JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick
Diabetes Connections | Type 1 Diabetes
Release Date: 07/09/2019
When it’s even more than T1D: Stacy’s fight for health & hope
Diabetes Connections | Type 1 Diabetes
This week on Diabetes Connections.. when T1D is one of many chronic conditions. Stacy Abrams was diagnosed with type 1 at age five, and she’s faced a slew of other issues since then. Chronic fatigue, celiac, a long road to uncovering mold and environmental illness. She shares the highs and lows of that journey, what helped along the way, and why having a medical team that truly listens makes all the difference. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Join us at Learn more about Please visit...
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In the News.. CRISPR transplant for type 1, T1D risk if dad has type 2, Metformin and the brain, oral GLP-1, and more!
Diabetes Connections | Type 1 Diabetes
It's In the News.. a look at the top headlines and stories in the diabetes community. This week's top stories: CRISPR modified cell transplant for type 1, risk of T1D if parent has a different type of diabetes, Metformin and the brain, oral GLP-1, and more! Find out more about Please visit our Sponsors & Partners - they help make the show possible! Learn more about from extreme temperatures The best way to keep up with Stacey and the show is by signing up for our weekly newsletter: Here's where to find us: Learn more about everything at our...
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Why this endo is pushing for a diabetes drug you've probably never heard of (and the FDA has rejected).
Diabetes Connections | Type 1 Diabetes
We've got an important update on a diabetes drug you may have never heard about. Sotagliflozin is known to have big benefits for people with type 2 but getting it approved for type 1 has been frustrating to say the least. The FDA has twice declined to approve it for people with T1D, but experts – including my guest – are pushing and hoping that will soon change. I’m talking to Dr. Steve Edleman, an endocrinologist who lives with type 1 and heads up the group We’ll talk about the risks that come with sotogliflozin, how continuous ketone monitoring could change the game, and what you...
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Ask Me Anything: Unfiltered Wisdom from Natalie Bellini and Julia Blanchette, two healthcare providers who live with type 1 diabetes
Diabetes Connections | Type 1 Diabetes
We've got a funny, informative, helpful and no holds barred “Ask Me Anything” panels. Recorded at Moms’ Night Out in Cleveland, you’ll hear from two incredible experts who’ve lived with type 1 diabetes for decades—Julia Blanchette, PhD, RN, CDCES, and Natalie Bellini, DNP, FNP-BC, CDCES. We tackle everything from helping grandparents understand modern T1D care, to balancing diabetes in a marriage, to managing ADHD alongside diabetes in teens. We’ll also dig into why screening for type 1 is so important—and how to find the community and resources that make life with diabetes...
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In the News... GLP-1 oral pill moves forward, Medtronic-Abbott sensor unveiled, Afrezza submitted for kids, diabetes scholarships and more!
Diabetes Connections | Type 1 Diabetes
It's In the News.. a look at the top headlines and stories in the diabetes community. This week's top stories: cancer reserach may lead to T1D treatment, GLP-1 oral pill moves forward, Tandem pharmacy moves, Medtronic-Abbott sensor unveield, parents of kids with T1D see income drop, Mannkind submits Afrezza for pediatrics, diabetes scholarships and more! Find out more about Please visit our Sponsors & Partners - they help make the show possible! Learn more about from extreme temperatures The best way to keep up with Stacey and the show is by...
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Ketones: preventing DKA now and hope for the future of monitoring
Diabetes Connections | Type 1 Diabetes
We’re all supposed to know about ketones, but how much education did you actually get? I’m talking to Dr. Jennifer Sherr, a pediatric endocrinologist who lives with type 1 about the basics of ketones and a lot more. She shares best practices to stay safe, what most people with diabetes really do and what she’s hopeful for in terms of making ketone monitoring easier. We’ve been managing T1D for 18 plus years and I was surprised, there was still a lot here I didn’t know. This podcast is not intended as medical advice. If you have those kinds of questions, please...
