Sarcoma Sisters

Information on sarcoma for people with sarcoma and their loved ones

Leiomyosarcoma with Dr. Suzanne George 07/27/2023

Leiomyosarcoma with Dr. Suzanne George Dr. George is a medical oncologist and Associate Professor at Harvard Medical School. She is the Clinical Director at the Center for Sarcoma and Bone Oncology at Dana-Farber Cancer Institute with over 20 years experience of treating patients throughout the world with sarcoma. She is actively involved in the clinical research and works to develop new clinical trials focusing on therapy for metastatic soft tissue sarcoma. In this episode we discuss: What led her into medicine, and what led her into taking care of patients with sarcoma - it included one of the first targeted therapies for a sarcoma subtype, GIST (Gastrointestinal Solid Tumor) What is Leiomyosarcoma including how is it treated, and challenges to the current treatment paradigm What is the Count Me In What the hope is to learn from CMI LMS How the CMI LMS project helps current and future people living with LMS What does Dr. George see as the next big thing for treating LMS is the Link to the Count Me In Leiomyosarcoma Project music: Rosepigg photo: /episode/index/show/sarcomasisters/id/27569046

Nutrition and Cancer with Kate Ueland 09/27/2022

Nutrition and Cancer with Kate Ueland Kate Ueland, MS ,RD, CSO is an Assistant Professor at Bayster University where she teaches and mentors students and she practices as a dietitian at Seattle Cancer Care Alliance in Seattle, WA. Kate also works at Fred Hutchinson Research Center in Seattle, WA as the nutrition advisor and editor for the Cook for Your Life website providing science-based guidelines, recipes, and tips to those who have been touched by cancer. The website is such an amazing resource that everyone needs to check out no matter where you are in your cancer journey! We learn from Kate what led her into nutrition and oncology. In this episode we touch on a many nutritional oncology topics: Food as medicine Foods to focus on: plant based and increasing fiber Weight stability versus focusing on a number on the scale Food during treatment versus survivorship Adding evidence to the hot topics of: Avoiding sugar Ketogenic diet Food deserts Establishing healthy relationships with food Photo credit: Anna Pelzer Music: RosePigg /episode/index/show/sarcomasisters/id/24491352

Physical Therapy and Pediatric Sarcoma with PT Dan 07/05/2022

Physical Therapy and Pediatric Sarcoma with PT Dan Dr. Dan Steventon is a Doctor of Physical Therapy and practices at The Sanford Children’s Castle of Care Hospital in Sioux Falls, South Dakota. He specializes in pediatric cancer physical therapy. However, outside of the amazing care he gives his patients, he has a robust social media educational platform and is known as ! We encourage you to check him out on And his including his on rotationplasty for Sarcoma Awareness Month! We discuss: His journey to specializing in Physical Therapy and pediatric cancer PT Dan's goals for kids with cancer: Restore, Rebuild, and Reclaim your world Physical therapy needs for patients with sarcoma PT Dan and his push up contest with his patient to raise money and awareness Does every child with cancer need a Physical Therapy evaluation? Why is Physical Therapy needed? Why is tailoring a physical therapy plan to each child so critical? How PT Dan motivates patients during their toughest time in their cancer journey The importance of perspective surveillance in physical therapy Managing amputations and limb salvage through physical therapy How physical therapy helps with pain including neuropathic pain PT Dan's research helping children who are non-verbal or too young to describe their pain The importance of a team effort in cancer care PT Dan on social media Music: Rosepigg Photo: Raspopva Marina /episode/index/show/sarcomasisters/id/23638601

