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Autism & Grief

Grief Out Loud

Release Date: 05/31/2024

108 Ways To Survive Grief - Sweta Vikram show art 108 Ways To Survive Grief - Sweta Vikram

Grief Out Loud

In May of 2023, was overwhelmed with grief. In the span of three days, her father died, her father-in-law died, and it was the  9-year anniversary of her mother’s death. When she looked for information on how to survive the maelstrom of emotions, she found reassurances that she would eventually get to the other side, but nothing that showed her how to do that. So, Sweta set out to create the resource she was looking for and recently published, , a manual with 108 practical tips to survive and navigate grief.   We discuss: The overwhelm of multiple losses ...

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Embodied Practices For Tending Grief - Camille Sapara Barton show art Embodied Practices For Tending Grief - Camille Sapara Barton

Grief Out Loud

is a social imagineer who is reimagining how we define and relate to grief. As a writer, artist, and somatic practitioner, Camille is looking to create a new grief narrative expansive enough to include multiple forms of individual and collective grief, especially for queer, trans, and BIPOC communities. In Camille's book, , they offer rituals and embodied practices for feeling into and metabolizing grief.  Camille's lived experience with grieving death & non-death losses Support for grief that falls outside the traditional box Grief as a generative process Camille's learning from...

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Is There A Cure For Grief? - Cody Delistraty show art Is There A Cure For Grief? - Cody Delistraty

Grief Out Loud

is a journalist and he's also a son whose mother died of cancer. These two identities intersect in his new book, , which chronicles his quest to find a way to eliminate the pain of grief. After exploring Laughter Therapy, silent meditation, Breakup Bootcamp, and others avenues for grief expression, Cody landed where so many others do: realizing the "cure" for grief is allowing it to exist, while still engaging with life.  We discuss:  Who Cody was when his mom died How he used to define "successful" grief The secondary losses connected to his mother's death How his relationship to...

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The Ripple Effect Of Loss In Portland's Black Community - Sharice Burnett, LCSW show art The Ripple Effect Of Loss In Portland's Black Community - Sharice Burnett, LCSW

Grief Out Loud

It's impossible to speak for an entire community, especially when it comes to grief, but , knows a lot about the ripple effect of loss in the Black and African American community in Portland, OR. Born and raised in the community, Sharice is a clinical mental health therapist and consultant dedicated to naming and dismantling the larger systemic barriers that stand in the way of Black children and families having access to culturally relevant support, particularly mental health and grief support.  We discuss: Grieving the loss of an entire generation of elders...

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How To Stop Shoulding Yourself - Lisa Keefauver & Grief Is A Sneaky Bitch show art How To Stop Shoulding Yourself - Lisa Keefauver & Grief Is A Sneaky Bitch

Grief Out Loud

is a lot of things - she's a writer, speaker, educator, social worker, podcast host, mother, widow, and grief activist. She came to the last two titles when her personal experience of grieving for her husband Eric, who died of a brain tumor in 2011, intersected with her professional life as a clinician. At this intersection, Lisa realized just how grief illiterate the world is and how that illiteracy creates unnecessary suffering for those who are grieving. Lisa hosts the acclaimed podcast,  and recently published her book, .    We discuss: The gift of love from her...

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Autism & Grief show art Autism & Grief

Grief Out Loud

The is a new online platform designed to help adults with autism navigate and cope with the complexities of grief arising from both death and non-death losses. Alex LaMorie, A.A.S is a member of the project's Advisory Board and brings his lived experience with both autism and grief to this work. , brings years of both professional and personal grief knowledge to his role on the project's Development Team. The Autism & Grief Project is unique - just as grief and autism are unique - and the site provides information not only for adults with autism who are grieving, but also the people who...

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The Intimacy Of Friendship - Lissa Soep & Other People's Words show art The Intimacy Of Friendship - Lissa Soep & Other People's Words

Grief Out Loud

Have you ever heard someone’s voice in your head and suddenly you're transported to a time and place when you were with them? This phenomenon is what explores in , her book about the intimacy of friendship and how words and language keep people with us, even after they die. After the deaths of her friends, Jonnie and Christine, Lissa found comfort in this idea of them living on through their words.  We discuss: Lissa's friendships with Jonnie & Christine Grieving a sudden death vs one from a long-term illness The unique nature of friendships formed in our 20's How Jonnie &...

