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Episode 70 | Sara's Story - Telling Your Child You Have Cancer

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Release Date: 06/02/2021

221:Collaborative care between a Child Life Specialist and Social Worker with Annie Gunning and Haley Thomas at Hope for HIE show art 221:Collaborative care between a Child Life Specialist and Social Worker with Annie Gunning and Haley Thomas at Hope for HIE

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

On today’s episode, Katie had the privilege of speaking with , a Certified Child Life Specialist and Grief Counselor, and , a Licensed Master Social Worker, on their collaborative efforts to support families at . Annie and Haley tailor their support to each family's unique needs, dedicating time to assess and implement the most effective strategies. Annie and Haley are setting new standards in providing exceptional support to the families they serve.    Key Takeaways   It’s important to meet families where they are.    Finding ways to help prepare children...

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220: Know EXACTLY When Rounds is Happening with Q-Rounds with Dr. Michael Pitt show art 220: Know EXACTLY When Rounds is Happening with Q-Rounds with Dr. Michael Pitt

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Episode Description: Join Katie Taylor, CCLS in this episode as she talks with the founder of and a compassionate pediatrician (and magician!) dedicated to enhancing doctor-patient communication.  As a child life specialist, Katie understands how crucial it is for families to not only be present during rounds but also to feel empowered and actively engaged in discussing the care plan with their team. When she learned about Q-Rounds, she knew she had to share this innovative approach with her parent and child life community. shares his insights on how healthcare professionals can better...

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219: 60 Years Later: Reflecting on a Daughter with Ichthyosis show art 219: 60 Years Later: Reflecting on a Daughter with Ichthyosis

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

“We, we weren't letting those people push us around because, believe it or not, living with us 24 hours a day, we knew more than some of the doctors.” - Skip Vilas In this heartfelt episode of the Child Life On Call podcast, host and CCLS Katie Taylor interviews Deb Vilas, an expert child life specialist, alongside her parents, Skip and Joyce Vilas. They share their story spanning over 60 years, recounting the challenges and triumphs of raising Deb, who was born with ichthyosis, a rare skin condition. The episode dives deep into the emotional and medical journey of Deb's early years, the...

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218: How NOT to Give Families Medical Information - A son with CHARGE syndrome, Taylor's Story show art 218: How NOT to Give Families Medical Information - A son with CHARGE syndrome, Taylor's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Today's guest is Taylor Happley, a mom of a child with CHARGE syndrome.  "We need to figure out why and how to help these kids get the medical attention that they need." In today's episode, Katie Taylor had an important conversation with Taylor Happley, whose son has CHARGE syndrome. Taylor’s prenatal journey was filled with miscommunication and emotional challenges. Taylor's story of learning about her son's diagnosis of CHARGE Syndrome in less-than-ideal circumstances underscores the need for healthcare professionals to provide information in ways that are both sensitive and...

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217: Navigating IEPs, Infantile Spasms, NICU & STXBP1 - Erin's Story show art 217: Navigating IEPs, Infantile Spasms, NICU & STXBP1 - Erin's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Today’s guest is Erin Prosser, an IEP expert consultant and a mom of a daughter diagnosed with STXBP1. "You don't see it coming. Being a rare disease parent hits you like a ton of bricks."  In today's episode Katie Taylor had the chance to speak with Erin Prosser, an IEP expert consultant and a mom navigating the complex world of pediatric healthcare due to her daughter Lucy's rare neurodevelopmental disorder. Erin shares her profound journey from a second-time, confident mom to a whole new role as a crucial advocate for her daughter's specialized needs.  The challenges and...

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216: How to talk with Kids about Child Abuse - Jane's Story [Repost] show art 216: How to talk with Kids about Child Abuse - Jane's Story [Repost]

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

April is Child Abuse Prevention Awareness Month. We have reposted this episode to bring awareness and give you tangible tools to speak with your kids about child abuse. Today’s guest expert is Jane Donovan, who is a child abuse prevention advocate.  "And like we say in child life, you have to prepare. So you know what to expect and you know how to cope with what's going to happen next." - Katie Taylor, CLOC In this crucial episode, Katie Taylor is joined by a child abuse prevention advocate, Jane Donovan, to delve into the sensitive and vital topic of child protection within the...

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215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & Struggles to Discharge - Aspen's Story show art 215: Ruptured Appendix: Emergent Surgery, 6 Days in the Hospital & Struggles to Discharge - Aspen's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

"I've learned so much in this whole process. It's like you have a depth inside of you that resurrects as an advocate and high alert, and it lives inside of you when you need it."   -Aspen, Willa's Mom In this episode of Child Life On Call, host Katie Taylor and guest Aspen share an intense and educational journey through pediatric appendicitis. Aspen recounts her daughter Willa's sudden illness, misdiagnosis, and the emotional rollercoaster of a ruptured appendix leading to urgent surgery. This story not only highlights the challenges and nuances of navigating pediatric healthcare,...

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214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story show art 214: Sacrifice, Advocacy, Joy: Raising a Son with End Stage Kidney Disease - The Ransome Family's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

"Sometimes it's really therapeutic though to remember all that you have gone through because I feel like there are times when we look at each other and I'm like how did we get here?" -Tayler Ransome We're grateful for our sponsor for this episode, Nestle Health Science, and are thrilled to share their incredible website, your go-to online resource for valuable information and support. In this episode, Katie Taylor welcomes the Ransome family, known to many as the , where they share their daily life and the challenges of managing their son Sully's end-stage kidney disease. From their initial...

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213: Parents, CCLS, Students: Show Up Exactly As You Are show art 213: Parents, CCLS, Students: Show Up Exactly As You Are

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

In This Episode: Katie Taylor goes off the beaten path in this special episode to share a profound moment of inspiration that struck her. This episode is a heartfelt message to child life specialists, students, and parents, emphasizing the importance of showing up as you are, without the burden of imposter syndrome. Key Highlights: A Different Kind of Episode: Katie shares her spontaneous thoughts that came from a moment of inspiration, promising that the usual stories from the field and parental perspectives will return in future episodes. Message of Empowerment: The core message is about...

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212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story show art 212: CCLS Story: 18 Years of Supporting Kidney Families -Julie's Story

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

"As a child life specialist, watching my tiniest patients grow and accomplish so many things is my favorite part of the job." - Julie, Certified Child Life Specialist Episode Summary: In this heartfelt episode of Child Life On Call, we celebrate Child Life Month by diving deep into the dedicated world of child life specialists and the resilient families they support. Host Katie Taylor talks to Julie, a remarkable child life specialist with 18 years of experience in the renal service at Texas Children's Hospital in Houston, Texas. Julie shares her profound journey of supporting children with...

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More Episodes
Katie, Certified Child Life Specialist talks with Sara Olsher, mom, cancer survivor, and owner of Mighty and Bright.

Not only does Sara talk with us about getting diagnosed with breast cancer at the age of 34, but she also talks about how she went through it as a single mother navigating life with a six-year-old.

We talk about

+How she advocated for herself and encourages parents to ask the same things for themselves that they do for their children

+How asking for help was non-negotiable and she had to learn to get comfortable with it

+How she told her six-year-old that she had cancer and her daughter’s emotional response to having a mother go through chemotherapy and painful surgeries.

Learn more about Sara’s calendar and book resources for families going through difficult experiences through Mighty and Bright.