RealTalk MS
Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.
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Episode 377: The Art of Hope with Lydia Emily
11/18/2024
Episode 377: The Art of Hope with Lydia Emily
There are some people who, once you meet them, it's impossible to forget them. They seem to leave an indelible impression. Lydia Emily is one of those people. Whether it's through her art that occasionally escapes the canvas to be expressed as massive urban murals proclaiming End MS, or through her outspoken MS advocacy. Lydia Emily is a force. Now, along with co-author Lenlee Keep, Lydia Emily has channeled that energy into a book entitled, The Art of Hope: The Life and Art of Lydia Emily. Lydia Emily and her co-author, Lenlee Keep, join me this week to talk about the process of writing the book and some of the issues affecting people with MS that Lydia Emily is passionate about. We'll also tell you about study results that provide an answer to how nerve cells die in MS. We'll share results from a study that shows MS progression may not be directly connected to the number of lesions someone may have. And we'll tell you about research that provides evidence for continuing your MS disease-modifying therapy, no matter your age. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The Art of Hope :22 A study uses a novel mouse model to explain how nerve cells die in MS 2:17 Study results show that MS progression may have less to do with the number of lesions and more to do with what's happening inside those lesions 5:23 Study results provide evidence for continuing your DMT, even as you age 9:15 Artist Lydia Emily and co-author Lenlee Keep discuss The Art of Hope: The Life and Art of Lydia Emily 14:17 Share this episode 34:50 Have you downloaded the free RealTalk MS app? 35:11 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at STUDY: Remyelination Protects Neurons from DLK-Mediated Neurodegeneration STUDY: Advanced MRI Measures of Myelin and Axon Volume Identify Repair in Multiple Sclerosis STUDY: Impact of Discontinuing Disease-Modifying Therapies On Healthcare Utilization Among Midlife Patients with Multiple Sclerosis in the United States Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 377 Guests: Lydia Emily and Lenlee Keep
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Special Episode: Pregnancy and MS with Dr. Riley Bove
11/14/2024
Special Episode: Pregnancy and MS with Dr. Riley Bove
MS affects almost 3 times as many women as men, often affecting women of childbearing age. In this special episode of RealTalk MS, Dr. Riley Bove answers some of the important questions about the impact of MS on a woman's pregnancy and the impact of pregnancy on a woman's MS. This special episode of RealTalk MS is sponsored by Viatris. SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode V201 Guests: Dr. Riley Bove
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Episode 376: Adding Dance, Music, and Art Therapy to Your MS Treatment Plan with Dr. Francois Bethoux
11/11/2024
Episode 376: Adding Dance, Music, and Art Therapy to Your MS Treatment Plan with Dr. Francois Bethoux
On this podcast, we tend to talk a lot about new technologies, emerging treatments, the most recently approved disease-modifying therapies, and even some DMTs that haven't yet been approved. And in the midst of all that cutting-edge research and evolving science, it's easy to lose sight of the fact that expressive therapies like dance and movement therapy, music therapy, and art therapy have all been shown to help promote self-efficacy, emotional well-being, and motor control in people living with MS. Dr. Francois Bethoux joins me on today's episode to discuss the benefits of integrating dance and movement therapy, music therapy, and art therapy into your treatment plan to help manage your MS symptoms and enhance your well-being. November is National Family Caregivers Month, and we're sharing a neat piece of tech that can not only make life easier for MS caregivers but can make life better for their care recipients, as well. CEO Costin Tuculescu introduces us to his company's new device, OnScreen. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Adding expressive therapies to your MS treatment plan :22 OnScreen CEO Costin Tuculescu explains how OnScreen can help people with MS and their caregivers 1:34 Dr. Francoi Bethoux discusses the benefits of dance therapy, music therapy, and art therapy for people living with MS 17:45 Share this episode 31:47 Have you downloaded the free RealTalk MS app? 32:06 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at OnScreen Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 376 Guests: Costin Tuculescu and Dr. Francois Bethoux
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Episode 375: Managing Teenage MS with Dr. Ann Yeh
11/04/2024
Episode 375: Managing Teenage MS with Dr. Ann Yeh
Being a teenager is hard. So, imagine for a moment that in addition to everything else that teenagers have to endure, you're a teenager who's been diagnosed with MS. Your ability to participate in after-school activities or just hang out with your friends is impacted by MS-related fatigue. The typical adolescent anxiety over something someone posted on social media evolves into depression. And cognitive issues begin to make it harder for you in the classroom. This is an unfortunate reality for many adolescents who are living with MS. Joining me to discuss how MS affects adolescents and how families can help manage MS is Dr. Ann Yeh. Dr. Yeh is a Professor of Pediatric Neurology at the University of Toronto and the director of the MS and Neuroinflammatory Disorders Program and Fellowship Program at the University of Toronto's Hospital for Sick Children, known as SickKids. We'll also tell you about a new online resource for MS care partners. We'll share the results of a study that explored how different symptom management responsibilities impact MS care partners. We'll share details of a study that demonstrated positive results in improving MS-related fatigue. We'll tell you about the discovery of a plant-based molecule that is showing promise in promoting myelin repair. And we're sharing surprising research results that have more than doubled the prevalence of MS in Australia. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Managing Teenage MS :22 November is National Family Caregivers Month 1:47 You're invited to preview MS Care Partner Connection 3:40 A study reveals the most challenging MS symptoms for care partners to manage 6:33 Study results show Modafinil and cognitive behavioral therapy are both effective in managing MS fatigue 7:25 Researchers discover a plant-based molecule that may be effective in promoting myelin repair 9:46 Prevalence of MS in Australia more than doubled over an 11-year period 12:54 Dr. Ann Yeh discusses the challenges of MS among adolescents 16:05 Share this episode 31:15 Have you downloaded the free RealTalk MS app? 31:36 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always considered the RealTalk MS podcast a conversation. This is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at The MS Care Partner Connection Addressing the Needs of Multiple Sclerosis Caregivers from Diagnosis Onward: The Development of a Comprehensive Online Caregiver Protocol STUDY: Symptom Management Among Multiple Sclerosis Care Partners in Canada STUDY: Comparative Effectiveness of Cognitive Behavioural Therapy, Modafinil, and Their Combination for Treating Fatigue in Multiple Sclerosis (COMBO-MS): A Randomised, Statistician-Blinded, Parallel-Arm Trial STUDY: Distinct Chemical Structures Inhibit the CEMIP Hyaluronidase and Promote Oligodendrocyte Progenitor Cell Maturation STUDY: Significantly Increasing Multiple Sclerosis Prevalence in Australia from 2010 to 2021 https://journals.sagepub.com/doi/10.1177/13524585241265890 Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 375 Guest: Dr. Ann Yeh
