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Episode 58 | Shani's Story - A child with a learning difference #ADHD #Anxiety #Dyslexia #Dysmorphia

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Release Date: 02/10/2021

Episode 155 | Travis’ Story - A daughter with Cystic Fibrosis show art Episode 155 | Travis’ Story - A daughter with Cystic Fibrosis

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Travis shares how they discovered his daughter's cystic fibrosis diagnosis at age 4. Just months earlier, Travis learned his half sister was diagnosed with Cystic Fibrosis.  He shares how the journey impacted his life on a professional and personal level creating the foundation, Piper's Angels to help support families dealing with a Cystic Fibrosis diagnosis. [3:50] Introductions [6:43] Showing signs of respiratory issues [8:11] Chest X-Ray to determine the cause of the Cystic Fibrosis [8:37] Adamant state of denial [9:16] The earth-shattering news of the Cystic Fibrosis diagnosis [11:06]...

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Episode 154 | Savannah’s Story - Traumatic birth, Micro Preemie Twins, and Cerebral Palsy show art Episode 154 | Savannah’s Story - Traumatic birth, Micro Preemie Twins, and Cerebral Palsy

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On this episode, Savannah shares what it means to have wreck-less hope. Through her traumatic birth, having micro preemie twins and receiving a cerebral palsy diagnosis for one of the twins, Savanah explains how her twins have changed her outlook on life and how she cherishes the little things life has to offer. Savannah opens up about maternal mental health and how it affected her. It is her mission to help other moms experiencing a traumatic brith feel not alone through the gift of artwork and support. [4:05] Introductions [4:55] Stories of hope [6:47] History of pre-term labor [7:29] Going...

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Episode 153 | Expert: Virtual Speech Language Pathologist show art Episode 153 | Expert: Virtual Speech Language Pathologist

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On this episode of the podcast, Lenora from BetterSpeech  shares about virtual speech language pathology services and how they can be beneficial for not just the child but for the family. Lenora explains how making a connection with the child positively impacts the progress of speech therapy. This episode is informative of what a virtual session would look like and provides valuable insight to parents seeking out virtual therapy services. [2:50] Lenora introudces herself [3:59] How she got started in Speech Language Pathology [4:32] Integration of therapy into the family setting [5:35]...

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Episode 152 | Kelly’s Story - A daughter with Epilepsy [Trigger Warning: Death] show art Episode 152 | Kelly’s Story - A daughter with Epilepsy [Trigger Warning: Death]

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

This episode is full of tangible truth about what it means to be a caregiver and advocate. Kelly shares about her daughter's epilepsy diagnosis and how it changed her entire world. After a normal pregnancy and delivery, Adelaide wasn't gaining weight and had low muscle tone which was the beginning of her epilepsy diagnosis. Kelly became involved in CURE Epilepsy's mission and shares how Adelaide's spirit lives on through the work she does today.  **Trigger warning: Kelly talks about her daughter's death in this episode** [3:20] Introductions [4:35] Adelaide's diagnosis [5:15] Miguel...

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Episode 151 | Gavin + Cindy’s Story - A son with Osteosarcoma show art Episode 151 | Gavin + Cindy’s Story - A son with Osteosarcoma

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Cindy and Gavin share about their son Ryan and his battle with Osteosarcoma. Cindy shares about how she created a Case for Smiles to help her cope with Ryan's diagnosis. Gavin brings the perspective of dad and professional and shares how he started a new position at the Hospital his son was being treated at the very same day as a diagnosis. They openly share the ups and downs of their journey and how Ryan's legacy lives on today. [3:16] Introducing their family [5;34] A bike accident lead to the shocking diagnosis [6:26] Going into remission [7:00] Gavin begins a new job as a CFO the same day...