Sarcoma Orthopedic Surgery with Dr. R. Lor Randall 06/18/2022

Sarcoma Orthopedic Surgery with Dr. R. Lor Randall Dr. R. Lor Randall is an Orthopedic Oncologic surgeon who is a world renowned expert in sarcoma orthopedic surgery. He is the David Linn Endowed Chair for Orthopaedic Surgery; Chair, Department of Orthopaedic Surgery and Professor, Department of Orthopaedic Surgery at the University of California, Davis in Sacramento. Dr. Randall’s clinical practice and research focus on musculoskeletal surgical oncology and on building-leading edge trans-disciplinary teams to combat rare cancers of connective tissue in children and adults. In this episode we discuss: What led him into Orthopedic Oncologic surgery His translational and health inequity research including his passion for improving quality of life for adolescents and young adults with cancer Questions patients and/or parents should ask their oncology team including their orthopedic surgeon Challenges when parents and children disagree on surgical options (limb salvage versus rotationplasty) Scar tissue is like cooked bacon His research review of radiation and surgery in Ewing sarcoma Advances in orthopedic oncology targeted therapies and considerations in orthopedic surgery As promised in the interview: with our upcoming guest PT Dan discussing rotationplasty with his former patient Shanna - it is a 4 part series - so great! Shanna is the founder of a wonderful NGO TikTok channel of - an amazing AYA with 842K followers who posts hundreds of videos highlighting her rotationplasty and answers questions /episode/index/show/sarcomasisters/id/23471246

Osteosarcoma with Dr. Katherine Janeway 03/24/2022

Osteosarcoma with Dr. Katherine Janeway Dr. Janeway is a pediatric oncologist and senior physician at Dana-Farber/Boston Children’s Cancer and Blood Disorders Center. She is the Director of Clinical Genomics at Dana-Farber Cancer Institute and her research is focused on genomics, precision oncology and bone sarcomas. She leads clinical trials in osteosarcoma and Ewing sarcoma both as an independent investigator and as the Chair of the Children’s Oncology Group (COG) Bone Tumor Committee. In this episode we discuss: What led her into medicine, pediatric oncology and sarcoma research How do we begin to define precision medicine in Osteosarcoma - start with defining subtypes Ways that Dr. Janeway is spearheading defining the osteosarcoma subtypes through genomic and clinical data collection How patients and advocacy groups are leading the way in research efforts and information on Count Me In Osteosarcoma Project Two Phase 3 clinical trials Dr. Janeway is working on and how they will be moving the needle in making progress in Osteosarcoma in a variety of areas (genomics, quality of life, and surgical resection) music Rosepigg photo Eric Prouzet /episode/index/show/sarcomasisters/id/22485944

Desmoid Tumors with Dr. Aaron Weiss 02/21/2022

Desmoid Tumors with Dr. Aaron Weiss Dr. Aaron Weiss is a board certified pediatric hematologist/oncologist practicing in Maine. He is an associate professor and the Division Director of Pediatric Hematology-Oncology at Tufts University School of Medicine and he holds the Sam L Cohen Medical Director Endowed Chair at Maine Children’s Cancer Program. As part of Children's Oncology Group he is the Vice-Chair of the Soft Tissue Sarcoma Committee, and the Associate Vice-Chair of the Clinical Trials, AYA Oncology Discipline Committee. He is an expert in Desmoid tumors and he is the chair of the Desmoid Tumor Research Foundation Medical Advisory Board. In this episode we discuss: - What led Dr. Weiss into his expertise of soft tissue sarcomas and specifically Desmoid tumors - Is a Desmoid tumor and cancer and why does the cancer classification matter? - Where do Desmoid tumors occur and the profound affect on quality of life for patients - Should the clinical trial endpoints for Desmoid tumors change? - All areas of Desmoid tumor treatment including: - Localized treatment such as high intensity ultrasound - Systemic treatment from chemotherapy to targeted therapies - The importance of active surveillance as a treatment option - Why some treatments have fallen out of favor and what is on the horizon music: Rospigg photo: Felix-Mittermeier /episode/index/show/sarcomasisters/id/22199630

Ewing Sarcoma Phase 3 Clinical Trial - Discussing The Results 01/31/2022

Ewing Sarcoma Phase 3 Clinical Trial - Discussing The Results Dr. Allen-Rhoades and Dr. Kopp discuss the results of the recently published Ewing Sarcoma clinical trial - Phase III Trial Adding Vincristine-Topotecan-Cyclophosphamide to the Initial Treatment of Patients With Nonmetastatic Ewing Sarcoma: A Children's Oncology Group Report. We mention in the episode that the full article is accessible, however, it is only if you purchase individually - bummer. However, the link Is for the article abstract and if you would like to purchase. We discuss the clinical trial in detail including background on previous trials, methods, results and how these results affect current and future treatment of patients with Ewing sarcoma. Thank you for listening and please let us know your thoughts! /episode/index/show/sarcomasisters/id/21956789

