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Rare Care Podcast

Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.

info_outline An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward! 01/12/2026
info_outline An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBC 01/05/2026
info_outline An Interview With Sickle Cell Disease Patient Advocate Golie-Lorenzo Green 12/30/2025
info_outline An Interview With Jana Monaco, a NORD Patient Ambassador From Virginia 12/22/2025
info_outline An Interview With Dr. Matthew Might on How AI Could Transform Genome-Guided Medicine 12/17/2025
info_outline An Interview With Dr. Sarah Chang on the Patient and Caregiver Burden of TK2d 12/08/2025
info_outline An Interview With Rheumatologist Jinoos Yazdany on the Dangers of Artificial Intelligence 12/03/2025
info_outline An Interview With Dr. Barry Byrne, Director of the UF Powell Gene Therapy Center 11/24/2025
info_outline An Interview With Rheumatologist Eric Matteson, Winner of the ACR's 2025 Presidential Gold Medal 11/19/2025
info_outline An Interview With New Mexico Patient Ambassador Karen Smoot of the Pulmonary Fibrosis Foundation 11/11/2025
info_outline An Interview With Gabriela Romanow, Founder of Rare Vision, a Project That Helps Artists With Rare Neuroimmune Diseases 11/04/2025
info_outline An Interview With Lisa Shea, Director of Global Patient Advocacy and Engagement for Immunology at Johnson & Johnson 10/29/2025
info_outline An Interview With Dr. Nicole Lamanna, Leukemia Specialist at Columbia University Medical Center 10/22/2025
info_outline An Interview With Dr. May Lee Tjoa, Maternal and Fetal Immunology Expert at Johnson & Johnson 10/15/2025
info_outline An Interview With Dr. John Mascarenhas, Professor at New York's Icahn School of Medicine 10/10/2025
info_outline An Interview With Catherine Miller, PharmD, of Intellia Therapeutics on an Experimental Gene Editing Therapy for HAE 10/01/2025
info_outline An Interview With Dr. Shoshana Revel-Vilk, Director of the Gaucher Unit at Israel's Shaare Zedek Medical Center 09/24/2025
info_outline An Interview With Nikki McIntosh, Founder of Rare Mamas and SMA Patient Advocate 09/16/2025
info_outline An Interview With Dr. Jennifer Brown, Director of the CLL Center at Dana-Farber Cancer Institute 09/08/2025
info_outline An Interview With Michio Hirano, MD, a Global Expert on Thymidine Kinase 2 Deficiency 09/03/2025
info_outline An Interview With Dr. Pradeep P.A. Mammen on Females With Duchenne Muscular Dystrophy 08/27/2025
info_outline An Interview With Kfir Oved, CEO of Canopy Biotech, Which is Pursuing Novel Treatments in MG 08/18/2025
info_outline An Interview With Ileen Colin del Río, President of Duchenne Mexico 08/13/2025
info_outline An Interview With Aspiring DJ Yuva Gambhir 08/05/2025
info_outline An Interview With Dr. Richard Nowak, Director of the Yale Myasthenia Gravis Clinic 07/28/2025
info_outline An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarkable Life of Ibelin' 07/23/2025
info_outline An Interview With Dr. Carolina Barnett-Tapia, Associate Professor of Neurology at the University of Toronto, on MG Treatment 07/14/2025
info_outline An Interview With Dr. Angela Vincent, Winner of the Myasthenia Gravis Foundation of America's First Lifetime Achievement Award 07/08/2025
info_outline An Interview With Dr. Daniel Grant, VP and Global Program Head at Novartis 07/02/2025
info_outline An Interview With Ashley Stanley-Copeland, MD, of Dell Children's Medical Center in Austin, Texas 06/26/2025
 
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