Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support

Stories, Hope, Healing and Help for Parents Navigating Illness and Healthcare with Their Children *Top 15% Globally Ranked Podcast* Katie Taylor has been a child life specialist for almost 15 years and has one mission: to ensure that any parent who has a child with medical needs has access to other parents who have walked through the path before. With over 200+ diagnoses covered in this podcast, Katie interviews parents of children with an illness or medical condition share their stories in safe, supportive discussions with a child life specialist. Navigating life with a child who is sick can feel isolating, and this podcast offers parents a sense of connection. Hosted by Katie Taylor, a Certified Child Life Specialist who provides evidence-based, developmentally appropriate interventions to help promote positive coping with hospitalization and illness.

237: Holding Space for Hope : The Final Episode of 2024 12/18/2024

237: Holding Space for Hope : The Final Episode of 2024 "Hope isn't about avoiding the hard truths. It's about staying grounded in them and still believing that something good is possible."- Katie Taylor In this final episode of 2024, Katie dives deep into the meaning of hope, exploring its role in navigating challenges for parents, children and Child Life Specialists. Reflecting on personal experiences and heartfelt conversations with families, this episode unpacks how hope isn’t blind optimism but a source of strength that coexists with pain and uncertainty. With stories, reflections, and an invitation to carry hope into the new year, this episode is a comforting reminder of resilience and connection. Key Highlights Reflecting on the Year: A heartfelt wrap-up of 2024 with reflections on challenges, growth, and achievements in child life advocacy and care. Unpacking Hope: Hope is often misunderstood as blind positivity, but it’s actually about survival and resilience in the face of reality. The Role of Hope in Healthcare: For families navigating diagnoses or healthcare challenges, hope provides strength and a way to keep moving forward, even amidst uncertainty. Children and Hope: Children express hope in simple yet profound ways, teaching us to approach challenges with courage and trust. A Message to the Child Life Community: Encouragement for continued growth, innovation, and using technology to expand child life’s impact on families. An Invitation to Reflect: Listeners are encouraged to reflect on their own hopes and carry them into the new year. Resources for Listeners: : A free 7-day trial available on iOS and Android, designed for families, clinicians, and child life specialists to support children through healthcare experiences. Child Life On Call Website: Explore resources and previous episodes, and learn more about child life services at . Advocacy Abby's Episode (Coming Soon): Look out for the upcoming episode in January featuring Abby’s story of hope after her son’s near-fatal drowning accident. A HUGE thank you to our sponsors: : Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇 Applies to subscription and one-time orders Applies to first 1 subscription orders Limited to one use per customer Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/34471725

236: The Mix of Joy & Grief through Medical Parenting (autism, lissencephaly and lennox gastaut syndrome) – Joanne's Story 12/04/2024

236: The Mix of Joy & Grief through Medical Parenting (autism, lissencephaly and lennox gastaut syndrome) – Joanne's Story "Life is always in the mix of joy and grief, and those things coexist. But this is how I’m going to deal with it." - Joanne De Simone In this episode of the Child Life On Call Podcast, Joanne De Simone shares her journey as a parent raising two sons with disabilities. From navigating her eldest son Benjamin’s rare brain malformation, lissencephaly and complex medical needs to supporting her younger son Sebastian, who is on the autism spectrum. Joanne discusses the challenges, victories, and personal growth she’s experienced. As a mother and special education teacher, and now an advocate for families of children with special needs, Joanne reflects on the importance of building community, embracing support, and living fully in the moment. Her story offers hope and practical wisdom for parents and professionals alike. Key Insights: The Power of Community: Joanne emphasizes the importance of connecting with other families who share similar experiences, as they provide invaluable emotional and practical support. Advocating for Your Child: Joanne shares her approach to advocating for her sons, including the importance of interviewing healthcare providers to ensure they see her children as whole individuals. Living in the Moment: Joanne describes how her background in modern dance taught her to “live in the movement,” helping her find balance and perspective amid constant challenges. Adapting Over Time: Joanne reflects on how the challenges of parenting evolve as children grow, from educational decisions to navigating adult systems of care. Strength in Vulnerability: Through writing and advocacy, Joanne has found a way to process her experiences and turn them into a source of strength for others. A HUGE thank you to our sponsors: : Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇 Applies to subscription and one-time orders Applies to first 1 subscription orders Limited to one use per customer Resources and Tips Shared: Joanne’s Blog and Book: Visit Joanne’s blog at to learn more about , and read more through her Support Groups for Rare Conditions: Joanne highlights the value of connecting with email support groups and online communities for rare conditions. Search for condition-specific groups on platforms like Facebook or Yahoo Groups. Begin Health Prebiotics: The gut health of children is important. Visit and use code ChildLifeOnCall for 25% off products. SupportSpot: Download the SupportSpot app at childlifeoncall.com/supportspot for resources tailored to families navigating pediatric care. Tune in for an episode filled with vulnerability, wisdom, and a reminder of the strength found in community and resilience. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/34266415

235: A Mother’s Journey of Love, Loss, and Resilience (crohn's and ulcerative colitis) - Kathy's Story 11/20/2024

235: A Mother’s Journey of Love, Loss, and Resilience (crohn's and ulcerative colitis) - Kathy's Story “If anybody was to ask me what is one of my biggest strengths, I have to tell them it's resilience… You can throw almost anything at me and I can handle it. I mean, there isn't anything any bigger in this world than losing a child.”-Kathy In this heartfelt episode, Katie Taylor sits down with Kathy, a mother who shares her journey of raising and caring for her daughter Lauren through multiple medical challenges and eventual passing. Kathy’s story is both heart-wrenching and inspiring. Kathy reflects on the emotional, physical, and logistical challenges of managing long hospital stays, becoming a caregiver to a child with complex medical needs, and balancing self-care amid unimaginable circumstances. Her insights on resilience, self-advocacy, and the deep bond with her daughter provide comfort and inspiration. Kathy’s story is a powerful reminder of the strength it takes to navigate pediatric healthcare, turning pain into purpose, and the lasting impact of a parent's love. "I was there when that beautiful creature wandered into my life, and I was there when she drifted out." – Kathy Key Insights: The Importance of Self-Care: Kathy emphasizes the need to care for oneself to better support a sick child and encourages parents to take breaks from the hospital without guilt. Parent as Advocate: Transitioning into the role of a medical advocate for her daughter, Kathy highlights how training, learning, and persistence made a difference in Lauren’s care. Finding Strength in Connection: Kathy discusses the vital role of family, friends, and small acts of kindness in sustaining her during Lauren’s long hospital stays. Maintaining Normalcy: From packing business-casual clothes to involving Lauren in picking outfits, Kathy underscores the importance of preserving a sense of normalcy amid medical chaos. Legacy of Resilience: Kathy’s advocacy didn’t end with Lauren’s passing; she continues to support others by sharing her story and working on resources for long hospital stays. A HUGE thank you to our sponsors: : Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇 Applies to subscription and one-time orders Applies to first 1 subscription orders Limited to one use per customer Resources and Tips: Tailored guidance for families navigating medical experiences. Learn more of bringing smiles to children, families, and hospital staff nationwide. Join us to celebrate 12 years of inspiring performances, powerful stories, and magical moments. For a minimum donation of just $12, you can access Win Win Charity's 2024 Telethon fundraiser show in honor of our 12 years of bringing smiles to children in hospitals nationwide! Join the celebration featuring our 2024 "Entertainer of the Year" Tom Pesce, our 2024 "Hospital of the Year" Le Bonheur Children's Hospital, and our first-ever documented patient journey. There are two ways to join the experience on December 2nd! #1 Attend virtually on LeaderPass from anywhere in the world with a virtual pass. #2 Come to our in-person watch party at The Beverly Theater in downtown Las Vegas. We have a special surprise performance at our rooftop reception following the Telethon for those attending in Las Vegas. Simply donate $12 (or more), and we'll see you there! Reserve your spot: When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/33995872

