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Sickle Cell Podcast Series- Racism in Upper Management-What to Do?

Social Entrepreneurship Now Podcast

Release Date: 04/15/2021

Sickle Cell Podcast Series-Lessons Learned, Way Forward show art Sickle Cell Podcast Series-Lessons Learned, Way Forward

Social Entrepreneurship Now Podcast

For all of our listeners who have listened throughout the series you will have learned about perspectives on race, gender, culture bias, pain, transitions and so much more.  In the nooks and crannies of our stories is the heartbeat of change, and that is what you will witness in this season finale.  Our guests speak candidly about how uncomfortable and yet transformative it is to be your true and authentic self as a patient and as a provider.  

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Welcome back to our series on sickle cell disease and relationships between patients and providers.  In this episode a patient and provider discuss the delicate process of making that transition in care from pediatric to adult; the riskiest time healthwise for patients with sickle.  Hear our guests discuss what should patients do if they don't receive effective communication, to how to approach overbearing caregivers, to providers need to do to help their patients transition well.  

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Listen to the show with Laelah Ndofin as she shares her story and journey being a young woman living with sickle cell.  Laelah shared perspective on how she initially saw sickle cell disease as a weakness and how that changed when she realized how strong she was, how much she could endure. 

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Sickle Cell Podcast Series- Racism in Upper Management-What to Do? show art Sickle Cell Podcast Series- Racism in Upper Management-What to Do?

Social Entrepreneurship Now Podcast

In this episode we discussed how racism in upper management is impacting the care of patients who are living with sickle cell.  This podcast was in response to Dr. Danielson resigning in protest from the Odessa Brown clinic.  Listen for all the highlights of the show.

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In this episode, Alix and John continue with our conversation around sickle cell patient care and specifically regarding COVID and vaccination.  Questions asked are: What do folks want to know about COVID?  What is COVID-19? What are the benefits and risks of the vaccine? 

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In this episode, our guests discuss the importance of understanding mindfulness and trauma.  The historical trauma of racism is explored as well as the importance of healing as a community.  Listen to the end to participate in the delicious mindful meditation. 

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Sickle Cell Podcast Series-Tips on Navigating Complex Health Systems show art Sickle Cell Podcast Series-Tips on Navigating Complex Health Systems

Social Entrepreneurship Now Podcast

In this podcast episode we discussed complex health systems and how to identify members of the health care team.  We also discussed how vitally important it is for people with sickle cell disease to have a primary care provider and the reason and why.  We also discussed the importance of the patient and provider developing a care plan. Finally, we also discussed clinical navigators role in assisting with care coordination. 

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Sickle Cell Podcast Series- Talking About Pain Management show art Sickle Cell Podcast Series- Talking About Pain Management

Social Entrepreneurship Now Podcast

In this episode Alix Dassler and John Masembe discuss race and pain management as it relates to sickle cell disease.  Discussion centered on the lack of training for providers around pain management juxtaposed against the opioid epidemic.  Implicit bias was also touched on as it relates to race and pain management with themes of white providers believing black people have thicker skin and fewer pain receptors.  Stress as a trigger for pain was also discussed and how it can contribute to pain. 

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Sickle Cell Podcast Series-Intersection of Race & Health show art Sickle Cell Podcast Series-Intersection of Race & Health

Social Entrepreneurship Now Podcast

Thanks for listening in to the Social Entrepreneurship Now podcast where our guests speak up and out about creating equity, diversity and inclusion in the systems they are in.  This is a special series with the Metropolitan Seattle Sickle Cell Task Force and our sponsors the Rotary Clubs of Ballard, Magnolia Mercer Island and Seattle. 

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Dr. Nilesh Kalyanaraman is the new Health Officer of Anne Arundel County and he joined me on this podcast to discuss how everyday health care professionals can get involved in the civic space.  

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In this episode we discussed how racism in upper management is impacting the care of patients who are living with sickle cell.  This podcast was in response to Dr. Danielson resigning in protest from the Odessa Brown clinic.  

Key points for this podcast where:

  • The level of security being called for people of color is 1.5x more likely to have security called on you
  • The Odessa Brown clinic was at the bottom of the priority list for funding
  • Reaching the executives who control the money to ensure a more diverse representation at the executive level
  • Acting on the data that exposes racist behaviors

For more information about sickle cell and to connect with our show guests, please go to the Metropolitan Sickle Cell Task Force @  www.mssctf.org 

For more information about Nikki, please email: [email protected]