Made Visible
Made Visible is a podcast that gives a voice to people with invisible illnesses. This podcast aims to change the conversation around invisible illnesses, helping those who experience them —whether as patients, caregivers, or friends or family members — feel more seen, heard and supported.
info_outline
128. The Quiet Epidemic with Special Guest, Ally Hilfiger
07/25/2023
128. The Quiet Epidemic with Special Guest, Ally Hilfiger
I moderated a panel discussion at ReelAbilities Film Festival on The Quiet Epidemic, an eye-opening film about Lyme disease that highlights the emotional toll of patients’ journeys with the illness and the scientific facts of the disease. During the panel I spoke with the film’s Emmy-winning producer Chris Hegedus, who helped the directors bring this topic to light, 19-year-old Julia Bruzzese, a patient with Lyme disease featured in the film who bravely shared her story because she knew it could help other patients, and Julia’s dad, Enrico Bruzzese, who has been her caregiver and biggest supporter. This episode also includes my recent conversation with past guest and the film’s executive producer, Ally Hilfiger, who talks about her own Lyme story and how important it was for the film to include both real, digestible science and a patient’s story for viewers to connect with. The Quiet Epidemic reminds us how important it is to educate about a devastating tick-borne disease like Lyme, which is growing more and more common, yet still so difficult to test for and treat. For more information about The Quiet Epidemic and ReelAbilities, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/27540528
info_outline
127. Ilana Jacqueline, Fighting the War Against Medical Gaslighting
07/18/2023
127. Ilana Jacqueline, Fighting the War Against Medical Gaslighting
Author and patient advocate Ilana Jacqueline experienced medical gaslighting from a young age. At age 19 she was diagnosed with Hypogammaglobulinemia, a rare immunodeficiency. While navigating young adulthood with an invisible illness, Ilana also faced lots of medical gaslighting, encountering doctors who shamed her out of seeking care. Ilana has devoted her career to patient advocacy. Through her work, as well as public speaking, social media, and writing books (Surviving and Thriving with an Invisible Chronic Illness, and the upcoming Medical Gaslighting: A Guide to Help You Recognize It, Prevent It, and Fight For Your Life) Ilana helps patients survive and thrive with chronic illness, and spot and combat deadly medical gaslighting. If you have experienced medical gaslighting, you’re not alone, and Ilana is in your corner. For more information about Ilana Jacqueline, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/27476679
info_outline
126. Melissa Coulier, Finding a Holistic Approach to Lupus and Life
07/11/2023
126. Melissa Coulier, Finding a Holistic Approach to Lupus and Life
Melissa is a functional fitness instructor, photographer, and Lupus warrior. After living her whole life in pain, Melissa was finally diagnosed with Lupus in 2006. She began a variety of treatments that helped combat her symptoms, but the physical and mental toll of pain and treatment left Melissa in a place of exhaustion, depression and self-pity. A few years later, Melissa shifted gears and adopted an approach to managing her pain that included nutrition and lifestyle changes, as well as medical observation when needed. Melissa also shifted her mindset, creating obtainable goals, avoiding all-or-none thinking, and listening to her body. Melissa has drawn from her transformation to build a career in holistic nutrition and wellness, helping her clients embrace their individuality and be in charge of their own stories. For more information about Melissa Coulier, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/27410082
info_outline
125. Akiva Zablocki, Helping Families with Hyper IgM Find Community and Care
07/04/2023
125. Akiva Zablocki, Helping Families with Hyper IgM Find Community and Care
Akiva Zablocki is a former healthcare consultant and the founder of the Hyper IgM foundation. When Akiva’s son Idan was just eight months old, he was diagnosed with Hyper IgM, an incredibly rare genetic mutation that severely compromises the immune system. After three years of diligent research and advocacy, Akiva and his wife were able to obtain a life-saving bone marrow transplant for Idan. Through this experience, Akiva connected with other Hyper IgM patients and their families all around the world, as well as many doctors and immunologists working to help those patients. This growing community led Akiva to found the Hyper IgM Foundation, which has become a much-needed way for patients and families to connect and share resources that were previously so difficult to find for such a rare illness. Akiva continues to work tirelessly to support his fellow Hyper IgM families and help them feel less alone. For more information about Akiva Zablocki and his family’s journey, visit our website at madevisiblestories.com/podcast Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/27353166