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Episode 374: Grieving When You're Living With MS with Dr. Holly Hendin
10/28/2024
Episode 374: Grieving When You're Living With MS with Dr. Holly Hendin
Learning to live with MS is learning to live with loss. For some, those losses may be minor and seem relatively insignificant. For others, those losses can be huge and life-altering. The definition of grief is an emotional response to a significant loss. It's not unusual to grieve over those things in your life that have been lost due to MS. In fact, healthy grieving is a necessary emotional step to moving forward in life. Dr. Holly Hendin, a faculty physician and psychiatrist at St. Joseph’s Hospital Medical Group Outpatient Behavioral Health in Phoenix, Arizona, joins me to explore grieving when you live with MS. We'll also share the results of a study that show other health conditions can have a negative impact on MS disease activity, like relapses and disability worsening. And we're sharing the details of the $4.6 million dollar investment the National MS Society is making in research focused on myelin repair. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Grieving when you're living with MS :22 A study shows how other health conditions may cause MS to worsen 2:00 The National MS Society is investing $4.6 million dollars in research focused on myelin repair 6:21 Dr. Holly Hendin helps us understand the importance of healthy grieving when you're living with MS 9:39 Share this episode 35:30 Have you downloaded the free RealTalk MS app? 35:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always considered the RealTalk MS podcast a conversation. This is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at STUDY: Comorbidity and Disease Activity in Multiple Sclerosis Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 374 Guest: Dr. Holly Hendin
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Episode 373: ECTRIMS Research Roundup Part 2 with Dr. Bruce Bebo
10/21/2024
Episode 373: ECTRIMS Research Roundup Part 2 with Dr. Bruce Bebo
Now that he's had a chance to digest all of the research presented at ECTRIMS, Dr. Bruce Bebo, the National MS Society's Executive Vice President of Research, is back to share the key research presented at the largest MS research conference in the world. This episode of RealTalk MS is the perfect follow-up to my initial conversation with Bruce, which occurred just minutes after ECTRIMS ended. (If you missed our conversation, you may want to check out Episode 369 of RealTalk MS.) We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Part 2 of our coverage of ECTRIMS 2024 :22 Dr. Bruce Bebo shares the key research presented at ECTRIMS 1:06 Share this episode 26:13 Have you downloaded the free RealTalk MS app? 26:31 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at RealTalk MS Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 373 Guest: Dr. Bruce Bebo
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Episode 372: Medicare Changes That Will Affect You in 2025 with Sarah Anderson
10/14/2024
Episode 372: Medicare Changes That Will Affect You in 2025 with Sarah Anderson
Open enrollment is underway! And if you're one of the 25% of people living with MS who get their coverage through Medicare, there are some major changes coming in 2025. So, it's especially important that you review your prescription drug coverage to make sure you're enrolled in the Medicare Part D plan that's best for you. Sarah Anderson, pharmacist and senior director of clinical resources and programming at the National MS Society, joins me to help us decipher those changes and navigate the sometimes confusing world of health insurance. We'll also tell you about a research team that's editing human DNA to promote myelin repair. We'll share the results of a study that offers some surprising evidence about the quality of MS care for women in France. We'll explain why a study that shows people with MS are at a higher risk for being diagnosed with cancer may not be as scary as it sounds. In my conversation with Dawn Schottlandt, you'll hear the story of In My Running Shoes and learn how people with MS and other disabilities can benefit from their work. And we'll give you all the details about artist Elizabeth Jameson's exhibition, An Intimate Journey, which opens in New York on Saturday, October 19th. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Open Enrollment has begun :22 Researchers succeed in editing human DNA to promote myelin repair 1:14 Research reveals women with MS are often undertreated in France 3:38 Are people with MS more likely to develop cancer? 6:18 Dawn Schottlandt explains why she founded In My Running Shoes and how you might benefit 9:12 Elizabeth Jameson's art exhibition, An Intimate Journey, opens in New York on Saturday 16:01 Sarah Anderson explains the changes to Medicare in 2025 18:04 Share this episode 27:56 Have you downloaded the free RealTalk MS app? 28:16 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always considered the RealTalk MS podcast a conversation. This is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at STUDY: CRISPR-Edited ES-Derived Oligodendrocyte Progenitor Cells Improve Remyelination in Rodents STUDY: Cancer Risk Among Patients with Multiple Sclerosis In My Running Shoes Elizabeth Jameson exhibition at the Positive Exposure Gallery Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 372 Guests: Dawn Schottlandt and Sarah Anderson
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Episode 371: A Difference-Making Mobility Device with Dee Ecklund and BE Alink
10/07/2024
Episode 371: A Difference-Making Mobility Device with Dee Ecklund and BE Alink