234: Expert Child Life Tips for Supporting Children Through an Upper GI Procedure 11/13/2024

234: Expert Child Life Tips for Supporting Children Through an Upper GI Procedure Today's episode is dedicated to the loving memory of Dr. Meredith Hitch, a cherished pediatric gastroenterologist at Ochsner Baton Rouge. “You want to make sure that you are ready to be able to prepare not only yourself but your kiddo.” - Emily Martinec, CCLS In this episode host Katie Taylor chats with Emily Martinec, another experienced Child Life Specialist. These two dive into the complexities of preparing children for an upper GI procedure. They provide valuable insights and practical tips for both parents and fellow specialists, sharing lessons learned from their work in pediatric radiology and GI. From scheduling the procedure to supporting children emotionally and physically, Katie and Emily guide listeners through every step of the process for both kids and parents. Whether you're a parent or a professional, this episode is packed with advice to help create an emotionally safe and successful experience for children. A HUGE thank you to our sponsors: : Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇 Applies to subscription and one-time orders Applies to first 1 subscription orders Limited to one use per customer Key Insights Preparation is Key: Schedule the procedure around your child’s routine (e.g., feeding and nap times) and advocate for care at a pediatric facility. Child-Led Support: Tailor explanations based on your child’s age—toddlers need short, concrete steps, while older children benefit from a detailed walkthrough. Creative Coping Strategies: Bring familiar items like a favorite cup or lovey, and offer simple choices (e.g., flavoring options for the barium). Parent Emotional Regulation: Stay calm and positive, which helps children feel safe and supported during the procedure. Teamwork with Staff: Collaborate with radiology staff and child life specialists to create a smooth experience tailored to your child’s needs. Resources and Tips: : Step-by-step guidance and visuals for procedures like the upper GI. Age-Appropriate Preparation Tips: This episode provides strategies tailored to each age group, offering practical and developmentally appropriate tips to help ease anxiety and ensure a smoother experience for both kids and caregivers. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/33844222

233: From NICU Nurse to NICU Mom: Premature Twins born at 33 weeks - Brittney’s Story 10/30/2024

233: From NICU Nurse to NICU Mom: Premature Twins born at 33 weeks - Brittney’s Story A huge thank you to our sponsor of today's podcast, 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇 Applies to subscription and one-time orders Applies to first 1 subscription orders Limited to one use per customer "Being both a NICU nurse and a mom transformed how I view and support each child and family I work with." In this episode host Katie Taylor speaks with a NICU nurse and mother, Brittney, who shares her unique perspective on navigating the healthcare system from both sides; a NICU nurse and NICU mama. Brittany reflects on her journey as a NICU nurse who then became a NICU mom of twins, describing how her experiences inspired her to write a NICU-themed children's book and launch a publishing company. Her story highlights the emotional, mental, and logistical challenges of parenting in a NICU environment and how she uses her experiences to support families facing similar journeys. Key Insights and Lessons: Value of Empathy and Shared Experience: Brittney's journey as a NICU mom brought a new level of empathy to her work, allowing her to connect deeply with the parents she now supports. Empowering NICU Parents: Brittney emphasizes the importance of empowering parents with hands-on involvement, helping them gain confidence in their caregiving roles despite medical complexities. Advocating for Comfort in the NICU: Encouraging parents to bring personal items, create a nurturing space, and advocate for their emotional needs helps make the NICU environment feel more like home. Navigating the Unknowns of NICU Life: For Brittney, the hardest part of the NICU experience was the slow, unpredictable progress toward discharge, which she now prepares her patients’ families for, emphasizing resilience and patience. Resources and Tips: Find Brittney's resources at . This includes: Her childrens book “Cradles of Courage: Adventures in the NICU” in both and A NICU journal, which is designed to help parents track progress and milestones Brittney's Instagram for updates and NICU-related content: When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/33619962

232: Preparing and Supporting your child: A son with Breath Holding Spells-Alessandra's Story 10/16/2024

232: Preparing and Supporting your child: A son with Breath Holding Spells-Alessandra's Story A huge thank you to our sponsor of today's podcast, 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇 Applies to subscription and one-time orders Applies to first 1 subscription orders Limited to one use per customer "When children are better prepared for a procedure or medical situation, it doesn't eliminate all of the struggles, but it builds a level of trust." - Alessandra In this week's episode of The Child Life On Call Podcast, host Katie Taylor sits down with Alessandra, the founder of PrepMeKids, to discuss her personal journey navigating her son's rare medical condition, breath-holding spells, from the NICU to childhood. Alessandra shares the emotional toll of advocating for her son in a foreign country, where she had to bridge communication gaps and trust her instincts in a healthcare system very different from the one she knew. Her story highlights the power of preparation and communication with children, especially in medical situations, and how her personal experiences led her to create customizable books to help kids feel empowered and prepared for medical procedures. Through her experience, Alessandra emphasizes the importance of honesty, advocacy, and resilience in medical parenting. "Parents do know their children, even if they're very young, and we do have gut instincts. It's okay to ask questions and to push back." - Alessandra Key Insights: Preparation is crucial for both children and parents when facing medical procedures. Customized books like PrepMeKids help reduce anxiety and build trust. Advocacy is an essential skill for parents, especially when navigating different healthcare systems. Alessandra emphasizes trusting your gut and asking questions, even when it's uncomfortable. Honesty with children about what to expect in medical procedures fosters trust and resilience; Alessandra narrates her son’s breath-holding spells to help him understand what’s happening. Tracking and organizing medical symptoms can help parents notice patterns and advocate for appropriate care. But knowing when to stop tracking is essential for mental well-being. Emotional overwhelm is common for parents and caregivers. Finding tools and strategies to manage stress, like Alessandra's tips on preparation, is key to long-term resilience. Resources and Tips Shared in the Episode: Customizable books designed to help children prepare for medical procedures. : A tool to help parents track symptoms, write down questions, and advocate for their children during medical appointments. A children’s book by child life specialist Melissa Fadel and nurse Rosemary Pang, aimed at preparing kids for the IV process in a simple, non-scary way. on Instagram recently shared a video of a child having a breath-holding spell that went viral. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/33467417

231: Child Life Specialist Secrets: Flu Shot Prep Strategies Every Parent Should Know 10/07/2024

