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Episode 443 - Peter Leary, MD

I'm Aware That I'm Rare: the phaware® podcast

Release Date: 11/20/2023

Sophia Esteves - phaware® interview 548 show art Sophia Esteves - phaware® interview 548

I'm Aware That I'm Rare: the phaware® podcast

Scars and Survival: Rebuilding Life After a Devastating Diagnosis After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn’t just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit. My name is Sophia Esteves. I am living in San Antonio where I grew up. My connection to pulmonary arterial hypertension in the community is I'm a support group leader and I'm also a patient...

info_outline Episode 548 - Sophia Esteves show art Episode 548 - Sophia Esteves

I'm Aware That I'm Rare: the phaware® podcast

Scars and Survival: Rebuilding Life After a Devastating Diagnosis After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live—and it wasn’t just for herself. This episode dives into her spiritual and emotional transformation from patient to powerhouse advocate, and how she now helps others reclaim hope through honesty and grit. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story:  

info_outline Richard Channick, MD - phaware® interview 547 show art Richard Channick, MD - phaware® interview 547

I'm Aware That I'm Rare: the phaware® podcast

The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think. Hello, I'm Rich Channick. I'm Professor of Medicine at UCLA Medical Center and Co-Director of the Pulmonary Vascular Disease Program at UCLA. I've been there for the last six and a...

info_outline Episode 547 - Richard Channick, MD show art Episode 547 - Richard Channick, MD

I'm Aware That I'm Rare: the phaware® podcast

The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything From portable ECMO to catheter breakthroughs, the treatment of pulmonary embolism has come a long way. Dr. Richard Channick takes us behind the scenes of cutting-edge interventions and shares the empowering truth: even community hospitals now have lifelines to expert centers. The care you need might be closer than you think. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story:  #phawareMD #CTEPH ...

info_outline Jenny Yang, MD - phaware® interview 546 show art Jenny Yang, MD - phaware® interview 546

I'm Aware That I'm Rare: the phaware® podcast

The One Type of PH You Can Actually Cure Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis. My name is Jenny Yang. I am currently at UC San Diego. My background is in pulmonary and critical care. I did all of my training at UC San Diego and was exposed to pulmonary hypertension there throughout my training and really fell in love with the disease process of PAH and CTEPH. So, when I...

info_outline Episode 546 - Jenny Yang, MD show art Episode 546 - Jenny Yang, MD

I'm Aware That I'm Rare: the phaware® podcast

The One Type of PH You Can Actually Cure Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. From early warning signs to surgical options, this episode explains why ruling out CTEPH should be step one for any PH diagnosis. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story:  #phawareMD #CTEPH

info_outline Victor Test, MD - phaware® interview 545 show art Victor Test, MD - phaware® interview 545

I'm Aware That I'm Rare: the phaware® podcast

The Diagnosis Delay That’s Still Hurting Patients Despite better tools and more awareness, people with PH are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today: getting diagnosed on time. Learn why shortness of breath is often dismissed and how both patients and doctors can work together to catch pulmonary hypertension earlier. I'm Dr. Victor Test, the Chief of Pulmonary Medicine and Critical Care at Texas Tech University in Lubbock, Texas, and Director of the Pulmonary Vascular Program. I've been a pulmonary hypertension doctor since the year...

info_outline Episode 545 - Victor Test, MD show art Episode 545 - Victor Test, MD

I'm Aware That I'm Rare: the phaware® podcast

The Diagnosis Delay That’s Still Hurting Patients Despite better tools and more awareness, people with PH are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today: getting diagnosed on time. Learn why shortness of breath is often dismissed—and how both patients and doctors can work together to catch pulmonary hypertension earlier. Learn more about pulmonary hypertension trials at . Engage for a cure:  #phaware Share your story:  Like, Subscribe and Follow us: . #phawareMD    

info_outline LaRae Hacker - phaware® interview 544 show art LaRae Hacker - phaware® interview 544

I'm Aware That I'm Rare: the phaware® podcast

How TBX4Life Is Fueling a Global Collaboration LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research. My name is LaRae Hacker. I am a mother of a four-year-old little girl who has pulmonary hypertension as the result of a genetic mutation in the TBX4 gene. We live in Sacramento, California, and I'm here to share a little bit about our story. Kate was...

info_outline Episode 544 - LaRae Hacker show art Episode 544 - LaRae Hacker

I'm Aware That I'm Rare: the phaware® podcast

How TBX4Life Is Fueling a Global Collaboration LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. Discover how became her anchor in uncertainty and why she believes parent-led advocacy is the key to progress in rare disease research. Learn more about pulmonary hypertension trials at . Follow us on social @phaware Engage for a cure:  #phaware Share your story: 

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In this episode, Peter Leary, MD talks about factors that might lead to over-treatment, under-treatment, or "just-right" treatment and emphasizes that guidelines are important but there is no "one-size fits all" approach to treatment of pulmonary hypertension. 

Peter Leary is the director of the pulmonary vascular disease program at the University of Washington. He also has a PhD in epidemiology and is very interested in clinical and translational research for patients with pulmonary hypertension locally, nationally, and internationally. 

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware
Share your story: info@phaware.com #phawareMD @uwepidemiology