In the seven years that I've been hosting RealTalk MS, no one has ever described a mobility device as life-changing. That is until listener Dee Ecklund reached out to tell me about her experience with the Alinker. One of my goals in producing this podcast is to introduce the RealTalk MS listener community to people who are difference-makers. And Dee's initial DM led to my conversation with Dee and the inventor of the Alinker, a true difference-maker, BE Alink. The National MS Society's 3rd annual Hispanic/Latinx MS Experience Summit is just two days away! We're sharing all the details, including how you can register for this free virtual event. And I'm sharing my thoughts following attending the University of Pittsburgh's bi-annual caregiver research conference. We have a lot to talk about! Are you ready for RealTalk MS??! The Hispanic/Latinx MS Experience Summit is two days away! :22 Don't miss our ECTRIMS Extra Conversations 1:38 Thoughts following attending the caregiver research conference at the University of Pittsburgh 2:15 Dee and BE discuss all things Alinker (including how you can get yours!) 9:26 Share this episode 37:02 Have you downloaded the free RealTalk MS app? 37:23 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Hispanic/Latinx MS Experience Summit MS Care Partner Connection https://mscarepartnerconnection.com The Alinker https://thealinker.com Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 371 Guests: Dee Ecklund and BE Alink
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ECTRIMS Extra: Results from the Tolebrutinib Phase 3 Clinical Trial for Relapsing MS with Dr. Jiwon Oh
10/03/2024
ECTRIMS Extra: Results from the Tolebrutinib Phase 3 Clinical Trial for Relapsing MS with Dr. Jiwon Oh
With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Jiwon Oh. Dr. Oh is a neurologist, scientist, and the Medical Director of the Barlo Multiple Sclerosis Program at St. Michael’s Hospital in Ontario, Canada. Dr. Oh is also the Principal Investigator in Gemini, the Phase 3 clinical trial for Tolebrutinib and relapsing-remitting MS. At ECTRIMS, Dr. Oh shared the outcome of the Gemini clinical trial. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS ECTRIMS Extra Guest: Dr. Jiwon Oh
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Episode 370: Understanding the Updated Pathways to Cures Research Roadmap with Dr. Bruce Bebo and Shawna Golden
09/30/2024
Episode 370: Understanding the Updated Pathways to Cures Research Roadmap with Dr. Bruce Bebo and Shawna Golden
In 2020, the National MS Society convened the Pathways to Cures Think Tank. I shared news and interviews from what I considered a historic meeting back in of RealTalk MS. The information shared and the work generated by that Think Tank led to the Pathways to Cures Global Summit in 2023. In and of RealTalk MS, I shared news and interviews from what I described as yet another historic meeting. The Pathways to Cures Research Roadmap has been updated, and I'm devoting this week's episode of RealTalk MS to my conversation with the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, and the MS Society's Vice-President of Global Initiatives, Shawna Golden, to bring us up to date on how this global MS research initiative has been refined and enhanced and how it's resetting the global MS research agenda. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The Pathways to Cures research roadmap has been updated :22 Dr. Bruce Bebo and Shawna Golden discuss the refined and enhanced Pathways to Cures research roadmap 2:34 Share this episode 29:58 Have you downloaded the free RealTalk MS app? 30:18 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at RealTalk MS Episode 125: From the Pathways to Cures Think Tank RealTalk MS Episode 297: From the Pathways to Cures Global Summit (Part 1) RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2) Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 370 Guests: Dr. Bruce Bebo, Shawna Golden
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ECTRIMS Extra: Revisions to the Way MS is Diagnosed with Dr. Peter Calabresi
09/28/2024
ECTRIMS Extra: Revisions to the Way MS is Diagnosed with Dr. Peter Calabresi
With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Peter Calabresi. Dr. Peter Calabresi is the Director of the Division of Neuroimmunology and the Director of the Multiple Sclerosis Center at Johns Hopkins Medicine. He is the principal investigator on several clinical trials and oversees research projects focused on developing new anti-inflammatory and neuroprotective therapies for MS. At ECTRIMS, Dr. Calabresi co-chaired what was probably the most highly anticipated presentation at this year's conference: the unveiling of updated criteria for diagnosing MS. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS ECTRIMS Extra Guest: Dr. Peter Calabresi
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ECTRIMS Extra: Rachel Horne and Professor Kerstin Helwig
09/25/2024
ECTRIMS Extra: Rachel Horne and Professor Kerstin Helwig
With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Rachel Horne and Professor Kerstin Hellwig. Professor Kerstin Hellwig is the 2024 recipient of the Rachel Horne Prize for Women's Research in MS. Professor Hellwig was honored at ECTRIMS for her pioneering research into understanding and navigating the safety of approved treatments for women with MS before, during, and after pregnancy. Professor Hellwig is a senior consultant at St Josef Hospital, Ruhr University, Bochum, Germany, specializing in MS and neuroimmunology, and is a leading clinician-scientist in the field of MS and family planning. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS ECTRIMS Extra Guests: Rachel Horne, Professor Kerstin Hellwig
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Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo
09/23/2024
Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo
ECTRIMS 2024, the largest MS research conference in the world concluded last week, and in this week's episode, we'll be hearing two slightly different perspectives on which news, announcements, and presentations stood out at this year's meeting. The ECTRIMS conference can feel almost overwhelming. You find yourself among 9 or 10 thousand other attendees, trying to determine which of the more than 1700 scientific presentations you want to learn more about. It's both a marathon and a sprint that seem to be taking place simultaneously. Kristine Werner Ozug is a member of the RealTalk MS team and a person who lives with MS. This week, Kristine shares her perspective on attending ECTRIMS for the first time. At the conclusion of ECTRIMS, you can almost hear a collective sigh coming from all the attendees. It feels like you've crossed the finish line, but now the work of sorting and processing all that you've seen, heard, and read over what feels like a non-stop 72-hour blur actually begins. Joining me to share his initial thoughts on the ECTRIMS news that caught his eye is the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: ECTRIMS 2024 :22 It's our 7th anniversary! 1:28 Kristine Werner Ozug shares a patient's perspective on attending the largest MS research conference in the world 3:56 Dr. Bruce Bebo shares the news and announcements that caught his eye at ECTRIMS 17:19 Share this episode 28:59 Have you downloaded the free RealTalk MS app? 29:19 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 369 Guests: Kristine Werner Ozug, Dr. Bruce Bebo
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ECTRIMS EXTRA: New Course Descriptors for MS with Dr. Fred Lublin
09/21/2024
ECTRIMS EXTRA: New Course Descriptors for MS with Dr. Fred Lublin