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Episode 150 | Grandparents Guide to Supporting Their Kids + Grandkids during Illness show art Episode 150 | Grandparents Guide to Supporting Their Kids + Grandkids during Illness

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On today's episode, Katie shares with our listeners how Grandparents can support their kids and grandkids during an illness or diagnosis. During the holidays with lots of family time, this topic came to mind. Grandparents are an integral part of the family, whether they live near or far. This episode gives practical ways Grandparents can support their kids and grandkids. [1:58] Hard conversations during the holidays [2:17] How can Grandparents give support [4:05] When your child is hurting. your heart is in a million pieces [4:45] When is it ok to ask questions [5:25] "Can you let me know when...

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Episode 149 | Last of the Year show art Episode 149 | Last of the Year

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On this week's episode, Katie wraps up the year with, Lyndsey  (CLOC admin + podcast editor) sharing about what the common themes across the episodes were in 2022. This year was a memorable one as there were so many parents who so candidly shared their story on the podcast and clinicians who shared their expertise to inspire our listeners. 2022, you were SO good to us! 2023 we look forward to all the amazing stories and insight this next season will bring!  [00:45] Lyndsey Introduces herself [3:34] Listening to stories while in the hospital [4:09] Diversity of topics in 2022 [4:32]...

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Episode 148 | Katy’s Story - A daughter with scars and a story show art Episode 148 | Katy’s Story - A daughter with scars and a story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Katy shares about her daughter Charlotte and how her surgeries that left scars inspired her to write a book about seeing scars in a positive way. Finding out about her daughter's diagnosis at 32 weeks on a Thursday morning and then welcoming Charlotte that Friday evening, talk about a whirlwind!  Katy shares so many truths that will resonate with parents and how Charlotte has changed her life forever. [5:00] Katy introduces herself [6:23] Deciding what to share and not share [8:44] Finding your tribe and shared experiences [10:32] The diagnosis was a complete surprise [11:59]...

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Episode 147 | Expert: Child Life Specialists in Sweden show art Episode 147 | Expert: Child Life Specialists in Sweden

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On today's episode of the podcast we will hear from Kirsten Black, a Certified Child Life Specialist, who had the opportunity to visit children's hospitals in Sweden. Kirsten shares her perspective on the major differences in pediatric healthcare, what she learned along the way and how it has influenced her as a Child Life Specialist. She shares her unconventional yet beautiful journey to the field of Child Life. [4:00] Introducing herself [7:15] Pivoting after the economy crashed [8:30] A seed was planted [10:15] Utilizing her degree in education [12:00] Using a brain map to help a patient...

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Episode 146 | Caryn’s Story - A daughter with ALCAPA Congenital Heart Defect show art Episode 146 | Caryn’s Story - A daughter with ALCAPA Congenital Heart Defect

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Caryn shares about her daughter Elaina developing ALCAPA, a congenital heart defect, and how they found out weeks after an uneventful pregnancy.  Caryn will shed light on how she coped with Elaina's diagnosis and how she strongly advocated for her along the way. You will feel moved by Caryn's fierce love and commitment to her daughter [2:25] Takeaways on numbing cream from Katie [7:22] Caryn introduces her family [10:16]  Experiencing a wide variety of symptoms [12:56] A visit to the emergency room [15:16] Diagnosis of ALCAPA and emergency surgery [18:40] Caryn was not able to go...

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More Episodes

Katie, Certified Child Life Specialist welcomes back Shani (a.k.a. Child Life Mommy) to the podcast. 

Shani is a Certified Child Life Specialist who has a private practice in Northern California  and you can learn more about her community-based program in a previous episode here. 

But, today Shani puts on her “mom hat” and talks about the journey of having a child with learning differences like #anxiety, #adhd, #dyslexia and #dysgraphia.

She describes how:

*She has had to learn to advocate to get her child the appropriate testing and IEP’s

*Community plays an important role of getting the answers and support they need

*The pandemic and virtual learning has been challenging for children with learning differences.

The books Shani recommends are: Overcoming Dyslexia, The Dyslexia Empowerment, 8 Keys to Parenting Children with ADHD, Facebook groups, Understood.org, Barton reading programs, Wrights Law.

You can follow Shani on Instagram, Facebook and Twitter. 

Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges. We are so glad you are here.

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