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Rare Care Podcast

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

info_outline An Interview With Nikki McIntosh, Founder of Rare Mamas and SMA Patient Advocate 09/16/2025
info_outline An Interview With Dr. Jennifer Brown, Director of the CLL Center at Dana-Farber Cancer Institute 09/08/2025
info_outline An Interview With Michio Hirano, MD, a Global Expert on Thymidine Kinase 2 Deficiency 09/03/2025
info_outline An Interview With Dr. Pradeep P.A. Mammen on Females With Duchenne Muscular Dystrophy 08/27/2025
info_outline An Interview With Kfir Oved, CEO of Canopy Biotech, Which is Pursuing Novel Treatments in MG 08/18/2025
info_outline An Interview With Ileen Colin del Río, President of Duchenne Mexico 08/13/2025
info_outline An Interview With Aspiring DJ Yuva Gambhir 08/05/2025
info_outline An Interview With Dr. Richard Nowak, Director of the Yale Myasthenia Gravis Clinic 07/28/2025
info_outline An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarkable Life of Ibelin' 07/23/2025
info_outline An Interview With Dr. Carolina Barnett-Tapia, Associate Professor of Neurology at the University of Toronto, on MG Treatment 07/14/2025
info_outline An Interview With Dr. Angela Vincent, Winner of the Myasthenia Gravis Foundation of America's First Lifetime Achievement Award 07/08/2025
info_outline An Interview With Dr. Daniel Grant, VP and Global Program Head at Novartis 07/02/2025
info_outline An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas 06/26/2025
info_outline An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas 06/26/2025
info_outline An Interview With Dr. Sithara Ramdas on Neonatal and Juvenile Myasthenia Gravis 06/20/2025
info_outline An Interview With Lyza Weisman on Living With Spinal Muscular Atrophy 06/18/2025
info_outline An Interview With Allucent's Marcus Delatte, PhD, on Using Cannabinoids to Treat Patients With Rare Seizure Disorders 06/13/2025
info_outline An Interview With Lucy Culp, VP of State Government Affairs at the Leukemia & Lymphoma Society 06/09/2025
info_outline An Interview With Amyloidosis Patient Dan Lier, a Partner With the Nonprofit Group 'Somebody To Talk To' 05/26/2025
info_outline An Interview With Huntington Disease Patient and Advocate Lauren Holder of Help 4 HD 05/19/2025
info_outline An Interview WIth Antonella Favit-Van Pelt, MD, PhD, on Neuromodulation to Treat Multiple Sclerosis 05/15/2025
info_outline An Interview With Joyce Kullman, Executive Director of the Vasculitis Foundation 05/08/2025
info_outline An Interview With Chris Lewis, Son of Famous Comedian Jerry Lewis 05/08/2025
info_outline An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation 04/30/2025
info_outline An Interview With MDA Patient Advocate Donavon Decker, Winner of the 2025 MDA Legacy Award for Community Impact in Research 04/28/2025
info_outline An Interview With MDA 2025 National Ambassador Lily Sander 04/15/2025
info_outline An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Iowa 04/11/2025
info_outline An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD 04/07/2025
info_outline An Interview With Clinical Hematologist and Professor Dr. Luke Chen 04/01/2025
info_outline An Interview With John Anderson, MD, Expert on Hereditary Angioedema 03/17/2025
 
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