Episode 46 | Pediatric Pain with the Meg Foundation
Release Date: 09/30/2020
![Prader-Willi Syndrome, Motherhood & Finding Community Through Advocacy [REPOST] (253)- Jessica's Story show art](https://assets.libsyn.com/item/36454015?height=50&width=50)
Prader-Willi Syndrome, Motherhood & Finding Community Through Advocacy [REPOST] (253)- Jessica's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
đ˘ This is a special repost of one of our most heartfelt and insightful episodes. Whether this is your first time hearing Jessicaâs story or a revisit, her perspective as a mom of a child with Prader-Willi Syndrome will stick with you. This month is also Prader- Willi Syndrome awareness month. What happens when a diagnosis changes everything you expected about motherhood? For Jessica Patay, it sparked a journey through fear, resilience, advocacy, and ultimately, the founding of an incredible nonprofit called We Are Brave Together. In this deeply moving episode, Jessica opens up about:...
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Two Sisters with Cystic Fibrosis - Laura's Story (252)
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
What would you do if both of your children were diagnosed with a life-threatening genetic diseaseâand there was no support system in place for parents like you? In this inspiring episode, Katie interviews Laura Bonnell, a former Detroit news reporter turned full-time advocate and nonprofit founder. After both of her daughters were diagnosed with cystic fibrosis (CF), Laura transformed her grief and determination into the Bonnell Foundation, providing real-time support to families across the U.S. who are navigating life with CF. In this powerful episode, we explore: â How Laura pushed for...
info_outline![A Nurse Practitionerâs Story of Grief, Strength & Advocacy [REPOST] (251)- Ashley's Story show art](https://assets.libsyn.com/item/36190285?height=50&width=50)
A Nurse Practitionerâs Story of Grief, Strength & Advocacy [REPOST] (251)- Ashley's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
đ˘ This is a special repost of one of our most impactful and heartfelt episodes. Whether youâre hearing Ashley OâNeillâs story for the first time or revisiting it, her journey continues to resonate deeply with NICU families, pediatric providers, and anyone who has faced unimaginable loss and found strength in the aftermath. What happens when your personal and professional worlds collide in the NICU? For family nurse practitioner Ashley OâNeill, the journey into motherhood brought profound loss, relentless medical advocacy, and ultimately, a passion for helping others. Ashleyâs...
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A Rare Diagnosis Journey: Collagenous Gastritis and IGG deficiency (250)- Alexis' Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
What if every milestone your child was supposed to reach came with countless curve balls? For Alexis Kaplan, motherhood quickly turned into a journey of advocacy, strength, and unwavering love as she navigated her daughter Gabbyâs complex and rare health conditions. In this moving episode, Alexis shares: â The moment her newborn was rushed to the NICU with a collapsed lung â How her daughterâs recurring infections led to a diagnosis of immunodeficiency and collagenous gastritis â The emotional tollâand strengthâof being the medical historian and advocate for a...
info_outline![How to Talk With Children About Child Abuse [REPOST] (249)- Jane's Story show art](https://assets.libsyn.com/item/35991140?height=50&width=50)
How to Talk With Children About Child Abuse [REPOST] (249)- Jane's Story
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
Knowing how to talk to kids about child abuse can feel overwhelmingâbut it doesnât have to be. In this impactful episode of Child Life On Call, host Katie Taylor interviews child abuse prevention advocate Jane Donovanâwho also happens to be her mom. Jane shares her personal journey, sparked by a tragic event, that led to a decades-long mission to protect children and educate communities. From creating a long-running puppet program for abuse prevention to empowering kids with body safety tools, this conversation is full of actionable advice for parents, caregivers, educators, and child...
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MERRF Syndrome and Motherhood: Raising and Remembering Dahlia - Jessicaâs Story (248)
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
"We followed Dahliaâs leadâand Dahlia was not going to let this stop her.â â Jessica Fein What happens when your childâs diagnosis is so rare that no oneâincluding your doctorsâknows how to help? For Jessica Fein, navigating life with her daughter Dahliaâs MERRF Syndrome meant redefining motherhood, finding joy in unexpected places, and transforming grief into connection and advocacy. In this honest and deeply moving episode, we explore: â What itâs like to go on a diagnostic odyssey, and finally get answers that bring more questions â The complexity of parenting a child...
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A Cerebral Palsy Diagnosis: Traumatic Birth, Micropreemie Twins & the Power of Hope {REPOST}- Savannahâs Story (247)
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
âIt wasn't any kind of strength within myself that helped me get through the NICU. It was the strength they hadâthey gave it to me.â- Savannah O'Malley We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEaseÂŽ. We are pleased to provide more information about this product, and we invite you to learn more by visiting their What happens when your birth plan is shattered in an instant? For Savannah, the unexpected arrival of her micropreemie twins at just 24 weeks turned her world upside down. One of her sons faced significant medical challenges, including...
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Pyroxd1 and the Path Forward: A Rare Disease, a Life-Saving Lesson & a Mission to Help Others- Maria + Matt's Story (246)
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
"What we realized was that rare isnât as rare as we thinkâthere are so many of us out here searching for answers, fighting for our kids, and trying to make a difference."- Maria Granados We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEaseÂŽ. We are pleased to provide more information about this product, and we invite you to learn more by visiting their What if a simple miscommunication in the hospital could have cost your child their life? For Maria and Matt Granados, parents of a daughter with Pyroxd1, that terrifying moment led to a groundbreaking...
info_outline![Navigating HIE: Hope for Families, and Life Beyond the NICU [REPOST]- Betsy's Story (245) show art](https://assets.libsyn.com/item/35575705?height=50&width=50)
Navigating HIE: Hope for Families, and Life Beyond the NICU [REPOST]- Betsy's Story (245)
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
"I remember sitting in the NICU thinking, âAm I going to lose my baby? Is this the best outcome for him? What will his life look like?â And then I realizedâI wasnât alone in these thoughts. Other parents had been here before, and they found a way forward. Thatâs when I knew we needed a community like Hope for HIE." â Betsy Pilon, Founder Hope for HIE We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEaseÂŽ. We are pleased to provide more information about this product, and we invite you to learn more by visiting their What happens when your...
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A Mother and a Physician: Navigating Her Daughterâs NMOSD Diagnosis â Maggieâs Story (244)
Child Life On Call | Medical, Parenting, Healthcare, Grief, Trauma, Pediatrics, Coping Skills, Community & Support
"I thought my job was to save my daughter, but I realized my job was to show her how to live with strength and resilience." â Dr. Maggie Kang We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEaseÂŽ. We are pleased to provide more information about this product, and we invite you to learn more by visiting their In this powerful episode, Dr. Maggie Kang shares her deeply personal journey as a physician and a mother navigating her daughterâs rare disease diagnosis, Neuromyelitis Optica Spectrum Disorder (NMOSD). She discusses the emotional and medical...
info_outlineKatie, Certified Child Life Specialist, talks with Jamie Gentille, Director of Child Life Services at Inova Children's Hospital and Dr. Jody Thomas, from the Meg Foundation for Pain, in this episode.
Dr. Jody Thomas is a licensed clinical psychologist, and specialist in pediatric medical illness and trauma and the founder of the Meg Foundation for Pain. She discusses the mission of their organization which addresses pain in children head-on. Listeners today will walk away with a better understanding about why children shouldn't be in pain if there are ways to reduce it as well as tangible tools the foundation is working on to support parents and children.
Jamie adds her own perspective as someone who has spent her life in the medical world, personally and professionally. Jamie's stories show the reality of how the trauma of pain in childhood has effected her to this day.