Iconically Ill
We talk Stevens-Johnson Syndrome with Shaz. Shaz is a Steven Johnson’s survivor. She is 32 from South Africa born and raised. Shaz is a beauty teacher and wellness coach as she can no longer work as a beautician after having blurred vision from SJS . Follow Shaz at @Shaz_the_beautician on Tiktok, Instagram, and Youtube Show transcript
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We talk right arm upper amputee with Melanie Waldman. As an advocate for disability rights and overall inclusion, Melanie's history & career include presenting her connection(s)—as a woman with both physical and non-apparent disabilities—to a wide range of audiences. She's a 3-time Easterseals Disability Film Challenge Winner, an adaptive yoga teacher, professional speaker, and works as on-air talent in adaptive fashion at QVC. In 2025, she launched her podcast platform "Disability Reality Media", which she’s taken to Sundance, Tribeca, and Reelabilities. Artists she's...
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We talk rare undiagnosed muscle disease with Danielle Connolly. Danielle Connolly is a disability advocate, content creator, speaker, and business and marketing professional. Born with a rare, still-undiagnosed muscle disease, Danielle has navigated unique life experiences that have shaped her passions and purpose. She shares her perspective through “Daniellevates,” a platform dedicated to elevating conversations about disability, rare disease, and chronic illness with a mix of humor, storytelling, education, and real-life adventures featuring accessibility reviews. Follow Danielle...
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We talk Covid and Ventilators with Ashley Estes. Ashley Estes is a COVID-19 survivor who was hospitalized early in the pandemic, an experience that permanently reshaped her understanding of fear, recovery, and resilience. During her illness and the long recovery that followed, she also experienced domestic violence, a reality that compounded the physical and emotional toll of being sick and isolated. Ashley speaks openly about her story to highlight the overlapping vulnerabilities that crises can expose and the strength it takes to survive them. Her journey reflects both the visible and...
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We Talk Cerebral Palsy and Drag Queens with Ron Hill. Ron is an editor/producer based in Los Angeles. Born with Cerebral Palsy and raised in a small New Hampshire town, his path to working with drag queens on the West Coast has been an unexpected but appreciated experience. Due to the fact that his disability goes largely unnoticed by his peers, he has only recently become comfortable identifying as disabled and raising awareness for his condition. Follow Ron at @artofwot on Instagram Show transcript
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We're back January 6, 2026! See you there.
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We talk LGMD 2i and podcasting with Cerys Davage. Cerys is a 24 year old podcaster and content creator from Cardiff, Wales. Through her podcast, ‘Unbalanced’, she has created a community of young disabled adults, showing them that they’re not alone and that life can still be great regardless of any life barriers. She has Limb Girdle Muscular Dystrophy 2i, and discusses the reality of life with this condition whilst also raising awareness of other conditions through a range of interviews. Follow Cerys at @cerysdavage and @unbalancedpodcast on instagram Show transcript
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We talk Lyme Disease with Ilana. Ilana has been healing from Lyme Disease and its co-infections since 2016. Undiagnosed for nearly two years after the onset of symptoms, she explored nearly every medical, psychiatric, holistic, and even spiritual intervention available. Along the way, she became deeply engaged in the Lyme patient and provider community, founding a Facebook support group in 2022 that has since grown to nearly 1,600 members worldwide. A professor, writer, and business owner, she is slowly reclaiming a full and meaningful life. Deeply humbled by the experience of chronic illness,...
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Keisha is the Founder & CEO of Girls Chronically Rock, which is adaptive and non-adaptive clothing options with inspiring phrases on them. She is a Board Member at Disability Law Center and Chairperson of Cambridge Comission for Persons with Disabilities. She's also a public speaker and disability advocate. Follow Keisha at on Instagram. Show transcript:
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We talk ME/CFS with Dani Hanks. Dani is a disabled writer/director based in New York City. As a kid, Dani grew up elbow-deep in human organs at their mom’s pathology lab in Porterville, California. A direct result of inhaling too much formaldehyde in their formative years, they dove headfirst into the entertainment industry. After receiving their BFA in Drama at NYU Tisch, they directed the Banff-nominated comedy web series “Fake News Writer,” which was optioned after winning the Webby Award for Video Entertainment in 2019. Most recently, Dani was named one of I.S.A.’s Top 25...
info_outlineWe talk CIPD with Anna DiBlosi
At 26, Anna DiBlosi experienced the sudden onset of an undiagnosed autoimmune disorder that completely turned her life upside down. She went from working full-time, having a social life and living her dream in Los Angeles, CA to being fully bed-bound and reliant on her family for care. For years, she was a "medical mystery," struggling to be heard by medical professionals and fighting for answers.
She was eventually diagnosed with CIDP, a rare autoimmune disorder that targets the nerves. Her diagnosis allowed her to access the right medical treatment, but her life is still far from what it once was. She now spends her time focused on advocacy and community building. Through her social media channels, Anna raises awareness for invisible illnesses and shares her experience living with CIDP. She also hosts a monthly support group in Los Angeles called the Chronic Illness Support Club, offering a space for others navigating similar challenges to connect and find support.
Follow Anna at @Anna_DiBlosi on Instagram
Show transcript bit.ly/3UKUymI