Inside the Children's Hospital

There is a powerful unspoken language between two parents who have never met, but know in their deepest soul what the inside of a children's hospital feels like. The invisible words to each other say: I see you because I'm here too. I understand you because I'm scared too. I hope for you because I pray for me too. Inside a children's hospital, there is joy and grief. Love and fear. Miracles and loss. This podcast exists to tell these stories. Hosted by Katie Taylor, a Certified Child Life Specialist with over 15 years of experience supporting families in pediatric healthcare, Inside the Children's Hospital shares authentic conversations with parents, patients, child life specialists, doctors, nurses, and everyone who understands what happens when a child faces a medical diagnosis. Whether you're a parent searching for connection at 2 a.m., a healthcare provider seeking to better support families, or someone who believes in the power of shared experience—these stories are for you. New episodes every Wednesday featuring families navigating diagnoses from type 1 diabetes to rare genetic conditions, from the NICU to the ICU, and everywhere in between. Formerly known as Child Life On Call podcast (2017-2025), with nearly 300 episodes and stories across 150+ medical conditions. Connect with us: Instagram: @insidethechildrenshospital Host Katie Taylor: @childlifeoncall Resources: supportspot.com

NICU, Trach and Home Care: One Family's Journey to Stability 04/29/2026

NICU, Trach and Home Care: One Family's Journey to Stability What does it look like when life changes in an instant—and a family learns to navigate the unimaginable? In this episode of Inside the Children’s Hospital, Katie Taylor sits down with Marah, a mom of four, who shares her daughter Abigail’s journey after a cardiac arrest at just nine days old. What began as a healthy twin pregnancy quickly shifted into a complex medical path involving a NICU stay, life support, and long-term care needs. As Marah and her husband entered the world of medical parenting, they faced fear, uncertainty, and overwhelming decisions. Through it all, they leaned on their care team, family support, and each other—learning how to advocate, adapt, and ultimately find moments of joy within the journey. This conversation highlights the realities of raising a medically complex child, the power of community, and how resilience is built over time. You’ll hear: What it was like navigating a sudden cardiac arrest in a newborn The early days in the NICU and learning to care for a medically complex child How Marah advocated for family presence and support during hospitalization The transition from crisis to confidence in managing trach and G-tube care How community, connection, and shared experiences shaped their journey The emotional realities of ongoing medical challenges, including epilepsy This is a story of advocacy, growth, and finding strength in the most unexpected places. What You’ll Learn in This Episode Why learning CPR and emergency preparedness can be life-saving for families How to advocate for your child and communicate your needs with care teams The role of multidisciplinary care in managing complex medical conditions What life at home can look like with medical equipment and home nursing support How community and peer support impact long-term coping and resilience The importance of asking for help and building a sustainable support system How perspectives can shift from grief to gratitude over time Key Takeaways Even in the most overwhelming moments, support, advocacy, and connection can carry families forward—and help transform crisis into a new kind of strength. Connect with Marah Instagram: Resources Mentioned Emergency Preparedness for Families Infant & Child CPR (American Red Cross) Trach & G-Tube Care Resources Feeding Tube Awareness Foundation Building Community & Support Parent to Parent USA Trach Support Mom's of Trach Babies Connect with Us Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Pediatric Health, Medical Parenting, NICU Journey, Infant Cardiac Arrest, Medically Complex Child, Children’s Hospital, Pediatric Critical Care, Family-Centered Care, Patient Advocacy, Tracheostomy, G-Tube Feeding, Epilepsy in Children, Special Needs Parenting, Caregiver Support, Resilience /episode/index/show/childlifeoncall/id/40995210

Meningitis in Children: When a Mother's Instinct Led to Life-Saving Answers 04/22/2026

Meningitis in Children: When a Mother's Instinct Led to Life-Saving Answers What happens when your child seems sick, but everything keeps coming back normal? For a lot of parents, the scariest part isn’t the diagnosis. It’s the not knowing. It’s being told everything looks fine when your gut is telling you something is off. This week, Katie sits down with Kayleigh, a medical assistant and mom of three, to share the story of her daughter Kanessa. Almost a year after a freak eye injury that seemed to heal, Kanessa suddenly got sick. At first, it looked like a simple virus. But within days, things escalated fast. Kaylee shares what it was like trying to make sense of symptoms that didn’t quite add up. Normal test results. A child who seemed okay one minute and not the next. And that moment when everything changed with one scan. From there, their world shifted quickly. A brain bleed. A diagnosis of bacterial meningitis. Emergency surgery. A 40-day hospital stay. Kaylee talks about what it took to keep going through all of it, while also caring for a newborn and being away from her other child. She also shares how she supported Kanessa through it all. Being honest about what was happening. Preparing her for procedures. Letting her ask questions. And leaning on Child Life in a way that made a huge difference for both of them. If you’ve ever wondered if you’re overreacting or if you should push for more answers, this episode will stay with you. Kaylee’s story is a reminder to trust yourself and keep advocating. This episode is sponsored by Gebauer PainEase®. We’re so grateful for their support. To learn more about this product, visit . This is our 300th episode, which feels pretty surreal. We’re so grateful you’re here. Special Giveaway ☕️Your support means so much to us, and we’re truly grateful for this community. As a small thank you, we’re offering a $10 Starbucks gift card to the first 20 listeners who leave a review. If the podcast has made an impact on you, we’d love to hear your thoughts. Simply screenshot your review and email it to to claim your gift. Thank you for being part of this journey with us 💛 Resources & Ways to Connect Connect with Kaleigh on Connect with Us Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: bacterial meningitis child story, pediatric brain hemorrhage, delayed diagnosis child illness, parenting through medical trauma, child life support hospital, pediatric emergency story, advocating for your child medical care, cochlear implant child, hearing loss after meningitis, navigating pediatric hospitalization, medical parent journey, trusting parental instincts /episode/index/show/childlifeoncall/id/40946075

When a Parent Has Cancer: What Kids Understand Before We Say It 04/15/2026

When a Parent Has Cancer: What Kids Understand Before We Say It What happens when your child already senses something life-changing—before anyone has found the words to say it out loud? When serious illness enters a family, children often understand more than we realize. And for caregivers, the challenge becomes not only navigating medical decisions, but also finding the right way to support their children through it all. This week, Katie sits down with Anna Lonon, founder of to share her family’s story of navigating cancer when her husband Michael was diagnosed with stage three head and neck cancer at just 29 years old. While raising a young son and later welcoming a newborn daughter, Anna faced the unimaginable reality of caregiving, loss, and parenting through profound uncertainty. Anna opens up about what it looked like to balance hospital visits, therapies, and daily life, and the emotional toll of making impossible decisions while trying to hold her family together. She shares powerful moments, including the realization that her young son understood far more about his father’s illness than anyone had explained, and how that shaped the way she approached communication in the years that followed. After later facing her own cancer diagnosis, Anna made a different choice—seeking out child life support early to guide honest, developmentally appropriate conversations with her children. Through her experiences, she highlights the importance of listening to children’s cues, trusting your instincts as a parent, and creating space for both grief and resilience. If you’ve ever struggled with how to talk to your child about illness, felt overwhelmed as a caregiver, or wondered how to support your family through uncertainty, this conversation offers validation, insight, and hope. This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, Resources from today's episode: Visit the Connect with Us Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: parent cancer child support, talking to kids about cancer, caregiver mental load, parenting through illness, child life specialist support, family coping with cancer, grief and parenting, pediatric emotional support, supporting children through loss, caregiver burnout, trauma-informed parenting, childhood understanding of illness, cancer impact on families /episode/index/show/childlifeoncall/id/40826255

Spinal Muscular Atrophy (SMA): A Parent’s Journey from First Signs to Diagnosis 04/08/2026

