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Episode 29 | Tiger Livy's Story - An interview with Erin Garcia and Betsy Miller

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Release Date: 11/04/2019

Episode 147 | Expert: Child Life Specialists in Sweden show art Episode 147 | Expert: Child Life Specialists in Sweden

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On today's episode of the podcast we will hear from Kirsten Black, a Certified Child Life Specialist, who had the opportunity to visit children's hospitals in Sweden. Kirsten shares her perspective on the major differences in pediatric healthcare, what she learned along the way and how it has influenced her as a Child Life Specialist. She shares her unconventional yet beautiful journey to the field of Child Life. [4:00] Introducing herself [7:15] Pivoting after the economy crashed [8:30] A seed was planted [10:15] Utilizing her degree in education [12:00] Using a brain map to help a patient...

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Episode 146 | Caryn’s Story - A daughter with ALCAPA Congenital Heart Defect show art Episode 146 | Caryn’s Story - A daughter with ALCAPA Congenital Heart Defect

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Caryn shares about her daughter Elaina developing ALCAPA, a congenital heart defect, and how they found out weeks after an uneventful pregnancy.  Caryn will shed light on how she coped with Elaina's diagnosis and how she strongly advocated for her along the way. You will feel moved by Caryn's fierce love and commitment to her daughter [2:25] Takeaways on numbing cream from Katie [7:22] Caryn introduces her family [10:16]  Experiencing a wide variety of symptoms [12:56] A visit to the emergency room [15:16] Diagnosis of ALCAPA and emergency surgery [18:40] Caryn was not able to go...

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Episode 145 | Ashley and Martha’s Stories from Dear NICU Mama show art Episode 145 | Ashley and Martha’s Stories from Dear NICU Mama

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On today's episode of the podcast, Ashley + Martha from Dear NICU Mama share their personal stories of trials and joy as they navigated difficult seasons as NICU moms themselves. You will feel right at home with the wit and charm Martha and Ashley bring to this episode. You learn why and how these amazing women created the Dear NICU Mama community all while giving us bits of wisdom, laughter and empowerment along the way. **Trigger Warning**: This episode talks about infant loss. If your heart isn't in the place to listen today, feel free to fast forward through Martha's part of the story.**...

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Episode 144 | Alex’s Story - A NICU Dad Perspective show art Episode 144 | Alex’s Story - A NICU Dad Perspective

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

As a NICU Dad, Alex Zavala share his perspective and critical role as a father on today's episode of the podcast. Alex shares so many moments along his journey that impacted him and gives advice to fellow NICU dads out there. This episode is for you too moms and partners-- you will learn more about the dad perspective and how to support your spouse. [3:32] Alex shares about his family [7:39] Giving his wife daily injections [9:49] Went to the store to register for baby gifts [10:41] Alex's wife called to let him know her water broke [11:00] The drive to the hospital [14:16] Feeling like you...

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Episode 143 | Emily’s Story - Staying Organized as a Medical Parent show art Episode 143 | Emily’s Story - Staying Organized as a Medical Parent

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On today's episode of the podcast, Emily Lemke shares how to stay organized as a medical parent. Emily's expertise comes from being a medical parent herself and a clinical social worker. She shares about her own journey navigating the world of being a medical parent and the passion behind creating . You will learn how to manage everything that comes with this title without becoming overwhelmed. [1:52] Introducing her family [2:38] Nora's premature birth and 97 day NICU stay [4:26] Coming home from the NICU with a G-Tube [5:48] Finding a feeding tube solution for Nora [7:15] Feelings...