231: Child Life Specialist Secrets: Flu Shot Prep Strategies Every Parent Should Know Child Life Specialist Secrets: Flu Shot Prep Strategies Every Parent Should Know Thank you to the sponsor of today's podcast: In this episode of the Child Life On Call Podcast, hosts Katie Taylor and Emily Martinec, both certified child life specialists, discuss strategies for preparing, supporting, and responding to children during flu shots. The conversation extends to other medical experiences, offering developmentally appropriate ways to engage children. They emphasize collaboration with medical professionals, highlight coping techniques, and provide resources like the Support Spot app and a digital flu shot preparation course for parents. The focus is on empowering parents and creating a positive healthcare experience for children. 00:00 Introduction to Flu Shot Preparation 01:10 Empowering Parents and Respecting Medical Professionals 03:05 Understanding the Emotional Impact of Shots 04:08 Practical Tips for Flu Shot Day 09:31 Pain Management Techniques 21:07 Post-Shot Processing and Recovery 24:37 Final Thoughts and Encouragement When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/33314527

230: Navigating Childhood Cancer: Supporting families through her own experience - Heather's Story 09/25/2024

230: Navigating Childhood Cancer: Supporting families through her own experience - Heather's Story 230: Navigating Childhood Cancer: Supporting families through her own experience - Heather's Story "We’ve joined a club that nobody wants to be a part of, but the good part is we have the best members." A huge thank you to our sponsor of today's podcast, 30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages. 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇 Applies to subscription and one-time orders Applies to first 1 subscription orders Limited to one use per customer In this episode, Katie Taylor interviews Heather, host of the Navigating Childhood Cancer podcast and mother of a teenager diagnosed with leukemia, in honor of Childhood Cancer Awareness Month. They discuss the challenges of receiving a cancer diagnosis for your child, managing cancer treatments, including pill swallowing, and navigating parent guilt. Heather shares her family's journey and how she balanced protecting her son while also being open about her experience to support other families. Through her podcast, Heather provides a space for families to share their stories, giving listeners the strength to cope with childhood cancer. Key Insights & Lessons Learned: Pill Swallowing is a Process: Sometimes the goal isn’t mastering a technique but simply finding what works, even if it means grinding pills for an extended period. The Importance of Listening to the Child: Empowering the child to make decisions about their care, like how they take their medicine, can alleviate unnecessary stress. Parent Guilt is Real, but Not Always True: Parents often struggle with feeling responsible for their child's illness, but as Heather was reminded, it's not your fault. Sharing Helps, But Boundaries Matter: Heather highlights the balance of sharing personal experiences while respecting her son's privacy, which is crucial when sharing such a sensitive journey. Resources and Tips: Navigating Childhood Cancer Podcast: Hosted by Heather, this podcast shares stories and lessons from families going through childhood cancer. Book Recommendation: What’s an IV? by Melissa Fadel and Rosemary Pang – a child-friendly guide of the IV process. Begin Health To learn more about the sponsor of today's episode, Begin Health, click the link to get a 25% off coupon! When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/33179587

229: Trusting your parental Instincts when addressing your child's chronic pain- A son with Juvenile Arthritis- Kim’s Story 09/18/2024

229: Trusting your parental Instincts when addressing your child's chronic pain- A son with Juvenile Arthritis- Kim’s Story "Trust your gut. If your parent radar comes up and says this is not right, keep pushing." – Kim In this episode, Katie Taylor speaks with Kim Miller, a mother whose journey navigating her son Grant’s diagnoses of juvenile arthritis reshaped her life. Kim shares how her relentless advocacy led her family through unimaginable challenges, including managing chronic pain and finding the right medical care. Her inspiring story unfolds from the hardships of watching her son struggle to walk, to his incredible transformation into an NFL player. The episode highlights the critical role of trusting your parental instincts, advocating for your child, and finding innovative ways to manage chronic pain, offering hope to parents in similar situations. Key Insights: Trust Your Instincts: Kim emphasizes the importance of trusting your gut as a parent and advocating persistently when something feels wrong, despite resistance from doctors. Holistic Care: The integration of multiple specialists and specialties working together in a holistic manner, including both physical and psychological treatment methods, was key to finding a comprehensive treatment plan for her son. Creative Healing: Techniques like art therapy, music therapy, and acupuncture played a significant role in managing her son’s chronic pain and improving his quality of life. Resilience Leads to Success: Despite the odds, Kim’s son went from a wheelchair to playing in the NFL, showcasing the power of determination, support, and a positive mindset. Support Networks Matter: Finding others who understand your struggles, whether through social media or hospital communities, can provide invaluable emotional and practical support. Resources and Tips: Offers free online resources for adolescents and families managing chronic pain. Visit mychipchyp.org for webinars, creative healing workshops, and more. Mindfulness & Pain Management: Dr. Zeltzer’s pioneering work in pediatric pain management focuses on rewiring the brain through techniques like self-hypnosis and mindfulness. Sour Candy Tip for Pain Management: A sour candy before a painful shot can help trick the brain into focusing on the sour taste instead of the pain. Book Reccomendation: s a new favorite of ours, walking us through how to prep a child for an IV start. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/33015082

228: Early Diagnosis, Advocacy and Equity: A daughter with Cystic Fibrosis- Nikki's Story 09/04/2024

228: Early Diagnosis, Advocacy and Equity: A daughter with Cystic Fibrosis- Nikki's Story "We are the experts on our daughter and we deserve a say, and we deserve to be given the time to ask questions." – Nikki DeLeo We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. In this heartfelt episode, host and Certified Child Life Specialist Katie Taylor speaks with Nikki DeLeo, a mother of Taylor, her daughter who has Cystic Fibrosis (CF). Katie and Nikki discuss Nikki’s journey navigating her daughter Taylor's diagnosis from day one, the emotional rollercoaster of becoming a medical parent, her advocacy for Taylor's care, and the importance of equity in newborn screenings for CF. With Taylor's unique case, Nikki discusses the challenges and triumphs of managing a life-changing diagnosis, emphasizing the role of medical teams and community support in fostering resilience and hope. Key Insights: The Importance of Early Diagnosis: Nikki emphasizes how critical early diagnosis was for her daughter Taylor, who started life-saving medication within months of her birth. Advocacy and Education: Nikki shares how she became an expert in her daughter’s care, highlighting the necessity of parents being active members of the care team. Equity in Healthcare: Nikki passionately discusses the disparities in newborn screenings for children of color and the need for equity in medical care to prevent delayed diagnoses. The Power of Community: Finding other parents online and connecting with the Cystic Fibrosis Foundation were vital for Nikki in navigating the challenges of CF. "Finding other parents online who are going through the same thing has been a lifeline for me." – Nikki DeLeo Resources & Tips: : Visit the CF Foundation to find and resources for parents and caregivers. Book Recommendation: - An insightful book about the CF community and the advancements in CF care. Follow Nikki's Journey: Check out Nikki’s Instagram page, , for more on her family’s journey. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/32694282

227: Searching for a Diagnosis: A Rare Disease Mom and Advocate's Journey - ADCY5 Gay's Story 08/21/2024