Spinal Muscular Atrophy (SMA): A Parent’s Journey from First Signs to Diagnosis What happens when your instincts tell you something is wrong—but you’re dismissed again and again? For many parents, the journey to a diagnosis begins with a gut feeling—and the courage to persist in seeking answers. This week, Katie sits down with Nikki McIntosh, author and advocate, to share the story of her son Miles, who was diagnosed with spinal muscular atrophy (SMA) at just 18 months old. After noticing delays in his ability to stand and bear weight, Nikki followed her instincts despite initial dismissal—ultimately leading to a life-changing diagnosis. Nikki shares what those early days looked like—from navigating testing and procedures to receiving the diagnosis that changed everything. She opens up about the grief, fear, and urgency that followed, and how she quickly stepped into the role of advocate, building a care team and learning how to navigate complex medical systems in real time.. If you’ve ever questioned your instincts or felt lost navigating a diagnosis, this conversation offers validation, practical guidance, and hope. This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their Resources & Ways to Connect Visit Find wherever books are sold (Amazon, Barnes & Noble, Target, and more) Helpful Resources Mentioned Connect with Us Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: spinal muscular atrophy, SMA child story, rare disease diagnosis child, delayed milestones baby, parenting medically complex child, rare disease advocacy, navigating pediatric diagnosis, EMG test child, pediatric neuromuscular disease, child life coping tools, supporting child through medical tests, rare disease parent support, medical parent journey, hope after diagnosis /episode/index/show/childlifeoncall/id/40699630

HIE at Birth: A Dad’s Story of Brain Injury, NICU Trauma, and Finding Purpose 04/01/2026

HIE at Birth: A Dad’s Story of Brain Injury, NICU Trauma, and Finding Purpose Within minutes of arriving at the hospital, Brady and his wife were told their newborn daughter had suffered a severe brain injury. In this episode of Inside the Children's Hospital, Katie sits down with Brady Crandall, founder of Youth Crews, to share his family’s journey following a diagnosis of hypoxic ischemic encephalopathy (HIE). What began as a routine pregnancy quickly turned into an emergency delivery, NICU stay, and a new reality as parents of a medically complex child. Brady opens up about: The shock and uncertainty of those early days Navigating life as a “medical dad.” The balance of grief and joy that often coexist How early intervention and community shaped their path Through this experience, Brady recognized a gap many families face: a lack of dignified, age-appropriate products for children with disabilities. That realization led to the creation of Youth Crews—a brand focused on comfort, dignity, and rethinking what medical products can look like for kids. If you’ve ever found yourself wishing something existed to better support your child—or felt the pull to create change—this episode will leave you feeling seen, understood, and inspired. This episode is sponsored by Gebauer PainEase®We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit Resources & Ways to Connect Learn more about and their mission to create dignified products for kids with disabilities Follow Youth Crews Mentioned in This Episode Connect with us! Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Disclaimer: Medical information shared in this episode is not a substitute for professional advice. Please consult your care team for guidance specific to your child. Keywords: hypoxic ischemic encephalopathy, HIE baby story, NICU brain injury, medical dad perspective, parenting child with disabilities, pediatric brain injury journey, adaptive products for kids, inclusive design children, youth crews diapers, special needs parenting support, early intervention services, disability advocacy parenting, medically complex child parenting, child life support tools /episode/index/show/childlifeoncall/id/40544080

Preparing Your Child for Surgery: A Pediatric ENT Surgeon’s Honest Advice 03/25/2026

Preparing Your Child for Surgery: A Pediatric ENT Surgeon’s Honest Advice How do you prepare a child for surgery and build trust with their medical team? This episode explores how families and healthcare providers can work together to support children through procedures like tonsillectomy and other medical challenges. This week’s guest, Dr. Tali Lando, shares her perspective as a pediatric ENT surgeon, author, and mom of three teenage daughters. She and Katie discuss what it’s really like for families navigating medical care with complex kids and how parents can advocate effectively while still building strong partnerships with their child’s care team. If you’ve ever wondered how to build trust with your child’s doctor, prepare your child for surgery, or understand the perspective of the people caring for your child, this episode offers meaningful insight and reassurance. Dr. Lando’s message is clear: the best outcomes happen when families and providers work together as partners. We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their Resources & Ways to Connect: Book: Breathless: Surgical Tales from the Brink and Back By Dr. Tali Lando Connect with us! Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: pediatric ENT surgeon, tonsillectomy preparation for kids, preparing children for surgery, pediatric airway specialist, parenting medically complex children, doctor-patient partnership, advocating for your child in healthcare, pediatric surgery preparation, airway disorders in children, Breathless Dr. Tali Lando, medical memoir pediatric surgeon, supporting families in pediatric healthcare /episode/index/show/childlifeoncall/id/40543995

Life After Pediatric Kidney Transplant: A Mom’s Journey Through Dialysis, Surgery, and Recovery 03/18/2026

Life After Pediatric Kidney Transplant: A Mom’s Journey Through Dialysis, Surgery, and Recovery What does life really look like after a child receives a kidney transplant? Many people think transplant is the end of the journey—but for families, it’s often just the beginning. This week’s guest, Lyndsey Fedorko, returns to the podcast to share the next chapter of her son James’s medical journey—life after a kidney transplant. After years of dialysis, hospitalizations, and uncertainty, James received a life-saving kidney transplant from his aunt, marking the beginning of a new season for their family. Lyndsey and Katie reflect on the intense months surrounding transplant surgery, including relocating their family to Houston, navigating the transplant workup process, and the emotional weight of waiting while two surgeries—donor and recipient—happened at the same time. Lyndsey shares what recovery really looked like, from the long hospital stay caused by a rare complication to the daily routines required to protect James’s new kidney. Lyndsey shares openly about the ongoing care James still needs, including medications, monitoring for rejection, therapies, and the unexpected challenges that came after transplant—including a rejection episode that required intensive treatments. If you’ve ever wondered what life after pediatric transplant truly looks like, this conversation offers an honest and hopeful look at resilience, advocacy, and the power of family support. We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their Resources & Ways to Connect: Provides housing and support for families traveling for pediatric transplant care. - Support and Educational Resources for families navigating pediatirc Kidney Transplants Connect with us! Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: pediatric kidney transplant, life after transplant child, dialysis in children, kidney disease in kids, transplant rejection treatment, pediatric transplant recovery, living donor kidney transplant, children’s transplant initiative housing, transplant parent story, caring for medically complex child, pediatric kidney failure journey, transplant family support, child life coping tools, parenting through pediatric illness. /episode/index/show/childlifeoncall/id/40345040

Healing After the NICU: Processing Trauma, Loss, and Your Family's Story 03/11/2026

Healing After the NICU: Processing Trauma, Loss, and Your Family's Story This week’s guests, perinatal mental health therapists Emily Souder and Mahaley Patel, share the story behind their book Your NICU Story: Reflecting on Your Family’s Experience—a guided journal created to help families process the emotional impact of a NICU stay. Mahaley also opens up about her daughter, Sachi, who died after a NICU stay, and how storytelling and narrative healing became a lifeline in her grief. She and Emily talk with Katie about why so many NICU parents carry trauma long after discharge and how writing your story can help families reconnect with what they experienced. They also discuss the emotional weight of making medical decisions during a NICU stay, the importance of compassionate healthcare providers, and why healing sometimes begins months or even years later. If you’ve ever struggled to process a NICU experience—or wondered how to revisit it in a way that feels safe and meaningful—this conversation offers powerful insight and hope. Emily and Mahaley’s biggest message? Your story deserves space, compassion, and time—and reflecting on it can be an important step toward healing. We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their Resources & Ways to Connect: Book: Available wherever books are sold, including Amazon, Barnes & Noble, and local bookstores. Emily Souder, LMFT, PMH-C Mahaley Patel, LMFT, PMH-C Connect & Support from Child Life On Call: Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: NICU trauma, healing after NICU, NICU parent mental health, NICU journaling prompts, birth trauma support, NICU loss support, perinatal mental health therapist, processing NICU experience, life after NICU discharge, NICU storytelling, guided journal for NICU parents, neonatal intensive care support, grief after NICU, NICU parent resources /episode/index/show/childlifeoncall/id/40344900

