We Talk Stevens-Johnson Syndrome
Iconically Ill
We talk Stevens-Johnson Syndrome with Shaz. Shaz is a Steven Johnson’s survivor. She is 32 from South Africa born and raised. Shaz is a beauty teacher and wellness coach as she can no longer work as a beautician after having blurred vision from SJS . Follow Shaz at @Shaz_the_beautician on Tiktok, Instagram, and Youtube Show transcript
info_outline
We Talk Right Arm Upper Amputee
Iconically Ill
We talk right arm upper amputee with Melanie Waldman. As an advocate for disability rights and overall inclusion, Melanie's history & career include presenting her connection(s)—as a woman with both physical and non-apparent disabilities—to a wide range of audiences. She's a 3-time Easterseals Disability Film Challenge Winner, an adaptive yoga teacher, professional speaker, and works as on-air talent in adaptive fashion at QVC. In 2025, she launched her podcast platform "Disability Reality Media", which she’s taken to Sundance, Tribeca, and Reelabilities. Artists she's...
info_outline
We Talk Rare Undiagnosed Muscle Disease
Iconically Ill
We talk rare undiagnosed muscle disease with Danielle Connolly. Danielle Connolly is a disability advocate, content creator, speaker, and business and marketing professional. Born with a rare, still-undiagnosed muscle disease, Danielle has navigated unique life experiences that have shaped her passions and purpose. She shares her perspective through “Daniellevates,” a platform dedicated to elevating conversations about disability, rare disease, and chronic illness with a mix of humor, storytelling, education, and real-life adventures featuring accessibility reviews. Follow Danielle...
info_outline
We Talk Covid and Ventilators
Iconically Ill
We talk Covid and Ventilators with Ashley Estes. Ashley Estes is a COVID-19 survivor who was hospitalized early in the pandemic, an experience that permanently reshaped her understanding of fear, recovery, and resilience. During her illness and the long recovery that followed, she also experienced domestic violence, a reality that compounded the physical and emotional toll of being sick and isolated. Ashley speaks openly about her story to highlight the overlapping vulnerabilities that crises can expose and the strength it takes to survive them. Her journey reflects both the visible and...
info_outline
We Talk Cerebral Palsy and Drag Queens
Iconically Ill
We Talk Cerebral Palsy and Drag Queens with Ron Hill. Ron is an editor/producer based in Los Angeles. Born with Cerebral Palsy and raised in a small New Hampshire town, his path to working with drag queens on the West Coast has been an unexpected but appreciated experience. Due to the fact that his disability goes largely unnoticed by his peers, he has only recently become comfortable identifying as disabled and raising awareness for his condition. Follow Ron at @artofwot on Instagram Show transcript
info_outline
Season 5 Annoucement
Iconically Ill
We're back January 6, 2026! See you there.
info_outline
We Talk LGMD 2i and Podcasting
Iconically Ill
We talk LGMD 2i and podcasting with Cerys Davage. Cerys is a 24 year old podcaster and content creator from Cardiff, Wales. Through her podcast, ‘Unbalanced’, she has created a community of young disabled adults, showing them that they’re not alone and that life can still be great regardless of any life barriers. She has Limb Girdle Muscular Dystrophy 2i, and discusses the reality of life with this condition whilst also raising awareness of other conditions through a range of interviews. Follow Cerys at @cerysdavage and @unbalancedpodcast on instagram Show transcript
info_outline
We Talk Lyme Disease
Iconically Ill
We talk Lyme Disease with Ilana. Ilana has been healing from Lyme Disease and its co-infections since 2016. Undiagnosed for nearly two years after the onset of symptoms, she explored nearly every medical, psychiatric, holistic, and even spiritual intervention available. Along the way, she became deeply engaged in the Lyme patient and provider community, founding a Facebook support group in 2022 that has since grown to nearly 1,600 members worldwide. A professor, writer, and business owner, she is slowly reclaiming a full and meaningful life. Deeply humbled by the experience of chronic illness,...
info_outline
We Talk Limb-Girdle Muscular Dystrophy with Keisha Greaves
Iconically Ill
Keisha is the Founder & CEO of Girls Chronically Rock, which is adaptive and non-adaptive clothing options with inspiring phrases on them. She is a Board Member at Disability Law Center and Chairperson of Cambridge Comission for Persons with Disabilities. She's also a public speaker and disability advocate. Follow Keisha at on Instagram. Show transcript:
info_outline
We Talk ME/CFS
Iconically Ill
We talk ME/CFS with Dani Hanks. Dani is a disabled writer/director based in New York City. As a kid, Dani grew up elbow-deep in human organs at their mom’s pathology lab in Porterville, California. A direct result of inhaling too much formaldehyde in their formative years, they dove headfirst into the entertainment industry. After receiving their BFA in Drama at NYU Tisch, they directed the Banff-nominated comedy web series “Fake News Writer,” which was optioned after winning the Webby Award for Video Entertainment in 2019. Most recently, Dani was named one of I.S.A.’s Top 25...
info_outlineWe talk right arm upper amputee with Melanie Waldman.
As an advocate for disability rights and overall inclusion, Melanie's history & career include presenting her connection(s)—as a woman with both physical and non-apparent disabilities—to a wide range of audiences. She's a 3-time Easterseals Disability Film Challenge Winner, an adaptive yoga teacher, professional speaker, and works as on-air talent in adaptive fashion at QVC. In 2025, she launched her podcast platform "Disability Reality Media", which she’s taken to Sundance, Tribeca, and Reelabilities. Artists she's interviewed include Gerard Butler, Steve Way, Rose Byrne, Marissa Bode, Jillian Mercado, and more! While political advocacy was never on her intentional professional path, one of the highlights of the last year included working with the AAPD (American Association of People with Disabilities). Melanie participated in the “Disability Power on the Hill Day”, speaking on raising the income asset limit for people with disabilities (among many other proposed bills and topics). Nothing means more to Melanie than her work, along with her community, as she truly connects with the notion that we are stronger together.
Follow Melanie @whereswaldman on Instagram
Show transcript bit.ly/3UKUymI