With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Fred Lublin. Dr. Fred Lublin is the Director of the Corrine Goldsmith Dickinson Center for Multiple Sclerosis at Mount Sinai. He participated in the development of the very first disease-modifying therapy that was approved for MS. When we talk about relapsing-remitting MS, secondary-progressive MS, or primary-progressive MS, we're using the clinical course descriptions of MS that were developed and subsequently updated by Dr. Lublin and his colleagues. At ECTRIMS, Dr. Lublin gave a presentation on the need to update the way we think about and talk about multiple sclerosis by, once again, updating those clinical course descriptors. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATI I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS ECTRIMS Extra Guest: Dr. Fred Lublin
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Episode 368: Living a More Purposeful Life with MS with Dr. Evan Smith
09/16/2024
Episode 368: Living a More Purposeful Life with MS with Dr. Evan Smith
Living with the unpredictability of MS sometimes feels like riding a rollercoaster. As you experience the twists and turns of life with MS, you can sometimes feel unmoored from the person you thought you were. You can sense your priorities, motivations, and values shifting. And, in those moments, it becomes easy to lose your sense of purpose. Clinical assistant professor and rehabilitation psychologist at the University of Michigan, Dr. Evan Smith, joins me to discuss how to identify and reconnect with your core values and live a more purposeful and satisfying life. We'll also tell you about Creating Order, an art exhibit featuring 12 artists living with MS. (Don't miss our conversation with the co-curators and lead artist in this unique exhibit!) And we're sharing the details of MS Stand Up, a night of comedy and cocktails at the Gotham Comedy Club. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Greetings from ECTRIMS! :22 Our 7th anniversary is one week away! 2:00 Coming Up: The importance of staying connected to your core values 2:30 Creating Order art exhibit features 12 artists living with MS 3:35 My conversation with Creating Order co-curators Pam Schoenberg and Ted Meyer, and lead artist, Susan Trachman 4:27 MS Stand Up is happening September 30 at the Gotham Comedy Club 15:24 Dr. Evan Smith discusses how to lead a purposeful life while living with MS 16:54 Share this episode 33:17 Have you downloaded the free RealTalk MS app? 33:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Creating Order exhibit at the DNJ Gallery MS Stand Up Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 368 Guests: Pam Schoenberg, Ted Meyer, Susan Trachman, Dr. Evan Smith
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Episode 367: Budgeting for Living with MS with Bruce McClary
09/09/2024
Episode 367: Budgeting for Living with MS with Bruce McClary
Living with MS is expensive. A recent study funded by the National MS Society found the average cost of living with MS in the United States is $88,487 a year. Even with insurance, that can turn out to be a heavy lift. One thing you don't need is to be worrying about money while you're already worrying about MS. So, when I think about discussing budgeting and managing your personal finances when you're living with MS, I think we're really talking about preserving your quality of life. Joining me with strategies for budgeting and managing debt when you're living with MS is the Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary. We'll also tell you about the updated Pathways to Cures Research Roadmap and the first ever global landscape analysis of MS research funding. We're sharing very encouraging results from the Phase 2 open-label extension study of Fenebrutinib, an experimental BTK inhibitor. We'll give you the details of a pilot study that demonstrated what may be a successful treatment for sexual dysfunction among men and women living with MS. We'll tell you why middle-aged people with MS may want to consider resistance training. And we'll tell you how to register for the National MS Society's Voting Without Barriers webinar. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Budgeting for Living with MS :22 The Pathways to Cures Research Roadmap has been updated and refined 1:25 There's very encouraging news from the Phase 2 open-lable extension study of Fenebrutinib 5;31 Results from a pilot study point to successful treatment for sexual dysfunction among men and women living with MS 6:35 Study results show that resistance training is beneficial for middle-aged people with MS 9:52 We're 8 weeks away from election day in the U.S. and the National MS Society is hosting a webinar about access to polling places 11:36 Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary, shares tips and strategies for taming your household budget and budgeting for living with MS 15:49 Share this episode 33:16 Have you downloaded the free RealTalk MS app? 33:36 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1) RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2) The Refined Pathways To Cures Research Roadmap The First Global Landscape Analysis of Multiple Sclerosis Research Funding STUDY: Tibial Nerve Stimulation in the Management of Primary Sexual Dysfunction in Patients with Multiple Sclerosis: A Pilot Randomized Control Trial STUDY: Is Resistance Training an Option to Improve Functionality and Muscle Strength In Middle-Aged People with Multiple Sclerosis? A Systematic Review and Meta-Analysis REGISTER for the Voting Without Barriers Webinar Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 367 Guest: Bruce McClary
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Episode 366: Medicare and MS -- Getting Your Ducks In a Row with Laquel Thomas
09/02/2024
Episode 366: Medicare and MS -- Getting Your Ducks In a Row with Laquel Thomas
Most of us know Medicare as health insurance for Americans who are 65 or older, but when they qualify for Social Security disability benefits, people younger than 65 automatically qualify for Medicare. Today, between 25 and 30% of the people living with MS are Medicare beneficiaries. Whether you already have Medicare or you'll be signing up for Medicare in the future, getting the right coverage requires making some important choices. Licensed Medicare Advisor Laquel Thomas joins me with tips, strategies, and explanations for successfully navigating Medicare and getting the coverage you need. We’re explaining the good news in the results from a Phase 3 clinical trial for Tolebrutinib, Sanofi’s experimental oral BTK inhibitor. The trial showed that, compared to placebo, Tolebrutinib met the primary endpoint, delaying the onset of confirmed disability progression in people with non-relapsing secondary progressive MS. Take My Hand is an Australian film based on the true story of Claire Jensz, a mother of three living in London who is diagnosed with MS at the peak of her high-powered career. Be sure to catch my conversation with Claire, Radha Mitchell, the film's star, and John Raftopoulos, the film's director. We're sharing the details of a study that may have uncovered an underlying cause of MS and, perhaps, all autoimmune diseases. We'll tell you about the results of a stem cell study that show MS may involve more than just immune cells. And we'll give you what may be surprising details of a study that focused on how MS impacts the quality of life of fully ambulatory people living with mild MS symptoms. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Making the right Medicare choices :22 There's good news about the results of the Phase 3 clinical trial for Tolebrutinib 1:41 My conversation with the director, star, and woman whose story about living with MS is the real-life basis for the new film, Take My Hand 4:28 Have researchers at Yale discovered an underlying cause of MS? 14:11 Newly published results of a stem cell study show that MS may also be driven by brain cells 17:19 Study results show how MS impacts the quality of life among fully ambulatory people with mild MS symptoms 19:15 Licensed Medicare Advisor, Laquel Thomas, explains all the variables you want to consider in making choices about your Medicare coverage 22:12 Share this episode 33:40 Have you downloaded the free RealTalk MS app? 34:01 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at TRAILER: Take My Hand STUDY: An Autoimmune Transcriptional Circuit Drives FOXP3+ Regulatory T-Cell Dysfunction STUDY: Patient iPSC Models Reveal Glia-Intrinsic Phenotypes in Multiple Sclerosis STUDY: Determinants of Self-Perceived Quality of Life in Mildly Disabled Multiple Sclerosis Patients: A Cross-Sectional Study Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 366 Guest: Claire Jensz, John Raftopolous, Radha Mitchell, Laquel Thomas
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Episode 365: It's the Episode Where I Get Interviewed with Jon Strum
08/26/2024
Episode 365: It's the Episode Where I Get Interviewed with Jon Strum
If you're a regular listener, you know that I rely on the RealTalk MS listener community to let me know which topics you'd like to hear about on this podcast. A few years ago, in episode 264, listener Dawnia Baynes did a podcast takeover, and interviewed me. Since then, I've heard from a bunch of you who, for some reason, want to hear more about me. So, when listener Kyra Millich asked if she could interview me, it felt like it was time. In today's episode, you'll find out what I like to do when I'm not doing this podcast, I'll share some of the most memorable moments in my life, you'll hear how and why I started RealTalk MS, and I hope you'll get to know me a little better. You'll also hear about results from a study that show people with MS are far less likely to be diagnosed with Alzheimer's disease compared to people who don't have MS. We'll tell you about a Phase 1 clinical trial for a CAR-T cell therapy for MS. And you'll learn the details of a different Phase 1 clinical trial for a different CAR-T cell therapy for MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Jon gets interviewed :22 Study results show people with MS are less likely to get Alzheimer's disease than people who don't have MS 1:23 TG Therapeutics announces Phase 1 clinical trial of CAR-T cell therapy for MS 3:44 FDA clears Immpact Bio for Phase 1 clinical trial of CAR-T cell therapy for hard-to-treat MS 7:13 Listener Kyra Millich interviews Jon 8:48 Share this episode 40:03 Have you downloaded the free RealTalk MS app? 40:23 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at STUDY: Unexpected Low Rate of Amyloid-β Pathology in Multiple Sclerosis Patients Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 365
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Episode 364: Understanding the Signs and Symptoms of MS with Dr. Leorah Freeman
08/19/2024
Episode 364: Understanding the Signs and Symptoms of MS with Dr. Leorah Freeman
Getting an MS diagnosis is not always the quick, straightforward process we'd like it to be. For some people, the process can drag on for years. But getting that diagnosis only happens when you and your primary care physician recognize that something's going on. It might be a sudden vision issue. Maybe it's unexplained tingling in an arm or leg. Or maybe it's something more acute that gets your attention. A wide variety of signs could point to MS, but they could also point to other health conditions. Dr. Leorah Freeman, Director of the Multiple Sclerosis and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin, joins me this week to help us better understand the signs and symptoms of multiple sclerosis. Just as COVID-19 viral activity is increasing across the United States, we're sharing the results of a study that should put your mind at ease and motivate you to get that COVID-19 booster vaccination when it becomes available next month. We'll tell you about a Phase 1 clinical trial that's getting underway for a novel cell therapy that may be effective in stopping MS. You'll hear about a grant from the National Institutes of Health that will fund a study on the fear of falling among people with MS. The 16th annual Burgers to Beat MS fundraising event is taking place on August 22nd at A&W locations across Canada. We'll give you the details on how you can participate -- whether you happen to be in Canada or not! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Understanding the signs and symptoms of MS :22 Study results show no increase in the risk of an MS relapse after COVID-19 vaccination booster 1:43 Phase 1 clinical trial of a novel cell-based therapy for MS is underway 4:12 NIH grant to investigate the fear of falling among people with MS 7:13 Burgers to Beat MS is happening at A&W locations across Canada on August 22nd! 9:28 Dr. Leorah Freeman discusses the sometimes confusing signs and symptoms of MS 11:09 Share this episode 28:36 Have you downloaded the free RealTalk MS app? 28:56 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at STUDY: Risk of Relapse After COVID-19 Vaccination Among Patients with Multiple Sclerosis in France Burgers to Beat MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 364 Guest: Dr. Leorah Freeman
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Episode 363: Safe Driving When You're Living with MS with Jenny Nordine, OTL, CDRS
08/12/2024
Episode 363: Safe Driving When You're Living with MS with Jenny Nordine, OTL, CDRS
For some people, getting in their car and heading for, well, anywhere represents freedom and independence. For others, it's a way to get to their jobs, get to their medical appointments, get the kids to school, and run necessary errands. MS can change all of that. Occupational Therapist and Certified Driver Rehabilitation Specialist Jenny Nordine joins me to discuss how to preserve your independence while protecting yourself and the people around you when you're driving with MS. You'll also meet Dr. Susan Seizer, a true difference-maker and one of the founders of the Mobility Aids Lending Library. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Maintaining your independence and keeping yourself and others around you safe when you're driving with MS :22 Dr. Susan Seizer discusses the Mobility Aids Lending Library and the stigma of disability 1:26 Occupational Therapist and Certified Driver Rehabilitation Specialist, Jenny Nordine, discusses how to preserve your independence while protecting yourself and the people around you when you're driving with MS 20:35 Share this episode 31:25 Have you downloaded the free RealTalk MS app? 31:45 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Mobility Aids Lending Library Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 363 Guest: Dr. Susan Seizer, Jenny Nordine OT/L, CDRS