Trust, Grief, and Loving Your Child Through Big Identity Changes 03/04/2026

Trust, Grief, and Loving Your Child Through Big Identity Changes What happens when your child shares something that shifts the future you thought you understood? In this episode of Inside the Children’s Hospital, Katie sits down with Kelly Kemp — certified child life specialist of more than 30 years and mom of three — to talk about navigating trust, grief, advocacy, and love after her child was diagnosed with gender dysphoria and came out as transgender. Kelly shares: The phone call that changed everything Navigating substance use and mental health concerns Grieving privately while choosing love publicly Rebuilding trust with her child Supporting siblings during a major transition Setting boundaries with extended family Finding affirming medical and mental health care Holding faith and parenting together during uncertainty This conversation is not about politics. It is about parenting inside a medical diagnosis. It is about trust. It is about grief that doesn’t mean rejection. And it is about the steady, protective love that children need — especially when the world feels loud. Whether your child is navigating a medical diagnosis, identity development, or a season you didn’t anticipate, this episode will remind you: Grief and love can coexist. Trust is foundational. And your child still needs you. Resources & Crisis Support: The Trevor Project: Providing crisis intervention and suicide prevention services to lesbian, gay, bisexual, transgender, queer & questioning (LGBTQ) young people. Call: 1-866-488-7386 Text: START to 678-678 988 Suicide & Crisis Lifeline: For mental health crises in the US. Free Mom Hugs WPath (World Professional Association for Transgender Health) The Trans Family Alliance Please note: Some organizations have private social media groups. For more information on those, you are welcome to private message Kelly Kemp. Connect & Support from Child Life On Call: Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. /episode/index/show/childlifeoncall/id/40286440

Helping Kids Navigate Physical Differences: Child Life Strategies for Confidence, Curiosity & Resilience 02/25/2026

Helping Kids Navigate Physical Differences: Child Life Strategies for Confidence, Curiosity & Resilience How do you help a child respond when someone asks about a scar, burn, or limb difference? This week’s guest, Abby Horton, opens up about her journey as a Child Life Specialist working across ICU, burn, surgical, rehab, and inpatient settings—and how those experiences shaped the way she supports families navigating physical differences. From sudden trauma and accidents to limb differences, burn injuries, surgical scars, and hair loss from chemotherapy, Abby shares how parents can gently empower their children to own their story with confidence. She and Katie discuss simple, age-appropriate scripts that help children respond to questions about their bodies. Abby explains why modeling these conversations early matters, how to give kids space to answer for themselves, and why curiosity from peers is often just that—curiosity, not cruelty. If you’ve ever wondered how to help your child respond to stares, questions, or comments about a physical difference, this conversation offers practical tools and deep reassurance. Abby’s biggest message? You’re probably doing better than you think—and it’s not about having perfect words, but about helping your child feel loved and supported. Today’s Episode is sponsored by Moog Medical. is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources & Ways to Connect: Website: Instagram: Abby offers virtual support for families navigating physical differences, medical transitions, and post-hospital adjustment. Connect & Support from Child Life On Call: Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: physical differences in children, limb difference support, burn survivor child, surgical scars in kids, hair loss from chemotherapy, child life specialist, five cent story, five dollar story, resilience in children, bullying vs curiosity, parenting medically complex child, body confidence in kids, hospital to home transition, psychosocial support for families, sibling advocacy, Little Lighthouses Child Life /episode/index/show/childlifeoncall/id/40204875

Micro Preemie at 25 Weeks: A NICU Mom’s Journey 02/18/2026

Micro Preemie at 25 Weeks: A NICU Mom’s Journey This week's guest opens up about the shock of an emergency C-section at 25 weeks and 3 days, the fear of entering the NICU for the first time, and the powerful role Child Life Specialists played in supporting not only Vincent, but their entire family, including his older brother. She reflects on what helped her cope during long NICU days, how she advocated for herself using her healthcare background, and what she wishes she had known about the “medically complex” label sooner. This episode explores sibling bonding in the NICU, the impact of a truly integrated care team, the importance of addressing social determinants of health, and how resilience can grow in the smallest of patients. Anna’s story is a beautiful reminder that families may not remember every name—but they will always remember how they were made to feel. Today’s Episode is sponsored by Moog Medical. is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources Mentioned Today's Episode: Connect with Anna: Anna is open to connecting with other NICU families—please email us at if you would like to connect with her! Connect & Support from Child Life On Call: Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: micro preemie, NICU journey, 25 week preemie, medically complex child, chronic lung disease in children, antepartum hospitalization, emergency C-section, sibling support in NICU, child life specialist, Ronald McDonald House, Hand to Hold, March of Dimes, NICU discharge, parenting after the NICU, medical motherhood, resilience in children, premature birth support, Midwest NICU mom /episode/index/show/childlifeoncall/id/40127520

Tube Feeding Awareness: Lived Experience, Real Talk, and Hope for the Future 02/11/2026

Tube Feeding Awareness: Lived Experience, Real Talk, and Hope for the Future When tube feeding enters your life—whether at birth, in childhood, or adulthood—it can feel overwhelming, isolating, and misunderstood. In this special live episode of Inside the Children’s Hospital, we center the voices of those with lived experience to explore what tube feeding really looks like beyond the diagnosis and discharge instructions. Host Katie Taylor is joined by parent advocates, a young adult patient, and a pediatric dietitian to share honest, unfiltered perspectives on NG tubes, G-tubes, GJ tubes, and blended feeds. Together, they discuss early fears and misconceptions, navigating medical systems and insurance, advocating for better options, and how tube feeding can ultimately bring relief, stability, and freedom. This conversation highlights the power of community, the importance of being believed, and what compassionate, family-centered support truly looks like—for patients, parents, and professionals alike. Today’s Episode is sponsored by Moog Medical. is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources from today’s episode: for Community, Education, and so much more! A SXSW Short Film on the reality of tube-feeding, called Connect with Guests from Today’s Episode: Kelsey Ward – Parent advocate and medical parent, Follow Kelsey on Brady Crandall – Parent advocate and founder of Alexa Quintero – Patient advocate and young adult with lived tube feeding experience Hilarie Geurink, RD – Pediatric dietitian specializing in flexible, real-food tube feeding, Founder of Connect & Support from Child Life On Call: Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Keywords: Tube feeding awareness, G-tube parenting, NG tube experience, GJ tube support, Medical parent advocacy, Pediatric nutrition support, Blended tube feeding, Real food tube feeding, Feeding tube myths, Medical trauma and advocacy, Young adult chronic illness, Child life support, Family-centered care, Hospital parent support, Living with feeding tubes Medical information provided is not a substitute for professional advice—please consult your care team. /episode/index/show/childlifeoncall/id/40063120

How Camp Supports Healing, Play, and Belonging for Medically Complex Kids 02/04/2026

How Camp Supports Healing, Play, and Belonging for Medically Complex Kids When your child’s life is shaped by medical complexity, childhood can quickly become defined by hospital stays, procedures, and limitations. In today’s episode, we explore how medically supported camps transform that narrative—creating space for joy, belonging, and healing for children, families, and even healthcare providers themselves. Katie Taylor is joined by Dr. Laura Blaisdell, Chief Medical Officer of SeriousFun Children’s Network, and Jamie Gentille, Child Life Specialist Leader and former camper, to share the life-changing impact of camp for children with serious illnesses. From zip-lining with oxygen tubing to late-night cabin chats that build confidence and identity, this conversation highlights how thoughtfully designed camp experiences allow kids to be kids—without compromising medical safety. This episode explores the power of positive childhood experiences, how camps seamlessly integrate complex medical care behind the scenes, the role of child life specialists and medical volunteers in creating safe spaces for play, and why camp is just as healing for providers as it is for children. You’ll also hear Jamie’s personal journey from camper to child life specialist and why camp will always feel like home. Explore Child Life On Call's directory of medical and disability-friendly ! This resource helps families find inclusive summer camp options that support children with medical needs and disabilities, making it easier to plan fun, safe, and engaging summer experiences. Today’s Episode is sponsored by . Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources from today’s episode: Medical & Camp Support: Connect & Support from Child Life On Call Subscribe: Never miss an episode on or Visit to search stories and episodes easily Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Keywords: Medically complex children, Pediatric medical camps, SeriousFun Children’s Network, Child life specialist, Positive childhood experiences, Pediatric chronic illness support, Medical trauma healing, Camp for children with illness, Family-centered care, Pediatric resilience, Provider burnout prevention, Therapeutic play, Sibling support, Pediatric healthcare community Medical information provided is not a substitute for professional advice—please consult your care team /episode/index/show/childlifeoncall/id/39925360