info_outline
124. Melissa Aives and Danielle Scaramellino, Navigating Invisible Illness With My Best Friends
06/27/2023
124. Melissa Aives and Danielle Scaramellino, Navigating Invisible Illness With My Best Friends
Join me for a very special episode where I sit down with my best friends, Melissa Aives and Danielle Scaramellino, as we reflect on a life-changing moment eleven years ago when I underwent a life-threatening surgery, introducing my friends to a world of uncertainty about my health. Despite our close bond, they had never witnessed this side of me, leading to an adjustment and redefinition of our friendship. Discover the power of vulnerability, the importance of asking for support, and the lessons we've learned about adapting, prioritizing health, and building a strong support system. This heartfelt episode is a testament to the enduring strength of true friendship and the growth that comes from understanding and compassion. For more information about Melissa Aives and Danielle Scaramellino visit our website at madevisiblestories.com/podcast Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online: Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/27105546
info_outline
123. Jamie Nicole, Creating Support for the BIPOC Community Living with Autoimmune Diseases
06/20/2023
123. Jamie Nicole, Creating Support for the BIPOC Community Living with Autoimmune Diseases
Jamie Nicole is a highly regarded certified health coach dedicated to helping individuals achieve optimal health through complementary medicine and holistic health lifestyle changes. Her passion for health and wellness was sparked when she witnessed the transformative power of holistic health in her own life. After being diagnosed with Hashimoto's Thyroiditis and later fighting for a narcolepsy diagnosis, Jamie became aware of the lack of representation and access to support for BIPOC individuals with autoimmune conditions. Determined to make a difference, she started engaging in conversations and leading the way for BIPOC individuals suffering from debilitating symptoms. Her story offers hope, understanding, and inspiration to anyone facing similar health challenges while shedding light on the experiences and limitations that many BIPOC individuals encounter on their healing journeys. For more information about Jamie Nicole visit our website at madevisiblestories.com/podcast Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/27104937
info_outline
122. Kate Milligan, The Power of Determination, Community, and Asking Questions
06/13/2023
122. Kate Milligan, The Power of Determination, Community, and Asking Questions
Kate Milligan is an Emmy-nominated producer, writer, speaker, storyteller, and founder of 1 Girl Revolution: a multimedia platform dedicated to highlighting the authentic stories of everyday women and girls who are changing the world through their lives. Diagnosed with Job’s Syndrome at a young age, Kate faced years of uncomfortable symptoms that doctors couldn't identify or treat. However, with her mother's unwavering advocacy and self-directed research into dietary solutions, Kate found her path to improved health and confidence. Join her as she explores the power of determination, community support, and limited resources, highlighting the unique impact of conditions like Job’s Syndrome and the personal nature of healing journeys. For more information about Kate Milligan visit our website at madevisiblestories.com/podcast Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/27096696
info_outline
121. Dr Alex Truong, Highlighting the Unaddressed Long-COVID Symptoms and Trauma
06/06/2023
121. Dr Alex Truong, Highlighting the Unaddressed Long-COVID Symptoms and Trauma
Dr. Truong is a pulmonary and critical care trained physician with 12 years of experience as assistant professor at Emory Midtown Hospital. Since August of 2020, he and Dr. Adviteeya Dixit have been running the Emory Post-COVID clinic where they care for patients with lingering symptoms from their COVID infection. Dr. Truong’s passion for helping people get the care they deserve and recover from post-COVID physical and mental symptoms is undeniably inspiring. To provide a comprehensive understanding of the topic, he further explores the distinctions between long COVID, active COVID, and other medical diagnoses, as well as avenues for seeking both conventional and alternative medical treatments.. Dr. Truong acknowledges the importance of celebrating the fact that we saved more lives than we lost. For more information about Dr. Alex Truong visit our website at madevisiblestories.com/podcast Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/27007575
info_outline
120. Marina Khidekel, Designing an Anxiety-Soothing Product that Hugs Back
05/27/2023
120. Marina Khidekel, Designing an Anxiety-Soothing Product that Hugs Back
