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JDRF Children's Congress 2019 / Getting Diabetes Gear to Stick

Diabetes Connections with Stacey Simms Type 1 Diabetes

Release Date: 07/09/2019

Off to College with T1D: Navigating Communication and Boundaries for Caregivers show art Off to College with T1D: Navigating Communication and Boundaries for Caregivers

Diabetes Connections with Stacey Simms Type 1 Diabetes

Off to college, just for caregivers! Stacey took part in a webinar panel hosted by The Diabetes Link to talk about advice and experience all around sending young adults with type 1 diabetes away to school. She's joined by Anna Sabino, CDCES of Finding Smiles Coaching. The panel is hosted by Diane Rose, director of programs for The Diabetes Link. A transcript is below Find out more about Please visit our Sponsors & Partners - they help make the show possible! Edgepark Medical Supplies from extreme temperatures Learn more about Drive The best way to keep up with Stacey and the show is...

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In the News: Medtronic CGM, semaglutide for T1D, Apple teases non invasive monitoring, Keto for kids? and more! show art In the News: Medtronic CGM, semaglutide for T1D, Apple teases non invasive monitoring, Keto for kids? and more!

Diabetes Connections with Stacey Simms Type 1 Diabetes

It’s In the News, a look at the top stories and headlines from the diabetes community happening now. Top stories this week: a new CGM from Medtronic is approved in Europe, semaglutides for people newly diagnosed type 1 may make a huge difference, a look at Keto diet for kids, Apple teases non-invasive glucose monitoring and Dexcom U is back! Find out more about Please visit our Sponsors & Partners - they help make the show possible! Edgepark Medical Supplies from extreme temperatures Learn more about Drive The best way to keep up with Stacey and the show is by signing up for our...

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Navigating the wild with T1D: outdoor guide Sarah Janin show art Navigating the wild with T1D: outdoor guide Sarah Janin

Diabetes Connections with Stacey Simms Type 1 Diabetes

This week, it’s one thing to push yourself when you live with type 1 diabetes.. we talk a lot about extreme athletes with T1D, but it’s another thing to live with diabetes when others rely on you for their safety. Sarah Janin is an outdoor adventure guide for sports like rock climbing and ice climbing and avalanche education. Sarah was diagnosed with type 1 as a toddler, in a time before meters, let alone CGMs, and is incredibly honest about her struggles. She’s thriving with diabetes now and she shares what she does to keep herself and her clients safe in the outdoors that she...

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Life-Saving Legislation: changing the rules around rescue glucagon show art Life-Saving Legislation: changing the rules around rescue glucagon

Diabetes Connections with Stacey Simms Type 1 Diabetes

Most of us wouldn’t think twice about using someone else’s emergency glucagon if our child or another adult needed it. But that’s something a school nurse or other health care provider could lose their license over. Now, some states are passing legislation to make it easier for anyone to use any one’s rescue glucagon. We talk to and his wife, Trip Stoner, a long-time diabetes advocate who lives with type 1 about what they were able to get passed in their state, what you can do to take action in yours, and what they’re planning next to help people with diabetes. Find Read Contact...

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In the News... Abbott nabs Bigfoot, low-dose aspirin for T2D, can ChatGPT answer diabetes questions? and more! show art In the News... Abbott nabs Bigfoot, low-dose aspirin for T2D, can ChatGPT answer diabetes questions? and more!

Diabetes Connections with Stacey Simms Type 1 Diabetes

It’s In the News, a look at the top stories and headlines from the diabetes community happening now. Top stories this week: Abbott acquires Bigfoot, a new study looks at low-dose aspirin to prevent type 2, researchers look into whether the AI ChatGPT can answer FAQs about diabetes, Beyond Type Run is back for the NYC Marathon, and more! Our previous episode with Bigfoot Biomedical: Please visit our Sponsors & Partners - they help make the show possible! from extreme temperatures Learn more about Drive The best way to keep up with Stacey and the show is by signing up for our...

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Breaking Limits - A Type 1 Diabetes Extreme Sports Documentary show art Breaking Limits - A Type 1 Diabetes Extreme Sports Documentary

Diabetes Connections with Stacey Simms Type 1 Diabetes

This week, a new project to show an adventurous side of diabetes. a documentary about extreme athletes with type 1. The film makers are interviewing snowboarders, kayakers and professional athletes like Indy Driver Conor Daly and Soccer's Jordan Morris. Director Dylan Leonard talks to me about why he wanted to make this movie – he lives with type 1 – how they’re going about it and why he thinks – in an age when we can see people with T1D doing all sort of amazing things – like playing in the NFL or serving on the Supreme Court – this type of film is still needed. This podcast is...