227: Searching for a Diagnosis: A Rare Disease Mom and Advocate's Journey - ADCY5 Gay's Story "If you have a doubt about something with your child or a family member, it's just really important to keep pushing through and get to the answers." – Gay Grossman In this episode, host Katie Taylor speaks with Gay Grossman, a passionate patient advocate and mother, about her journey navigating the rare disease world. Gay shares her experience of seeking a diagnosis for her daughter, advocating for genetic testing, and supporting families through complex medical and educational challenges. Her story highlights the importance of persistence, building a support network, and staying organized. Gay’s insights provide invaluable advice for both child life specialists and parents and caregivers dealing with rare diseases. Key Insights: The significance of early genetic testing in providing crucial information and guiding treatment decisions. The importance of building a support network to navigate the medical and educational challenges. Staying organized and persistent in the face of numerous medical consultations and uncertainty. The emotional and psychological toll of advocating for a child with a rare disease. The role of patient advocacy in supporting families and advancing research. Resources and Tips: : Genetic testing and counseling services. : Resources for fighting insurance denials and other support. and : Support network for women in science and biotechnology. Connect with Gay on When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/32270157

226. Moms on a Mission: Raising Pediatric Feeding Disorder Awareness with Jaclyn & Athena from Feeding Matters 08/07/2024

226. Moms on a Mission: Raising Pediatric Feeding Disorder Awareness with Jaclyn & Athena from Feeding Matters "Combining my personal experiences as a mom with my professional role has given me a unique perspective on the challenges families face and the solutions they need." - Jaclyn Pederson In this insightful episode, host Katie Taylor speaks with Jaclyn Pederson, CEO of Feeding Matters and mother, and Athena Flicek, a dedicated mother of a child with feeding difficulties, about the complexities of pediatric feeding disorders. Jaclyn and Athena share their personal and professional experiences, emphasizing the importance of early intervention, advocacy, and comprehensive resources. They discuss how Feeding Matters supports families and healthcare professionals, helping them navigate the challenges of feeding disorders. This episode provides a valuable perspective for both parents and child life specialists, highlighting the impact of community and support in overcoming these challenges. Key Insights and Lessons: The Importance of Early Intervention: Identifying and addressing feeding disorders early can significantly reduce long-term psychosocial impacts on children. Advocacy and Empowerment: Parents must learn to advocate for their children, even when it feels overwhelming, to ensure they receive the necessary care and support. Comprehensive Support Systems: Organizations like Feeding Matters offer essential resources, peer coaching, and financial assistance to families facing pediatric feeding disorders. Understanding Pediatric Feeding Disorders: Awareness and education about feeding disorders are crucial for both parents and healthcare providers to properly support affected children. Mental Health Support: Prioritizing mental health for both parents and children is essential in managing the stress and challenges associated with feeding disorders. Resources and Tips: An organization that supports parents of children with pediatric feeding disorders through advocacy, education, support, and research Connect with other parents through Feeding Matters’ peer coaching program for shared experiences and support. Due to the high costs and low insurance coverage of treating pediatric feeding disorders, Feeding Matters provides financial assistance. Attend or participate in the yearly conference organized by Feeding Matters to stay updated on the latest research and resources. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/32269817

225: Embracing Alopecia: A Mother’s Journey of Advocacy, Instincts, and Resilience-Lexi's Story 07/24/2024

225: Embracing Alopecia: A Mother’s Journey of Advocacy, Instincts, and Resilience-Lexi's Story "I feel like I owe it to him to explore other avenues. Acceptance doesn’t mean giving up; it means continuing to learn and adapt."- Lexi In this episode of Child Life On Call, Katie Taylor speaks with Lexi, a devoted mother of two, about her family's journey with alopecia universalis. Lexi shares the emotional challenges and triumphs of supporting her three-year-old son, Penn, who was diagnosed with this rare condition. Through sharing her story, Lexi highlights the power of parental instincts, blending Western and Eastern medicine, and advocating for her child's unique needs. Her story offers valuable insights for parents and professionals alike, emphasizing the power of resilience and community in pediatric healthcare. Key Insights: Early Diagnosis and Gut Instincts: Lexi's intuition played a crucial role in identifying her son's alopecia early on, showcasing the importance of parental instincts, and advocating for them, in healthcare. Navigating Emotional Challenges: Lexi discusses the emotional impact of her son's diagnosis and how her husband’s positive outlook has been a source of strength for their family. Advocacy and Medical Care: The necessity of finding specialized dermatologists and the integration of Western and Eastern medical practices are highlighted as key components of Penn's care. Coping with Public Reactions: Lexi shares strategies for handling public reactions and educating others about alopecia, aiming to foster empathy and understanding. Community and Support Systems: The episode underscores the value of support systems, both within the family and from the wider community, in navigating a rare medical condition. Resources and Tips: Connect with support groups, explore treatment options, and find resources tailored for alopecia families. : Support group pairing kids with mentors that Lexi mentioned. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/32033272

224: A son with Burkitt lymphoma at 8 year's old - Reina's Story 07/10/2024

224: A son with Burkitt lymphoma at 8 year's old - Reina's Story "My immediate thought was I'm going to lose my son. That was where my head went immediately." - Reina Introduction In this episode of Child Life On Call, Katie Taylor talks with Reina, a devoted mother from Nashville, Tennessee. Reina shares her heartfelt journey of caring for her son Elliott, diagnosed with Burkitt lymphoma at eight years old. She discusses the emotional and practical challenges faced during Elliott's treatment, the importance of advocating for her child's needs, and the support systems that played a crucial role in their journey. Reina’s story highlights resilience, the power of community, and the significance of effective communication in pediatric healthcare. Key Insights: Early Diagnosis and Challenges: Elliott's diagnosis journey began with a seemingly minor issue, leading to the discovery of a large mass in his tonsil, which was diagnosed as Burkitt lymphoma. Importance of Advocacy: Reina emphasizes the critical role of parental advocacy, including meticulous record-keeping, clear communication with medical staff, and involving Elliott in his care decisions. Support Systems: The support from family, the school community, and the involvement of a Child Life Specialist were invaluable in navigating the complexities of treatment and providing emotional and practical help. Emotional Coping: Reina discusses the emotional toll of her son's illness, the importance of mental health support, and the strategies used to help Elliott cope with the changes and challenges of his treatment. Creating Resources: Inspired by their experience, Reina has created children's books to help other families navigate similar journeys, emphasizing the importance of involving children in their care and providing accessible resources. Resources and Tips: and other resources for helping children understand and cope with cancer. Read and" to help your child cope with a lymphoma or leukima diagnosis. To learn bout the mission of Hello Brave, founded by Reina, visit their website When parents feel empowered, everyone wins – kids thrive and the care team excels! Get the SupportSpot app! Now available for ALL parents without a hospital code! Download SupportSpot 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/32004512

223: [6 minutes] Big News: The Child Life On Call App is Now SupportSpot! 07/01/2024