Marina Khidekel created Hugimals World, a TIME Best Inventions- winning line of weighted stuffed animals that "hug you back" to ease anxiety and bring calm. Prior to becoming a founder, Marina was a health & wellness journalist. She previously worked at Arianna Huffington’s workplace well-being enterprise SAAS startup Thrive and held senior editorial roles at Women’s Health, Glamour and Cosmopolitan. She openly discusses the strategies she employed to manage her mental wellness while launching her brand. While starting a business inevitably presents numerous difficulties, the experience ultimately strengthens both the entrepreneur and the business itself. For more information about Marina Khidekel visit our website at madevisiblestories.com/podcast Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online: Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/26968752
info_outline
119. Erica Domesek, DIY expert opens up about hidden mental health struggles
05/22/2023
119. Erica Domesek, DIY expert opens up about hidden mental health struggles
Erica Domesek, founder of P.S. - I Made This and ELD Creative discusses mental health struggles, creative inspiration, and the support systems needed to navigate tough times. Erica reflects on her eating disorder in college and her experience with postpartum depression, ADHD and anxiety, emphasizing that recovery and support may look different for everyone. She talks about her journey from the fashion industry to creating her DIY lifestyle brand and appearing on The Today Show, Rachael Ray, The Martha Stewart Show, E! News, and many others to encourage people to get creative with the items in their own home. She also talks about the importance of therapy and medication, finding the right care team and how daily routines can help manage anxiety. For more information about Erica Domesek visit our website at madevisiblestories.com/podcast Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/26917959
info_outline
118. Melissa Bernstein, Utilizing Verses and Creativity to Make Meaning of Existential Depression
05/15/2023
118. Melissa Bernstein, Utilizing Verses and Creativity to Make Meaning of Existential Depression
Melissa Bernstein, co-founder of Melissa & Doug, discusses her struggles with existential depression and how she uses writing and creating to cope. She also talks about the importance of embracing all emotions, utilizing daily practices for resilience, and creating her latest company, Lifelines, to help people be more present and get more in touch with their senses and emotions. For more information about Melissa Bernstein and Lifelines, visit our website at madevisiblestories.com/podcast Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses, and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/26848737
info_outline
Mental Health Awareness Month Tribute
05/15/2023
Mental Health Awareness Month Tribute
A brief reminder about Mental Health Awareness Month and the tribute to my friend, Phil Kohn. Join the monthly Made Visible Writing Session on May 24th .
/episode/index/show/madevisiblepodcast/id/26842680
info_outline
117. Dr. Michelle Chung, Acknowledging and Healing Our Pandemic Trauma
05/09/2023
117. Dr. Michelle Chung, Acknowledging and Healing Our Pandemic Trauma
We’re 3+ years into the COVID-19 pandemic and it’s impossible to deny that life still doesn't feel quite the same as pre-pandemic. We’re all saddled with the trauma of a life-threatening illness, the isolation and fear we experienced. In honor of Mental Health Awareness Month, clinical psychologist Dr. Michelle Chung helps us navigate this new world in a healthier way. In this episode, Dr. Chung discusses the many hidden traumas people incurred during the pandemic, including losing relationships, worsened social skills, and of course, the long-term effects of all the stress and emotions. She shares some of the coping strategies she uses with her patients, as well as some great advice for processing trauma and stress in other parts of life. For more information about Dr. Chung and Psychology In Practice, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/26745792
info_outline
116. Allison Raskin, Debunking Common Misconceptions about OCD
05/02/2023
116. Allison Raskin, Debunking Common Misconceptions about OCD
Surely we’ve all heard someone say, “Oh, I’m so OCD!” at least once in our lives. But what is it really like to live with this clinical diagnosis? How is everyday life managed, and how often does it affect people and their ability to live an uninterrupted, fulfilled life? In honor of Mental Health Awareness Month, Allison Raskin, noted podcaster, writer, and mental health advocate, joins the podcast this week to shed light on these questions. As a content creator, Allison has been able to share her methods and experiences in hopes of supporting to those who are feeling lost or misunderstood as a result of mental illness. For more information about Allison and her journey, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/26520666
info_outline
115. Harper Spero, Sharing My Own Invisible Illness Story
04/25/2023
115. Harper Spero, Sharing My Own Invisible Illness Story