Palliative Care with Dr. Ishwaria Subbiah 05/08/2021

Palliative Care with Dr. Ishwaria Subbiah Dr. Ishwaria Subbiah is a palliative care physician and medical oncologist in the Division of Cancer Medicine at MD Anderson Cancer Center in Houston, TX. In this episode we discuss /episode/index/show/sarcomasisters/id/19032347

Sarcoma Clinical Trials with Dr. Breelyn Wilky 03/08/2021

Sarcoma Clinical Trials with Dr. Breelyn Wilky Dr. Wilky is the Director of Sarcoma Medical Oncology at the University of Colorado. She cares for patients > 18 years with every type of sarcoma and is an expert in traditional chemotherapy treatments and also at using modern technology to identify out-of-the-box treatments particularly in targeted therapy. Dr. Wilky is also a translational researcher who conducts and designs clinical trials for sarcoma patients, with a focus on early immunotherapy protocols. /episode/index/show/sarcomasisters/id/18243566

Second Opinions 01/31/2021

Second Opinions Dr. Allen-Rhoades and Dr. Kopp discuss the topic of sarcoma second opinions /episode/index/show/sarcomasisters/id/17752745

Radiation and Sarcoma with Dr. Safia Ahmed 11/22/2020

Radiation and Sarcoma with Dr. Safia Ahmed We talk with Dr. Safia Ahmed a radiation oncologist who specializes in caring for adults and children with sarcoma - she works with our sister Wendy at the Mayo Clinic! /episode/index/show/sarcomasisters/id/16902716

Sarcoma Pathology with Dr. Valerie Fitzhugh 10/12/2020

Sarcoma Pathology with Dr. Valerie Fitzhugh Dr. Fitzhugh is an associate professor and interim chair of the Department of Pathology, Immunology and Laboratory Medicine at Rutgers New Jersey Medical School and the Department of Pathology and Laboratory Medicine at Rutgers Robert Wood Johnson Medical School. She's an expert in the sarcoma pathology . We talk about all things sarcoma pathology - what do they do, why they are a critical part to your treatment, etc. And we discuss her platform as a celebrity on twitter with >21K follwers! /episode/index/show/sarcomasisters/id/16351967

Sarcoma Genomics with Dr. Brian Crompton 09/26/2020

Sarcoma Genomics with Dr. Brian Crompton We talk with our sarcoma brother and world-renowned sarcoma genomics scientist and pediatric oncologist Dr. Brian Crompton. /episode/index/show/sarcomasisters/id/16168262

Sarcoma Surgery with Dr. Andrea Hayes-Jordan 08/20/2020

Sarcoma Surgery with Dr. Andrea Hayes-Jordan We talk with Dr. Andrea Hayes-Jordan a world renowned pediatric sarcoma surgeon and a professor of pediatric surgery and surgical oncology at the University of North Carolina Children’s Hospital. /episode/index/show/sarcomasisters/id/15693677

Building the Yellow Brick Road - Count Me In! 08/04/2020

Building the Yellow Brick Road - Count Me In! We talk to the amazing Dr. Corrie Painter. She is the Associate Director of Operations and Scientific Outreach for the Broad Cancer Program and the Associate Director of Count Me In. /episode/index/show/sarcomasisters/id/15468875

Fertility 101 07/05/2020

Fertility 101 Lisa is joined by Donna Bell in episode 5: Fertility 101. /episode/index/show/sarcomasisters/id/15093821

Sarcoma and Fertility 07/05/2020

Sarcoma and Fertility We are joined by Dr. Abha Gupta in episode 4: Sarcoma and Fertility. /episode/index/show/sarcomasisters/id/15093731

Hanneke and Jim Part 2 06/15/2020

Hanneke and Jim Part 2 In this short episode we continue the conversation with Hanneke and Jim. They share with us their experience in survivorship land with their daughter who completed therapy for Osteosarcoma 4 years ago. /episode/index/show/sarcomasisters/id/14765234

Hanneke and Jim Part 1 06/15/2020

Hanneke and Jim Part 1 Hanneke and Jim share with us their families' sarcoma story beginning when their daughter was diagnosed with Osteosarcoma at 7 years old. /episode/index/show/sarcomasisters/id/14765207

Sarcoma Sisters Podcast - Our Why 05/24/2020

Sarcoma Sisters Podcast - Our Why Our first episode letting you know our why for starting a podcast about sarcoma. /episode/index/show/sarcomasisters/id/14550233

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