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Peloton’s Robin Arzón on T1D Screening Plus: The Science Behind Tzield
Diabetes Connections | Type 1 Diabetes
We're diving into the first-ever treatment that can delay the onset of type 1 diabetes—Tzield—and hearing from two powerful voices helping spread the word about screening. First, Peloton star Robin Arzon shares her personal journey - managing diabetes through marathons, pregnancy, and parenting—and why she believes time and information are two of the most valuable tools in diabetes care. Robin is VP of Fitness Programming and Head Instructor at Peloton, 27x marathoner, Swagger Society Founder, best-selling author, and Sanofi spokesperson We're also going to learn more about Tzield itself...
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In the News.. A new insulin approved, DOJ rules on CGM in schools, T2D artificial sweetener study, and more!
Diabetes Connections | Type 1 Diabetes
It's In the News.. a look at the top headlines and stories in the diabetes community. This week's top stories: FDA approves the first fast-acting biosimilar insulin in the US, Tandem issues warning, DOJ stands up for remote monitoring in schools, GLP1 use protects against dementia, and more! Find out more about Please visit our Sponsors & Partners - they help make the show possible! Learn more about from extreme temperatures The best way to keep up with Stacey and the show is by signing up for our weekly newsletter: Here's where to find us: Learn...
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T1D pregnancies deserve better research: this study targets the gaps
Diabetes Connections | Type 1 Diabetes
Pregnancy with type 1 diabetes requires tight management—but what if the very tools designed to help aren't designed or approved for pregnancy? We’re talking about the T1D Pregnancy & Me study, a groundbreaking effort to close the data gap and include pregnant women in diabetes tech research. We’ll go through who can be in this study, how It works, what they’re looking for and what it could mean for the future of diabetes care during those nine months and a lot more. My guests are: Dr Camille E. Powe, an Associate Professor at Massachusetts General Hospital and Harvard Medical...
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Managing type 1 diabetes at 200 MPH: Conor Daly on Racing, Resilience, and Inhalable Insulin
Diabetes Connections | Type 1 Diabetes
Managing type 1 when your job means you burn more than 5-thousand calories and lose 10 pounds of water in one day is.. a little different. I caught up with IndyCar driver Conor Daly who is in the middle of the season right now! Diagnosed at 14, Conor talked to me about continuing to chase his dreams of racing, using inhaled insulin – Afrezza – as part of his T1D management for a long time now, how he deals with diabetes during races, and a lot more. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Join us at ...
info_outlineJDRF’s Children’s Congress kicks off this week and we’re talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children’s Congress is all about and how to apply next time around.
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Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We’ve got advice from parents of little swimmers and adults who take hot yoga.
Scroll to the bottom to see a list of items/products mentioned during this episode.
In Tell Me Something Good, we’ll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group.
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This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
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Show Open/Tease
Stacey Welcome - Find out more about Project 50 in 50
JDRF Children's Congress Greater Western Carolinas Chapter Delegates
Community Connection Getting Gear to Stick:
TMSG:
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This list is full of brand name and generics. I’ve linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone’s skin is different, so is our health insurance. It’s possible that what works for you may actually be covered. Stranger things have happened.
I expect to edit & add to this list in the weeks and months to come. Hope it helps!
Sticky Wipes
These make the skin a bit tacky in order to give the material you put on top a better hold.
Skin Tac wipe or liquid
IV Prep wipe
Mastisol liquid
Stoma Care wipe w/aloe
Hollister skin gel
ReliaMed wipe
Tapes/Patches
Tegaderm film dressing
Opsite Flexifix transparent film
Hypafix dressing tape
RockaDex Dexcom patches
GrifGrips adhesive patch
Waterproof Bandaid
Wraps/Bands
Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape)
Vet Wrap
Athletic Sleeves
Rash Guard/Swim shirt (cut to fit)
Misc.
EK Tools Tag Punch Classic (Dexcom-sized hole punch)
Dexcom & Libre Rash (Public Facebook Group)