This episode provides an in-depth look into my life navigating a rare primary immunodeficiency, Hyper IgE Syndrome after ten years of not being diagnosed and almost three decades of hiding my condition. I share all the bumps along the way to launching Made Visible, and the how and why behind the show. For more information about my journey, what I'm up to next, or to sign up for writing classes, visit our website at . Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram:
/episode/index/show/madevisiblepodcast/id/26593818
info_outline
114. Jacqueline & Alexa Child, Dating with a Disability and Invisible Illness
04/18/2023
114. Jacqueline & Alexa Child, Dating with a Disability and Invisible Illness
Dating on an app is challenging. But have you experienced dating on mainstream apps while also living with a disability, chronic, or invisible illness? After disclosing that she was disabled on mainstream dating apps, Jacqueline Child would often be ghosted and disappointed in the dating experience. Jacqueline and her sister Alexa decided it was time to develop Dateability, an app that eliminates the worry of being misunderstood, ghosted, or berated with questions, focusing instead on a user base that is inclusive and informed. In this episode, Jacqueline and Alexa speak about the importance of launching their app together, the value they each provide and why they think it’s so important to create opportunities for people with disabilities and invisible illnesses to safely connect. For more information about Jacqueline and Alexa's venture, visit our website at . Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses, and we need your help! Support our mission by sharing this episode and leaving a review!
/episode/index/show/madevisiblepodcast/id/26532414
info_outline
113. Kate Washington, Caring For Yourself While Caregiving For Your Loved One
04/11/2023
113. Kate Washington, Caring For Yourself While Caregiving For Your Loved One
Almost all of us will assume a caregiving role for a close loved one at some point in our lives. When is the correct time to start mentally preparing? Do you think you'd feel comfortable administering treatments that deeply affect your loved one's quality of life? How do these people balance caregiving and their careers? Kate Washington, author of provides insight into the world of caregiving. Kate details her experience as a caregiver to her ill (former) husband, and explains the sheer number of caregivers in the United States; how to introduce systemic policies to benefit these overworked, often struggling people; and to offer advice to those who have already experienced burnout. For more information about Kate Washington and her experience, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. This podcast aims to change the conversation around invisible illnesses, and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn:
/episode/index/show/madevisiblepodcast/id/26469885
info_outline
112. Dr. Christiane Wolf, Managing Pain With Meditation
04/04/2023
112. Dr. Christiane Wolf, Managing Pain With Meditation
Have you ever tried meditation to help manage chronic pain? After realizing that meditation, mindfulness, and compassion practices are transformational in how we relate to what is happening to us, Dr. Christiane Wolf found a passion in teaching it to others. Internationally known as a Mindfulness and Insight Meditation teacher, she explains the connection between chronic pain and mindfulness and how it can help people who are silently struggling. Through her years of education and experience with the mind-body connection, she believes that everyone can benefit from the practice of mindfulness, regardless of their background or current struggles. For more information about Dr. Christiane Wolf and her journey, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Support for this episode comes from . Credo was founded in 2015 in San Francisco. Credo currently operates a robust online business, along with 12 stores across the country. The company’s trailblazing brand standard, The Credo Clean Standard, is actively building a cleaner, more sustainable, more ethical beauty industry. Credo’s owned brand portfolio includes Exa Beauty, Follain and EleVen by Venus Williams SPF. Visit to start shopping. This podcast aims to change the conversation around invisible illnesses, and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/26357691
info_outline
111. Dr. Stella Safo, Debunking Stigmas about HIV and Advocating Equitable Healthcare for All
03/28/2023
111. Dr. Stella Safo, Debunking Stigmas about HIV and Advocating Equitable Healthcare for All
