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From Total Denial to Totally Thriving: Meet Rachel Price

Diabetes Connections with Stacey Simms Type 1 Diabetes

Release Date: 07/02/2019

Minisode #8: When A Child With T1D is Afraid to Get Back in the Game show art Minisode #8: When A Child With T1D is Afraid to Get Back in the Game

Diabetes Connections with Stacey Simms Type 1 Diabetes

When a child is diagnosed with type 1 diabetes, most of the time the parents are told that T1D won't stop them. People with diabetes play sports, climb mountains, pursue acting and singing careers and much more. But what happens if a young child is scared to get back in the swing of things? Stacey has advice for a family she met whose little boy is so afraid of low blood sugar, that he's sitting out his beloved soccer games. ----- available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go!          Episode...

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"Mastering Diabetes" Author Robby Barbaro Talks Fruit, Fat, & Insulin Resistance

Diabetes Connections with Stacey Simms Type 1 Diabetes

This week, a look at a way of eating for all types of diabetes that sounds – frankly – really hard to do. But the guys behind it say it’s the key for lowering insulin resistance for all types of diabetes. Robby Barbaro is the co-author of a We’ll talk about what he actually eats now and why he’s so passionate about this. He has a pretty compelling story. In TMSG – when an avid scuba diver is diagnosed with type 1, she finds a way to get back in – and under – the water. Plus, a little bit of a control iq update for us – we’ll tell you how it’s working out. This...

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Minisode #7: Spare a Rose / What Can We Do About The Price of Insulin? show art Minisode #7: Spare a Rose / What Can We Do About The Price of Insulin?

Diabetes Connections with Stacey Simms Type 1 Diabetes

Two big topics for this mini-espidoe. Stacey talks about Spare a Rose and talks to the leaders of Patients for Affordable Drugs. Spare a Rose is an initiative to get insulin and other vital diabetes supplies to children in the developing world. Stacey also talks about what we can do about the price of insulin with founder David Mitchell and Lauren Stanford, the community organizing director. ----- available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go!        Episode transcription:  Stacey Simms ...

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Ask The D-Moms: Driving, Independence and Ask The D-Moms: Driving, Independence and "Holding Hope in our Hands"

Diabetes Connections with Stacey Simms Type 1 Diabetes

Ask the D-moms is back! We’re tackling leaving kids home alone, keeping perspective when you’ve been in the diabetes community for a long time and driving with T1D. Moira’s daughter was behind the wheel before CGMs and Stacey's son just got his permit. In Tell Me Something Good, an amazing way to raise awareness.  We’ll talk about the .. and its’ going on right now. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. ----- available to Diabetes Connections listeners! ----- Get the App and listen to...

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Minisode #6: Whose Graph Is It Anyway? (A D-Parent's Struggle) show art Minisode #6: Whose Graph Is It Anyway? (A D-Parent's Struggle)

Diabetes Connections with Stacey Simms Type 1 Diabetes

Watch your language! That's what Stacey is trying to tell herself this week. When you're a parent of a child with a chronic condition, it's hard not to say things like "our diabetes" and "our CGM graph." But it's not "ours" exactly, so how do we better talk about this? Stacey also shares her frustration as she finds herself falling into the trap of perfect numbers and trends. While her and Benny's experience with Control IQ has been wonderful so far, it's also bringing back some of that perfection trap she thought she'd left behind. ----- available to Diabetes Connections listeners! -----...

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What Is Monogenetic Diabetes & Why Should You Care? show art What Is Monogenetic Diabetes & Why Should You Care?

Diabetes Connections with Stacey Simms Type 1 Diabetes

This week.. what is monogenetic diabetes and why should we – on a mainly type 1 diabetes podcast – care about it? The majority of people with monogenic are misdiagnosed as type 1. People like Kristin Skiados who thought she’d lived with type 1 for 38 years and her daughter Ava, was also misdiagnosed. We’ll talk about how this could happen, what it means for the rest of us and what monogentic or MODY is all about. In Tell Me Something Good, how a little sister’s diagnosis changed a sibling's outlook and career.. And what the heck is a diabetes merit badge? This podcast is not...