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Episode 362: The Role of Integrative Medicine in Treating MS with Dr. Lynne Shinto
08/05/2024
Episode 362: The Role of Integrative Medicine in Treating MS with Dr. Lynne Shinto
Integrative medicine brings conventional and complementary treatments together in a coordinated way. This approach to health and wellness represents a growing trend across the United States, especially among people who live with a chronic disease like MS. Dr. Lynne Shinto joins me to explain what integrative medicine is and how to safely incorporate complementary treatments into your MS care plan. We'll also tell you about study results that show how the common cold, flu, or a urinary tract infection can all contribute to MS worsening. We'll tell you about the research team that has successfully used an artificial intelligence algorithm to predict future MS disability progression. We'll share the details behind the work of another research team that successfully used an artificial intelligence algorithm to reliably diagnose MS. The European Union's AI Act went into effect last week. We're explaining all the ways this new law will impact healthcare. We have a lot to talk about! Are you ready for RealTalk MS??! Remembering June Halper :22 This Week: Decoding Integrative Medicine 1:58 STUDY: Infections outside the central nervous system contribute to MS worsening 2:42 STUDY: Artificial intelligence model reliably predicts future MS disability progression 5:33 STUDY: Artificial intelligence model uses retinal imaging to reliably diagnose MS 7:51 How the European AI Act will impact healthcare 10:33 Dr. Lynne Shinto discusses the role of Integrative Medicine in treating MS 14:55 Share this episode 28:49 Have you downloaded the free RealTalk MS app? 29:09 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at STUDY: Systematic Inflammation Associates With and Precedes Cord Atrophy in Progressive Multiple Sclerosis STUDY: Longitudinal Machine Learning Modeling of MS Patient Trajectories Improves Predictions of Disability Progression STUDY: SLO-NET: Enhancing Multiple Sclerosis Diagnosis Beyond Optical Coherence Tomography Using Infrared Laser Reflectance Scanning Ophthalmoscopy Images https://tvst.arvojournals.org/article.aspx?articleid=2800432 Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 362 Guests: Dr. Lynne Shinto
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Episode 361: Meet the new President and CEO of the National MS Society with Dr. Tim Coetzee
07/29/2024
Episode 361: Meet the new President and CEO of the National MS Society with Dr. Tim Coetzee
Less than two weeks ago, the National MS Society announced the appointment of Dr. Tim Coetzee as its new President and CEO. The MS Society's board chair, Peter Porrino, commented, "Tim is a trusted voice of the global MS community, a highly respected scientist, and we are excited for him to bring his transformative leadership to drive us into our next era to achieve a world free of MS." I thought it was important for everyone in the RealTalk MS listener community to hear from Tim and learn firsthand what his vision and priorities are for the MS Society. So, I'm dedicating this entire episode to my conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee :22 Share this episode 28:32 Have you downloaded the free RealTalk MS app? 28:52 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 361 Guest: Dr. Tim Coetzee
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Episode 360: How Digital Technology Is Changing the Diagnosis and Treatment of MS with Dr. Riley Bove
07/22/2024
Episode 360: How Digital Technology Is Changing the Diagnosis and Treatment of MS with Dr. Riley Bove
It's hard to imagine any area of our lives that hasn't been transformed by digital technology. That's certainly true for healthcare in general and MS diagnosis and treatment in particular. Dr. Riley Bove joins me to discuss the role that digital technology already plays in the diagnosis and treatment of MS and to share a preview of what's coming next. The National MS Society has named its new President and CEO. We're sharing the details! We'll tell you about some of the benefits that are being observed in the Phase 2 clinical trial and extension study of Frexalimab, an experimental antibody that may be on the path to becoming a highly effective disease-modifying therapy. We'll share the details behind the FTC's planned lawsuit against the three largest Pharmacy Benefit Managers (and we'll tell you why that matters to anyone taking a prescription medication). Stressing out about an upcoming MRI exam? We're sharing info about Happy MRI, a website that's been designed to relieve MRI-related anxiety. And we're reminding you that Crush MS, the Napa Valley wine-tasting fundraising event, is happening this Saturday, July 27th. We'll let you know where to get your ticket! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The impact of digital technology :22 Dr. Tim Coetzee named the President and CEO of the National MS Society 1:50 Frexalimab shows significant benefits in Phase 2 clinical trial 4:08 FTC to file suit against three largest Pharmacy Benefit Managers 6:08 Happy MRI is designed to relieve MRI-related anxiety 8:03 We're just days away from Crush MS 9:47 Dr. Riley Bove discusses how digital technology is changing MS diagnosis and treatment 11:21 Share this episode 28:54 Next week: Newly named President and CEO of the National MS Society, Dr. Tim Coetzee, talks about his vision for the MS Society and shares his immediate priorities 29:14 Have you downloaded the free RealTalk MS app? 29:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at RealTalk MS Episode 359: The Unraveling with Dr. Nara Michaelson Happy MRI CRUSH MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 360 Guests: Dr. Riley Bove
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Episode 359: The Unraveling with Dr. Nara Michaelson
07/15/2024
Episode 359: The Unraveling with Dr. Nara Michaelson
