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045 Rethinking Your Approach to Care

The Parkinson's Experience podcast

Release Date: 11/09/2021

104 Brain on Art show art 104 Brain on Art

The Parkinson's Experience podcast

After the series on Art Therapy, I was reflecting on all the great stories of how each guest truly benefited from their experiences with their mode of creative expression. It isn’t just people with Parkinson’s benefiting. Everyone can benefit from attempting a new art activity or going back to what you used to enjoy. Then I started thinking what happens in our brains and body? How do these activities provide such joy and symptom relief? I spoke with the Chair of the Department of Neurosurgery at University of Arizona about the effects of the arts on the brain. Listen on to listen to our...

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103 Art Therapy Part 4 The Joy and Benefits of Music show art 103 Art Therapy Part 4 The Joy and Benefits of Music

The Parkinson's Experience podcast

I’ve had a wonderful time this summer speaking with people with Parkinson’s who have found joy, meaning and symptom relief using one or more forms of artistic expression - let’s call it art therapy.   If you haven’t listened to the first three, please do. I found inspiration and information in each one. I hope you will as well. This is the fourth episode in our art series and the topic is music. Just like the others we have discussed; music therapy involves no pills and side effects. There are ongoing research on music’s effect on the brain. We will have to stay up on the...

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102 Art Therapy Part 3 Writing Keeps Your Brain Active and Learning show art 102 Art Therapy Part 3 Writing Keeps Your Brain Active and Learning

The Parkinson's Experience podcast

Welcome to Part 3 of our series on the influence the Arts have on people with Parkinson’s and frankly most other conditions. It’s amazing what scientists are discovering about how much music, dance, painting, etc can be beneficial for brain health. I’ve been humbled by our guests. The more I listen to these amazing, brave people, the more I’m impressed by their skills, reliance and courage. It takes guts and dedication to start something new or continue to hone your craft while managing a progressive neurodegenerative disease. In this episode, we are really lucky to speak with a NY...

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101 Art Therapy Part 2 - Dancing the Symptoms Away show art 101 Art Therapy Part 2 - Dancing the Symptoms Away

The Parkinson's Experience podcast

Welcome to part two of our four-part series on the arts and Parkinson’s disease. If you haven’t listened to part one, you can definitely listen to this one but I encourage you to listen to part 1 on photography and hearing from our guest, Torrance York, who spoke passionately about photography and how it helps her gain perspective on her journey with Parkinson’s. In this episode, I am thrilled to have Pat Beilman as my guest to discuss dancing and it’s benefits for PwP and others. Dancing can help with your coordination, balance, core strength and posture. It also provides a way to...

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100 Reverse Mic in Recognition of 100 Episodes show art 100 Reverse Mic in Recognition of 100 Episodes

The Parkinson's Experience podcast

So, I hope you enjoyed the first episode in our four-part series on the Arts and their potential for a better quality of life for people with Parkinson’s. We are going to take a quick brake in the series since this is the 100th episode of the Parkinson’s Experience. To celebrate and acknowledge he 100th episode, the interviewer became the interviewee. One of my fellow support group attendees and an upcoming guest on the podcast , asks if she could interview me for the 100th episode. So, we are reversing the mic. Let's learn more about the podcast and host, me, Sheryl Lowenhar. But, before...

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099 Art Therapy Part 1 - Photography show art 099 Art Therapy Part 1 - Photography

The Parkinson's Experience podcast

This episode kicks off our 4-part series featuring people with Parkinson’s who found one form of the arts to be helpful with managing symptoms and gaining perspective. We will explore four different art disciplines – photography, dance, writing and music. We wanted to hear directly from the person with Parkinson’s rather than an expert on the research on why the arts can be an important part of your Parkinson’s therapy. So, each episode will be a personal story about that person’s challenges and struggles with their PD journey and how each used a different art to find understanding,...

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098 Parkinson's Together Student Power show art 098 Parkinson's Together Student Power

The Parkinson's Experience podcast

Last episode we spoke with a MDS and Assistant Professor at Vanderbilt University about integrative medicine. This episode is a great follow up to the previous one.  This time it is student at the University of Cincinnati leading the charge to bring an integrated approach to Parkinson’s care. She formed a not-for profit organization called Parkinson’s Together. It brings students from multiple disciplines to help with patient care.  That may include law students, engineers, finance but mainly students interested in the medical field and with interest in helping others. I had a...

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097 Benefits of Integrative Medicine show art 097 Benefits of Integrative Medicine

The Parkinson's Experience podcast

What is integrative medicine and how is it different than what we are used to which is mostly silos of care and mostly Western medicine? My guest today will offer an alternative to this, a better way to treat a patient with a condition or disease. Dr. Britt Stone, an Assistant Clinical Professor at Vanderbilt Medical Center, spent her pandemic time pursuing a fellowship in Integrative Medicine at University of Arizona. She will describe how clinicians can work together with the families of people with Parkinson’s to make for a better experience and a healthier outcome. She believes treatment...

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096 Living with PD and Finding Love show art 096 Living with PD and Finding Love

The Parkinson's Experience podcast

In April 2010, Allison (Allie) Toepperwein experienced a tremor in her left hand while living in Austin, Texas after giving birth to her daughter. Around eight months later, in December 2010, Steven Eury noticed a tremor in his right hand while filming the birth of his son 1100 miles away in North Carolina. The following year, Steven received a diagnosis of Young Onset Parkinson's Disease (YOPD). It took another 4 1/2 years, and 2 1/2 months after Allison's divorce before she, too, was diagnosed with YOPD New Year's Eve of 2014. Allison went on to make history by becoming the first person...

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095 Parkinson's Stages Explained show art 095 Parkinson's Stages Explained

The Parkinson's Experience podcast

What stage are you in? Do people ask you that question? If so, do you tell them? Do you even know? What are the stages and what do they mean? Frankly, I have never asked my movement disorder specialist neurologist what stage I am in. I don’t know why. We have never discussed it. However, learning and knowing more about how your doctor is tracking the progression of the disease is, I think, important. So, today we are going to speak with a movement disorder specialist. He will explain the stages of Parkinson’s disease.  What they are and what that means to individuals and their...

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More Episodes

This episode introduces us to Palliative Care and is one of the most important topics we have covered on the Parkinson’s Experience podcast. Don’t be deterred by the subject. I guarantee you will learn a lot from our guest, and it will make you rethink how you manage your health and pick your care team. This is not about hospice care. Palliative care is defined as an approach to care that addresses the person as a whole, not just their disease. The goal is to prevent or treat, as early as possible, the symptoms and side effects of the disease and its treatment, in addition to any related psychological, social, and spiritual problems. As you’ll hear in this episode, perhaps a better, more acceptable term would be supportive care.