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In the Spotlight with T1D - Driver Ryan Reed, NFL player Chad Muma, and actress Mary Mouser show art In the Spotlight with T1D - Driver Ryan Reed, NFL player Chad Muma, and actress Mary Mouser

Diabetes Connections with Stacey Simms Type 1 Diabetes

Meet three young adults who are all in the spotlight AND have type 1 diabetes. NFL player Chad Muma, actor Mary Mouser, and professional race car driver Ryan Reed took part in a panel discussion at this summer's Friends for Life conference. The moderator is CNN correspondent Oren Liebermann, who also lives with T1D. I attended this panel in person and thought it would be fun to bring to a wider audience. One of the things you don’t hear is a short film about Chad Muma that was shown at the start of the panel.. it’s a great look at how he kept his dream of playing in the NFL going after his...

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In the News.. Amazon Pharmacy automates insulin discounts, A1Cs go down for this group, a wild T2D study, and more! show art In the News.. Amazon Pharmacy automates insulin discounts, A1Cs go down for this group, a wild T2D study, and more!

Diabetes Connections with Stacey Simms Type 1 Diabetes

It’s In the News, a look at the top stories and headlines from the diabetes community happening now. Top stories this week: Amazon Pharmacy will automatically apply insulin coupons, a new study shows A1Cs are going down for people with T1D who have access to technology, pollution and gestational diabetes study and a wild study that looks at how a parasite might help prevent type 2. Don't miss Please visit our Sponsors & Partners - they help make the show possible! from extreme temperatures Learn more about Drive The best way to keep up with Stacey and the show is by signing up for...

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Our son with T1D is off to college! A candid conversation with Benny about managing diabetes during this new phase of life show art Our son with T1D is off to college! A candid conversation with Benny about managing diabetes during this new phase of life

Diabetes Connections with Stacey Simms Type 1 Diabetes

It's one of the biggest milestones in my family’s experience with diabetes. Our son is off to college! I asked Benny to come on and talk about what’s on his mind, how he’s feeling and to answer your questions, including if he’s going to tell people he has T1D. We also answer your questions about overnights, how we’ve prepared, our plan for share and follow and much more. I can’t believe this day is here! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Our previous episodes with Benny: Don't miss ...

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Which tech? What's covered? DiabetesWise has answers for patients and providers show art Which tech? What's covered? DiabetesWise has answers for patients and providers

Diabetes Connections with Stacey Simms Type 1 Diabetes

This week, figuring out which diabetes devices you want to use is hard enough.. but then you have to navigate insurance. There’s a new effort to streamline the process - a platform called DiabetesWise that’s available – for free - for patients and providers: Korey Hood is the founder of DiabetesWise and he lives with type 1. We’ve talked about DiabetesWise before – but this insurance option is new. We talk specifics about how it can help, who it’s for and what else Korey has in store for the platform. This podcast is not intended as medical advice. If you have those kinds of...

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More Episodes

JDRF’s Children’s Congress kicks off this week and we’re talking to three really incredible delegates. Meet Jack, Hannah, and Kabir who will all tell their stories to legislators. You'll also hear from Stacey's local advocacy chair to find out what Children’s Congress is all about and how to apply next time around.

Join the Diabetes Connections Facebook Group! 

Our Community Connection this week is all about getting diabetes gear to stick in the hot sweaty summer. We’ve got advice from parents of little swimmers and adults who take hot yoga.

Scroll to the bottom to see a list of items/products mentioned during this episode.

In Tell Me Something Good, we’ll talk about a trip of a lifetime as a 16 year old travels to the remote Yukon with a school group. 

 Sign up for our newsletter here

This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.

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Show Open/Tease

Stacey Welcome - Find out more about Project 50 in 50

JDRF Children's Congress Greater Western Carolinas Chapter Delegates

Community Connection Getting Gear to Stick:

TMSG: 

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This list is full of brand name and generics. I’ve linked to a website when the brand has one. You may also want to try Amazon or ask your medical supply provider. Just as everyone’s skin is different, so is our health insurance. It’s possible that what works for you may actually be covered. Stranger things have happened.

I expect to edit & add to this list in the weeks and months to come. Hope it helps!

Sticky Wipes

These make the skin a bit tacky in order to give the material you put on top a better hold.

Skin Tac wipe or liquid

IV Prep wipe

Mastisol liquid

Stoma Care wipe w/aloe

Hollister skin gel

ReliaMed wipe

Tapes/Patches

Stay Put Medical Patches

Tegaderm film dressing

Opsite Flexifix transparent film

Hypafix dressing tape

RockaDex Dexcom patches

GrifGrips adhesive patch

Waterproof Bandaid

Wraps/Bands

Kinesiology Tape (Includes brand names KT Tape, Rock Tape, Vara Tape)

Vet Wrap

SleekSleeves

Bands4Life

Athletic Sleeves

Rash Guard/Swim shirt (cut to fit)

Misc.

EK Tools Tag Punch Classic (Dexcom-sized hole punch)

Dexcom & Libre Rash (Public Facebook Group)