Rare Lung Disease, Epilepsy and the Diagnostic Journey 01/28/2026

Rare Lung Disease, Epilepsy and the Diagnostic Journey When your child survives one medical emergency only to face another, parenting becomes a constant act of advocacy and courage. Today’s guest joins us to share her daughter's journey with rare and complex medical conditions, from early respiratory failure and unexplained hospitalizations to epilepsy, lung disease, and life with medical uncertainty. As a military spouse navigating deployments, Brittany shares what it means to walk this path largely alone, trust her instincts as a mother, and fight to be believed by medical professionals. This episode explores navigating rare disease without clear answers, the life-changing impact of compassionate child life support, supporting siblings through medical trauma, and how rituals, play, and community help families find hope and meaning in the midst of chaos. Download our to help empower your child and family during hospital stays. Sponsored in part by —learn how you can help families afford life-saving medications at healthwellfoundation.org. Resources from today's episode: Medical Support: Nonprofit & Community Support: Connect with Brittany Follow as she shares life as a medical mom, military spouse, and advocate. Connect & Support from Child Life On Call Subscribe: Never miss an episode on or Visit to easily search stories and episodes Follow us for updates and opportunities to connect with other parents : receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Keywords: Rare disease parenting, Medical motherhood, Medically complex child, Pediatric lung disease, Pediatric epilepsy, Intractable epilepsy, PICU parent experience, Military family healthcare, Parent advocacy in healthcare, Child life specialist support, Sibling support during hospitalization, Parenting after medical trauma, Coping with chronic illness, Undiagnosed disease journey, Hospital parent support Medical information provided is not a substitute for professional advice—please consult your care team /episode/index/show/childlifeoncall/id/39900195

Severe Hemophilia: A Newborn, A Brain Bleed, and PICU Experience 01/21/2026

When Insurance Isn’t Enough: A Parent’s Type 1 Diabetes Story 01/14/2026

New Diagnosis: What to Do When Your Child Gets Diagnosed 01/07/2026

Welcome to Inside the Children's Hospital: What Listeners Can Expect 01/01/2026

3 Proven Strategies for Parents Navigating Pediatric Healthcare in 2025 12/18/2025

3 Proven Strategies for Parents Navigating Pediatric Healthcare in 2025 Feeling alone after your child's diagnosis? Discover three powerful lessons that have changed how families find hope, support, and confidence while navigating pediatric healthcare. In this solo episode, child life specialist Katie Taylor distills eight years of conversations with hundreds of families into three essential takeaways every parent needs when thrust into the pediatric healthcare world. If you're overwhelmed by medical decisions, uncertain about switching providers, or searching for ways to support your child—and yourself—during hospital life, this episode offers tangible steps and comforting wisdom. WHAT YOU'LL LEARN: - You are not "stuck" with your child's assigned doctor and can (and should) seek a provider who fits your family's needs - Open communication and advocating for yourself and your child are vital in every medical setting - Narrating medical experiences with your child helps prepare them, builds trust, and fosters resilience - Small acts of self-care are crucial to preserving your strength as a caregiver - Every family's coping strategy is valid; don't compare your self-care to what you see on social media TIMESTAMPS: 0:00 - Introduction & Podcast Purpose 0:37 - Wide Range of Diagnoses Covered 1:33 - Who This Podcast Is For 2:39 - Lesson 1: You're Not Stuck With Your Doctor 5:02 - Lesson 2: How Narrating Medical Experiences Supports Your Child 6:08 - Real-Life Story: Marley's Experience With Type 1 Diabetes 8:50 - Lesson 3: Redefining Self-Care for Medical Parents 10:25 - Simple Self-Care Strategies 11:41 - What's Coming in 2026 13:12 - Important Disclaimer RESOURCES: - Book: - - HOST: Katie Keating is a Certified Child Life Specialist who has spent over 15 years supporting families navigating pediatric medical experiences. CONNECT: Instagram: ⭐ Leave a review on Apple Podcasts or Spotify—your feedback helps us reach more families! /episode/index/show/childlifeoncall/id/39445350

A Father's Journey Through Loss, Healing, and the Birth of a Rainbow Baby: Jeff's Story 12/10/2025

A Father's Journey Through Loss, Healing, and the Birth of a Rainbow Baby: Jeff's Story In this profoundly moving and honest conversation, we sit down with Jeff Loving, a NICU dad, husband, and now an author, who shares the intimate and often unspoken grief experienced by fathers after pregnancy loss. Jeff walks us through the heartbreaking loss of his two sons, Davian and Jadon, the struggle to find empathy and appropriate medical care, and how these experiences ultimately led him and his wife, Cassie, to become fierce advocates for their future family. This episode is a raw look at marriage under immense stress, the importance of empathetic medical staff, and the redemptive joy of welcoming their "double rainbow" daughter, Isla Grace. Jeff also discusses his mission to help other men through their grief by writing his book, Holding Onto the Light. Key Discussion Points & Timestamps Time Topic Key Takeaway 00:06 Meet Jeff Loving: Husband, NICU Dad, and Author Jeff introduces his family, including his dog, Sage, his wife, Cassie, and their NICU "double rainbow" baby girl, Isla Grace, reflecting on five years of marriage and three pregnancies. 01:08 The Loss of Davian (First Pregnancy) Jeff describes the initial shock and excitement of their first pregnancy, the sudden onset of symptoms at 19 weeks, and the devastating choice they faced in the hospital due to an infection: lose the baby, or risk losing both the baby and his wife. 04:55 The Cruel Disconnect of Grief Jeff recounts the soul-crushing moment of holding his son, Davian, as his heartbeat stopped. He shares the struggle of navigating intense grief while the world—and Thanksgiving—kept moving around them. 07:58 Finding Support: The Power of Presence The discussion turns to how his family supported them by simply being present, rather than offering platitudes like "it's God's plan." The importance of showing up for grieving parents is highlighted. 11:21 Empathetic vs. Detached Care Jeff praises the nurses who were a "calming presence in the chaos" and later attended Davian's service. Conversely, he shares a painful anecdote about a male doctor's detached and jovial demeanor, asking if he wanted to cut the cord after the loss. 15:51 What Compassion Looks Like in Care Jeff shares what he wished the doctor had said: "I know this is very hard... just know that my heart breaks for you, and I'm so sorry that you guys are going through this." This is a vital lesson for medical professionals. 16:55 Marriage Under Stress After moving to North Carolina for a fresh start, Jeff discusses how the loss put their marriage under extreme stress—it would either break them or bond them deeper. They emerged stronger. 23:13 The Loss of Jadon (The Second Pregnancy) The traumatic situation repeats almost day-for-day with their second son, Jadon. Jeff details the medical system's failure to provide a cerclage procedure, despite repeated requests, and the resulting emergency. 26:45 The Audacity of Poor Communication Jeff recounts being livid when the doctor who denied them the preventive cerclage entered the room without him present to tell his wife they were losing their baby, and then left without speaking to Jeff. 34:20 The Blessing of Angel the Bereavement Coordinator Jeff shares the incredible support they received from their bereavement coordinator, Angel, who handled every detail from handprints to selecting clothes, even providing a moment of much-needed humor when she accidentally gave Jadon a hilarious nickname. 36:02 Remembrance Toys: Dino Dave and Jucletus The significance of tangible remembrance items, like a weighted dinosaur (Dino Dave) and a heartbeat bear (Jucletus), that allow Isla to connect with her "big brothers." 39:18 "This is Our Double Rainbow Child" Jeff discusses the difficulty of answering "Is this your first?" as a parent of loss, and how he now confidently speaks of Isla as their "double rainbow child." 42:03 A Resource for Fathers of Loss Jeff explains his motivation for writing his book, Holding Onto the Light: A Father’s Journey Through Loss and Healing. He notes the lack of resources for grieving men and how he encapsulated real stories into a fictional narrative to help them feel seen and heard. 46:05 The Defining Moment The most powerful feedback: a man who hadn't read a book in a decade finally read Jeff's book after losing his son. 48:52 Where to Find the Book and Connect Jeff shares his book title, where to buy it, and the dedicated email address to build a community of grieving fathers. Action Items & Connect with Jeff Title: Holding Onto the Light: A Father’s Journey Through Loss and Healing Author: J. S. Loving Available: On Amazon (print and Kindle Unlimited). Connect & Share Your Story: Fathers of Loss Email: holdingontothelightbook@gmail.com (Jeff's goal is to connect with other fathers and collect stories for a future project). Instagram: When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the SupportSpot app's comprehensive resources and user-friendly interface. 92% of parent users say the SupportSpot app's helped them understand medical procedures and treatment better. 80% of parents believe the SupportSpot app's has contributed to better health outcomes for their child. 73% of parent users believe the SupportSpot app's has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. /episode/index/show/childlifeoncall/id/39279100