223: [6 minutes] Big News: The Child Life On Call App is Now SupportSpot! Episode Description: In this special impromptu episode, Katie Taylor, Certified Child Life Specialist and CEO of Child Life On Call, shares some exciting news! We're rebranding our beloved Child Life On Call app to SupportSpot. Tune in to hear why we made this change and what it means for you and your family. Plus, get a sneak peek into the new features and benefits you can expect from SupportSpot. This is an announcement you won’t want to miss! Show Notes: [00:00] Introduction Welcome from Katie Taylor Brief overview of the exciting announcement [00:30] Reflecting on the Journey Katie’s background and passion for child life services The origin of the Child Life On Call podcast and its impact [01:00] The Big Announcement Introducing the rebrand: Child Life On Call app is now SupportSpot Reasons for the change: Enhanced Clarity: SupportSpot better reflects the app’s purpose and broadens its appeal Broader Appeal: Communicates the app as a comprehensive family support resource during medical experiences [02:00] The Power of Prepared and Empowered Parents The importance of parents knowing what to expect and how to advocate for their children The impact of child life services beyond children’s hospitals [03:00] The Evolution of Child Life On Call From podcast to app: How Child Life On Call grew to SupportSpot The incredible journey and feedback from parents and care teams [04:00] Features and Benefits of SupportSpot Overview of new features and improvements Access to resources, child life tips, procedure guides, therapeutic activities, and more [05:00] How to Get SupportSpot Available for download on iOS and Android Keeping the price low to ensure accessibility for all families Encouraging parents to spread the word [06:00] Continuing Hospital Partnerships Ongoing collaboration with hospitals to ensure families have access to the app at no cost The vision for future growth and impact [06:30] Conclusion Katie’s promise to parents: Empowerment and confidence in healthcare situations Closing remarks and gratitude for the support Links and Resources: Download SupportSpot Follow us on Don’t forget to subscribe, rate, and review Child Life On Call on your favorite podcast platform. Your support helps us reach more families and provide them with the tools they need for a positive healthcare experience. /episode/index/show/childlifeoncall/id/31831742

222: A son born at 25 weeks after loss, NICU NP mom and podcaster: Ashley O'Neil 06/26/2024

222: A son born at 25 weeks after loss, NICU NP mom and podcaster: Ashley O'Neil In this episode host Katie Taylor sits down with Ashley O’Neil, a family nurse practitioner and a NICU mom. Ashley shares her journey when her son, Colin, was born at 25 weeks gestation and the following 183 day NICU stay. Listen to hear how she balanced work, advocating for her son’s needs, coping with personal loss, as well as providing invaluable support and resources to other families in similar situations. "The hardest part isn't being in the NICU; it's the real advocating that starts after discharge." - Ashley O'Neil Key Insights: Early Challenges: Ashley shares the difficulties of having a baby born at 25 weeks and the emotional turmoil of seeing healthy babies at work while her own child struggled in the NICU. Advocacy: Emphasizing the importance of advocating for her child, Ashley highlights how she meticulously kept records, attended rounds, and communicated her son's needs to the medical staff. Support Systems: The significance of community support and online groups played a crucial role in her journey. Resilience: Despite being told what her son might not achieve, Ashley remained steadfast in her belief in his potential, advocating for her son, and celebrating every milestone and victory. Navigating Systems: The real battle often begins after leaving the NICU, dealing with insurance, medical equipment, and ensuring her child receives the necessary care and resources. Resources and Tips : Provides essential housing and support for families with hospitalized children. Insurance Navigation: Practical advice on dealing with insurance companies and securing Find information and resources to support grieving children. When parents feel empowered, everyone wins – kids thrive and the care team excels! Links and Resources: Download SupportSpot 85% of users report high satisfaction, appreciating the SupportSpot App’s comprehensive resources and user-friendly interface. 92% of parent users say the SupportSpotApp helped them understand medical procedures and treatment better. 80% of parents believe the SupportSpot App has contributed to better health outcomes for their child. 73% of parent users believe the SupportSpotApp has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/31867902

221:Collaborative care between a Child Life Specialist and Social Worker with Annie Gunning and Haley Thomas at Hope for HIE 06/12/2024

221:Collaborative care between a Child Life Specialist and Social Worker with Annie Gunning and Haley Thomas at Hope for HIE On today’s episode, Katie had the privilege of speaking with , a Certified Child Life Specialist and Grief Counselor, and , a Licensed Master Social Worker, on their collaborative efforts to support families at . Annie and Haley tailor their support to each family's unique needs, dedicating time to assess and implement the most effective strategies. Annie and Haley are setting new standards in providing exceptional support to the families they serve. Key Takeaways It’s important to meet families where they are. Finding ways to help prepare children for procedures with items you have at home empowers children and their families. Supporting the non-patient can be very impactful to families, this includes the siblings and parents. Loss and Bereavement support is crucial to families. Grief is not linear and the community as a whole can be affected by a loss. Annie and Haley support these families through monthly support groups. Collaborative support from one another professionally can create strong partnerships with the best interest of the family and child at heart. When seeking help in a hospital setting, reach out to the person who makes you feel most comfortable. If they cannot provide the specific support you need, they will know who can and will direct you to the right resource. Parent Stories Matter If you enjoyed this episode, we encourage you to listen to more where we highlight the experiences of parents navigating the healthcare system. Each story offers valuable perspectives and practical advice on supporting and empowering families during their healthcare journeys. When parents feel empowered, everyone wins – kids thrive and the care team excels! 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/31702687

220: Know EXACTLY When Rounds is Happening with Q-Rounds with Dr. Michael Pitt 05/29/2024

220: Know EXACTLY When Rounds is Happening with Q-Rounds with Dr. Michael Pitt Episode Description: Join Katie Taylor, CCLS in this episode as she talks with the founder of and a compassionate pediatrician (and magician!) dedicated to enhancing doctor-patient communication. As a child life specialist, Katie understands how crucial it is for families to not only be present during rounds but also to feel empowered and actively engaged in discussing the care plan with their team. When she learned about Q-Rounds, she knew she had to share this innovative approach with her parent and child life community. shares his insights on how healthcare professionals can better connect with their patients and the impact of these interactions on the overall healthcare experience. From amusing anecdotes with medical students to practical tips for introducing oneself to patients, Dr. Mike's stories and advice are both enlightening and entertaining. In This Episode, You'll Discover: Dr Mike's Focys on Enhancing Doctor-Patient Communication: Dr. Mike on effective communication in healthcare, including a study conducted at the state fair on how patients prefer their doctors to introduce themselves. Q-Rounds Launching in Children's Hospitals Exciting news! a virtual queue that sends real-time notifications to patients, families, nurses, and other stakeholders of when to arrive for rounds and gives families the opportunity to join virtually if they can’t be there in person, is now being deployed in children's hospitals, with Dr. Mike at the forefront of this initiative. Parent Stories Matter If you enjoyed this episode, we encourage you to listen to more where we highlight the experiences of parents navigating the healthcare system. Each story offers valuable perspectives and practical advice on supporting and empowering families during their healthcare journeys. When parents feel empowered, everyone wins – kids thrive and the care team excels! 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface. 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better. 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child. 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare Learn more . Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/31494272