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Changing The Landscape Of Grief Support For Latino Families show art Changing The Landscape Of Grief Support For Latino Families

Grief Out Loud

, LCSW, Dougy Center's Director of Equity & Community Outreach and MSW, CEO of  , are committed to changing the landscape of grief support for Latino families. They bring personal and professional grief experiences to the work of ensuring that every Latino family has access to dual language grief support that honors their cultural values.   We discuss: Cristina & Melinda's personal connection to this work Why it's important now, in 2024, to have this conversation What is unique about grief & grief support in the Latino community The concept of family in the Latino...

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A Living Remedy - Nicole Chung show art A Living Remedy - Nicole Chung

Grief Out Loud

We cannot separate grief from the context in which it occurs. This is true for whose adopted parents died just two years apart in 2018 and 2020. The world of 2018 was very different than that of 2020. In 2018, Nicole and her mother could grieve for her father, together and in person. In 2020, Nicole was on the other side of the country, grieving for her mother in isolation during the early days of the pandemic. The other context that played a role in her parents' lives and their deaths is the structural inequality that exists in the U.S. economy and end of life care. Nicole chronicles all of...

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Conscious Grieving - Claire Bidwell Smith, LCPC show art Conscious Grieving - Claire Bidwell Smith, LCPC

Grief Out Loud

Maybe you're familiar with the phrase, "You can't go around grief, you have to go through it." Or, "You have to feel your feelings." If you're like a lot of people, you might cringe and also wonder, "What does that actually mean?" Grief isn't linear, and it's not something to get through - and yet, a lot of people appreciate having some sense of what to expect and what to do with it all. That's where  new book, Conscious Grieving, comes in. Offered as a framework, not a formula, Claire suggests four ways to orient towards grief: entering, engaging, surrendering, and transforming. Claire...

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The Autism & Grief Project is a new online platform designed to help adults with autism navigate and cope with the complexities of grief arising from both death and non-death losses. Alex LaMorie, A.A.S is a member of the project's Advisory Board and brings his lived experience with both autism and grief to this work. Dr. Kenneth J. Doka, PhD, MDiv, brings years of both professional and personal grief knowledge to his role on the project's Development Team. The Autism & Grief Project is unique - just as grief and autism are unique - and the site provides information not only for adults with autism who are grieving, but also the people who are supporting them. 

We discuss:

  • Parallels between the uniqueness of grief and the individual experience of autism
  • What Alex found to be helpul and unhelpful in his grief
  • Being open to different forms of communication and emotional expression
  • Learning to ask for help
  • The goals for the Autism & Grief Project
  • What Alex and Dr. Doka learned from being part of the project

Alex D. LaMorie, A.A.S is an undergraduate student at the University of Maryland Global Campus and autism advocate. Alex's expressive grief artwork was recently featured in the textbook Superhero Grief: The Transformative Power of Loss (2021, Routledge). He serves as an advisor on the Hospice Foundation of America's Autism & Grief Project. In his spare time, he loves movies and TV shows as well as traveling to Comic Con and Anime conventions with his older sister. Alex also loves creative writing and spending time with his New York family so he can eat the world's best pizza and bagels!

Kenneth J. Doka, PhD, MDiv, is Senior Vice President of Grief Programs at Hospice Foundation of America (HFA) and recipient of the 2019 Lifetime Achievement Award from the Association for Death Education and Counseling. He serves as editor of HFA’s Living with Grief® book series and its Journeys bereavement newsletter. He is a prolific author, editor, and lecturer; past president of the Association for Death Education and Counseling (ADEC); and a member and past chair of the International Work Group on Death, Dying, and Bereavement (IWG). In 2018, the IWG presented Doka with the Herman Feifel Award for outstanding achievement in thanatology. He received an award for Outstanding Contributions in the Field of Death Education from ADEC in 1998. Doka is an ordained Lutheran minister and a licensed mental health counselor in the state of New York.

This episode is the second in our 2024 three-part series highlighting the voices of communities who have historically been underrepresented in the grief world. The series is part of an ongoing collaboration between Dougy Center and The New York Life Foundation. We are deeply grateful for New York Life Foundation's tireless support and advocacy for children and teens who are grieving.