Understanding Homocystinuria (HCU): How one Mother Uncovered her Son’s Diagnosis 12/03/2025

Understanding Homocystinuria (HCU): How one Mother Uncovered her Son’s Diagnosis Melanie, mom to 12-year-old Masen, shares the unexpected path to her son’s diagnosis with Homocystinuria (HCU) after a routine eye exam revealed something “off.” What followed was months of uncertainty, a rare diagnosis few providers had even heard of, a crash course in low-protein diets and metabolic formulas, and two back-to-back eye surgeries to prevent further damage. With gentleness, honesty, and deep advocacy, Melanie describes how they adjusted as a family, how Masen built resilience, and how finding community changed everything. A story of early detection, parent intuition, and the power of connection. Why this episode matters Rare disease reality: What it feels like to navigate a diagnosis most clinicians have never seen Caregiver intuition: How a parent’s sense that “something isn’t right” can spark life-saving action Practical communication: Age-appropriate ways to explain health changes, procedures & dietary needs Health equity & systems gaps: When newborn screening misses what should have been caught Hope forward: The resilience of kids—and the strength families build together What You’ll Learn Early signs Masen showed (or didn’t show) before diagnosis How a routine eye exam led to life-changing discoveries What HCU is, and why newborn screening only catches ~50% of cases How metabolic diets work—and why the formula is so hard for kids Talking to kids about scary changes in simple, honest language Navigating back-to-back eye surgeries How parents balance their own needs while supporting their child Building resilience without expecting perfection The power of community: conferences, meetups, Facebook groups Advocating for improved newborn screening for future families Timestamps 00:00 Meet Melanie & Masen: family intro, life in Vancouver 01:23 Sports, hockey, and life surrounded by nature 01:56 Routine eye exam → the moment everything changed 03:38 The optometrist’s concerns & the start of uncertainty 04:01 Google panic, calling providers, needing answers 04:55 Keeping fears private during COVID 07:38 Mother’s Day call: the rare diagnosis finally revealed 07:47 What HCU is and why newborn screening misses it 10:45 Treatment basics: low protein & metabolic formula 11:19 Explaining diagnosis to an eight-year-old 13:14 Parenting through fear while staying regulated 14:52 “Eat the prawns in the pantry”—navigating food changes 17:29 Building resilience while validating hard feelings 18:31 Finding community online & through HCU conferences 20:41 Masen meets other kids with HCU 22:33 Advocacy: improving newborn screening across Canada 24:28 Social media vs. real-life progress 24:58 Masen’s eye surgeries & long-term vision care 27:46 What parents can request if concerned about HCU 30:22 Trusting your care team & staying curious 30:51 Who Masen is beyond a diagnosis 34:22 Where to learn more about HCU Melanie shares that… “My heart was racing. I knew something was off.” “Most doctors have never even heard of HCU.” “The formula tastes terrible, but it keeps him healthy.” “You can be proud of your child’s resilience and still wish they didn’t need it.” “This should have been caught at birth—we want to change that for future kids.” Resources & Links HCU & Metabolic Disorder Communities (Instagram: @hcunetwork_america) (Instagram: @canadian.pku) SupportSpot App (by Child Life On Call) Procedure guides, coping plans, journals, and parent resources to help families feel prepared and advocate with confidence. Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. /episode/index/show/childlifeoncall/id/39181865

Autism, Advocacy and the Power of a Medical ID Bracelet 11/19/2025

Autism, Advocacy and the Power of a Medical ID Bracelet Tara Cohen opens up about her son Will’s autism diagnosis and how it transformed her family and career. From navigating meltdowns to discovering AAC as a communication lifeline, Tara shares her honest reflections on parenting, resilience, and hope. What began as a search for a medical ID bracelet led to a career at —where she now helps other families feel safe and supported. This heartfelt episode reminds caregivers that advocacy grows from love and that even small acts of compassion can make a life-changing difference. Timestamps 00:00 – Introduction 03:10 – Early diagnosis and emotions 07:45 – Advocacy and ESE Pre-K 12:30 – Discovering Lauren’s Hope 18:40 – Communication with AAC 25:15 – Managing epilepsy 31:00 – Finding silver linings 37:00 – Advice for caregivers Resources Mentioned Child Life On Call Resources Level up your parent toolkit with child life–expert guidance: 👉 Want to hear insights from our host, Katie Taylor, Certified Child Life Specialist? 👉Subscribe to Interested in being a guest or learning more about the podcast? Email us at When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the SupportSpot app's comprehensive resources and user-friendly interface. 92% of parent users say the SupportSpot app's helped them understand medical procedures and treatment better. 80% of parents believe the SupportSpot app's has contributed to better health outcomes for their child. 73% of parent users believe the SupportSpot app's has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. /episode/index/show/childlifeoncall/id/39062820

When Your Baby is Diagnosed with Type 1 Diabetes: Marlee's Story 11/12/2025

When Your Baby is Diagnosed with Type 1 Diabetes: Marlee's Story “My baby went from fussy to lifeless in hours—by the time we reached the PICU, they said he might have had six hours to live.” In this episode, TikTok Influencer and Medical Mom , a pediatric speech-language pathologist turned full-time mom, shares the whirlwind diagnosis of her 12-month-old son Bain with Type 1 diabetes and severe DKA, the traumatic hospital stay, and the everyday advocacy that followed. Raw, practical, and deeply hopeful. Why this episode matters Emotional clarity: what a Type 1 diagnosis really feels like in infancy Practical advocacy: scripts, choices, and language that help toddlers cope System gaps: when even major hospitals say “we’ve never seen this in a baby” Hope forward: raising a confident kid who knows why care matters What You’ll Learn Early signs & ER visit: how “ear infection” symptoms masked T1D in a baby DKA in plain language: what “acidic blood” means and how PICU treats it The learning cliff: carb ratios, breastfeeding while dosing insulin, and why it’s OK not to “get it” on day one Toddler coping: give choices, narrate care, build independence Rebuilding trust after mistakes: when training/tools aren’t perfect Finding your people: groups, podcasts, and creators who answer “what now?” Timestamps 00:00 Meet Marlee (pediatric SLP → motherhood) 01:40 Why speech therapy & pediatrics 03:55 Bain turns one → sudden “ear infection” → nonstop vomiting 06:30 Small-town ER: “He has diabetes” (dismantling stereotypes) 08:35 Life-flight & PICU: severe DKA, hourly sticks, no food for 48 hrs 10:20 Turning the corner: energy returns; the six-hour window 11:22 “I don’t understand this”—carb ratios, nursing, overwhelm 13:05 “We’ve never seen this in a baby” at a major children’s hospital 15:23 Tears → handing tasks to partner → first solo shot 17:20 The Chick-fil-A moment: necessity builds confidence 18:44 Finding community: Facebook groups, YouTube, TikTok 19:55 Narrating care for toddlers—SLP tools that build trust & language 21:19 Offering choices: stickers, shot sites, pushing the button 22:53 Caregiver reality: self-care with very young T1D 24:32 Why daycare felt unsafe: syringe mix-ups & trust 25:54 Joy check: rocks, crafts, and a kid excited by everything 27:56 Best resources for newly diagnosed families 29:52 “Diabetes doesn’t define your life.” Marlee Shares that... “Type 1 isn’t about weight or diet—my baby was still nursing.” “They told my husband he probably had six hours to live.” “I thought I needed nursing school to understand our endo.” “I won’t chase him with a shot. I explain why—insulin keeps you safe.” “You can be anything and do anything…and have diabetes.” Resources & Links Support communities Diapers & Diabetes () J Related Child Life On Call resources (by Child Life On Call) Procedure guides, coping plans, journals, and parent resources to feel prepared and advocate with confidence /episode/index/show/childlifeoncall/id/38986720