In this episode, Dr. Stella Safo, a board-certified HIV primary care physician and the founder of , talks about healthcare redesign and equity. She discusses her personal journey into healthcare and how her commitment to social justice led her to found her company. She also dives into the stigma surrounding HIV and chronic illnesses, and the work she's done to advocate for equitable care delivery across all sectors of medicine. Join us as we explore Dr. Safo's journey to becoming a healthcare advocate and her dedication to making healthcare accessible for all. For more information about Dr. Stella Safo and Just Equity For Health, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Support for this episode comes from . Credo was founded in 2015 in San Francisco. Credo currently operates a robust online business, along with 12 stores across the country. The company’s trailblazing brand standard, The Credo Clean Standard, is actively building a cleaner, more sustainable, more ethical beauty industry. Credo’s owned brand portfolio includes Exa Beauty, Follain and EleVen by Venus Williams SPF. Visit to start shopping. This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/26297574
info_outline
110. Isaac Zablocki, Coping with Dysgraphia and Advocating for Change Through Film
03/21/2023
110. Isaac Zablocki, Coping with Dysgraphia and Advocating for Change Through Film
Step into the life of Isaac Zablocki as he shares his personal journey of living with dysgraphia - a neurological condition that affects one’s ability to write. Isaac opens up about how his experience with dysgraphia has helped shape his professional career as the co-founder of , a groundbreaking film festival that celebrates the talents of people with disabilities and champions for their representation on screen. For more information about Isaac and ReelAbilities, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the next Made Visible Writing Class! An 8-week writing class for people living with or affected by invisible illness. Write, share and connect with others in a safe and supportive space. This class will also include guest teachers who will share their experience with writing, sharing and publishing their invisible illness stories. Class begins March 29th. ! This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/26243223
info_outline
Bonus: Exclusive Essay Readings from Laura Frégeau & Lindsay Ellis
03/16/2023
Bonus: Exclusive Essay Readings from Laura Frégeau & Lindsay Ellis
This bonus episode of the Made Visible podcast features the exclusive readings of two powerful essays written by students of the . Laura Frégeau's "Seeking Care" takes a humorous tongue-in-cheek approach to the task of finding a caregiver for her future needs, listing specific requirements for the ideal candidate. Lindsay Ellis's "Dis-ease done right" offers a raw and honest reflection on the challenges of living with an invisible illness, from navigating the healthcare system to coping with the emotional toll that comes with it. Both essays provide unique and insightful perspectives that you won’t want to miss! For more information about Laura and Lindsay’s essays, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the next Made Visible Writing Class! An 8-week writing class for people living with or affected by invisible illness. Write, share and connect with others in a safe and supportive space. This class will also include guest teachers who will share their experience with writing, sharing and publishing their invisible illness stories. Class begins March 29th! This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/26193177
info_outline
109. The Power of Processing Through Writing
03/14/2023
109. The Power of Processing Through Writing
Before I could learn how to live with my invisible illness, I needed a way to process what I was going through. So I created what I wished had existed for me, the . A safe place where people living with invisible illnesses could write, share and connect with one another while confronting life’s challenges through writing. In this episode, four of my students from the , share their experiences and their reflections on how writing has impacted their lives. Whether grappling with chronic pain or navigating through mental health challenges, each student shares how writing has given them a voice and a community in the midst of their struggles. For more information from this episode, visit our website at Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the next Made Visible Writing Class! An 8-week writing class for people living with or affected by invisible illness. Write, share and connect with others in a safe and supportive space. This class will also include guest teachers who will share their experience with writing, sharing and publishing their invisible illness stories. Class begins March 29th! to learn more! This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review! Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/26167620
info_outline
108. Serena Wolf and Katie Dalebout, Approaching Anxiety with Vulnerability and Laughter
03/07/2023
108. Serena Wolf and Katie Dalebout, Approaching Anxiety with Vulnerability and Laughter
