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Rare Care Podcast

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

info_outline An Interview With Dr. Daniel Grant, VP and Global Program Head at Novartis 07/02/2025
info_outline An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas 06/26/2025
info_outline An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas 06/26/2025
info_outline An Interview With Dr. Sithara Ramdas on Neonatal and Juvenile Myasthenia Gravis 06/20/2025
info_outline An Interview With Lyza Weisman on Living With Spinal Muscular Atrophy 06/18/2025
info_outline An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders 06/13/2025
info_outline An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma Society 06/09/2025
info_outline An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To' 05/26/2025
info_outline An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD 05/19/2025
info_outline An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis 05/15/2025
info_outline An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation 05/08/2025
info_outline An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis 05/08/2025
info_outline An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation 04/30/2025
info_outline An Interview With MDA Patient Advocate Donavon Decker, Winner of the 2025 MDA Legacy Award for Community Impact in Research 04/28/2025
info_outline An Interview With MDA 2025 National Ambassador Lily Sander 04/15/2025
info_outline An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Iowa 04/11/2025
info_outline An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD 04/07/2025
info_outline An Interview With Clinical Hematologist and Professor Dr. Luke Chen 04/01/2025
info_outline An Interview With John Anderson, MD, Expert on Hereditary Angioedema 03/17/2025
info_outline An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still 03/13/2025
info_outline An Interview With Heather Landau, MD, on the Latest Therapies for Amyloidosis 03/06/2025
info_outline An Interview With Hereditary Angioedema Expert Dr. Timothy Craig 02/27/2025
info_outline An Interview With Dr. Sangeetha Venugopal on the relationship between smoking and myelodysplastic syndromes (MDS) 02/20/2025
info_outline An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN 02/12/2025
info_outline An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT) 02/05/2025
info_outline An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California 01/31/2025
info_outline An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute 01/24/2025
info_outline An Interview With Terry Jo Bichell, PhD, Founder and Director of CombinedBrain 01/17/2025
info_outline An Interview With Erin Collins, Founder of the Chasing Rainbows Foundation 01/06/2025
info_outline An Interview With NMOSD Expert Dean Wingerchuk, MD, of the Mayo Clinic 01/02/2025
 
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