Brain Surgery for Drug-Resistant Epilepsy: Managing Infantile Spasms 11/05/2025

Brain Surgery for Drug-Resistant Epilepsy: Managing Infantile Spasms Join us for an incredibly candid and informative conversation with Audrey Vernick, a passionate advocate and the Director of Patient and Family Advocacy for the Pediatric Epilepsy Surgery Alliance. Audrey shares the powerful 21-year journey of her son, Bennett, who suffered a stroke in utero and was later diagnosed with the catastrophic epilepsy known as Infantile Spasms. Audrey recounts the emotional process from the difficult labor and early concerns dismissed as normal reflexes, to the terrifying moment she saw his MRI and realized half of his brain was black due to a massive stroke. This episode is an essential listen for any parent navigating a serious pediatric diagnosis, especially those dealing with seizures. Audrey shares her family's ultimate decision to pursue a hemispherectomy after two years of failed medications, and the immediate, miraculous developmental explosion in her son's language and physical abilities post-surgery. Key Takeaways and Actionable Advice Trust Your Parental Instinct: If you think something is wrong with your child's movements, something probably is. Demand a Specialist: If you suspect Infantile Spasms, go to the ER and demand to speak to a neurologist or epileptologist. Request video EEG monitoring. Video & Log Everything: Record videos of suspicious movements and log details (time, duration, what you observed) to help clinicians with diagnosis and treatment planning. The Difference Between a Consult and Surgery: A surgical consult is not a surgery. Referring for a pre-surgical workup opens up a new toolbox of solutions and gives you access to a world-renowned team of specialists for a more detailed look at your child's case. Drug-Resistant Epilepsy (DRE): Epilepsy is considered DRE if a child has uncontrolled seizures after appropriately failing two seizure medications. This increases the risk of SUDEP (Sudden Unexplained Death due to Epilepsy). Decision-Making: Understanding your partner's decision-making style is crucial when navigating complex medical choices. Guest Information & Resources Guest: Audrey Vernick, Director of Patient and Family Advocacy at the Pediatric Epilepsy Surgery Alliance. Organization: Pediatric Epilepsy Surgery Alliance Website: epilepsysurgeryalliance.org. Resources: Offers a Parent Support Navigator Program (trained peers), financial aid for travel to a Level Four epilepsy center for pre-surgical workups, webinars, and more. Infantile Spasms Resource: Audrey also mentions the Infantile Spasms Action Network for resources on recognizing and acting on infantile spasms. Time Stamp Description Key Information 00:00:43 Critical Advice: Surgery Consult vs. Surgery Audrey shares the core message that a surgery consult is different than a surgery, and there is no harm in seeking a consultation for any diagnosis. 00:01:54 Bennett's Diagnosis and Surgery Audrey introduces her son, Bennett (21), who had a stroke in utero, infantile spasms, and ultimately a hemispherectomy. 00:04:50 The Early Months: Colic vs. Seizures Audrey describes the first five months, where unusual movements and fussiness were initially dismissed as normal reflexes and colic by her pediatrician. 00:12:08 Emergency EEG & Stroke Discovery The night she called a new neurologist, they were admitted for a 48-hour video EEG monitoring. The next day, an MRI revealed a massive stroke in the right hemisphere. 00:14:50 Infantile Spasms: Recognize the Signs Audrey, as a leader of the PESA, stresses that Infantile Spasms is a medical emergency. She describes the signs: head drop/nod, flexing, and subtle movements that happen in clusters. 00:17:10 Advocacy: How to Get Help Advice for parents: Take videos, take logs, and at the ER, demand to see a neurologist or epileptologist. 00:22:15 The Surgical Seed is Planted Bennett's first neurologist mentioned a hemispherectomy when he was only five months old, which her husband immediately dismissed, but planted a "seed" for future research. 00:24:09 Choosing Surgery and the "Elmo Song" Miracle The family begged for surgery and two days later Bennett had his hemispherectomy. Two weeks later on the plane home, Bennett, whose speech was suppressed, sang the entire Elmo song, signaling the impact the seizures had been having. 00:30:52 Defining Drug-Resistant Epilepsy (DRE) DRE is when a child has seizures after failing two appropriately dosed medications. DRE is harmful to development and carries the highest risk of SUDEP (Sudden Unexplained Death due to Epilepsy). 00:42:55 Final Message: Trust Yourself Audrey's final, powerful advice to parents: You are the expert in your own child; trust yourself and use that expertise as a tool on your journey. Support the Host & Show If you found value in this conversation, please check out host Katie Taylor's work and community resources: Join Katie Taylor's Substack for in-depth insights and articles: Get the SupportSpot App—a helpful tool to support your child through their healthcare journey: The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. /episode/index/show/childlifeoncall/id/38851970

Speech Therapy at Home: Expert Tips to Help Your Child Communicate 10/29/2025

Speech Therapy at Home: Expert Tips to Help Your Child Communicate "The excitement that the kids feel when they are seeing you... and they know today's session with Ms. Luba and they can't wait to see you." - Luba Kaplan When a child enters the medical system, parents often meet many specialists beyond doctors and nurses, including Speech-Language Pathologists (SLP). These professionals are vital members of the healthcare team, doing more than just helping with speech. SLPs, as Luba Kaplan explains, also explains how they look at every area of the child's development to ensure children are being fully supported. In this episode, we introduce Luba Kaplan, a passionate SLP, Oral Myofunction Therapist, and mother of three who is the visionary behind Kidology. Celebrating 10 years in private practice, Luba has made it her mission to bridge gaps in access to therapy. She even created the Therapy Bus—a half-size school bus that travels to families who can't leave home or have transportation issues. About Our Guest: Luba Kaplan, SLP Luba Kaplan is a Speech-Language Pathologist and Oral Myofunction Therapist. As the founder and owner of Kidology, she has built a practice that offers a multidisciplinary, team approach to therapy, including Speech, Occupational, Physical, and Behavioral services. Luba is driven by a deep passion for helping families achieve change and is dedicated to cancer research in honor of her mother, Angela, who worked in oncology research for 25 years. Luba on Social Media: , , : @KidologyInc (KIDOLOGYINC) YouTube Channel: Key SLP Insights for Medical Parents Luba shares crucial advice for working effectively with a Speech-Language Pathologist: Build Strong Rapport: Share everything that is going on in your child's life, even seemingly small struggles like a supermarket meltdown. The more the provider knows, the more they can help. Look for a Global Approach: Seek a provider who utilizes a multidisciplinary, team approach and is willing to screen for or refer to other needed services (OT, PT, behavioral services). Early Intervention is Key: Don't wait or assume your child will simply "grow out of it.". Addressing issues sooner, not later, can put your child ahead. Ensure Family Alignment: Everyone in the child's life (parents, grandparents, etc.) must be on the same page with the therapy goals to ensure the proper foundation for progress. Otherwise, therapy won't work. Trust the Independent Session: While parental presence is key in a hospital setting, giving your child space to learn independently in a non-threatening environment allows them to develop their own voice and thrive with the therapist. Stay Committed: Stick with the therapy program even when you think your child is "okay". Commitment is essential for your child to be better off post-program. Episode Timeline Highlights 00:00: Introduction to the role of a Speech-Language Pathologist. 01:00: Introducing Luba Kaplan, the visionary behind Kidology and the innovative Therapy Bus. 02:30: Luba's passion for change and her personal connection to cancer research. 06:00: Tips for parents on finding an impactful provider and the necessity of sharing full history. 09:30: Navigating the system and the need for a team approach in therapy. 11:00: Strategies for carryover at home: portals, homework, and getting the whole family on the same page. 15:45: The difference between presence in an acute trauma setting (hospital) vs. a non-threatening environment (therapy clinic). 19:30: The growth of Kidology: from one suburban office to two central clinics with play gyms. 22:00: Final takeaways: the importance of commitment and not delaying intervention. Support Our Host & Show Child life specialists are experts who help families navigate the overwhelming and confusing world of healthcare. Now, you can access these valuable tools and resources outside of the hospital setting through the SupportSpot App. Parents, get empowered! The provides tools to: Understand and explain medical procedures to your child. Help your child feel less anxious. Feel informed and confident in your child's healthcare journey Join Katie Taylor's Substack for in-depth insights and articles: Child Life Specialists- . There is a seat here for you to recieve support, professional development, and access to clinical supervision. 🌟 Special Thank You for Our Listeners! 🎉 We’re giving you free access to our most popular pediatric masterclasses — How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics — a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you’ll get instant access to both courses — no strings attached. It’s our way of saying thank you for listening and helping more parents discover our show. 💛 The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provide /episode/index/show/childlifeoncall/id/38824170