Join Serena, Katie, and host, Harper Spero, for a special IG Live event on March 10th at 12:00 PM EST! Serena Wolf and Katie Dalebout have embraced vulnerability when it comes to living with anxiety. They’re the hosts of Spiraling, dubbed an “optimistic” anxiety podcast, and they talk openly with me about what it means for them to live with anxiety, how they cultivate awareness around their mental health, and what strategies they’ve developed (or are in the process of developing) to manage day-to-day moments with anxiety. This episode features tons of laughs and relatable moments of anxiety real talk. This episode previously aired on December 3rd, 2019. For more information about Serena and Katie, visit our website at This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode! Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: Support for this episode comes from . Find Your/self Boxes is a queer-owned, mental health focused, self-care box company, created to promote good mental health, because mental health is something we ALL have. Find Your/self Boxes serves as an easy way for people to send love and care to those in their life who may be struggling or who need a little pick me up, by offering customizable and curated self-care boxes, filled with research backed wellness products that promote healing. Use code findyourselfcare for 10% off your order at – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/26037468
info_outline
107. Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness
02/28/2023
107. Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness
Join Lara Bloom and host, Harper Spero, for a special IG Live event on March 1st at 11:00AM EST! Before being diagnosed with Ehlers-Danlos syndrome at 24 years old, Lara Bloom endured 12 years of undiagnosed pain and mysterious symptoms. According to Lara, who is now the president and CEO of The Ehlers-Danlos Society, this experience isn’t uncommon. On today’s episode, Lara and I talk about why she’s dedicated her career to EDS awareness, why it’s important to her that The Ehlers-Danlos Society is in it for the long haul, and how her life changed when she stopped waiting for a cure for EDS. This episode previously aired on February 18th, 2020. For more information about Lara and her journey with Ehlers-Danlos Syndrome, visit our website at This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode! Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis,treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: Support for this episode comes from . Find Your/self Boxes is a queer-owned, mental health focused, self-care box company, created to promote good mental health, because mental health is something we ALL have. Find Your/self Boxes serves as an easy way for people to send love and care to those in their life who may be struggling or who need a little pick me up, by offering customizable and curated self-care boxes, filled with research backed wellness products that promote healing. Use code findyourselfcare for 10% off your order at – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/25967010
info_outline
106. Akilah Cadet Advocating for Herself As She Searches for a Primary Diagnosis
02/21/2023
106. Akilah Cadet Advocating for Herself As She Searches for a Primary Diagnosis
Join Akilah Cadet and host, Harper Spero, for a special IG Live event on February 22nd at 12:30pm EST! Akilah has been diagnosed with pericarditis, coronary artery spasms, and orthostatic hypotension, but she’s still searching for a reason why she’s experiencing intense and chronic pain on the left side of her body. On today’s episode, we talk about how why she no longer thinks of her health journey as a temporary bump in the road, why she decided to start talking about her health with clients, and how she advocates for herself, despite the bias she encounters as a woman of color, so she can find answers. This episode previously aired on December 4th, 2018. For more information about Akilah and her journey with advocating for herself, visit our website at This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode! Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Visit and use code madevisible at checkout for 15% off. – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/25900452
info_outline
105. Devri Velazquez, Living with Takayasu's Arteritis and Embracing Advocacy Through Owning Her Identity
02/14/2023
105. Devri Velazquez, Living with Takayasu's Arteritis and Embracing Advocacy Through Owning Her Identity
Join Devri Velazquez and host, Harper Spero, for a special IG Live event on February 15th at 11:00am EST! When Devri Velazquez was diagnosed with Takayasu's arteritis at 20 years old, the prognosis was devastating. Doctors didn’t think she would live to age 21. On today’s episode, we talk about what Devri’s life looks like now, ten years after her diagnosis, and what it was like to hear such a scary prognosis when she was first diagnosed. We also talk about why, today, managing her physical stress and setting boundaries is so important, and how owning her identity is so central to the advocacy work she does. This episode previously aired on July 28th, 2020. For more information about Devri and her journey with Takayasu’s Arteritis, visit our website at This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode! Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Visit and use code madevisible at checkout for 15% off. – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/25858815