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Minisode #5 - Stop Posting Sick Day Photos of Your Kids! show art Minisode #5 - Stop Posting Sick Day Photos of Your Kids!

Diabetes Connections with Stacey Simms Type 1 Diabetes

Sharing photographs of our kids on social media has become second nature. But what happens when we post photos of our children in distress? Stacey says stop. No more photos of your child in the hospital, when they're feeling sick or in distress. What about "keeping it real?" What about fundraising? Stacey argues that there are better ways to accomplish important goals around chronic conditions like diabetes than posting photos which, ultimately, exploit and embarrass our kids. Links referred to in the episode can be found in the transcription below. ----- available to Diabetes Connections...

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DiabetesWise - A Consumer Reports for Diabetes Technology show art DiabetesWise - A Consumer Reports for Diabetes Technology

Diabetes Connections with Stacey Simms Type 1 Diabetes

Choosing your diabetes technology can be complicated. Wouldn’t it be nice if there was sort of a Consumer Reports for pumps and CGMs? We found out about from people who know it’s about more than the hardware. Stacey talks with Dr. Korey Hood who lives with type 1 and is with Stanford University as well as Laurel Koester, with the Helmsley Charitable Trust. Together, these two groups created Diabetes Wise. Stacey, Korey & Laurel talk about how it works and  why it’s needed. Stacey spoke to Korey on a previous episode about diabetes gear and mental health. In Tell Me...

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Minisode #4: Why We Went Minisode #4: Why We Went "Untethered"

Diabetes Connections with Stacey Simms Type 1 Diabetes

Using a shot of long-acting insulin along with an insulin pump sounds like a weird idea. But Stacey found when her son's insulin needs went way up around age 11, that it worked incredibly well for them. She explains the method of untethered, which is also sometimes called POLI (Pumping On Long-Acting Insulin), what led them to believe it would work, and why you don't always need to use a ton of insulin to benefit from it. ------ ----- available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go!        Episode...

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Competing on Food Network Kids Baking Championship With T1D show art Competing on Food Network Kids Baking Championship With T1D

Diabetes Connections with Stacey Simms Type 1 Diabetes

When 11 year old Elise Sammis applied for the Food Network's Kids Baking Championship, she didn’t think twice about telling them - right up front - that she lives with type 1 diabetes. She says she wanted everyone to know in order to show that diabetes wouldn't keep her from her love of baking, or anything else. Turns out, there's another young woman with type 1 on the show this season! Stacey met Elise & her mom, Natalie, at an event in South Carolina. They spoke about the show, the stress and her diagnosis two years ago at Disney world. In TMSG - good news at the dentist - and it...

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More Episodes

Diagnosed with T1D in her 20s, Rachel Price admits she was in denial at first, insisting to her doctors there was nothing wrong. Now, she’s an advocate who stays positive but realistic. Rachel has three children and started a business called DiaBeTees selling t-shirts and other products with fun diabetes sayings and catchy slogans. 

Join the Diabetes Connections Facebook Group! 

In our Community Connection this week, Dan Haddin is off for Teach for America, but not before creating some fantastic diabetes song parodies. Stacey plays his latest - a funny appeal to Nick Jonas.

Click to watch "Diabetic Like You (Sucker Parody)"

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And in Tell Me Something Good, a day camp milestone and a hiker sets out to make his mark.

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00:00 Tease/Open: What's this week's show about?

1:50 Welcome: Stacey talks about JDRF Children's Congress coming up and talks about CWD Friends for Life later in July as well as her family's plans for the rest of the summer.

5:45 Stacey's interview with Rachel Price

32:40 Community Connection: Hear Dan Haddin's T1D Sucker Parody

36:45 TMSG: Inspired by Isabella: Isa goes to gymnastics day camp, Mike Joyce will hike the Appalachian Trail and Cami is excited (and worried) about her son heading off to college. 

Learn about Inspired by Isabella 

Follow Mike's journey on the AT

41:30 Stacey talks about the presentations she's doing at Friends for Life later this month and hints at something new coming up outside the podcast... stay tuned!

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