219: 60 Years Later: Reflecting on a Daughter with Ichthyosis 05/22/2024

219: 60 Years Later: Reflecting on a Daughter with Ichthyosis “We, we weren't letting those people push us around because, believe it or not, living with us 24 hours a day, we knew more than some of the doctors.” - Skip Vilas In this heartfelt episode of the Child Life On Call podcast, host and CCLS Katie Taylor interviews Deb Vilas, an expert child life specialist, alongside her parents, Skip and Joyce Vilas. They share their story spanning over 60 years, recounting the challenges and triumphs of raising Deb, who was born with ichthyosis, a rare skin condition. The episode dives deep into the emotional and medical journey of Deb's early years, the evolution of parental advocacy, and the power of family and community support in navigating the complexities of pediatric healthcare. Takeaways from Skip and Joyce: The Power of Advocacy: Joyce and Skip's relentless advocacy for Deb's health and well-being, challenging medical professionals when necessary. Importance of Parental Presence: The emotional and developmental impact of parental presence and touch, even in limited hospital circumstances. Resilience and Adaptation: Deb's strength and resilience in the face of social challenges and medical hurdles. Evolution of Pediatric Care: A reflection on how pediatric care has evolved, highlighting the necessity of family-centered approaches. “The advocacy role is important. And of course, that's one of the roles that Child Life has for children." - Skip Vilas Resources and Tips: : Provides support and resources for families dealing with ichthyosis. Learn more : Opportunities for families to connect and share experiences. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/31385757

218: How NOT to Give Families Medical Information - A son with CHARGE syndrome, Taylor's Story 05/15/2024

218: How NOT to Give Families Medical Information - A son with CHARGE syndrome, Taylor's Story Today's guest is Taylor Happley, a mom of a child with CHARGE syndrome. "We need to figure out why and how to help these kids get the medical attention that they need." In today's episode, Katie Taylor had an important conversation with Taylor Happley, whose son has CHARGE syndrome. Taylor’s prenatal journey was filled with miscommunication and emotional challenges. Taylor's story of learning about her son's diagnosis of CHARGE Syndrome in less-than-ideal circumstances underscores the need for healthcare professionals to provide information in ways that are both sensitive and supportive. This conversation shines a light on the crucial role of empathy and effective communication in pediatric healthcare. Taylor also acts as a powerful reminder of the resilience of families navigating complex medical conditions. "There's power in sharing stories, and that power multiplies when you can listen to other parents who have walked a similar path to yours." What you can learn from this episode: Communication is Key: Healthcare providers must deliver information compassionately to support families effectively during challenging times. Parent Advocacy: Taylor's story highlights the importance of parental advocacy in navigating the complexities of a child's medical condition. Importance of Support Networks: Connecting with other parents and finding community support can be crucial for managing the emotional toll of a child’s diagnosis. Learning through Experience: Families often develop a deep understanding of their child’s condition, which can empower them to advocate effectively within the healthcare system. Resilience and Hope: Despite the challenges, there is a powerful narrative of resilience and hope that can inspire other families in similar situations. Resources and Tips: Provides invaluable resources for families and professionals Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/31268577

217: Navigating IEPs, Infantile Spasms, NICU & STXBP1 - Erin's Story 05/08/2024

217: Navigating IEPs, Infantile Spasms, NICU & STXBP1 - Erin's Story Today’s guest is Erin Prosser, an IEP expert consultant and a mom of a daughter diagnosed with STXBP1. "You don't see it coming. Being a rare disease parent hits you like a ton of bricks." In today's episode Katie Taylor had the chance to speak with Erin Prosser, an IEP expert consultant and a mom navigating the complex world of pediatric healthcare due to her daughter Lucy's rare neurodevelopmental disorder. Erin shares her profound journey from a second-time, confident mom to a whole new role as a crucial advocate for her daughter's specialized needs. The challenges and triumphs of parenting Lucy led Erin to a new career path helping other parents ensure necessary services and support for their children. This episode dives deep into the realities and emotional challenges of parenting a child with significant medical needs, including the strategies Erin has employed to ensure her daughter receives the best possible care and education through effective IEP management. "I think the best kinds of experts are those who have walked the path themselves. The best teachers are the ones who have been students and have had to have a process and said, this can be better and I want to fill it." Key Insights and Lessons: Early Identification and Advocacy: The importance of recognizing symptoms early, advocating for proper diagnosis, and persistently seeking appropriate treatments. Navigating IEPs and Special Education: Listeners gain an in-depth look at navigating Individualized Education Programs (IEPs), where Erin uses her personal and professional experiences to help other parents secure necessary services and support for their children. Community and Support Systems: The crucial role of community support and early intervention therapies in managing children’s condition and the value of connecting with other families facing similar challenges. Mental Health and Coping Strategies: The significance of mental health for parents in similar situations is underscored, with therapy and community support as coping tools. Resources and Tips: Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Listen to another episode of the Child Life On Call Podcast discussing rare diseases Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/31057298

216: How to talk with Kids about Child Abuse - Jane's Story [Repost] 04/24/2024

216: How to talk with Kids about Child Abuse - Jane's Story [Repost] April is Child Abuse Prevention Awareness Month. We have reposted this episode to bring awareness and give you tangible tools to speak with your kids about child abuse. Today’s guest expert is Jane Donovan, who is a child abuse prevention advocate. "And like we say in child life, you have to prepare. So you know what to expect and you know how to cope with what's going to happen next." - Katie Taylor, CLOC In this crucial episode, Katie Taylor is joined by a child abuse prevention advocate, Jane Donovan, to delve into the sensitive and vital topic of child protection within the healthcare system. The discussion focuses on how child life specialists can play a crucial role in identifying and responding to signs of abuse in children. Through detailed education on proper documentation, response strategies, and the importance of preparation, this episode provides essential insights for any adult from child life specialists to parents, underscoring the role of education in prevention and the duty to teach children how to keep their bodies safe. Key Insights and Lessons: Importance of Proper Documentation: Understanding how accurate and detailed documentation can aid in protecting children and supporting further investigations. Recognizing Signs and Symptoms: Learning the subtle signs and symptoms of abuse to ensure early intervention and support for the affected children. Educational Role of Child Life Specialists: How child life specialists can educate and prepare themselves to better support children who may disclose abuse. Empowering Children: Strategies for teaching children about body safety and self-protection in a manner that is appropriate and empowering. Resources and Tips: Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/30936023

215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & Struggles to Discharge - Aspen's Story 04/17/2024