info_outline
104. Hannah Olson, Showing Employers (and Beyond) the Value of Hiring People with Chronic Illness and Disability
02/07/2023
104. Hannah Olson, Showing Employers (and Beyond) the Value of Hiring People with Chronic Illness and Disability
Join Hannah Olson and host, Harper Spero, for a special IG Live event on February 8th at 12:00pm EST! When employers come to Hannah Olson and ask her why they should hire people who have chronic illness, she has a lot to say. Hannah is the founder is Chronically Capable, a platform that connects people who are chronically ill or disabled with meaningful remote work. On today’s episode, Hannah and I talk about what it was like to balance her first post-grad job with managing Lyme disease, why the year 2020 looms so large, and what makes people with chronic illness so well equipped for the workforce. This episode previously aired on November 5th, 2019. For more information about Hannah and hiring people with chronic illness and disability, visit our website at This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode! Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Visit and use code madevisible at checkout for 15% off. – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/25797903
info_outline
103. Genevieve Gorder, Designing a Life with Hashimoto’s Thyroiditis and Lyme Disease
01/31/2023
103. Genevieve Gorder, Designing a Life with Hashimoto’s Thyroiditis and Lyme Disease
Join Genevieve Gorder and host, Harper Spero, for a special IG Live event on February 1st at 11:30am EST! Interior design star Genevieve Gorder wants to live in the light, not in her illness. What does that mean, exactly? For Genevieve, who has both Lyme disease and Hashimoto’s thyroiditis, it means refusing to stake her identity in her health challenges. On today’s episode, Genevieve talks to me about the role that learning plays in her journey with Lyme and Hashimoto’s, how a home can be healing, and how she maintains her sense of positivity and remains mightier than her illness. This episode previously aired on February 5th, 2019. For more information about Genevieve Gorder and her journey with Hashimoto’s Thyroiditis and Lyme Disease, visit our website at This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode! Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: Support for this episode comes from . Find Your/self Boxes is a queer-owned, mental health focused, self-care box company, created to promote good mental health, because mental health is something we ALL have. Find Your/self Boxes serves as an easy way for people to send love and care to those in their life who may be struggling or who need a little pick me up, by offering customizable and curated self-care boxes, filled with research backed wellness products that promote healing. Use code findyourselfcare for 10% off your order at – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/25738029
info_outline
102. Ally Hilfiger, Changing the Lenses on Her Experience with Lyme Disease
01/24/2023
102. Ally Hilfiger, Changing the Lenses on Her Experience with Lyme Disease
Join Ally Hilfiger and host, Harper Spero for a special IG Live event on January 25th at ***2pm EST!*** (Rescheduled from 12:30pm EST) Ally Hilfiger was bitten by a tick at age seven and battled severe physical and neurological symptoms throughout her childhood, but she wasn’t diagnosed with Lyme until after a hospitalization at age 18. On today’s episode, Ally and I talk about why she wrote a book chronicling her experience, the shift that occurred when she chose homeopathic treatments and lifestyle changes over antibiotics, and how harnessing the power of changing her subconscious perspective has helped her heal. This episode previously aired on March 5th, 2019. For more information about Ally and her journey with Lyme Disease, visit our website at This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode! Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance. Join the conversation and connect with us online! Website: Facebook: Instagram: LinkedIn: Support for this episode comes from . Find Your/self Boxes is a queer-owned, mental health focused, self-care box company, created to promote good mental health, because mental health is something we ALL have. Find Your/self Boxes serves as an easy way for people to send love and care to those in their life who may be struggling or who need a little pick me up, by offering customizable and curated self-care boxes, filled with research backed wellness products that promote healing. Use code findyourselfcare for 10% off your order at – Podcast Editor & Strategist:
/episode/index/show/madevisiblepodcast/id/25662042
info_outline
Announcing exciting news about Made Visible
12/20/2022
Announcing exciting news about Made Visible
Tune in to hear more about the latest happenings with Made Visible. Check out our services, writing classes and offerings at
/episode/index/show/madevisiblepodcast/id/25301835