Type 1 Diabetes: Finding Community and Humor After Diagnosis 10/22/2025

Type 1 Diabetes: Finding Community and Humor After Diagnosis When Stacey’s toddler was diagnosed with Type 1 diabetes, her family’s world turned upside down. In this episode, she shares the early warning signs, the struggle of those first two weeks of injections, and how humor and community turned fear into resilience. Parents will gain hope, advocacy tips, and coping strategies for managing a chronic illness diagnosis. What You’ll Hear How Stacey recognized the 4 Ts of diabetes: Thirsty, Tired, Thinner, Toilet The reality of hospitalization, finger sticks, and injections with a toddler Coping strategies: medical play, humor, and routines that work The power of community and rejecting “perfect parenting” Building advocacy through Diabetes Connections and The World’s Worst Diabetes Mom About Stacey Stacey Simms is an award-winning broadcaster, speaker, and author of Th Since 2015, she has hosted Diabetes Connections, offering real stories and resources for the Type 1 community. 🔗 Key Takeaways Advocate for more than a finger stick when symptoms appear Medical play & humor ease children’s anxiety about procedures There’s no “perfect parent”—safe and happy is enough Community matters, but it’s okay to choose your people wisely Timestamps 00:00 – Introduction & Stacey’s background 02:00 – Early signs of Type 1 diabetes (the 4 Ts) 06:00 – Hospital stay and first injections 10:00 – The hardest two weeks: shots, tears, and routine 15:00 – Teaching kids about diabetes as they grow 18:00 – Humor, medical play, and coping strategies 22:00 – Building Diabetes Connections & Moms’ Night Out 25:00 – Lessons Stacey learned about herself 27:00 – The myth of perfect parenting Support the Host & Show If you found value in this conversation, please check out host Katie Taylor's work and community resources: Join Katie Taylor's Substack for in-depth insights and articles: Get the SupportSpot App—a helpful tool to support your child through their healthcare journey: Listen & Subscribe! 🌟 Special Thank You for Our Listeners! 🎉 We’re giving you free access to our most popular pediatric masterclasses — How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics — a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you’ll get instant access to both courses — no strings attached. It’s our way of saying thank you for listening and helping more parents discover our show. 💛 The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. /episode/index/show/childlifeoncall/id/38441525

NICU Stay, Down Syndrome, and Infant Loss: A Grief Journey 10/15/2025

NICU Stay, Down Syndrome, and Infant Loss: A Grief Journey In this incredibly personal and moving episode, we sit down with Teejay and Jon, the authors of the gentle children's book , to share the full, raw story of their daughter, Nadiya. Their journey began with an unexpected connection—a transatlantic online romance between Teejay in Australia and Jon in Canada—that quickly turned into a marriage grounded in a shared life and purpose. With Teejay's extensive background in early childhood development and their experience fostering a young man with Down syndrome, they felt prepared when Nadiya was diagnosed with Trisomy 21 (Down syndrome) early in the pregnancy. However, Nadiya's complications were severe: a complete AVSD (Atrioventricular Septal Defect), a heart condition that made survival a constant battle. Teejay and Jon open up about the grueling reality of Nadiya’s three-month, extended NICU stay. They speak candidly about the sheer exhaustion, the mental toll of the incessant alarms and machine noise, and the profound isolation of making life-and-death decisions under unimaginable pressure. We explore the difficult but necessary truth of grieving alongside a partner who processes loss in a completely different way. Jon, an extrovert, sought normalcy and company, while Teejay, an introvert, needed space and quiet isolation. They explain how establishing mutual respect and seeking professional counseling were the key foundations that saved their marriage during this seismic time. Finally, they share the powerful mission behind their book, . Written to honor Nadiya's memory, it provides a crucial tool for families, helping them talk to children about baby sibling loss. They reveal plans for a sequel to address the unique grief of the "neglected mourners"—the subsequent children born after a loss who never met their older sibling. This conversation is an essential listen for anyone in the NICU community, processing loss, or seeking resources for pediatric grief support. Note: We recognize this episode addresses Infant and Pregnancy Loss Awareness. We stand with all families who have experienced loss and hope this conversation brings comfort and community. Episode Highlights & Timestamps Time Topic 00:05:48 Nadiya’s Diagnosis: Trisomy 21 and the severe complete AVSD Heart Condition. 00:07:07 The NICU Reality: Coping with the three-month extended stay and constant medical crisis. 00:11:05 Profound Kindness: The stranger's DoorDash order that helped them survive the crisis. 00:13:28 Nadiya's Spirit: Her curiosity, determination, and "badass" personality that charmed the nurses. 00:22:10 Grief in Marriage: Navigating different coping styles (Introvert vs. Extrovert) to stay together. 00:24:25 What Helps? The power of presence and what to say (and what NOT to say) to grieving parents. 00:30:46 A Continuing Legacy: Writing the sequel for Clemence to support subsequent siblings. Connect & Resources : You can find their children's grief book, Clemence, available on [, , , and all major book retailers]. Support & Grief Resources: For additional support and resources mentioned in the episode, please visit: Support the Host & Show If you found value in this conversation, please check out host Katie Taylor's work and community resources: Join Katie Taylor's Substack for in-depth insights and articles: Find community and support with the SupportSpot App (a helpful resource for organizing and receiving support during difficult times): Listen & Subscribe! 🌟 Special Thank You for Our Listeners! 🎉 We’re giving you free access to our most popular pediatric masterclasses — How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics — a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you’ll get instant access to both courses — no strings attached. It’s our way of saying thank you for listening and helping more parents discover our show. 💛 Disclaimer: The content of this podcast is for informational purposes only. The host and guests are not licensed therapists or medical doctors. Always consult with your child’s qualified medical professional for advice specific to your family’s situation. /episode/index/show/childlifeoncall/id/38526155

Choosing the Best Children's Hospital: Why Rankings Matter (with Ben Harder) 10/07/2025