As Harvard Fellow Dr. Nara Michaelson treated women who had been recently diagnosed with MS, she recognized they shared characteristics that she had observed in victims of violent domestic abuse. Dr. Michaelson's observation led her to write The Unraveling, an essay that highlights the fear that can accompany the uncertainty of living with MS. Dr. Michaelson joins me to discuss the experiences that led to her award-winning essay and to share resources that can help maintain your emotional health and well-being in a good place when you're living with MS. We're also sharing the details about BEAT-MS, a clinical trial that will compare autologous hematopoietic stem cell transplantation (AHSCT) with high-efficacy disease-modifying therapies when it comes to reducing or eliminating MS relapse activity. And we'll let you know how to find out if you could be a potential participant in this important clinical trial. We'll tell you about the FDA approval granted to Abata Therapeutics to conduct a Phase 1 clinical trial of ABA-101, their experimental therapy for progressive MS. We're sharing news about the Federal Trade Commission's newly released report on Pharmacy Benefit Managers. (And we'll tell you why this matters to every person in the United States who takes a prescription medication) And we'll tell you about Take Charge, a new virtual program from Can Do MS that you can participate in at no cost! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The Unraveling :22 BEAT-MS clinical trial compares AHSCT with high-efficacy DMTs 1:58 FDA clears ABA-101 for Phase 1 clinical trial 5:17 FTC is turning its focus to Pharmacy Benefit Managers 6:55 Can Do MS offers new Take Charge virtual program 11:47 Dr. Nara Michaelson discusses her award-winning essay, The Unraveling 13:23 Share this episode 29:15 Next week: Dr. Riley Bove discusses how digital technology has become a game-changer in diagnosing, treating, and managing MS 29:35 Have you downloaded the free RealTalk MS app? 29:55 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at The Unraveling BEAT-MS Clinical Trial RealTalk MS Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff FTC Report -- Pharmacy Benefit Managers: The Powerful Middlemen Inflating Drug Costs and Squeezing Main Street Pharmacies REGISTER for Take Charge https://cando-ms.org/event/take-charge-young-and-newly-diagnosed Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 359 Guests: Dr. Nara Michaelson
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Episode 358: VISIBL-MS with Dr. Jaime Imitola
07/08/2024
Episode 358: VISIBL-MS with Dr. Jaime Imitola
The inequities associated with gaining access to quality healthcare are often discussed, and my guest this week has taken steps to address them. Dr. Jaime Imitola and his team at UCONN Health have created a tool called VISIBL-MS, a bilingual framework designed to increase doctors' and patients' awareness of the early signs of MS. We'll also share the results of a study that clearly illustrate progression independent of relapse activity (PIRA). We'll tell you about a small study that showed a positive outcome for people with progressive MS who received neural stem cell therapy. We'll share details of a study that identified a panel of 20 blood-based proteins that have been shown to be predictive of MS disease activity. (And we'll tell you why that's a good thing for patients and researchers!) And we're reminding you that we're just over 2 weeks away from CRUSH MS! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: VISIBL-MS :22 Study results provide evidence of PIRA 1:41 Stem cell therapy for progressive MS? 4:28 Researchers identify a panel of 20 proteins that are predictive of MS disease activity 7:19 We're just over 2 weeks away from CRUSH MS! 10:07 Dr. Jaime Imitola discusses how VISIBL-MS will increase doctors' and patients' awareness of the early signs of MS. 11:35 Share this episode 31:33 Have you downloaded the free RealTalk MS app? 31:53 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at VISIBL-MS: A Bilingual Educational Framework To Increase Awareness of Early Multiple Sclerosis STUDY: Acute Clinical Events Identified as Relapses with Stable Magnetic Resonance Imaging in Multiple Sclerosis STUDY: Phase I Clinical Trial of Intracerebroventricular Transplantation of Allogeneic Neural Stem Cells in People with Progressive Multiple Sclerosis STUDY: Inflammatory and Neurodegenerative Serum Protein Biomarkers Increase Sensitivity to Detect Clinical and Radiographic Disease Activity in Multiple Sclerosis https://nature.com/articles/s41467-024-48602-9 CRUSH MS: Tickets and Info Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 358 Guests: Dr. Jaime Imitola
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Episode 357: Living Your Best Life When You're Living with MS with Dr. Lisa Doggett
07/01/2024
Episode 357: Living Your Best Life When You're Living with MS with Dr. Lisa Doggett
When it comes to living your best life when you're living with MS, the first step is to make smart lifestyle choices. Maintaining a healthy lifestyle doesn't require pills, injections, or infusions. And making smart lifestyle choices can make a real, measurable difference in your quality of life. Joining me to talk about the benefits of maintaining a healthy lifestyle and share some tips and strategies for living your best life when you're living with MS is Dr. Lisa Doggett, a family and lifestyle medicine physician at the MS and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin. Dr. Doggett was diagnosed with MS in 2009, and she’s the author of the memoir, ‘Up the Down Escalator: Medicine, Motherhood, and Multiple Sclerosis’. We'll also tell you about a research team that's looking to improve the way that stem cells are transplanted -- and why that's a good thing for people with MS. We'll share the details behind the European Union's approval of a new Ocrevus formulation that makes the DMT much more patient-friendly. You'll hear about the blood test for measuring a biomarker that can predict future MS disease worsening that has just gained approval in the European Union. And we'll tell you where to find the video replay of Mobility Challenges in Progressive MS, the most recent webcast hosted by the International Progressive MS Alliance. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Lifestyle changes that will improve your quality of life :22 Researchers receive a grant to develop a better way to transplant stem cells 1:30 Subcutaneous Ocrevus has been approved in the European Union 3:50 Blood test to measure a biomarker that can predict future MS disease worsening receives approval in the European Union 5:35 Catch the video replay of the latest Progressive MS Alliance webcast 7:13 Dr. Lisa Doggett offers strategies for making lifestyle choices that will make a difference in your quality of life 8:20 Share this episode 26:50 Next Week: Dr. Jaime Imitola introduces us to VISIBL-MS 27:10 Have you downloaded the free RealTalk MS app? 27:39 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at VIDEO REPLAY of the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 357 Guests: Dr. Lisa Doggett
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Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo
06/24/2024
Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo
