The Pillow Writers
Chronically Complex
The Pillow Writers are an international ME/CFS writing group. They are a very friendly online group that meets to share thoughts and feelings on any topic, including, but not limited to, experience of chronic illness. They encourage a wide range of writing and have several different types of meeting each with a different emphasis. Meetings take place on Sundays, Mondays, Thursdays and Wednesdays. . Steven and Jaime sit down with Pillow Writers, Bobbi Ausubel, Ann Greenberger, and Laila Solaris to discuss the group's first anthology, Near-Life Experiences. This episode also includes...
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Cynthia Adinig
Chronically Complex
Cynthia Adinig is a marketing specialist turned Long COVID advocate. She is the co-founder of BIPOC Equity Agency which is a diversity, equity, and inclusion agency with a focus on healthcare, policy, and research. She is a board member of SolveME, and a steering member of the Long COVID Alliance. She has testified on Capitol Hill on Long COVID and racism, and has been featured in TIME, The Washington Post, USA Today, and NBC News among others. Cynthia discusses her journey with Long COVID, her life in advocacy, and the work she's doing with BIPOC Equity Agency.
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David Tuller
Chronically Complex
David Tuller obtained his Doctorate in public health from UC Berkeley. He is a senior fellow in public health and journalism at UC Berkeley’s Center for Global Public Health. He was a reporter and editor for ten years at The San Francisco Chronicle, and served as health editor at Salon. He has also written articles about public health and medical issues for The New York Times and the policy journal Health Affairs. Since 2015, he has been investigating scientific, methodological, and ethical problems with research on myalgic encephalomyelitis/chronic fatigue syndrome. His ongoing...
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Laurie Jones
Chronically Complex
Steven and Jaime sit down with #MEAction's executive director, Laurie Jones, as the end-of-year fundraiser winds down to a close. Laurie has years of experience working in non-profits and in the arts. Prior to joining the #MEAction team, Laurie was the Director of Impact for Unrest, using the film to educate and advocate for those in the ME community. She has served as Programs Director at Brave New Films, worked on the Why Poverty? film campaign and fundraised for United Way of Metropolitan Chicago. She has a BA in Production Studies in Performing Arts from Clemson University, and an MA in...
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Ryan Prior and The Long Haul
Chronically Complex
sits on #MEAction's board of directors. He is a journalist for CNN, a filmmaker who co-directed the documentary , and author of the newly released book, . He founded the Blue Ribbon Foundation to raise awareness for ME/CFS, and was recognized as ProHealth’s Advocate of the Year in 2014. He is a five-time Stanford Medicine X ePatient Scholar, and in 2021, he was named a Journalist Law School Fellow. We discuss The Long Haul, now available for purchase, and many topics spanning Ryan's career and life with ME. Want a chance to win a free copy of Ryan's book? Check our post wherever you...
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Mayo Clinic
Chronically Complex
#MEAction has partnered with the Mayo Clinic to discuss treatment, research, and improved community engagement for people with ME, so for this month's episode, we sat down with Mayo Clinic doctors Ravindra Ganesh and Stephanie Grach. Dr. Ganesh serves as the practice chair of Integrative Medicine and Health and Medical Director for the Post COVID Care Clinic, as well as on the General Internal Medicine Research Committee. His research is in Post COVID syndrome, treatment of COVID infection, and fibromyalgia, ME/CFS, and POTS. He is involved in education both as a preceptor for the Mayo Alix...
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#MillionsMissing 2022
Chronically Complex
is a global campaign for myalgic encephalomyelitis (ME) health equality. We demonstrate around the world for equitable research funding, clinical trials, medical education and public awareness for ME. With this annual demonstration just around the corner, rather than having one guest, you'll be hearing from several of the fine people at #MEAction as we prepare for our protest in Washington, DC on September 19th, 2022. In this episode, you'll be hearing from co-host and Director of Scientific and Medical Outreach Jaime Seltzer, US Advocacy Director Ben HsuBorger, activist and consultant Terri...
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Fiona Lowenstein
Chronically Complex
Fiona is an award-winning independent journalist whose works have been published in The New York Times, Vox, The Guardian, and many other publications. In 2018, they founded , a queer feminist wellness collective and events series, which has become a grassroots patient-led health justice organization. Then in 2020, they co-founded Body Politic’s COVID-19 support group which serves over 11,000 COVID-19 patients. Most recently, Fiona embarked on a book project — — now available for pre-order. Follow their incredible work on and @fi_lowenstein.
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Meghan O'Rourke and The Invisible Kingdom
Chronically Complex
Meghan is a graduate of Yale University, a New York Times bestselling author, a poet, essayist, and memoirist. She worked as an editor at The New Yorker, Slate, and The Paris Review. Her work has been featured in The Atlantic, The New York Times, Harvard Radcliffe Institute, The New Yorker, Scientific American, and The Wall Street Journal. Her written works include Halflife, The Long Goodbye, Once, Sun in Days, and most recently, she’s put out her brand new book, The Invisible Kingdom: Reimagining Chronic Illness. Steven and Jaime discuss her latest book as well as her experience as a mother...
info_outlineThe Pillow Writers are an international ME/CFS writing group. They are a very friendly online group that meets to share thoughts and feelings on any topic, including, but not limited to, experience of chronic illness. They encourage a wide range of writing and have several different types of meeting each with a different emphasis. Meetings take place on Sundays, Mondays, Thursdays and Wednesdays. Click here for more details.
Steven and Jaime sit down with Pillow Writers, Bobbi Ausubel, Ann Greenberger, and Laila Solaris to discuss the group's first anthology, Near-Life Experiences. This episode also includes readings by the guests, information on how to get involved with the group, their process as writers, and so much more.
Pillow Writers Anthology 1: Near-Life Experiences is available now at Amazon in e-book, print, and audiobook formats. All proceeds from the sale of this book go to #MEAction.
Free Giveaway!
One lucky winner will receive a free paperback copy of the book (limited to US, UK, Germany, France, Japan, Canada, and Italy), and another winner will receive a free copy of the audiobook (limited to US & UK).
To enter:
- Listen to the episode
- Email podcast@meaction.net by December 15th with "Pillow Writers Giveaway" as the subject heading.
- Please indicate whether you'd prefer the audiobook, paperback, or either version.
- Please include your name, and if your preference is for the paperback, please list your home address as well so we can have it delivered to the winner.