Choosing the Best Children's Hospital: Why Rankings Matter (with Ben Harder) Is the "best" hospital just about technology and surgical success? Ben Harder, the journalist who oversees the methodology and data for the U.S. News Best Children's Hospitals Rankings (2025), joins Katie to break down what truly defines quality in pediatric care. Ben shares his deeply personal family story—a tragedy 50 years in the past that drives his commitment to making data-driven information accessible today. This episode is a crucial guide for parents, explaining the three core pillars of the rankings: structure/resources, processes of care, and patient outcomes. We dive into why essential human-focused services like Child Life Specialists, chaplains, and family advisory boards are included in the scorecard and how they influence the rankings. Ben illuminates the challenge faced by these vital "cost centers" in a revenue-driven healthcare system, and offers a powerful message: parents are the strongest possible advocates for their children, and they should use every resource available—including the U.S. News data—to make informed, collaborative choices for their child’s care team. Guest Links U.S. News Best Children's Hospitals Rankings: All data is freely available for families to research hospitals by region and specialty. Episode Highlights & Key Takeaways The Personal Motivation: Ben shares the heartbreaking story of his cousin, whose permanent brain injury after a heart surgery complication 50 years ago lacked the complete care team needed to ensure a good outcome—a void the U.S. News data is designed to fill today. The Three Pillars of Ranking: US News analyzes over 1,000 data points grouped into: 1) Resources/Structure (nurses, expertise, technology, child life services), 2) Processes of Care (following best practices, infection control), and 3) Outcomes (survival, length of stay, quality of life). The Honor Roll: The 2025 Honor Roll features the top 10 hospitals recognized for high performance across multiple specialties, including: Boston Children's Hospital, The Children's Hospital of Philadelphia (CHOP), Cincinnati Children's, Texas Children's Hospital, and others. A Piece of the Puzzle: The rankings are one resource to use alongside insurance coverage, , and most importantly, consulting your child's doctors and trusting your parental intuition. The Value of Human Support: Services like Child Life Specialists, support groups, and family advisory boards are included in the structural data points, serving as a motivator for hospitals to invest in comprehensive, family-centered care. Advocacy is Essential: Ben gives parents permission to advocate relentlessly, reminding them they know their child best. Collaborating with—not simply questioning—the care team can be life-saving. Chapters: Timestamp Topic 0:00 Ben Harder’s Personal Connection to Hospital Rankings 1:03 The Official Launch of the U.S. News Best Children's Hospitals 2025 3:20 US News Honor Roll: The Top 10 Children's Hospitals 4:26 FREE COURSE Ad: Shots, Blood Draws & Comfort Positioning 5:35 Meet Ben Harder: Journalist, Father, and Best Hospitals Lead 7:59 The 3 Pillars of US News Ranking Methodology (1000+ Data Points) 11:37 The Role of Expert Work Groups in Defining Data 13:58 The Future of Family Expertise in Shaping Rankings 16:59 How Families Should Use the U.S. News Rankings 21:09 Why Child Life Services and Support Resources Matter in Rankings 25:12 Why Support Services are Overlooked: Revenue vs. Cost Centers 27:54 Ben Harder's Personal Story: The Tragic Need for Comprehensive Care 31:00 The Efficacy and Impact of Child Life Specialists 34:36 What Families Should Expect and Ask For: Advocacy Permission 38:23 Where to Find the U.S. News Best Children's Hospitals Rankings 38:58 Disclaimer Resources for You 1. Unlock Two FREE Courses (Value $250+) We want to equip you to better support your child during medical experiences! Get our popular courses "How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines" AND "How to Use Comfort Positioning in Pediatrics" completely free. How to Get It: Leave a written review for the Child Life On Call podcast on Apple Podcasts or Spotify. Take a quick screenshot of your submitted review. Email the screenshot to: podcast@childlifeoncall.com 2. Connect with Child Life On Call Website: Instagram: Disclaimer: The content of this podcast is for informational purposes only. The host and guests are not licensed therapists or medical doctors. Always consult with your child’s qualified medical professional for advice specific to your family’s situation. /episode/index/show/childlifeoncall/id/38481795

Heart Transplant for Children: A Mother and Son Face Danon Disease Together 10/01/2025

Heart Transplant for Children: A Mother and Son Face Danon Disease Together Psychologist and heart-transplant recipient Dr. Brittany Clayborne shares how her own medical journey prepared her to guide her son Micah through sudden heart failure, an LVAD, and a life-saving transplant. She unpacks the family’s rare Danon’s disease diagnosis, post-transplant cancer (PTLD), and the everyday realities after transplant—meds, setbacks, and hope. You’ll learn Dr. Brittany’s BRAVE framework for hard moments, how rituals sustain connection during long hospital stays, and how Micah turned his experience into action with Transplant Teens and My Brave Journal. This conversation is packed with concrete tools, compassion, and the reminder that “hope is a team sport.” You do not want to miss this week's episode. Featured moments: 00:00 — Why families need “somewhere to be brave.” 04:50 — Brittany’s peripartum cardiomyopathy, ICU wait, and LVAD. 10:05 — PTLD diagnosis and becoming the psychologist she needed. 12:50 — Micah’s chest pain → HCM crisis and transplant path. 24:00 — The BRAVE acronym families can use today. 44:00 — “Hope is a team sport.” Transplant Teens' vision. Key takeaways: Use BRAVE in tough conversations: Breathe • Realize feelings • Accept them • Vent/Vulnerable with a trusted person • Elevate above it. Build predictable touchpoints (calls/visits) to anchor kids during long hospitalizations. Teens heal better with peers; if the group doesn’t exist yet, create it. Resources mentioned: Contact Dr. Brittany: 📲 Get Support Support your child with step-by-step tips from certified child life specialists. 🌟 Special Thank You for Our Listeners! 🎉 We’re giving you free access to our most popular pediatric masterclasses — How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics — a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you’ll get instant access to both courses — no strings attached. It’s our way of saying thank you for listening and helping more parents discover our show. 💛 The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. /episode/index/show/childlifeoncall/id/38368415

Bone Marrow Transplant for Sickle Cell: One Family's Cure Story 09/24/2025

Bone Marrow Transplant for Sickle Cell: One Family's Cure Story In this episode of Child Life On Call, guest Maite Rodriguez shares her daughter Alessia’s inspiring journey with sickle cell disease (SCD)—from diagnosis at birth and painful crises to finding a cure through a pediatric bone marrow transplant at Memorial Sloan Kettering. Maite discusses the challenges of long-term treatments like hydroxyurea, the emotional toll of hospitalizations, and her family’s decision to pursue IVF to create a genetic match. She also introduces her bilingual children’s book, , which helps families explain sickle cell to children, siblings, and communities. ⏱️ Episode Timestamps 00:05 – Newborn diagnosis and the first sickle cell pain crisis 09:00 – Daily medications: penicillin, folic acid, and hydroxyurea 20:00 – How advocacy, research, and community support make a difference 25:00 – Considering a cure: bone marrow transplant and IVF journey 31:00 – Why Memorial Sloan Kettering was chosen for Alessia’s transplant 41:00 – Life after transplant: cured of sickle cell, dancing in the rain 48:00 – Writing Just Like the Moon, a bilingual sickle cell book for kids 📚 Resources Mentioned , a book written by Maite Rodriguez – Resources & Advocacy – family lodging during hospital care 📲 Get Support Support your child with step-by-step tips from certified child life specialists. 👉 Download the SupportSpot app (iOS & Android) 🌟 Special Thank You for Our Listeners! 🎉 We’re giving you free access to our most popular pediatric masterclasses — How to Prepare, Support, and Respond to Your Child During Shots, Blood Draws, and Vaccines and How to Use Comfort Positioning in Pediatrics — a $250 value, completely free! All you have to do is leave a written review of the Child Life On Call podcast on Apple Podcasts or Spotify, then email a screenshot of your review to podcast@childlifeoncall.com. Once we receive it, you’ll get instant access to both courses — no strings attached. It’s our way of saying thank you for listening and helping more parents discover our show. 💛 The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child is experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided. /episode/index/show/childlifeoncall/id/38281120

Inside the Children's Hospital

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