215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & Struggles to Discharge - Aspen's Story "I've learned so much in this whole process. It's like you have a depth inside of you that resurrects as an advocate and high alert, and it lives inside of you when you need it." -Aspen, Willa's Mom In this episode of Child Life On Call, host Katie Taylor and guest Aspen share an intense and educational journey through pediatric appendicitis. Aspen recounts her daughter Willa's sudden illness, misdiagnosis, and the emotional rollercoaster of a ruptured appendix leading to urgent surgery. This story not only highlights the challenges and nuances of navigating pediatric healthcare, but also underscores the importance of parental intuition and the vital role of child life specialists in supporting both children and their families during medical crises. Katie and Aspen dive into topics such as parental intuition, medical advocacy, and the impact child life can make. Aspen's experience stresses the importance of trusting your parental instincts when you feel the medical assessments are overlooking the correct diagnosis. The conversation also discusses the significant positive impact of child life specialists in managing a child's anxiety and discomfort through creative and empathetic interventions, as well as the emotional toll on parents and the necessity of finding support during a child's medical emergency. "I wish I would have pressed harder to say, let's just do a scan. What's the worst thing that's gonna happen? Aspen, Willa's Mom The resources mentioned in this episode are: Child Life On Call: Access comprehensive guides and support for parents and healthcare providers on . Hospital Playrooms: The therapeutic benefits of play, the use of hospital playrooms to aid recovery and normalcy for hospitalized children. Read more about creating a comfortable and child-friendly environment in medical facilities : The importance of specialized books for children undergoing medical procedures to help them understand and cope with their experiences. Engage with us on Instagram for more stories from parents and practical tips. Check out our Amazon storefront for recommended products that support your child's development. Interested in enhancing your organization's pediatric care? Request a demo of the Child Life On Call app today! About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of , a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she’s served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. | | /episode/index/show/childlifeoncall/id/30847458

214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story 04/10/2024

214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story "Sometimes it's really therapeutic though to remember all that you have gone through because I feel like there are times when we look at each other and I'm like how did we get here?" -Tayler Ransome We're grateful for our sponsor for this episode, Nestle Health Science, and are thrilled to share their incredible website, your go-to online resource for valuable information and support. In this episode, Katie Taylor welcomes the Ransome family, known to many as the , where they share their daily life and the challenges of managing their son Sully's end-stage kidney disease. From their initial shock and learning curve as medical parents to the powerful advocacy that led them to seek better care, the Ransomes' story is a beacon of resilience and hope. Their journey underscores the importance of community, the power of advocating for your child and finding joy amidst life's toughest challenges. Key Insights: The critical role of advocacy in securing the best possible care for your child, is illustrated by the Ransome's transition to a more capable hospital. How establishing a disciplined routine for medical care fosters a sense of normalcy and control. The unexpected journey of becoming medical parents, including the steep learning curve and the importance of specific communication with family and friends. Discovering inner strength, resilience, and the ability to find joy in the most challenging circumstances. "Seeing how ceaseless his joy is... reminds me every day of the strength and beauty in our life, no matter the circumstances." – Tayler Ransome Resources and Tips Shared in the Episode: A glimpse into managing home dialysis and medical care with love and dedication. Advocating for Your Child in the Healthcare System: Tips from the Ransome's experience on how to navigate healthcare providers and ensure your child receives the best possible care. Coping with the Unexpected: Strategies for dealing with the initial shock of a diagnosis and finding support. We want you to join our community! Follow us on Instagram for more stories, support, and inspiration. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/30747473

213: Parents, CCLS, Students: Show Up Exactly As You Are 04/03/2024

213: Parents, CCLS, Students: Show Up Exactly As You Are In This Episode: Katie Taylor goes off the beaten path in this special episode to share a profound moment of inspiration that struck her. This episode is a heartfelt message to child life specialists, students, and parents, emphasizing the importance of showing up as you are, without the burden of imposter syndrome. Key Highlights: A Different Kind of Episode: Katie shares her spontaneous thoughts that came from a moment of inspiration, promising that the usual stories from the field and parental perspectives will return in future episodes. Message of Empowerment: The core message is about overcoming the misconception of imposter syndrome. It’s about recognizing that being in the room is an acknowledgment of one’s worth and contributions. Inspirational Source: Katie discusses insights gained from listening to Reshma Saujani, CEO of Girls Who Code, and her philosophy of bravery over perfection, which struck a chord with Katie in relation to the child life profession and parental involvement in healthcare. For Child Life Specialists: A call to recognize the value they bring to healthcare settings, emphasizing that healthcare teams are fortunate to have them participate. For Students: Encouragement to embrace their internships and opportunities without doubting their deservedness or capability. For Parents: An affirmation of the crucial role parents play when involved in their child’s care, emphasizing that their presence inherently improves the healthcare experience for their child. Katie wraps up with a reminder of the importance of showing up authentically in every room you find yourself in, celebrating Child Life Month, and expressing gratitude to her listeners. Resources and Next Steps: Visit for resources tailored to parents, professionals, and healthcare providers. Explore opportunities for Child Life Specialists, including PDUs and support through the Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/30629763

212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story 03/27/2024

212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story "As a child life specialist, watching my tiniest patients grow and accomplish so many things is my favorite part of the job." - Julie, Certified Child Life Specialist Episode Summary: In this heartfelt episode of Child Life On Call, we celebrate Child Life Month by diving deep into the dedicated world of child life specialists and the resilient families they support. Host Katie Taylor talks to Julie, a remarkable child life specialist with 18 years of experience in the renal service at Texas Children's Hospital in Houston, Texas. Julie shares her profound journey of supporting children with end-stage renal disease and their families, emphasizing the incredible growth and accomplishments of her patients, from NICU discharge to life milestones like graduation and beyond. This episode shines a light on the unseen challenges and invisible diseases, offering a beacon of hope and understanding for families navigating similar paths. Key Insights and Lessons: The Power of Specialization: Julie's dedication to the renal unit for nearly two decades highlights the impact of specialized care and deep knowledge in supporting families through long-term medical journeys. Invisible Illness Awareness: Kidney and renal diseases are often "invisible illnesses," where children may not appear sick externally, challenging families to seek and receive support from their communities. Advancements in Treatment: Remarkable advancements in transplant medicine and the introduction of new facilities like a dedicated dialysis unit represent hope and progress in the care of patients with kidney disease. Comprehensive Family Support: The role of child life specialists in educating and supporting families beyond medical interventions, helping them navigate school, social challenges, and encouraging participation in community events. Celebrating Growth and Achievements: Witnessing the development and achievements of patients, such as learning to walk, talk, and engage with their favorite activities post-transplant, underscores the transformative impact of child life specialists. "We actually just opened up a brand-new dialysis unit at our hospital...watching that come to fruition from having been a dream of the department for so long to actually happening has been amazing." - Julie Resources and Tips: Kid's Health: Offers kid-friendly explanations and illustrations about medical conditions and treatments. National Kidney Foundation: Provides extensive resources and information for families dealing with kidney disease. Kidney School: An educational platform with modules for healthcare team members and families to learn about kidney disease. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/30555443