Over the course of her 39-year career with the National MS Society, including the past 13 years as its President and CEO, Cyndi Zagieboylo has been a driving force behind major initiatives that have fundamentally changed the MS treatment and research landscape. Creating a world where cures for MS are now within reach, Cyndi has led the work to make living with MS better today than it's ever been. On July 1, Cyndi is retiring from her remarkable career at the National MS Society. I had an opportunity to talk with Cyndi about the progress she's witnessed and the progress she has driven in leading the MS Society. It's been a career filled with so many moments that are worthy of celebration, I am devoting this entire episode of RealTalk MS to one last conversation with Cyndi Zagieboylo. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A final conversation with the National MS Society's President and CEO, Cyndi Zagieboylo :22 A look back at some of the most impactful initiatives that were led by Cyndi 1:43 Share this episode 30:39 Next Week: Lifestyle medicine physician Dr. Linda Doggett shares tips and strategies for making healthy lifestyle choices that will improve your quality of life 31:00 Have you downloaded the free RealTalk MS app? 31:50 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 356 Guest: Cyndi Zagieboylo
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Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox
06/17/2024
Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox
Research is the engine that drives the future. And participating in MS research is not only vital to improving scientists' understanding of multiple sclerosis, it's also empowering. And the really good news is that you can participate in MS research from the comfort of your own home. My guest this week is the Managing Director of the North American Research Committee on Multiple Sclerosis, Dr. Robert Fox. And we're taking a deep dive into the NARCOMS patient registry. We'll also tell you about the latest version of AlphaFold, a highly advanced artificial intelligence model designed to help scientists design new drugs and target disease more effectively. Evidence shows that the Epstein-Barr Virus (EBV) triggers MS. We're reviewing the results of a study that may help scientists better understand the relationship between EBV and MS. The International Progressive MS Alliance upcoming webcast, Mobility Challenges in Progressive MS, takes place this Thursday, June 20th. Find out where you can register and why you won't want to miss this! And we're just 6 weeks away from Crush MS, a fundraising event in Napa Valley, California that raises money to support MS research. I'll be there, and I hope you can join me! We're sharing all the details. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The NARCOMS Patient Registry :22 The most advanced AI on earth is focused on discovering new medications 1:40 Researchers learn that Epstein-Barr Virus re-activates and drives inflammation during an MS relapse 4:00 The Progressive MS Alliance hosts a live global webcast this Thursday, June 20th! 7:17 Crush MS is just 6 weeks away 8:39 Dr. Robert Fox takes us on a deep dive into the NARCOMS patient registry 10:08 Share this episode 26:12 Next Week: A special conversation with National MS Society President and CEO, Cyndi Zagieboylo 26:33 Have you downloaded the free RealTalk MS app? 27:17 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at The NARCOMS Patient Registry STUDY: Multiple Sclerosis Patient-Derived Spontaneous B Cells Have Distinct EBV and Host Gene Expression Profiles In Active Disease REGISTER for the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS Get Tickets for Crush MS Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 355 Guests: Dr. Robert Fox
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Episode 354: From the Consortium of MS Centers 38th Annual Meeting -- Part 2
06/10/2024
Episode 354: From the Consortium of MS Centers 38th Annual Meeting -- Part 2
Two weeks ago, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. This is Part 2 of our coverage from that meeting. In this episode, we're sharing our conversations with some of the experts who were at the meeting to present their research. You'll hear the National MS Society's Executive Vice President for Advocacy and Healthcare Access, Bari Talente, share her thoughts on why getting early support when you've been diagnosed with MS can make a difference in how you begin your MS journey. Dr. Nancy Sicotte talks about why early diagnosis and treatment are important in ensuring the best long-term patient outcomes. Dr. Brian Sandroff asks and answers the question, "Does exercise improve cognitive function in MS?" And Dr. Anthony Feinstein shares what he and his team have learned about how cannabis impacts people with MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Part 2 of our coverage of the CMSC Annual Meeting :22 National MS Society Executive Vice President for Advocacy and Healthcare Access, Bari Talente, discusses the importance of finding early support when you've been diagnosed with MS 1:18 Dr. Nancy Sicotte explains why early diagnosis and treatment make a difference in MS 8:57 Dr. Brian Sandroff poses (and answers) the question, "Doe exercise improve cognitive functioning in MS?" 17:11 Dr. Anthony Feinstein shares evidence gathered from his team's research into how cannabis impacts MS 23:58 Share this episode 38:13 Next Week: The North American Research Committe on Multiple Sclerosis (NARCOMS) with Managing Director, Dr. Robert Fox 38:34 Have you downloaded the free RealTalk MS app? 38:54 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at RealTalk MS Episode 353: From the Consortium of MS Centers 38th Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 354 Guests: Bari Talente, Dr. Nancy Sicotte, Dr. Brian Sandroff, Dr. Anthony Feinstein
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Episode 353: From the Consortium of MS Centers Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger
06/03/2024
Episode 353: From the Consortium of MS Centers Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger
Last week, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. Welcome to Part 1 of our coverage from that meeting. In this episode, I'm talking with Dr. Kathy Zackowski, Associate Vice-President for Research at the National MS Society, and Dr. Zackowski is sharing some of the presentations that caught her attention. Next, you'll hear my conversation with Dr. Stephen Krieger, a neurologist at the Corinne Goldsmith Dickinson Center for Multiple Sclerosis. Dr. Krieger explains the hidden side of MS, why, when it comes to treating MS, "detecting only what we measure" isn't enough, and why an EDSS of 0 is not normal. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're reporting from the CMSC Annual Meeting :22 Dr. Kathy Zackowski shares some of the presentations that caught her attention 1:14 Dr. Stephen Krieger discusses the hidden side of MS, why, when it comes to treating MS, "detecting only what we measure" isn't enough, and why an EDSS of 0 is not normal 18:56 Share this episode 33:36 Next Week: Part 2 of our coverage from the CMSC Annual Meeting 33:56 Have you downloaded the free RealTalk MS app? 34:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: Phone: (310) 526-2283 And don't forget to join us in the ! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the or at Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Devices Download the RealTalk MS App for Android Devices Give RealTalk MS a rating and review Follow RealTalk MS on Twitter, , and subscribe to our newsletter at our website, . RealTalk MS Episode 353 Guests: Dr. Kathy Zackowski and Dr. Stephen Krieger
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