Life With Dementia

Life With Dementia is an interview-style podcast sharing relevant research, personal stories, and practical tips for living well with dementia. We talk to people all over the world: scientists, researchers, practitioners, family care partners, industry professionals, and people living with dementia to hear firsthand about solutions they’ve discovered and what we can do to improve resources and support for people affected by dementia.

Dementia vs. The World 07/01/2021

Dementia vs. The World World Health Organization is taking on the mountain of dementia in global action. Guest Kavitha Kolappa discusses her work on a knowledge exchange platform with the World Health Organization. This project is encouraging international commitment to increasing attention and resources for dementia around the world. Find out more at www.globaldementia.org. /episode/index/show/lifewithdementia/id/19676879

This Is Not the End 05/26/2021

This Is Not the End The truth is people can live well with Alzheimer’s. That's the message Arthena Caston and Jay Reinstein want you to hear. Listen to the voice of lived experience as two outspoken Alzheimer advocates share their thoughts, fears, and observations about living with a progressive illness. /episode/index/show/lifewithdementia/id/19243391

Cog @ Work: 03/20/2021

Cog @ Work: What could a supportive work environment look like for workers with dementia? Top-notch researcher Josephine McMurray is helping employers look differently at mild cognitive impairment and early-onset dementia, in the workplace. /episode/index/show/lifewithdementia/id/18398612

My Father’s Diagnosis of Dementia Opened My Eyes 03/01/2021

My Father’s Diagnosis of Dementia Opened My Eyes Lisa Poole, founder of Dementia Connections magazine, shares her personal journey to awareness of a fragmented health system and the importance of aligning expectations with true understanding. /episode/index/show/lifewithdementia/id/18132770

Love is All You Need 01/12/2021

Love is All You Need Maybe the Beatles had it right after all. Can creating dementia friendly communities and age friendly communities really be as simple as giving love? Hear from Jennifer Mallamo and the wise words she shares around treating others with love, patience, dignity and respect. Regardless if it's your family, your neighbor or a collaborative partner on a project as large as building dementia friendly communities. It’s about providing hope and making a difference in each and every moment. /episode/index/show/lifewithdementia/id/17490704

How Can Artificial Intelligence, Smart Phones and Google Help Dementia? 12/02/2020

How Can Artificial Intelligence, Smart Phones and Google Help Dementia? Combining the voice of dementia into technology development can offer huge potential for mobile health giants. Hear from Dr. Joon Lee at the Cumming School of Medicine, a national leader in brain and mental health research, talk about the important benefits technology and mobile devices can have for people living with dementia, their families, and the medical system. /episode/index/show/lifewithdementia/id/17030045

Taking Research Into Real Life 10/31/2020

Taking Research Into Real Life Hear from research duo, Dr. Jennifer Watt and Dr. Zahra Goodarzi as they share their story about comparing hundreds of research cases to create “best level evidence” and help their geriatric patients, families, and informal caregivers make the best decisions to improve quality of life. Spoiler alert: and it’s not always a traditional medical treatment either! /episode/index/show/lifewithdementia/id/16628003

25. BIG ANNOUNCEMENTS! 09/08/2020

25. BIG ANNOUNCEMENTS! Find out what the Dementia Association for Awareness and Support has been up to and hear about a new podcast series we are embarking on that will include the voice of a new co-host! This special fall/winter series will highlight the expertise that only lived-experience has. Listeners will get to hear the living, breathing experience of discovery through the lens of a progressive diagnosis of dementia. Life With Dementia is a proud member of the Alberta Podcast Network. "Locally grown. Community Supported. /episode/index/show/lifewithdementia/id/15917420

24. Pulling Creative Spirit Into Long-Term Care 08/11/2020

24. Pulling Creative Spirit Into Long-Term Care Long-term care environments are often viewed as institutional settings. Find out what we can do to change that and support environments that are full of creative spirit. /episode/index/show/lifewithdementia/id/15564809

23. Has COVID-19 been ALL gloom and doom? 07/14/2020

23. Has COVID-19 been ALL gloom and doom? No one has gone untouched by the global crisis of COVID-19; but what has come out of this that might actually be better? That’s the topic we are hitting today with Cindy Bond of the Alzheimer's Society in Calgary, Alberta. We'll look at how the COVID-19 pandemic has affected families, caregivers and those living with dementia. /episode/index/show/lifewithdementia/id/15200057

22. PUSH BACK Against Dementia 06/10/2020

22. PUSH BACK Against Dementia If you’re someone who worries about getting Alzheimer’s or dementia someday, you’ll want to hear how science, and specifically the work of Dr. Rob Sutherland, is proving that we can fight back against genetic predispositions of dementia. /episode/index/show/lifewithdementia/id/14764508