211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Story 03/20/2024

211: A Son Born with End-Stage Kidney Disease (Part 1): Lyndsey's Story "Having a medically complex child, it's like everything's fine. And then, you know, we have a morning where we've thrown up a lot or our blood pressure is too low, and it just doesn't look good. You just never know what you're going to get." - Lyndsey, Episode 211 In this deeply moving episode, we are joined by Lyndsey, who shares the compelling journey of her son James's battle with post-urethral valves before birth, leading to kidney issues and eventually a kidney transplant. Through her narrative, we learn about the rollercoaster of emotions, the challenges of navigating the healthcare system, and the critical role of child life specialists in providing support. Lyndsey's story is one of immense courage, the power of hope, and the transformative impact of compassionate care on families navigating pediatric health challenges. "Having a medically complex child is like everything's fine until it's not." - Lyndsey Key Insights: The Crucial Role of Early Diagnosis: Lyndsey's experience underscores the importance of prenatal screenings and the challenges of facing unexpected medical conditions before birth. Support Systems Are Key: The journey highlights how family, medical teams, and child life specialists form a crucial support network that helps navigate the complexities of a child's medical care. Resilience in the Face of Uncertainty: The family's story is a testament to the resilience required to face the unknown and advocate for a child's health and well-being. The Importance of Child Life Specialists: Lyndsey's story reinforces how child life specialists play a vital role in supporting both the child and the family through medical procedures, hospitalizations, and the overall healthcare journey. How Child Life Specialists Can Help: Understanding Post-Urethral Valves: Providing educational materials to help parents understand complex medical conditions. Building a Support Network: Encouraging families to connect with others through support groups and communities. Coping Strategies: Sharing resources and strategies for families to manage stress and maintain emotional well-being. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/30401558

210: Connection, Healing, and Love: Insights from Patrice Karst, Author of The Invisible String 03/13/2024

210: Connection, Healing, and Love: Insights from Patrice Karst, Author of The Invisible String "Love is the most powerful force in the universe, and the invisible string is a testament to the connections that bind us all." - Patrice Karst In this special Child Life Month episode, Katie Taylor sits down with Patrice Karst, the beloved author of "The Invisible String" and several other impactful books. They explore Patrice's journey from personal challenges to becoming a source of comfort and connection for families worldwide. This conversation delves into the power of storytelling in addressing themes of separation, loss, and the enduring strength of love. Patrice shares her inspiration behind "The Invisible String" and its profound impact on both children and adults, emphasizing our universal connectedness and the healing power of love. "The messages of love and connection I write about are not just for children; they resonate with the inner child in all of us." - Patrice Karst Key Insights or Lessons Learned: The concept of "the invisible string" as a universal metaphor for love and connection that transcends physical presence and even loss. The importance of acknowledging and discussing feelings of loneliness and the power of finding one's inner best friend, as explored in "Ruby and Lonely." How creativity and storytelling can be therapeutic, providing solace and understanding in times of grief and separation. The role of child life specialists in utilizing literature like Patrice's to foster emotional safety and understanding among families facing medical challenges. "Every letter I receive is a reminder of the profound impact stories can have on healing and connection." - Patrice Karst Resources and Tips Shared in the Episode: by Patrice Karst: A must-read for anyone seeking to understand and teach about the bonds of love. Explore this invaluable tool for additional support and resources for navigating pediatric healthcare challenges. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/30275593

209: Research on Parent Caregivers of Children with Medical Complexities - Elise's Story 03/06/2024

209: Research on Parent Caregivers of Children with Medical Complexities - Elise's Story Advocacy, Compassion, Innovation: Elise's Child Life Journey "Working with children with medical complexity and developmental differences isn't just a job; it's rooted in who I am." - Elise Cofer, CCLS In this captivating episode of Child Life On Call, Katie Taylor sits down with Elise, a Nashville-born child life specialist who brings her passion and dedication to the hematology oncology unit at Vanderbilt. Elise's journey into child life, driven by a background deeply embedded in caring for children with special needs, showcases her commitment to enhancing pediatric healthcare. Through her story, listeners will gain insights into the challenging yet rewarding world of a child life specialist. Elise discusses the evolution of her career, her groundbreaking research on caregiver support, and her vision for a more inclusive and personalized approach to pediatric healthcare. "Elise's insights remind us of the critical role child life specialists play in not just supporting children, but whole families through their healthcare journeys." - Katie Taylor, CCLS Key Insights and Lessons: The Holistic Approach: Elise's interdisciplinary background highlights the importance of integrating care for children with special needs, emphasizing a holistic approach to their well-being. Research as a Pathway for Change: Elise shares her research findings on caregiver experiences, revealing a profound need for targeted child life interventions that support not only the child but the entire family unit. Advocacy and Empowerment: Through her work and research, Elise emphasizes the power of advocacy by caregivers and the role of child life specialists in empowering families to navigate the healthcare system effectively. The Importance of Listening: One of the most critical skills in child life work, according to Elise, is the ability to listen—to truly hear the needs and wishes of children and their families, thereby tailoring support to each unique situation. Recommendations: For Families: Elise recommends resources that provide guidance on navigating the healthcare system for children with medical complexities, emphasizing the importance of community support and advocacy. For Child Life Specialists: Insights into integrating research findings into practice, enhancing the child life specialist's toolkit for supporting families dealing with medical complexities. 🌟 Connect and Share Your Story: Join our community on Instagram to share your journey and find support from others navigating similar paths. As we continue to explore the depths of pediatric healthcare through stories like Elise's, we are reminded of the resilience, courage, and love that drive individuals to make a significant impact. Stay tuned for more inspiring episodes from Child Life On Call. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/30249813

208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's Story 02/28/2024

208: Military Life, Pediatric Complex Care Abroad & Resiliency: Kat's Story In this profound episode, we join Katie Taylor as she delves into the inspiring journey of a military family navigating pediatric healthcare for their two medically complex children. Through the voice of the remarkable mother, Kat, we explore the unique challenges and triumphs of securing continuous, specialized care amidst the frequent relocations and complexities inherent to military life. Kat shares her experiences with advocacy, the importance of resilience, and the deep bonds forged through their family's journey, offering invaluable insights into the realities faced by military families dealing with medical complexities. "Every challenge we've faced has only amplified our strength as a family. Our journey is a testament to the power of love, persistence, and advocacy." - Kat Key Insights and Lessons: The critical role of advocacy in navigating pediatric healthcare, especially within the military system. Strategies for explaining medical treatments and changes to young children in a way that fosters understanding and cooperation. The importance of building a supportive healthcare team that listens and adapts to the unique needs of each family. Implementing coping mechanisms for children, like the "Brave Box," to make medical procedures more manageable and less intimidating. Recognizing and nurturing the individual strengths and personalities of each child amidst their medical challenges. Resources and Tips: The Sticky Notes Diary: Follow Kat's blog for more insights and support for families of medically complex children in the military. Child Life On Call Resources: Access a variety of resources tailored for parents, professionals, and healthcare providers to navigate pediatric healthcare experiences. Call to Action: Connect on Instagram: Join our vibrant community for daily inspiration, stories, and support. Explore Our Amazon Storefront: Discover curated resources to support your family's healthcare journey. Request a Child Life On Call Demo: Learn how our app can revolutionize pediatric healthcare experience in your organization. Let's continue to support each other and share our stories, fostering a community where no one feels alone in their journey. Tune in next week for another episode filled with hope, courage, and the collective wisdom of our Child Life On Call family. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Here are some of our favorite affiliates that help promote positive coping for kids: Meet the host: Katie Taylor is the co-founder and CEO of a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. /episode/index/show/childlifeoncall/id/30138813

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