part 1 07/29/2021

20: Disability Law - Part 1 Associate Professor of Law at Syracuse University College of Law, Doron Dorfman shares his work examining how ideologies, stigma, and stereotypes of disability impact policies, and the high stakes implications during the COVID-19 pandemic. Dr. Dorfman shares examples of how disability advocacy has been critical in combating these biases and changing policy. /episode/index/show/included/id/19964606

19: Disability and Aging with Dignity 07/15/2021

19: Disability and Aging with Dignity Sarah Szanton is the director of the Center for Innovative Care in Aging at the Johns Hopkins School of Nursing. Dr. Szanton describes her innovative model, Community Aging in Place—Advancing Better Living for Elders (CAPABLE), which combines interventions focused on helping people age with dignity and independence at home. She discusses how we can take public health from an epidemiologic inference to the clinical trial level before reaching an effective policy approach and a cost-effective benefit /episode/index/show/included/id/19816499

18: Disability and the Arts 07/01/2021

18: Disability and the Arts Molly Joyce, a nationally acclaimed composer, joins us to discuss the intersection of disability and music. Molly highlights what she calls a false social constriction — artists being limited by normative standards of performativity and virtuosity. She delves into the meaning of her debut album, Breaking and Entering, and how it promoted her creative development. Molly invites us to question the assumptions and traditions of music and make it more accessible to perceive and perform. /episode/index/show/included/id/19675058

17: Healthcare and Disparities 06/16/2021

17: Healthcare and Disparities Dr. Lisa Iezzoni is a professor at Harvard Medical school and an internationally recognized health services researcher. She discusses disparities in healthcare and why the needle has not moved on closing these gaps for the disability community. She shares finding from her recent work examining physician perspectives of patients with disabilities and insight on how to remove bias and improve access during health care interactions. /episode/index/show/included/id/19493966

16: Disability & Policy 06/10/2021

16: Disability & Policy In this episode, we talk with Andrés Gallegos, chairman of the NCD, about his recent commentary in Health Affairs, “Misperceptions of People with Disabilities Lead to Low-Quality Care: How Policymakers Can Counter the Harm and Injustice.” He shares insight on the impact of gaps in disability data, the underrepresentation of people with disabilities in leadership positions, disability cultural, and how quality-adjusted life years (QALYs) are barriers to equitable health care. /episode/index/show/included/id/19433813

15: Disability in Medicine 04/29/2021

15: Disability in Medicine Dr. Ruffin describes his experiences as a medical provider with a disability during the COVID-19 pandemic, such as how masks have hindered his ability to communicate with patients. He also talks about his own experience with hearing loss and how it gives him a more complete understanding of hearing care. Lastly, Dr. Ruffin advocates for more inclusion of disabled people in medicine. /episode/index/show/included/id/18915359

15: Disability in Medicine 04/29/2021

Included: The Disability Equity Podcast

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