21. In the Shadow of Alzheimer’s 05/12/2020

21. In the Shadow of Alzheimer’s Knowing that you have a genetic predisposition to Alzheimer’s can leave you feeling like you’re constantly in the shadow of impending bad news. Hear a deeply personal story from my mother, as she talks through some of the fear and anxiety she lives with daily surrounding a family history of Alzheimer's and discover the things that guide her though. /episode/index/show/lifewithdementia/id/14393648

20. Keeping Brains and Bodies Active During COVID-19 04/14/2020

20. Keeping Brains and Bodies Active During COVID-19 The current health crisis and subsequent social isolation has placed additional stress upon family and friends who are supporting and/or caring for persons living with dementia at home in their chosen community. Our guest is Teri Kennedy-Flynn, who shares creative ways to engage in an at-home setting; technology solutions that can help caregivers; or how to catch up on a much needed moment of respite by accessing online programs. /episode/index/show/lifewithdementia/id/13978673

19. Living in the Here and Now 03/24/2020

19. Living in the Here and Now It's stigma that kills hope in a dementia diagnosis. Roger Marple has been living with Alzheimer’s disease for 5 years. Yet he refuses to shy away from this diagnosis and instead, is claiming its existence as an important part of his life. His goal is to challenge society’s view that Alzheimer’s disease is an ugly diagnosis. Learning more and finding a greater sense of understanding is how we break apart any negative stereotypes or fears that keep us from speaking openly about a dementia diagnosis. /episode/index/show/lifewithdementia/id/13681829

18. Best of 2019 02/11/2020

18. Best of 2019 This episode marks the official one year anniversary of the Life With Dementia podcast. The podcast community is the perfect avenue for addressing the fear, pain and apprehension so many of us have in experiencing dementia. I believe some of the interventions and insights our guests shared over the last year can be and will be life changing for our future facing dementia. /episode/index/show/lifewithdementia/id/13111340

17. Crowdfunding Tusk Teaser Episode 02/04/2020

17. Crowdfunding Tusk Teaser Episode Hear about the latest adventure of the Life With Dementia podcast - teaming up with Tusk, the Caregiver Navigation Tool! https://www.dementiaassociation.ca /episode/index/show/lifewithdementia/id/13010840

16. I Am Not Ashamed 01/14/2020

16. I Am Not Ashamed A courageous daughter opens up about the family experience upon her father receiving a diagnosis of early-onset dementia, and how the “ripple effect” of speaking out can help make a difference in the lives of others. Brande Terashita tells her story of love, loss, and yes, even victorious JOY in sharing life with her father with dementia. Life with Dementia podcast is a proud member of The Alberta Podcast Network, powered by ATB. /episode/index/show/lifewithdementia/id/12714629

15. Caregiver Centered Care 12/10/2019

15. Caregiver Centered Care If you know what it’s like to feel exasperated or ignored in your role as a family caregiver, you’ll want to catch this episode and chime in on the dialogue surrounding what’s being coined as caregiver-centered care. Dr. Jasneet Parmar with Covenant Health Network of Excellence is ready to enlighten us all on what we can do better to support family and friends, who are in turn supporting persons living with dementia. /episode/index/show/lifewithdementia/id/12328661

14. The Human Nature of Care with Teepa Snow 11/12/2019

14. The Human Nature of Care with Teepa Snow Being a part of someone's life who is living with dementia is hard. It completely changes the relationship on both sides and introduces challenges to the very basics of everyday living. Yet, sometimes we forget that the act of caring is an integral part of who we are as human beings and the person living with dementia also has a part in this. Join this episode with Teepa Snow, one of the world’s leading educators on dementia and the care that accompanies it. /episode/index/show/lifewithdementia/id/12000206

13. Dementia: The Invisible Disease 10/08/2019

13. Dementia: The Invisible Disease “Dementia is not a physical disease, but a cognitive one.” These are the clear words of Jim Mann, living with dementia and desperately trying to shatter the stereotypes that surround it. A little bit of encouragement goes a long way toward building the confidence of someone just diagnosed and Jim’s mission is just that: educate and advocate for not shying away from life with this diagnosis, but to step out and live. /episode/index/show/lifewithdementia/id/11510690

[Unedited] Bernie Travis Talks Dementia 09/21/2019

[Unedited] Bernie Travis Talks Dementia Bernie Travis is a woman on a mission: to spread hope surrounding the dementia diagnosis. Today on our show we talk to Bernie as she shares the personal story that led her to start the Early Onset Dementia Alberta Foundation and host an annual conference. Get the inside scoop on keynote speakers and discover what other educational opportunities can be found over the three days of this upcoming conference October 3 - 5, 2019. /episode/index/show/lifewithdementia/id/11334344

