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Rare Care Podcast

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

info_outline An Interview WIth Diane Zipursky Quale of the Bladder Cancer Advocacy Network 07/20/2026
info_outline An Interview With AI Expert Dr. Laurah Turner on Artificial Intelligence in Medical Education 07/13/2026
info_outline An Interview With John MacMahon, CEO of CytoKind, on the Benefits of Artificial Sunlight 07/06/2026
info_outline An Interview With Dr. Eric Small, Former President of ASCO 06/29/2026
info_outline An Interview With Jessie Dubief, Social Research Director at Eurordis, on Mental Health in Rare Diseases 06/23/2026
info_outline An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation 06/16/2026
info_outline An Interview With Naomi Aziz, Patient Advocacy and Engagement Lead at the Endometrial Cancer Research Foundation 06/16/2026
info_outline An Interview With Dr. Michelle Ng Gong, New President of the American Thoracic Society 06/09/2026
info_outline An Interview With Dr. Andrew Wilson, Scientific Director of the Alpha-1 Foundation 05/31/2026
info_outline An Interview With Dr. Vallerie McLoughlin, Director of the University of Michigan's Pulmonary Hypertension Program 05/26/2026
info_outline An Interview With Craig Martin, Founder and CEO of the Orphan Therapeutics Accelerator 05/18/2026
info_outline An Interview With Henriette Farkas, Director of the Hungarian Angioedema Reference Center in Budapest 05/14/2026
info_outline An Interview With Dr. Antón Blatnik on the Molecular Mechanisms Driving Neuromuscular Disease 05/04/2026
info_outline An Interview With SMA Expert and Neurologist Dr. Kathryn Swoboda 04/27/2026
info_outline An Interview With Dutch Neurologist Ewout Groen of SMA Europe 04/20/2026
info_outline An Interview With Dr. Jaime Moore on Obesity Medications and Neuromuscular Disease 04/13/2026
info_outline An Interview With Dr. Natalie Truba on the Psychological Aspects of Gene Therapy 04/07/2026
info_outline An Interview With Donna Shipp on Her IgG4-RD Patient Journey 03/31/2026
info_outline An Interview With Abby Bronson of Edgewise Therapeutics About Becker Muscular Dystrophy Awareness 03/30/2026
info_outline An Interview With Allison Moore, Founder and CEO of the Hereditary Neuropathy Foundation 03/23/2026
info_outline An Interview With John Crowley, President and CEO of the Biotechnology Innovation Organization 03/17/2026
info_outline An Interview With Dr. Hyun Kim, Director of the University of Minnesota's Interstitial Lung Disease Program 03/02/2026
info_outline An Interview With Andrea Wilson Woods, Founder of Blue Faery, a Nonprofit That Advocates for Patients With Hepatocellular Carcinoma 02/24/2026
info_outline An Interview With Dr. Michael Schilsky of the Yale School of Medicine, and an Expert on Wilson Disease 02/17/2026
info_outline An Interview With Yen Chen, PhD, on Brain Fog Among People With Scleroderma 02/11/2026
info_outline An Interview With Dr. Aleksander Krag on Diagnosing and Treating Alpha-1 Disease 02/02/2026
info_outline An Interview With Vesna Aleksovska, a Rare Disease Patient Advocate in North Macedonia 01/28/2026
info_outline An Interview With Wes Michael, Founder of Rare Patient Voice 01/21/2026
info_outline An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward! 01/12/2026
info_outline An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBC 01/05/2026
 
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