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Episode 142 | Swapnil’s Story - A daughter with severe food allergies show art Episode 142 | Swapnil’s Story - A daughter with severe food allergies

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Swapnil, father of two, shares on this episode of the podcast about his daughter, Anya, who has severe food allergies.  Swapnil shares about Anya's first symptoms of a food allergy and the event that revealed the severity of her allergies. Whether you are a parent or Clinician, you will gain so much understanding and knowledge about food allergies by listening to Swapnil's story. [2:10] Value of resources along the journey [4:00] Introducing the family [4:56] Eczema struggles at 6 months old [5:30] Anya had a anaphylactic reaction to cashew butter [6:44] Awareness is arising about food...

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Episode 141 | Hannah’s Story - Kids with Febrile Seizures show art Episode 141 | Hannah’s Story - Kids with Febrile Seizures

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Hannah bravely shares how her two young daughters developed febrile seizures. Although febrile seizures are common, it is something that isn't talked about enough. Hannah will shed some light for families walking through this diagnosis and provide you with ways to navigate the practicality and emotions that come along with it. [2:47] Hannah introduces her family [4:45] Sharing symptoms and instincts [6:08] Finding her daughter, Hadley, unresponsive in her crib [8:16] Hand foot and mouth was the initial culprit of the fever [10:52] Discharge instructions after having a febrile seizure [11:43]...

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Episode 140 | Melanie’s Story - A toddler diagnosed with Type 1 Diabetes show art Episode 140 | Melanie’s Story - A toddler diagnosed with Type 1 Diabetes

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

 " It was like I was leaving home with a newborn because I had no idea what to do. We were in survival mode for those 3 days in the hospital. It was just nothing that I ever expected to be dealing with.'-Melanie Smith Melanie shares how she learned of her daughter's diagnosis of type 1 diabetes when her daughter was 18 months old. She so vulnerably shares their journey from diagnosis to life at home. This story is packed full of great insight to families navigating a new diagnosis of type 1 diabetes. [2:50] Melanie introduces her family [5:33 Noticing an excessive thirst in her daughter...

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Episode 139 | Facility Dog’s In Children’s Hospitals show art Episode 139 | Facility Dog’s In Children’s Hospitals

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

"A patient becomes so vulnerable with them because they don't even realize what they are doing. When you are in that moment petting the dog, every emotion, feeling and thought runs free because you aren't having to focus on a conversation, it is so natural." -Shelby Bonnet, CCLS Shelby Bonnet, a certified Child Life Specialist and Animal Assisted Therapy Coordinator, shares how facility dogs are utilized in children's hospitals. This episode is packed full of information on how facility dogs impact patient care and how to balance patient and clinician needs. If you are a parent who has ever...

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Episode 138 | Piper + Enza: A Covid-19 Inspired Health and Happiness Company for Kids show art Episode 138 | Piper + Enza: A Covid-19 Inspired Health and Happiness Company for Kids

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On todays episode, we will hear from Rita Ho-Bezzola, CEO and Founder of Piper + Enza: A Covid-19 inspired health and happiness company for kids. Rita shares her inspiration behind Piper + Enza and how her goal is to make common health experiences positive for children and parents. You will not want to miss this episode!  [2:30] Sharing about her family [6:14] How Covid-19 was her inspiration create Piper + Enza [8:10] The moment Rita discovers her mission [10:10] Using Literacy to help children cope with medical experiences [14:45] Growing pains of parenting and children [15:00] Changing...

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More Episodes

This episode of the Child Life On Call podcast is different that what you're used to hearing, but I fell in LOVE with a book called Tiger Livy and I knew I had to interview the authors.

Tiger Livy is the story of a brave six-year-old who inspires empathy, patience, and grit in young readers. It was created for children living with chronic illness but is a great read for any child, even if they're not sick. 

Co-Authors, Betsy Miller, who experienced her own limitations as a child and Erin Garcia, who grew up with a brother who required multiple hospitalizations, authored the book and in our conversation they give great insight into how friends and family members can support families facing challenges.

You can find the book here and see Betsy Miller's other published books here. Follow along with the Tiger Livy Project on Instagram and Facebook. 

Information on Juvenile Myositis can be found at www.curejm.org

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