12. Bernie Travis Talks Dementia 09/10/2019

12. Bernie Travis Talks Dementia Bernie Travis is a woman on a mission: to spread hope surrounding the dementia diagnosis. Today on our show we talk to Bernie as she shares the personal story that led her to start the Early Onset Dementia Alberta Foundation and host an annual conference. Get the inside scoop on keynote speakers and discover what other educational opportunities can be found over the three days of this upcoming conference October 3 - 5, 2019. /episode/index/show/lifewithdementia/id/11172371

11. Improving Dementia Care Navigation 08/13/2019

11. Improving Dementia Care Navigation Finding the right resources at the right time is a crucial need for people affected by a chronic illness. But what if there was a tool that helped you do exactly that? Find out about a technology platform aiming to intelligently reduce stress for individuals who are caring for or supporting persons living with dementia. /episode/index/show/lifewithdementia/id/10839818

10. Creative Aging Pt 2: Elevating the Artist with Dementia 07/15/2019

10. Creative Aging Pt 2: Elevating the Artist with Dementia Just like art, dementia has the power to be transformative. Dr. Gene Cohen taught the world that just because we age doesn’t mean we lose our ability to create and even a brain affected by Alzheimer’s still has the capacity to learn, use the imagination, and engage in new tasks. This is part 2 of a discussion with Deb Campbell as she shares specific projects that Arts&AGEing KC is involved in and the touchpoints it has with dementia. Find out more at lifewithdementia.ca/blog /episode/index/show/lifewithdementia/id/10521797

09. Creative Aging Pt 1: Got Dementia? Go Dancing! 06/18/2019

09. Creative Aging Pt 1: Got Dementia? Go Dancing! Doctors around the world are beginning to recognize the health benefits of engaging in arts activities as a treatment for all sorts of illnesses. Today, we talk about the movement of creative aging, what it is, and how it has a direct impact on our health and wellness. Deb Campbell with Arts and AGEing KC shares how participation in the arts as we age is a way for us to process life, later in life, as we find more time and space for reflection. /episode/index/show/lifewithdementia/id/10190471

08. Not All Those Who Wander Are Lost 06/18/2019

08. Not All Those Who Wander Are Lost Wandering and dementia is stigmatized due to our misunderstanding of the risks. Just because you have dementia doesn't mean you're at risk of getting lost. We chat with Noelannah Neubauer and Dr. Lili Liu from the University of Alberta, about guidelines they've created to help those living with dementia and community partners plan for safe decision making while empowering independence. Find out more at lifewithdementia.ca/blog. /episode/index/show/lifewithdementia/id/10003001

07. Who Can I Call for Advice? 05/15/2019

07. Who Can I Call for Advice? There’s something to be said for having help at your fingertips. How many times have we experienced frustration with a problem and we just want to be able to pick up the phone and call someone? Accessing good dementia advice for family caregivers is an ever-present need and on today’s episode, we highlight an excellent resource: The Dementia Advice Line, offered by Alberta Health Services through the health link phone line. Find out more at www.lifewithdementia.ca/blog. /episode/index/show/lifewithdementia/id/9797969

06. Getting Out For The Day 05/01/2019

06. Getting Out For The Day Being a family caregiver or care partner can be quite physically, emotionally, and financially demanding of your life and there are many people who are all alone in this role with no family around to help and little to none additional health supports on board. Hear about how adult day-support programs are stepping up to offer caregiver’s a much-needed break and engage clients in meaningful and therapeutic activities to stimulate the mind and the body. See more at www.lifewithdementia.ca/blog. /episode/index/show/lifewithdementia/id/9605726

05. Does Your Lifestyle Impact Your Risk of Dementia? 04/15/2019

05. Does Your Lifestyle Impact Your Risk of Dementia? Do your lifestyle choices put you at risk for Alzheimer’s? We’re talking today with Dr. Jeffrey Burns, a lead researcher and co-director at the KU Alzheimer’s Disease Center, where they're investigating the use of lifestyle interventions as a preventative measure in the fight against Alzheimer's. Can things like diet, exercise, and quality of sleep really reduce our risk of dementia? These are precisely some of the areas being studied here. For more info go to www.lifewithdementia.ca/blog /episode/index/show/lifewithdementia/id/9384482

04. What It’s Really Like to Live With Dementia: 04/01/2019

04. What It’s Really Like to Live With Dementia: The stress any health crisis puts on a relationship is no laughing matter - but when it’s memory loss your partner is dealing with, sometimes maintaining a sense of humor is all you can do. Our last episode was with Joe Dolan who is personally battling early-stage dementia. This is Pt. 2 with Joe’s spouse, Maureen Barnes, who shares how she has come to terms with this illness in her life and learned the best ways to support her spouse with dementia. Visit lifewithdementia.ca for show notes. /episode/index/show/lifewithdementia/id/9211457

Life With Dementia

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